My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Prayers for your daughter, Grannax.
0 -
Thanks, ladies. She is doing just fine. She had enough "I don't care meds", nothing seemed to bother her. She remembers the whole thing but says it didn't bother her. The drilling wasn't any worse than going to the dentist! She only has to have it in for 72 hours, in hospital of course. It will be interesting to see the pressures 24 hours a day. I hope it will tell the docs what they need to know. She's totally ok with me not being there. So, that was a relief to hear. Looks like I may be able to go up tomorrow afternoon.
0 -
thank goodness it went as easy as hoped. Maybe she will get this figured out finally. We can always sic the pirates on those docs!!! Love you guys.
This is how I feel today:::
0 -
Grannax, prayers for your DD. Glad that procedure is over.
Micmel, that little cutie is my granddaughter with my wig plopped on her head lol !
0 -
Minnie ~ that made me giggle. Lol I wish i could have been in the room when when that was taken! She's got an adorable sense of humor! I can tell from that lil pic 😊
Much love ~M~
0 -
Grannax, prayers continue for your daughter! Glad to hear that everything went smoothly. Runor, love your light anology... it’s so true. Micmel, I feel like you are our light here, drawing us all together.0
-
Lynnwood~ thank you my sweet friend. We all need a group of support when we are going through such crazy times with this disease that just won't leave us all alone! I appreciate what you said. It brought a nice sweet swelling to my heart, and a tear to my eye!
Much love ~M~
With our community being shattered with this young woman’s death, no one knows what to do or say. The calling hours are Monday 10-12. I am in such sorrow to see her mother and know her precious only daughter was murdered. I am still having issues sleeping over this. She was such a wonderful young woman. Who would ever want to hurt something so innocent and helpless....I sincerely need some answers. I know I’ll never get. Broken heart is so under rated.💔 please please pray for this devastated family. Thank you!
0 -
good morning lovely ladies. Looks like a nice day here. Maybe a walk? I have to start waking more. Honestly. Someone dear to me mentioned I might be sleeping to much. I so appreciate the honesty and caring (50's).
We miss and love you special lady!
Have a safe sweet day living ! ~M~
0 -
Hello all!
Keetmom-sounds as though you are soldiering on and feeling OK. You must be feeling so very vexed about having the limitations.It would make me totally nuts as well. I'm grateful for your stability around the damn seizure; may it never return. Your daughter must be so happy to be rid of the port; what a little sweetie!
Gracie-thinking of you lots. No wonder you were in a bad place; such a lot to digest and cope with. Don't know much about the Cyberknife procedure, but I want the best possible results for you. I can't tell you how much I enjoy my bike! it's very freeing!
The Lynnes- had dinner with DH at The Dinnerhorn restaurant last night! It was delish and it sure made me think of the two of you! We had taken my grandson to Concord to meet his other grandma. He is in Burlington, VT with her until Thurs. Lynne(Man)- love the photo of you at the U2 concert! You are one of coolest, strongest women! Lynne(50's)-I hope your anniversary trip is beyond delightful.
Grannax-relieved to hear that your DD is doing OK. I hope they can glean a lot of info from this procedure. What an upheaval for you with the remodel, but no doubt, you will LOVE when it's finished!
Bighome- I have tolerated Xeloda pretty well. I have not been limited by it much. A couple days second cycle with the stinging feet that caused me to miss my daily walk. I use a lot of sunscreen, too. I also get some blistering on my toes, but they aren't nearly as sore as a blister caused by a chafing hiking boot. oh, and one of my toenails just fell off! Hope you and DH are doing Ok and surviving that hot Florida sun....
I had a little lunch party for my two grands and two neighbor boys to celebrate the last day of school. it was sweet; amazing what you can do with a few dollar store things! I got them grocery store cupcakes and chips to go with that neon orange mac and cheese and they loved it!
DH and I have season tickets to an amazing summer music theater. (it is always our Christmas gift to each other) We go to dinner first with 2 other couples. Thursday was our first play and it was over the top. it was "Million Dollar Quartet". Set in the 50's about Jerry Lee Lewis, Elvis Presley, Carl Phillips, and Johnny Cash. loved it!
Going to see an Elton John tribute concert Tuesday night at a little tiny concert hall. A friend of ours converted an old Grange Hall into a music venue. It has antique wooden chairs with a hodge podge of vintage chair pads. No alcohol, but the most divine homemade desserts for sale at intermission. Usually a very nice evening!
Lots going on for me with grandson's activities, camping, folks visiting, gardens, etc. People from Maine try to cram 6 months of activity into 3 months because our summers are so precious and gorgeous!
i am feeling great. Still haven't scanned to find out about the Xeloda/Y90. need to talk with my IR and MO.
Anyone heard anything from Magda lately?
Each and every one of you are in my heart everyday. Keep on truckin' and being the amazing women that you are!
Best, Mary Jane
0 -
grannax- I'm glad things went well for your daughter. Hopefully this gives the doctors the information they need.
micmel- I'm glad to hear that you are getting out😊 I have been worried about you.
mjhjan- the concert series sounds great. I love going to things like that; however my husband does not. I usually do things like that with my daughter. It seems as though since dx she doesn't leave my side. I love it however she's 16 and needs to be hanging out with friends her age.
Gracie you are still in my prayers that the cyberknife is able to get it all.
0 -
MJH, thanks so much...lots going on and Lord knows I do not handlechange well at all!
Holmes, thanks so much! Hoping thecyber knife does the job
0 -
lots to reply to. Just too tired and stressed to do it. Much love ladies. Sleep well I hope. ~M~.
I have that young girls calling tomorrow and I am broken hearted. I am not wanting to go and seeing all these young people get their first glimpse of what evil can really be like. So sad. So violent. So wrong. Good night ladies
0 -
did not sleep a wink. Don't really want to see this precious girls family, the sadness is hanging in the air I the community, it was so brutal it almost can't even be believed. Certain people we know works with the police/hospital and they drop Little hints about it. Sometimes it's better off not knowing in this case. This is the first time I have known someone who was murdered. Personally known them. I have heard of someone who lived in our town being shot in Philadelphia, but it more drug related. This is just pure evil. Take care of those you love. Much love to you ladies. I don't even now what to wear. ~M~
0 -
micmel- I pray for strength for you and the girls parents today.
0 -
Holmes~ thank you sweetheart. You’re very special to wish them peace. We all need some. Especially when everything is so darn hard.
For me it’s like the simplest things make me exhausted and make me sweat so much that I would rather sit still. I honestly believe that is why I don’t even want to move half the time. I can’t even get dressed, without feel extra hot and sweaty. The heat flashes rear their ugly heads whenever I move too fast for their liking. Sweating for me seems like almost I am boiling. Steam, foggy glasses, beads of sweat just rolling all over me. My neck, my back, every single my cell in my body sweats. It seems just useless to even try.
Everyone have a safe nice day!
Love you ladies ~M~
0 -
Micmel, thinking of you today as you face a difficult day dealing with the services for that beautiful young woman. Such a tragic loss . I feel you about the sweating. I had to go to a baptism yesterday in a church with no air conditioning and was a sweaty mess by the time it was over. Very embarrassing .0
-
Micmel-Thinking of you today. So very sad. Hugs and prayers for her family! Is the sweating hot flashes? I was put on Gabapentin for that 13 years ago, after I went into instant menopause, after having my ovaries (and everything else) removed. It helped. I'm still on it because the oncologist thinks it's helping with my pain.
MJH-Sound like you are very busy! It's great getting out and seeing concerts and shows. We don't usually go to them, because it's such a hassle with the wheellchair. We have a local theater here as well, my neighbor goes to them, but again, it's a hassle. We do get out, but usually we have at least one of the kids here. All but our youngest (he moved to Rochester NY Fri, we're empty nesters, if the other 3 don't show up all the time, which they have, we have yet to have a day to just us!), came over yesterday for a BBQ. Well, all of the sudden it started pouring. My poor husband got soaked to the skin cooking outside. It's fun, but they stayed until 8:30!! We'll have to make a date with Lynne, when we can get together again!
Gracie-praying for you!
Grannax-praying for your daughter too!
I'm currently having issues with my speech (can't find the right word, stuttering, slurring), also twitching of my eyelids, feet, hands, and a little dizziness. Lots of short term forgetfulness (worse than normal) No blurred vision or headaches. I see the oncologist on Fri, and am going to ask her for a brain MRI. The neuropathy is getting worse in my hands(the feet are about the same). They hurt so much at the end of the day. They did tumor markers the last time I was there because they jumped up quite a bit the last two times. Well the did the wrong tumor marker test. They were told to retest it and they never did. They wanted me to come in last week (my one week off and my hell week). I told them no, they can wait until next Fri (this Fri), I'm not getting poked a third time in a week just for that. I'm getting sick and tired of that place. They made me appointments ahead of time for my next two visits, and didn't bother to call me to see if it was a good time and date ( they were ok, but still).
Hugs and prayers to all!
Lynne
0 -
Micmel, hugs to take with you today! I figured it was going to be very hard!
Lynne (Man), thank you for your prayers, I really appreciate them. I hope there is an easy reason for your symptoms and will be keeping that in my prayers for you
0 -
Lynnwood~ Thank you for your support and kindness. I am beyond sure you understand the heat flashes because they are literal nightmares. I look like I dove into a pool and decided not to bring a towel. Then my glasses fog up like I just opened a dishwasher after it was just finished the heat cycle. Today however was thee most beautiful day, if I'm honest , the day was perfect.
Today I honestly think a piece of my Heart broke off and was left laying next to her pictures. They had about 200 pictures of all ages of her beautiful life. It was hard to keep it together. Every stage she was precious. Her beautiful smile. Just more matured. This one picture of her she was standing on the beach. Sunset, the sun was behind her and she has this tanned glow of beauty that only the innocence of youth can give you. She wasn't worried that day about soon her life would end.... she was a natural beauty with a heart to match.... as we stood in line and passed the photos the corner came to where I could see her more than exquisite mother, dressed in a white suit, with black trim pencil skirt. She looked like Alexus. My heart skipped a beat and then I looked over and saw my son, who was walking slow behind us lose it. Because of that same picture I had just seen of the beach. I got to speak with her mother briefly, she laughed when I brought up the Christmas cookies. She said “ she loved to make her Christmas cookies". Then she smiled and kissed my cheek. Beautiful mother. Held it together impeccably.. bless her sweet heart and soul.
The next wave of grief, came when I saw a large group of friends crying and leaning on each other. Devastated young people who just don't understand any of this. For many of them, this is the first experience with death at all. A lot of them were in shock .. god knows I was. One after the other the kids came to me also, because they know I am sick. They cried with me and kissed me and shared their love for me. It was extremely touching. I was a little overwhelmed and hot, so I went and sat down on a bench outside alone, in the shade, I said outloud ,
“Alexus, it's a beautiful day sweetheart, but a perfect breeze Would be so fitting for yourlovely day" The next thing I felt was the most peaceful breeze come Over me, almost coming from one little growing tree behind me. I am not convinced it wasn't her. I love thinking it was. Beautiful young woman. We all love you so very much Alexus...
Thank you Lynnwood, thank you Lynn (Man), thank Gracie sweet friend. 🌹❤️ Going to take a while to heal this one. Thank You For caring and allowing me to share my sorrow somewhere. Love to all ~M~
0 -
Lynn(Man) now to address your mentioned issues about what you're experiencing... I certainly hope the onc can figure what the heck is going on. Hope he moves quick on figuring it out. You're going to be in my Thoughts for sure. Sending you hugs of strength and love. I'll be waiting to hear! Right here. 🧡~M~
0 -
Grannax~ thinking of your precious DD, hoping she's fixing out some good information that will help them.
Gracie~ always sending love and thoughts your way my sweet. So glad you're here you have. No idea !
Have not seen Magda.😞
Hello MJH~
Hello Holmes~
Love to all ~M~
0 -
My DD is doing well but still in the hospital. It turns out her pressures have been in the negative range. That's a real shock but low pressure headaches are just as bad as high pressure ones.. Maybe they need to adjust her shunt so that it will drain less fluid. Her DH is worried there is a leak in it. Very confusing. So they have kept her longer and she's probably going home tomorrow. Whether the docs have gleaned information to help her, I don't know.
My remodel made slow progress yesterday and this morning. The helper did not show up. But he's here now. Bath is completely done. Wood ceiling is about two thirds done. Trim and doors still need paint too. As soon as all my furniture and decor is back in place, ill take pics for you..
At least the yapping Chihuahua has gone back home with my GD. 👏 me and my cat are very happy about that. 😀😻.
I'm in my off week of Ibrance and have had a couple of bad days but overall this cycle has been good. I go see my MO on Thursday. There's nothing important to talk about, except I'm sure I'll get my normal lecture about not being on a daily walking exercise program. 😕
0 -
Lynne hope it is nothing but that is a lot of how I was doing, when diagnosed with brain mets. steroids helped a lot, but I still do some slurring. If you need to chat feel free to PM me I may not always post but spend time lurking
0 -
keetmom~ hi darling always nice to see you. Always. I hope your feeling well. Emma's also port free. Yahoo! Way to go Emma. Sending you all hugs.
Lynne.~(Man)you're very much on my mind as well sending loving thoughts that's its going to just knock that off !
Grannax~ You have one tough daughter. Holding your hand with love and support. Glad the yip yapper has gone home. Sometimes we only can deal with so much huh?
Hot weekend today folks. Stay cool and safe. Much love ~M~
0 -
Lynne(Man)-holding you close in my thoughts after reading of your new symptoms. More than a little ripped that this damn disease just keeps hitting people when they're down. I hope you can get that MRI right away for quick resolution. Love, Mary Jane
0 -
Sorry, I’m pages behind, so I’m just jumping back in here.
Micmel-Terrible thing when tragedies happen, so sorry for your and her family. I remember a girl in middle school was killed when a car hit her bicycle, it made a big impact in a town where nothing bad ever happened.
Lynne-It just can’t be brain mets, we have too much of that in this group already. Hopefully, it’s just SE’s from something boring 🙂
Friday, I was asked to please stay a little longer and train the new person, the two higher ups are going the extra mile to try to make the bonus blunder right and I agreed to help out through July. I’ll work a part time modified schedule as I see fit and will only train the new girl. My office will be cleared out this week and after Friday, I will not be responsible for anything but training. I feel good about it, I hated to leave them high and dry.
Had a little party Saturday, made watermelon/vodka punch, tamales, fajitas, beans. Lots of good food and friends.
0 -
Sounds yummy!!
0 -
Mae-that watermelon punch looks awesome! Thanks for your thoughts. I really hope it's nothing, but I hope there is something they can do about it.
Micmel-I'm sure that mother will have her moment when she's alone. I feel so bad for everyone involved. Thanks for your thoughts.
Gracie, keetmom, Mary Jane, and everyone else-Thanks for your thoughts and prayers. I will let you know what she says on Fri. She usually does what I ask, after being with her for 13 years.
Tomorrow, a friend from my first job (besides babysitting) and I are heading 3 hours north to our summer job in Milan NH. I was 15 and she turned 16 that summer of 1977. She's driving and I'm paying for the gas. There were 4 cabins of high school kids (2 boys, 2 girls) and 4 college people in charge. It was called the Youth Conservation Corps. We repaired hiking trails, fertilized sapling trees, fed the fish (at the fish hatchery on the property), painted buildings, and basically did anything they told us to do. We had fun in between. We leave at 9 am. It should be fun!
Not thinking about cancer tomorrow!
Have a great night everyone!
Lynne
0 -
Mae you always know how to have a good time 😊
Lynn I'm praying that it's just a sinus infection. I had a really bad one that made me very dizzy.
0 -
Lynne that sounds like so much fun!!!!
0
