My Husband, My Life, My Love, My Family, My Cancer
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I wanna play “guess the puppy”!
Great Dane?
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Hi everyone,
Phew, it has been busy here on this thread! Met with MO this morning. It seems my scan showed a mixed response, meaning bone mets improved and liver mets got worse. The plan is to start Xeloda as soon as I can. I have been referred to an Interventional radiologist to see about the Y90 procedure. Also getting referred somewhere for clinical trial with drug that targets the AKT1 mutation, which I have. So, I feel good about the plan. We'll see how it goes.
Thank you all for your sincere support around this. I sort of suspected it, but progression is always a blow. I did have a mini meltdown about it; wondering things like "Who will make sure my grandson's favorite pants are clean?" Who will cook? Will I get everything cleared out and my affairs in order in time" Will they be OK? Painful stuff, and I keep repeating the mantra "It is not today; today is OK, enjoy today"
Gutted by the news of Dani. JUST NOT FAIR.
I will try to dig up a prom photo this weekend.
P.S. Runor- GET THE PUPPY!
Love and my best to each of you. MJH
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A Blue Chow? We had one years ago, He was awesome! Rare!
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Runor:
GET
THE
PUPPY!!!
I did.
Puppies are the best medicine whether you’re sick or not. True story.
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MJH~ I have had everyone of those feelings. Every single one except I don't have a grandchild yet. It makes me almost sick thinking about something like this and knowing what's going on inside our bodies. I have heard excellent things about Xeloda. It seems to work wonders for some women. I hope that is the case for you so very much. There are no words to express the sadnesses surrounding Dani's passing. I felt detached and out of body when I was reading it. As i was hoping it was a dream of some sort. MOM fought so hard to help in every way possible. She was up against pure evil. They are in my thoughts every other minute. I am sorry for your progression. I'd like to kick cancer in the arse.... much love my friend ~M~
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oh Magda~ look at that precious face!!! I just want to snuggle that lil guy. What his name? Or her name.? Awe. Sweet baby face!!! I totally love the deep color and the white lil parts. Precious babe! See Runor how can you deny that face?
My second guess is. Grey hound ? ~M~
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Here is one of my baby boys. He’s a lot of fun and everyday makes me laugh so hard. He plays with toys. I’ll admit sometimes he stinks. But who doesn’t lol. Get the dog. Love ~ M~0 -
My Rose is a Schnoodle - schnauzer/poodle mix. She’s quite a character, and hasn’t slowed down much even at age 11 now. She needs grooming, I have a mobile groomer coming for her Tuesday morning. When she’s groomed you can see her heart - which belongs to Mommy (me).
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Magda Oh that puppy. I my family had a half pom half poodle mix that was exactly the same markings. He lived to 16. His name was Pierre.
MJH. Sounds like your MO Is using your genomic testing to guide your treatment. And a y90. Wow I'm impressed. I'm sure I've told you I had an extremely good response to my y90. I hope getting into the trial will be easy and fast.
I don't think my MO is planning to use my F1 report at all for my second line of treatment when it's time. I'm discouraged today after my appointment yesterday.
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MJH, I love your MO's plan. I have read on these boards that many people have a difficult time convincing their MOs to agree to Y90 because many docs are unaware of the recent success seen with the procedure. It sounds like your onc is really on top of things. Many people have seen good responses from Xeloda, so that seems like a good next step. Oh, and he is referring you to a clinical trial? Wow! It seems like everything is being covered. It is funny where our heads go when we are first hit with the reality of progression. I laughed when I read your words about worrying about your grandson's favorite pants and the cooking and clearing everything out. Those are they same kinds of thoughts that pop into my head. Why do we think of those things when in reality, those are not the most important things we do nor are they the types of things about us that will be missed most. I like your "today" mantra. Their used to be a wonderful person on these boards who had the saying, "Not today cancer. Nope." in her signifiers. It really stuck with me for its strength and simplicity. Your is now one of my favorites, too. It says so much. I hope your new treatment plans give you a remarkable response for many years. I look forward to hearing all about it.
Mags, Awwww, what a cute puppy face. It makes me want to run out and buy a dog too.
Hugs and prayers, Lynne
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Grannax, Have you thought about going to another onc for a second opinion, someone who will give more consideration to the F1 report? You don't have to change MO's. You can keep your current one if you want to, but still get a second opinion. Even if you used that other onc to walk through the report with you and get a sense of his or her recommended future treatment, it would be worth the visit. At the very least, it could put your mind at ease and let you know that your current MO is prescribing the appropriate treatments. On the other hand, it might push you to change MOs if the visit confirms your fears that your current MO is not using the F1 info or other informationwisely. Just a thought.
Hugs and prayers, Lynne
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WHAT A BUNCH OF CANINE CONSPIRATORS! Enablers, that's what you all are! And here I thought I would get sage advice. Pffft!
Ah, that pool. What a serene and lovely setting. I don't think I'd want a pool but that one is perhaps the loveliest one I've ever seen.
Those puppy eyes....evil pools of draw-you-in-love while eating your slippers and peeing in the porch.
Spoiler alert: Irish Wolfhound. Sorry Illimae.
I know I will regret it. When the two are bad and take off or dig massive holes in the garden or eat the drywall. I think this doodle ate his own body weight in drywall. We'd find him with the very inner part of his nose ringed in white. Looked like he had a cocaine habit. Big hole in the wall.
The serious news going on here is not lost on me. Love to all you ladies.
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MJH and Grannax, ditto what Lynn(50:-) said! All of what she said!
I am choosing to leave my thoughts about Dani and Mom on their thread. However, I do want to say that while I love you Lynn(50s), I completely disagree with your idea of just fading away from us. Please do not do that! I wonder and pray everyday for those that have done that. I will never be able to completely mourn their loss, or celebrate their life. I completely understand the urge to hide away, I just want to know when you are gone, so I can celebrate your life and mourn your loss...which will be huge! I am instructing someone who I love and trust to start a thread posting my end of life. I am hoping that you will go there and celebrate my life and mourn my death. Enough said.
Gracie, sending you gentle hugs!
I am sorry that anyone is having progression. Its truly sucks! I Hate Cancer! After several weeks of dealing with mil and fail, I hate Alzheimer's too! I'm not sure which is worse. These puppies!!! Second guess...a Ridgeback Rhodesian. I think that's the right name. Very few around.
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Rumor, Are you serious? Oh I'm so jealous that I can't hardly stand it! I demand picture, now!
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Great choice!!!! Great companions and very loving. Get the dog. Lol canine conspirators lol. You're a trip now are you going to get the dog????Kinda like say yes to the dress! Go buy the dog!! Lol. Much love ~M
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50's girl, bigbhome. I guess I should get another opinion. It's hard for me to understand why she would put me on another AI when the F1 report clearly says I am resistant to AI's. That's the only clear thing i thought I understood about F1 report. She really threw me and honestly i didn't follow everything
said after that.
I am also a patient of MDA, so I could go back down there when the time comes.
I've burned a lot of bridges here in Dallas in my 25 years of doing BC and MBC. I will absolutely never go back to any MO affiliated with Texas Oncology. That rules out hundreds of MO's.
For now, I think I will call F1 and speak to someone there. I've heard they are very willing to explain their reports.
Thanks for listening, I'm listening too.💞
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Runor, get the puppy
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Grannax, if you are alone for consultations, use the record function on a mobile phone if you can. Because of different language I have used it here in Spain, so I can listen again later to be sure I have understood. Know it's too late now, but it is all so confusing when you are told something, your brain is going round like a washing machine, and someone is still adding things into the tumbling motion.
Illimae, you made me laugh through tears last night, thinking about that Julie running along holding her arse in panic.
Tears and laughter, that's what this group shares, an understanding possibly that only we can share, with our ups and downs, and feeling of sure and certain "progression".
Much love
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Grannax ~ Hi darling. I can tell your confused with your doctors visit. That isn't fair at all. I would always call my oncologist assistant and talk to her (or him). And have them explain it to you in specific understanding of regular English we can understand. Not just fancy phrases and doctor speak... great idea with the phone Minnie!!!! I know I always leave there with more questions that I originally had when I arrived. Ask those questions. It's not to late. That's is what they are there for. ~M
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Lynn(50s), I hope that what I said yesterday has not offended you. I always respect everyone's choices. Selfishly, I am still wondering and praying for those who have chosen to just fade away and not a day goes by that I don't wish I knew how they are doing.
Runor, I hope you took my comments with the joking tone that I made them. I have a word sense of humor, it tends to be dark and sarcastic! Hard to judge tone from printed words. Have you read the book Finn, The Irish Wolfhound! I read it years ago, and I have wanted one ever since. Dh and I are trying to simplify things right now. His accident has become like MBC, with every Dr appt, we get more and more bad news. The gift that keeps on giving! What a trial!
I hope that everyone here will be patient with me as I go through this tumultuous time.
Claudia
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Micmel: We have matching pets.
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I have a better perspective this morning. Thanks for advice and encouragement. The good news is that she was very receptive to my question, so it did not seem to offend her. I wish I had recorded it. I did look up the combo of drugs she mentioned and is kind of a 2nd line of treatment that's used. Seems funny that I had never read about it at all on here. It's nothing new or amazing, like Ibrance, older info online.
I resolved my 😾🐕 problem. Now, I have a happy 😻 and 🐕. My cat has his domain returned to him, right beside me. The dog is contained in another room and she seems happy too. I did not step in any poop this morning. Maybe thats why my mood is better. 😃
I'm going to look for my prom pics today. My DS and family are on their way to Red River to ski. I hope I'll get pics of them in the snow.
It looks like it's going to be a beautiful day here, maybe I'll take the dog for a walk. 💞
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Fraidycat~~~.Omg yesss we dooooo! Loving that pic. I'm going to show my daughter that picture. Wow. Is he or she a coonhound ? I want to snuggle with that doggie!! Does he or she howl? I am so glad you shared that with us. lol we are trying to talk one of our fellow sisters hereinto getting the puppy she's always wanted. That pic just helped our cause. Lol thank you darling. Welcome back. I believe you had been here once before! Sending hugs. Hoping all is well! ~M~
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Claudia, I was not at all offended by what you said. In fact, it has given me a different perspective, and I am considering your recommendation. I do understand what you said and why, and I thank you. Of course, I don't plan on going anywhere anytime soon. One of my sons told me that I am way to stubborn to die quickly, and that I will live long enough to put those doctors and statisticians who think mbc'ers don't last long in their places. My DH gave me a target of 20 years, so I a bit over 17 to go. Oh, the pressure! (My DH and I have developed a dark sense of humor since our cancer diagnoses. We say and laugh at things that many people would cringe at. Weird, right? I guess it just helps us get through things.) I am sorry that your DH is having so many challenges since his accident. I hope you both start receiving good news soon. How are you feeling? How are you coping with everything?
Runor, Any decision? We are all waiting on pins and needles.
Keetmom, I have been thinking of you. I hope your treatments have not been too difficult for you. Get some rest and accept all help that is offered. (((Hugs)))
Grannax, I would forget half of what my MO said if I went alone, especially during the times I hear "news", so I like Minnie's idea of recording the conversation. I also take my trusty little notebook with me with a list of questions. If I don't have that list, i will forget to ask somethings. I know my MO well enough to tell him if I need clarification or more information about but what he says. That is not to say that I always do that, but he is never surprised when I have questions or comments. Micmel's idea is also a good one. You can call and talk to a nurse navigator, nurse, or PA. They should be willing to provide you with the information you want.
My DH and I went to the botanical gardens here in Naples, FL yesterday. It was a perfect day. We walked and walked and walked. I can't wait to start digging in my garden this spring.
Have a good weekend, everyone.
Hugs and prayers from, Lynne
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I'm around just keeping quiet, survived week 1 next week by now I will be done and hopefully have a plan with chemo moving forward, over all I am feeling retry good and picturing those Mets cooking away.
I didn't go to prom. So no pictures there...
Working on getting stuff done and the we will celebrate Delaneys b day tomorrow.
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Fraidycat. That's a rat terrier, right? I've had several and they were great dogs. I love Calico cats, my favorite was our Callie. Right now I only have a cat, he's a Lynx Point Siamese.
Bigbhome. I'm so glad you are back.🐴 I know you're trying to keep it light here, but I'm still thinking of you and your DH often.
50's girl. Love your posts. Yep I write down questions, too. And I wrote down the two drug names but when she didn't say what I thought she would say, I just went into deer in the headlights mode. Then I was blank on what she said. Brain dead.
Spring is evident here too. My Magnolia bush has buds that will open soon, I think azalea is going to bloom this year. I need to rake or blow the backyard so I can see the ground. Lots of trees turning green. Energy, I need energy to just get out and do it!💞
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Minnie~ I was also laughing pretty darn hard about the Julie feature!! I have never had explosive problems like that, the opposite for me. But I don't think that the Julie commercial is reality for most anyway. A few ok. But still seriously? I break out in horrid sweats that last at least ten minutes. Then I get my fabulous tomato look in the face of such a fine deep color red. I wouldn't be teaching as a professor, I'd be laying down on the floor in front of the students like a rock not moving. I totally Love your ladies sense of humor. Lol cracks me up. I wanted to say Minnie. When you said that this group cry's and laughs together, that made my heart smile and a tear fell. I feel the same way. We really have an exceptional group and I adore you all!! Much love ~M~
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Bigbhome~I cannot imagine anyone taking your sweet heartfelt words wrong. I feel the same way. It's only because we care so much and honestly form these bonds that get us through our days. Of course we would understand the level of things you're going through. We are just so glad you're back. I think of you everyday. I don't want to pester you. But you know that I have to make sure my peeps are ok... so each of you should always expect a PM for a check in. It's only because I care. I am very very sorry to hear that you keep getting different news about your DH's accident each time you see a doctor. For me that is hauntingly familiar, makes you want to avoid those doctor visits at all costs! We love you. No matter what! Sending hugs to you DH and MIL. ❣️❣️ You! ~M~
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Keetmom~🤗💓so happy to see you here. Was hoping you were taking care of kicking the c's a**!!! I honestly hope you're feeling good and that you are seeing the end of the rads soon. You mentioned chemo? What type are they leaning towards? Thanks for checking in. I feel better knowing you're ok. Happy Birthday to beautiful Delaney!!!! How old is the precious angel???? How Is Emma and DH? Much love ~M~
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