My Husband, My Life, My Love, My Family, My Cancer
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Checkin in. Scans were all stable and I’m pleased with that.
Still in Houston and I’ve got one more lunch with friends before heading home on Friday.
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Well, darn it all with this back pain. I was really hoping I would be able to keep going with my work schedule but with the mobility restrictions my primary care put on me I'm not able to. I'm on a short term leave until the 20th or until I can be cleared by neurosurgery. I was trying to avoid that but am trying to make the best of it. Today was beautiful and I got out for a walk and sat in the sun so no complaints there. Sunshine99 mentioned getting her drivers license renewed and that reminded me I need to get a Real ID drivers' license since I don't have a passport or anything else like that. I'd rather drive almost anywhere than fly but in the event I need to I should get that done.
Mae - congrats on stable!
Also congratulations to all the anniversaries out there :-)
Shanagirl - my profile picture carried over from before and I'm just leaving it. Like you, I don't have an option under Account and Privacy Settings to change it either.
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Hi Ladies. Good to see everyone! Had a lazy past two days. I need to run to Walmart and I just can’t push myself out the door. Today is my sleeping day. I have the house to myself so I just rest all day long. I had a nice visit with my son tonight. I hadn’t seen him in a little he’s been going through some girl stuff and it had him down. I could have hugged his head off I missed him so much. I’d like to kick this girl in the shin. Mama bear on the prowl.
congrats Mae for stable. Sorry emac about your work load changing. Hats off to you for still working. No way I could do that.
I hope you get your avatar straightened out shana ! Hugs and love to all.0 -
Well done @illimae - must be a relief! Enjoy your time with friends in the big city :)
I think my pelvis adjusted itself two nights ago - I felt a thonk when I rolled over, like it used to feel when the chiropractor would adjust me (and I cant go now) and everything feels like its going the right way and less pain/greater stability when walking. Ive had problems on this side for decades and was wondering if it ultimately was a misaligned pelvis issue. Who knows - just hoping it holds!
Sun is out here after three grey rainy days - looking forward to getting into the garden to pull some weeds!
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Sondra~ I hope your pelvis cooperates with you and stays in line. I have good days and bad with mine. It seems we all share the same aches and pains at times, all have falls. Er visits . We are really in this stew together. I’m sending hugs to you and to everyone this morning. Have a good day.
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Happy dance Mae! Love to hear good news.
emac - along with Mel, I’m so impressed that you can work. I wonder if there’s been a study on age at time of MBC dx and how it impacts ability to work. No way I could work but then again I was close to retirement age (64) at dx.0 -
Mae- Congrats on stable.
I am getting nervous for my scans- coming June 5. I am involved in a Zoom group of Stage 4's from my local area. Not all are Breast Cancer. We have kidney cancer, uterine, melanoma, etc, but all are Stage 4 Advanced cancer. Several are really struggling right now. Progressions. Treatment changes. Being told they are running out of options. I know I shouldn't compare myself to them. Just because they are progressing doesn't mean I will anytime soon. But….. I am in the Group for a reason…. I am Stage 4 too. My turn will ultimately come too. It is sobering.
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Mae, I am so happy to hear you are stable.
Emac, I hope the pain gets sorted for you.
Mel and Sondra, may less pain rear its ugly head for you as well.
I did not out yesterday for the mall walking, setting a more strict time today. Taking the bus to the mall of course, no more walking there. Little voice wanted me to take my cart but not chancing anything. PT wise I have completed about half the leg work, onto 15 sit to stands which I will do now, legs feel fine with the 15 sit to stand increase, unsure what number I should stop at but I will see. Laundry is in machine, breakfast will be some kind of egg and possibly rice this time. I have not pulled anything out of my freezer. I still have a box of stuffing so will make that up to combine with beans and beef, thinking that I would put it on top, who knows. Peanut butter will be purchased from Amazon this time as I have 10.00 from surveys and such, will be practically free.
In everyone's pockets sending all the healing thoughts I have.
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Candy~I’m in your pocket while you wait for your scans. I really hate that for you and know the waiting sucks on both sides before and after. I’m hugging you in support. You can’t help comparing but. Everyone is different!
Mara~good to see you today, hope you get the things done you planned and pt is going well. My challenge would be doing the exercises myself alone. You’re something else.
waving hello to Goldens.0 -
Sunshine99 I was asleep for the endoscopy. It’s a quick 15 minute procedure. I didn’t know beforehand that they would stretch she told me afterwards it was constricted.
Zucchini bites recipe I got off google and now I adapt it. Shred the zucchini-squeeze moisture before cooking. You mix an egg garlic onions etc . I put basil breadcrumbs and whatever else I want a little cheese if you like. They have recipes to bake or fry.
mae congrats on stable!!!!Did some weed pulling and planting today. I have seeds soaking beans and peas.
Tanya
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Tanya~you’re making me hungry!!!!! Hope you’re doing good. Sending hugs.
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Shanagirl - at the bottom of this page (under Quick Links, click on "Your Breastcancer.org profile". You should see an edit button on the right next to Account Settings. Click on the edit button and you should see where you can edit your profile picture.
Illimae - yay for stable Mae-ble! (that was terrible, but I couldn't resist)
There are a lot of great looong wedding anniversaries here! I love it!
Mara - great job on all the PT!
SondraF- I hope your pelvis "thonked" itself right back into place and it lasts
Emac - I'm amazed that you can work as much as you do. I hope your pain resolves.
Busy day here. We had to drive about 2 hours for an appointment for DH. We made a day of it and had lunch and did some shopping we don't have in our little town (Harbor Freight, Sam's Club, and Walmart- very exciting - lol)
Waving hi to everyone!
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Tanya, I'm glad to hear she could stretch your throat. It should help.
Sondra I quit seeing chiropractor and asked pt to give me exercises for realignment. That's helped. Should be some online you could follow if hip gets kinky again.
Yay for stable. Good going Mae.
And Candy, June 5th is a ways off. But I've got anxiety myself and I won't have scans till end of June maybe. Every 6 months but I've been bummed with MO lately. He says SO LITTLE. He better not be upset to hear I visit Dr Google.
My GP has become a pain in the tush. Gotta replace him. UGH.
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In everyone's pockets of course.
Tanya, you were busy in the garden, wish I could grow things here but no yard or balcony. Those zuchini bites sound really good. I may see the cost of a zuchini at the grocery store.
SeeQ, that trip for lunch and shopping sounds fun to me but it does not take much for me.
Planning on going mall walking again. I incorporate some of the money I have not used toward groceries because of surveys etc and am budgeting more bus rides for myself to walk places. Planning to leave around 10 am here after a breakfast, do the legwork of PT now. I have found a plateau at 15 sit to stands so will keep it there until I feel stronger. No need to cause major issue. I may also be shopping with DB which usually is a mall walk or Costco for them which is about the same steps anyway so could be a good day.
Laundry, surveys and breakfast will feature, thinking about poaching eggs or making a sausage omelet and cheese in the sandwich maker. Lunch or dinner will feature beans of some sort. I did bad yesterday eating peanut butter as dinner again. I can't eat much but still not a good meal.
Hope all have a good day as well, pockets for scans, appointments or SE and pain issues as well.
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I've been up all night with insomnia so I'm up early. My MO called last night and I talked to him about my back pain. He agrees that getting in with neurosurgery is a good idea and that we could consider another round of radiation to T8. I've already had that area radiated once so I'm not sure how I feel about that. I can't remember what I was told the last time about the surrounding organs secondary exposure but I would worry about that with a second round. The RO I worked with before has retired so this would be someone new.
I do like to be busy and productive but I continue to work because I'm 45, single and was not prepared to retire this early. I have some savings but it's hard to know how many years to plan for. LOL. From the research I've done it would be tight to pay my bills on disability and I need my medical insurance. I know there are threads on this and I've read through them but I work mostly because I feel I need to and it's good for my mind and emotional health. I can make ends meet working part time so that's what I do and that helps.
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Emac, I totally understand the retirement thing, in my case it was a forced retirement and I also have savings from a house sale backing me against low disability. I try very hard not to draw from it to make it last longer. Have another trust I cannot touch as DB is the administrator. That is why I do surveys, games etc. Want to spend as little as possible on groceries as well. I envy you the ability to work as well. .
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seeq, call me a geek, but I love Harbor Freight. We don't go often, but if DH needs a specific tool (like the thingy for threading pipes) it's the perfect place to go.
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Saw my oncologist today and am celebrating good scans and lowering of tumor markers! She seemed really pleased. She emphasized the importance of continuing to exercise even if it’s really exhausting. She said if I stop, I’ll lose muscle mass and everything will get much worse. So, I’ll be channeling Mara and trying to move every day. I got Trader Joe’s chocolate coffee ice cream sandwiches to celebrate.
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AJ~ congrats!!! That some good news. Way to go enjoy that treat to celebrate. That’s wonderful. Have a great night celebrating your great news. Hugs!
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Aj - Great news! Love the ice cream sandwich celebration idea too.
(I'm so glad that you posted earlier that you had gone from Akj to Aj. I would not have known.)
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threetree~welcome to the thread , always nice to see a new face. I hope you’ll come bs k and become part of the group. Always room for more In The living room. Hope all is well with you and your days.
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Hello and thanks, Micmel. Not sure how often I might stop by, as ever since the change to the new format, I just haven't felt like visiting and posting much. Sadly, this forum just isn't what it was, and I can't get nearly as excited about it as I was. When I do read the forum, however, I will be sure to read this thread and maybe make a comment or two. I love the people on here, just not the new site.
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Thanks everyone!
Seeq, that wasn’t terrible, I laughed
Driving home tomorrow morning and just in time, DH has had it with the noise and traffic.
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Congratulations AJ always good to celbrate good news with a treat. I also console myself with a treat if the news isn't too good, after blood draws, scans , treatment or any time really :)
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Mae - Hooray for stable, and glad to hear that you are seeing friends.
Sondra- Hope your pelvis behaves! It took a right hip replacement to put mine in it's place.
Emac- I have a lesion at T8 as well - the largest of my spinal lesions. Just had MRI of full spine and it doesn't seem to be impinging on a nerve, but something is causing my pain and I don't want to keep taking the pain meds they are offering me. I hope the neurosurgeon has a good solution for you.
Threetree - good to see you here. I completely agree about the difficulty of the new site. My motivation to persevere was getting back to this thread and seeing everyone. Many days this is the only thread I read.
AJ - Congrats on the good news. You are so right about celebrating the victories. I think we need something to balance out the endless rounds of uncomfortable or painful tests and procedures, sitting across from a grim-faced MO and the myriad of negative things that are thrown at us. Little treats are small expressions of love for ourselves and we so deserve that.
For those with upcoming scans, I feel your anxiety. Mine are July 5 and I have my stash of Xanax ready and waiting.
Hugs to Mel and anyone I might have missed and would someone please pass the ice cream?
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Morning , Coffee cheers to all the stable scans Mae and AJ. Agree we all need to celebrate ourselves and each small victory.
Positive vibes to everyone who has upcoming scans my next is in June ,fingers crossed for stable.
@emac877 Sorry to hear you are still in pain. Hoping neuro consult weighs in with some options. lack of sleep is awful and then to deal with pain too….ugh.
@sondraf So glad to hear the pelvis has calmed down for you!
Waving hi to all ,I read along daily and always enjoy the warmth in Mel"s living room. Looking forward to my daughter coming home this weekend and a nice family dinner together. Wishing all the Mom's and pet mom's a blessed and Happy Mother's Day! Enjoy spending time with the people, family, friends or pets that we all love.🌺
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Good morning everyone! Had my vertebroplasty on T9 yesterday, and am relieved that it went very well. I was so anxious about it, and one of the two wonderful nurses gave me some meds right away "just to get you started", and I barely remember much. The twilight sedation felt like I'd had a good catnap and then became alert and aware after it was all over. Nothing like my bone biopsy two years ago, when I was completely awake and scared the whole time.
So grateful that my Mum could be there with me, she helped me get undressed and that was the first time she'd seen my mastectomy scar (I chose to not have reconstruction).
Instructions are to rest today, and to be careful to not lift anything heavy for the next 6 weeks. May take 1-2 weeks to see how much pain relief it will give me overall, but I'm very happy that my vertebrae is now shored up and won't "smoosh" anymore (my MO's words, she made me laugh).
Thinking of you emac, and hoping something similar, if not the same, can be offered for you.
Love to everyone here in Mel's living room, I have chocolate chip scones and rosemary honey biscuits to share if anyone would like! ❤️
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@tanya_djamila look up a zucchini slice recipe - sounds similar to what you have going on, but you can eat it hot or cold and its a bit more substantial. Freezes well.
@sf-cakes glad that all went well for you - was always curious about how a vertebroplasy worked in theory. Hope it helps with the pain/discomfort!
Its cold and windy and grey here so I baked a small chocolate cake in order to turn on the oven and warm up the flat a bit :D I dont actually like sweets/hot drinks after 3pm, so Ill put a little coat of ganache on it now and have a slice with coffee tomorrow morning.
Sort of managed the pool today but Fridays are always insane for whatever reason - school swim lessons and everyone seems to come out of the woodwork to swim so it gets tough to do my exercises at the end of the pool and fit in some laps. PT progressed my pool exercises and I may have done a bit too much on Tuesday and was still pretty tired. May switch to tue/thur schedule as I suspect Fridays have more of the work from home crowd.
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Hello ladies~ it’s a warm night tonight our ac is on for sure. I dont like being warm when I sleep. I actually hate it. So I would hang meat in our living room I like it that cold. Today was ok ran a few errands took something back to Walmart. I’ll tell you that place’ customer service is always like a zoo. Only one cashier half the time and they just don’t care. I dis like going there very much. But it’s over. I have to do a few more errands tomorrow. I try to space them out to get me out of the house more frequently. I hope everyone is doing good. Or least ok. Hugs and love to all. Sleep well
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mel, I got a chuckle out of you hanging meat in your living room - hopefully it's not that cold in
Mel's Living Room." haha The hanging meat might throw off a few people, too. 😆Sorry Walmart was a pain. I actually had a good experience at the DMV this week. Had to renew my Driver License and needed to go in for a vision test. I made an appointment and brought the DMV vision report from my optometrist. I only wear one contact lens but can see well enough with just the one in my left eye. I knew I wouldn't pass the test at the DMV, but they did accept the report from my optometrist. Yay! License is renewed, so that's over with.
The three people I encountered were all friendly and helpful. It was that way the last time I was there to get my "Real ID." I just think of the movie "Cars" where they had sloths working at the DMV. I sure the DMV was thrilled with that. On a funny note, I was going to use my debit card to pay the renewal fee (under $50.00) and the man behind the counter told me that there was an extortion fee for using a debit card. Made me laugh and the fee came to 41 or 47 cents.
I've ridden the Peloton bike DH got a couple of days ago. Aside from the seat being uncomfortable, I really like it. I ordered a cushion for it, so hopefully that will help. We probably won't pay for the subscription service although it's possible that our insurance will cover some or all of it. Maybe they have a discount for AARP members.
Happy Friday evening. I hope everyone has an uneventful weekend.
Carol
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