Fill Out Your Profile to share more about you. Learn more...
Webinar: Corrective Breast Reconstruction: Getting the Results You Want Join us July 9, 2024 at 6pm ET. Register here.

CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

Options
16791112533

Comments

  • octogirl
    octogirl Member Posts: 2,434
    edited July 2015
    Options

    I am SOOO glad it is Friday!

    Italychick, I think the call to come in with no info would put me smack in the middle of Crazy Town!

    Hope all have a good weekend!

    Octo.

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited July 2015
    Options

    Had to share my animals too.

    This is my old guy that isn't doing too well. His name is Baylee....he will be 16 at the end of the year.

    image

    This is the next oldest in line. Our cat Chloe....loves watching the Animal Planet channel.

    image

    And our youngest Jax. He is one big goofy dog.

    image

    All of them are rescues. We got Jax after we lost our sweet girl Abbey.

    image

    Abbey was also a rescue and didn't like to be alone. She went through a lot in her life before she came to us. DH used to take her to the shop. When we first got her, she didn't like men. My DH cured her of that pretty quickly.

  • PoppyK
    PoppyK Member Posts: 1,275
    edited July 2015
    Options

    Suladog, Thanks for all of the information. We have a huge backyard with 6 ft wrought iron and block wall fencing. It didn't deter our dog Nitro from jumping into the neighbor's yard to visit their dogs, swim in their pool and eat their dog treats. I don't think I'm up for another escape artist. Since when the boy goes away to college the dog will stay home with us, I need to find a dog that works for us. The prey drive is also a concern. In addition to our guinea pigs, we have wildlife in our back yard: skunks, opossums, rabbits, squirrels, quail and so on. Our lab used to just catch a critter and carry them around. She would release them and off they would go.... except for the skunks.

    Tomboy, Thanks for the car info and offer. We are not ready for these boys to have a car yet. (Is any parent really?) They need to demonstrate some responsibility. Until the oldest gets himself together, we aren't even encouraging this step. Your car would be an ideal "beach car"!

    I love all of the animals and pets! In a house full of teens, it's so nice to see faces that are happy to see you!

    Italy, I would want to know why I need an appt. Is it a follow up to see how you're handling SE?

    I'm going to my cancer center twice a week to visit the lymphedema specialist and work on my arm range of motion. There is one elevator to get to the cancer center. Every time I visit, some one starts asking me questions about cancer, chemo and so on. I'm by myself, so they know I'm the patient... plus I have chemo curls. At first, I wasn't sure how I felt about this. But I've decided that if I can share what I've learned from my experience (and this board) to help someone else, I should do it.

    Regarding those boys in the Crazy Town photo: I want to talk to the guy on the right with the star tattoos around his nipples. I think he would be a good source of info for the ladies who are interested in getting nipple tattoos. ;-)

  • octogirl
    octogirl Member Posts: 2,434
    edited July 2015
    Options

    hmm...I've been starting to think about getting a nipple tattoo.....

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited July 2015
    Options

    My guy Jack- helping me celebrate

    Beppy- I remember long ago and far away on another thread you told me my Jack reminds you of your Baylee when he was a pup. Jack is 5+ now, but still acts like a puppy. Today I closed on my new house and we went for a celebratory run (well, he ran, I walked) on the beach. Middle of summer, beautiful day, and no people. My favorite! Not even footprints. I think we must have taken the exit away from Crazytown today

  • PoppyK
    PoppyK Member Posts: 1,275
    edited July 2015
    Options

    Jackiebird, That sounds perfect!

  • Jackbirdie
    Jackbirdie Member Posts: 1,617
    edited July 2015
    Options

    Click on the blue link to take you to a short YouTube video!

    Thanks! It was absolutely perfect.

  • Tomboy
    Tomboy Member Posts: 2,700
    edited August 2015
    Options

    Thanks for taking me for a walk, Katydid!

  • Italychick
    Italychick Member Posts: 527
    edited August 2015
    Options

    asked today, they told me it is a follow up appointment. I hope that is all it is because they can't seem to get their act together right now

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2015
    Options

    What a great walk and such a great reason for it Katy! Congratulations!

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited August 2015
    Options
    Katy, Yes, your dog does look like my Baylee when he was young. One of these days I'll go through the old photos and dig one out. Love the YouTube video!!
  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    Slow,

    I love all your animals.....especially the guy who knows how to drive a fork lift!!!! He could easily get a job here in Wine country. Baylee has beautiful eyes. What a great group you have

    Poppy,

    Sounds like prey drive could be a serious issue for you guys. Patsy's never killed anything, but Sula on the other hand.... Yikes. She'd bag anything g that moved and there was no catch and release.. It was catch and eat or catch and dismember.

    Included here is Patsy and a cat... She was on a leash so no cat was harmed in the taking of this photo.

    image

  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    poppy,

    I meant to ask you which part of California do you live in? We're up in Wine Country

  • BookLady1
    BookLady1 Member Posts: 196
    edited August 2015
    Options

    love this place - the site, not Crazytown. Looks like our lovely pets keep us from staying there too long. I know my dear Abby Airedale kept me in the moment! May be time for another dog to rescue me as my "baby" is off to college next month...I'm on the edge of town... Lindaimage

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited August 2015
    Options

    Suladog, The question is what would Patsy have done if she wasn't on a leash??!! haha My older dog is a rat terrier and he will chase just about anything that moves. We've always kept him away from our cat. Now that he is older and can't see or hear too well, our cat is getting braver. But once he realizes the cat is there, he still chases her....he just can't find her!!! She really takes advantage of him now.

    Booklady, Welcome to our group of crazies!! So glad you joined us. What a nice looking dog!! I've always loved that breed. I had a difficult time when my DD went off to college. That's a whole different kind of crazy!!


  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    Slow,

    Ooooooh that's a nasty proposition that's why she's not off the leash. At our house in Santa Monica Suka ate possums, squirrels, pigeons etc, what ever she could catch in the back yard

    Booklady,

    What a great Airedale they're such cute dogs, and great personalities. Yes, our fur friends get us through a lo

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited August 2015
    Options

    Suladog.....the same with my rat terrier. When we first moved here 13 years ago, there were homes being built all around us. Our yards didn't have grass yet, so my rat dug out of the fenced yard. I was looking all over the neighborhood for that dog, and I was sure he must have gotten in the canyon. Being so little, I was afraid a coyote would get him. As a last ditch effort, I started walking the neighborhood. The homes behind us were being built at the time. I was asking everyone I saw if they'd seen a dog. Well the construction workers flagged me down and said he was on the upper floor of one of the homes being built. Seemed rather suspicious to me. So I reluctantly started up the stairs. They kept saying, "We are telling the truth, he really is up there." In my mind I'm trying to think how I would defend myself....just in case...wondering how well my keys would work as a weapon. I get to the top of the stairs, and there's my dog running around on the roof, just as happy as can be. The little monster!! Needless to say, wire went around the perimeter of our fence. He liked nothing better than to run free!!

    EFT

  • PoppyK
    PoppyK Member Posts: 1,275
    edited August 2015
    Options

    I'm in Riverside. Inland SoCal for those not familiar with Cali. We have open hills behind our property and a small arroyo between our house and the neighbors, so we see a lot of critters. Our current dog is now blind, so the wild animals go where ever they want in the yard.

  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    Poppy,

    We have tons of critters up here in Sonoma... And plenty of possums in Santa Monica. Sula once killed a possum in the dark while out on her flexi leash. That dog was a pistol!

  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    ok, I'm about to become the mayor of crazy town. I stepped into the HER2+ forum ( I'm HER2+ among other things) where there was a bunch of reports talking about how among mets situations it was more common for HER2 + people to get brain mets. The papers I read, all of them ASCO docs scared the living shit out of me. I'm no expert in reading medical papers (yet) and so after a while I kind of got the idea that yeah for people with brain mets more of them are HER2 + but that's looking at all mets situations not all situations in general, and not all HER2+ People automatically get brain mets . Why don't these doctors make their papers clearer.

    Ayiiieeee,

    I have spent the better part of the last hour freaking out. Earlier I thought a blood blister was thumb cancer so you guys feel me right? I know I'm gonna bother my MO about all this next week I can't help reading everything, I just need help translating it thus the MO chat.

    Sooooo, I'm here for someone to throw a bucket of cool water on me and talk me back off the ledge. I know you guys can do it

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited August 2015
    Options

    Suladog, Something to keep in mind. Triple negative also has a higher risk for brain mets..... you are 25 years out from your TN diagnosis, and as far as I can tell, your brain is doing great!! :)

    I stay FAR away from statistics. It's a bullet train to Crazy Town for sure.

  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    Slow,

    Thanks.. I thought about that. My husband read the articles to and he was able to parse it out. Back in 1990, we saw no stats, no articles, there was non"easy research" available on Lord Google. The brain thing scared me because my grandmother who I was very close to, died of bc in her late 50's. She found a lump and then they "watch edit" for two years and then it went to her brain. That has always freaked me out. I was 8 and very devastated . One day she was sewing my veil for first communion and the next day she didn't know who anyone wa

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited August 2015
    Options

    It's no wonder you're so terrified of brain mets. I think about it too....especially with having a tn tumor and a her2 tumor. Back in 1990 the info wasn't available, so you didn't have to worry. I think now we know too much. Denial works very well for me. You have given me a lot of hope knowing you're 25 years out. There's no reason that can't happen again for you.

  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    Slow,

    Thanks and for you also...25+ years for everybody!! My husband didn't tell me what the doctors report on me was back in 90 the "poor prognosis" thing until way later. They know so much more now. We all know too much! And yes, 25 years out and my mo says that's done it for me. She said with TN after 3 yrs and no problems the risk gets considerably lower each year, so you're safer year after year. After 8 yrs they consider you "for real cured" something I never thought I'd hear a doctor say.

    Anyway, hope you have a good weekend. We have people coming over tomorrow evening so I'll be cooking a greT part of the day.

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited August 2015
    Options

    You too Suladog!

    You'll have to tell us all about your menu. Have fun and I hope you have a restful sleep!!

    Love to all!

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2015
    Options

    I have to admit, I am not in the we know too much camp, but then, I work in the research field. Not currently a researcher myself, more of a manager, but I work with many (including some doing bc work) and I read a lot of research studies as part of my job. I still wish they were easier to read and I think we'd all be a lot better off if scientific results were more accessible to lay people (most scientists do not know how to write, really, but that is another story....).

    Doesn't matter though: no matter how much I know and learn, I still seem to end up in Crazy Town, so maybe it is a moot point Actually. I was there last night. I finally got up the nerve to look at myself in the mirror: I had my nipple removed in addition to Lx (because of tumor location right below the nipple). The incisions for the LX and SNB don't look bad (in fact, they aren't all that visible because of their location and the fact that I have large breasts): but the new skin (bs did a bit of oncoplasty) where nipple was before freaked me out. It is a bit pinkish, and of course weird looking without the nipple, and I spent all afternoon convinced that the pink meant it was horribly infected and that everything had gone very wrong. Started reading and found instructions about everything one is supposed to do to prevent infection half of which I haven't done (for example, somewhere I saw a recommendation not to floss when brushing one's teeth as it increases chances of getting an open sore: I am quite are no one told me this!).. Got really worked up, but then hubby got home from work, took a quick look, and told me it looks less pink than when we were in bs office for the post-op (apparently, he did look at them when she did). Had a drink, let him cook me dinner, watched the game, fell asleep still in crazy town...

    I can't imagine what the first look in mirror would be like for those who had the entire breast or both removed. I felt like a huge wimp.

    This morning I feel better. Back to the outside of crazy town hanging with my guys. Time for a walk.

    Sula, my father and stepmother live in Sonoma. She was born and raised in the area, her father oversaw the viticulture aspects of one of the larger, more well-known wineries. They moved back to Sonoma when he retired. Sadly, he now has dementia (91 yrs old) and is in assisted living, but visiting is still a fun time: Stepmom and I both love to cook, eat and drink wine, and she has a very nice cellar. So I'd love to hear about your menu also!

    Hope all have a good weekend.

    Octo.

  • littleblueflowers
    littleblueflowers Member Posts: 391
    edited August 2015
    Options

    Suladog, I will never forget the graveyard tone in my nurse navigators voice when she told me I had case of the TN 5 months ago. My favorite cliff to look over is comprised of the terrifying possibilities on this site too. Just don't have the self control to NOT read them. Especially with my 2 week PFC check up comming next week...Ok folks! Aaaaannnnd there's the ledge....

  • suladog
    suladog Member Posts: 837
    edited August 2015
    Options

    Littleblu,

    Oh I hear you!!!! I've got a neighbor who always has to tell me about her sister who had the same MO at UCSF that I have, had the same sort of cancer as I have and is now Stage IV, I just haven't been able to tell he to STFU. I just try to avoid her on the running path in our neighborhood, she;ll always stop me when I'm out there and ask me how I feel, how I'm handling stuff...Bitch, I'm running here, you figure it out.

    Sorry for the outburst. There's a breast cancer relay going on few blocks away, saw them when I was out on the track this morning, can't miss all the pink and I gave them a wide berth, I think if anyone had said anything to me, I'd have clocked 'em

    Slow, I'm making a gluten free Danish Blue and Fig tart , with a fig balsamic glaze, among other things. We earn our living as screenwriters but I've always cooked as it's my hobby. I started cooking Indian food 25 yrs ago at my MOs suggestion since I was a vegetarian when I got diagnosed and was barely eating anything. My SIL is an Indologist lived and worked in India, she started me off and I've been cooking it ever since. Lately I've been doing magazine pieces, which just sort of happened and they actually pay me for them so tonight I'm doing the tart for a piece I have to turn in on the 22nd of Aug. The magazine sent me imported Danish Blue cheese to work with so I'm doing a savory tart. Friends are coming in to sample.I made some home made ricotta, some other veg stuff too and for dessert some of this I made for a previous piece, buttermilk blueberry ice cream. My husband takes all the pictures, plus he's a champ cold capper.

    image

  • Tomboy
    Tomboy Member Posts: 2,700
    edited August 2015
    Options

    I want to know the mag! Can you give a good place to learn those recipes? My boyman is very fond of the creamed spinach version (patek paneer?) of india, and naan, and I like punjab choley. And chili lime relish! And many other things!

    OMG! Taste treat! I was at my grocer, and on fridays and saturdays they do taste testing, sometimes I stop. So there was an older indian lady, with bindi and everything, so pretty! And so she had this amazing taste treat! It's a 200 year old scandinavian recipe made by the amish people of winsconsin, and I think I was moaning as I ate it! So delicious! It's called Juusto, it's a flat and they described it as squeaky! cheese. Scandinavians called it "Ostbrod" which means cheese bread. You serve it warm. Deliscious! I would use it instead of the paneer, I don't care for that. So good, I think I better go get more!

  • Tomboy
    Tomboy Member Posts: 2,700
    edited August 2015
    Options

    Sula, that looks so good, I want some NOW!