My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • micmel
    micmel Member Posts: 10,055

    hugging you Shelia!!!!! Good big pockets! Nice! We are here with you. I know honey I know. Waiting with and Mae and parry! Thinking of you love much ~M~

    Bella~ gm. Magda one and only. Feisty lovely. Honest strong. I could go on and on. She will be forever in my heart and soul and yes. Tears formed in my eyes when I read she was with her sweet DH. That is really all I want. Leaving him or even the thought paralyzes me with fear. I guess we all understand some of that! Much love~M~

  • illimae
    illimae Member Posts: 5,739

    Sheila, we’re here 💛

    image

  • skyfly
    skyfly Member Posts: 66

    Parrynd1, could you share the link to that study? Just interested in reading j

  • micmel
    micmel Member Posts: 10,055

    welcome sky fly~ I hope she is able to give you the information you want. Hug your mother for us all. She’s amazing to live with this disease and what a wonderful son to care. Nothing more special than that!

    Shelia~Thinking of you sweetheart. Holding your hand!

    Love you guys!

  • Parrynd1
    Parrynd1 Member Posts: 343

    Hang in ther Shelia! Whatever happens you can tackle it. Hoping for clear scans all the way.

    I sent my onc a PM about the study and will post when I hear back

  • skyfly
    skyfly Member Posts: 66

    Thanks Micmel I really appreciate that :) will do

  • Minnie31
    Minnie31 Member Posts: 494

    Thinking of you Sheilamarie.

    Parry, I have heard of a treatment made specifically for each persons immune system, where they take your cells and make a treatment. I have read of success in Europe. Very interesting trial. Not sure I would be brave enough, but I guess we need people who are braver than me.

    What a week. My uncle 81 years old was visiting Spain with his daughter and her husband. They have a house close to us. Always a very fit man. He went walking with my husband, his daughter, husband and friends on Sunday and fell on the beach and broke his femur. In hospital, hoping to flown back to Ireland this weekend. Meanwhile we are all sharing sitting with him as he has early stage Alzheimer's. On top of that today was my treatment day. No relaxing for me this week. More hospital duties tomorrow.

    Please keep him in your prayers. He is so sweet, and lovable

  • micmel
    micmel Member Posts: 10,055

    skyfly~. 😊😊 always welcome here anytime.

    Parry~ Hello lovely

    Mae~ Hello darling

    Minnie~we will be thinking of you both! You’re a Wonderful Woman. I hope when you’re able to rest, you rest well. I had no sleep last night. None i tried every bed, the floor, the couch. It sucked!! Awful feeling. Cancer should be a guarantee for sleep! Ugh!

    Much love ~M~

  • skitzblitz
    skitzblitz Member Posts: 153

    Micmel - I so know where you have been. I had a long, way to long, spurt of achey pain. I did the same the floor, couch, chair, bed. I finally got so ugly from not sleeping, I wanted to end the misery.

    Did you you stop some of the pills? Maybe some has to do with that.

    Hoping you can sleep well tonight!

    Sara

  • micmel
    micmel Member Posts: 10,055

    That's exactly what I'm doing. I'm weaning myself off of all non essential medicines. I'm sick of feeling like a zombie. That is pretty accurate on how I'm feeling. Some of it like a with drawl, like you're eating out of your. Skin. It's really very very awful. My anti depressants are being adjusted as well and I feel like I am all over the place. It honestly was the worst night I've pretty much ever had. I wanted to just scream and hit things. It wasn't pleasant at all. The things we have to deal with. Thank you so much for reaching out to help confirm what I thought was happening. Although not pleasant at all. I need to do it. Thanks for reaching out sweetheart!

    Hugs and love~M~

  • micmel
    micmel Member Posts: 10,055

    Gracie???How are you sweetheart. Thinking of you!

    Elle on wheels~Haven’t seen you either.

    Grannax~Hope you’re recovered from Granna time!

    Shelia~thinking of you in your pocket!

    Daywalker~How are things lovely woman?

    Masons~you doing well?

    Daniel~ How is sweet Leslie and your son? Hope she’s doing good. Say hello to her from us!!!

    Waving to Parry,Divine,GP, Thinking of my good friend Dianarose. Who is really having a hard time lately. I’m scared for her....Mae... Tanya gorgeous woman..... Bella....Skyfly.. keep taking. Care of your momma.

    Goodnight wish me luck sleeping

    Much love ~M~

  • runor
    runor Member Posts: 1,615

    Sheila, thinking of you.

    Illimae, when I read those words "two years ago today..." I got goose bumps. We mark those moments when the world tipped on its axis.

    Micmel and all others, hugs, prayers and strength to you all.

  • Grannax2
    Grannax2 Member Posts: 2,387

    Yes, and now I'm wishing for more Granna time! I did go to my doc yesterday and she heard two heart murmurs. One is mitral, which she knew about but not concerning, but the new one is aorta. So off I go to get a echocardiogram. Life is what happens when you're doing MBC. It's probably aortic stenosis from calcium build up, we just have to see how much stenosis. There is surgery, of course, that has improved since my sister had her valve replaced with a pigs valve. They now use a cow's valve, it lasts 20 years instead of 10.

    At least I'm glad to know my docs treat me as if I have a long life to live. I don't want to get the cart before the horse. All depends on results of test, just like with MBC.hahaha

  • 50sgirl
    50sgirl Member Posts: 2,071

    Grannax, How soon will you have the echocardiogram? It is amazing how far some medical procedures have come in twenty years. I am anxious to hear about the results of your tests.

    Hugs and prayers from, Lynne


  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    The only reason I got out of bed today was to watch Rafa play tennis. No exaggeration. Now he announced he is withdrawing from the tournament. I cannot tell you how depressed I am. I needed that enjoyment and distraction. I feel like going back to bed for a year, which is longer than the rest of my life. It probably seems trivial but, to me, it is not.

  • Lynne
    Lynne Member Posts: 368

    Just a quick hello to everyone! I got back from our trip late Saturday night. Now off to our grandsons' Halloween parade at their school.

    Still have 8 pages of posts to go through. I'll respond again, once I get through them all! I'll even post some pics of our vaca!

    Hugs and prayers!

    Lynne

  • micmel
    micmel Member Posts: 10,055

    Good morning ladies. ~Muddling. Dealing with the things we deal with. NOTHING is trivial. NOTHING. Little things make me so sad. I can't escape it either. I know those little life line clingers. So I understand. Hugging you gently. None of this is really easy or fair to any of us.

    Lynne hello beauty.... you're always so supportive and kind. Always good to see you always. I'm sure our other Lynne (Man) will be coming home soon. I hope she's well and had a blast. Has Lynnwood been around at all either ? Hope all is well ..

    Runor~ Hello lovely. I realized today was Halloween! I always made a big deal and got a ton of candy would sit outside loving all the costumes of the Kids. My kids were younger then now everyone and everything has changed. All those kids are older and I no longer know them all. I am not sitting outside tonight with candy because i don't have have any energy. It's surreal.

    My DD is married... wont be here Christmas morning for the first time in 23 years. Huge hole there. My son will be 22 in January. DSS is going to be 18 in March. They are grown and I am sick. Always tired and I would love to just stop all medicines. Which I'm giving my best effort to. Life is just plain hard. It is a job. Wether you're sick or not. But when you're sick.. being sick becomes your job. Except no vacation.

    I hope you're doing well. Great to see you always.

    Grannax~please keep us posted. It seems we all always have something to deal with. As if cancer isn't enough. I am sending you love and hugs with positive thoughts and wishes it can be easily regulated. You're a strong beautiful woman. Never forget that.

    Sheila ~ thinking of you

    Tanya~ Hope all is well!!

    Much love ~M~

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Good afternoon all

    I’ve been reading and not posting. Tired exhausted end of ibrance pill cocktail yesterday and then a flu shot first day off.

    Micmel I started using relax pm for sleep from the pharmacy of buds. It knocks me out. No side effects like that hung over feeling, no addiction. I thought I was going to have to take an opioid for pain yesterday but took my relief oil and thank god it worked quickly.

    Micmel I’m sorry that your DD won’t be celebrating the upcoming holidays with you. How about your son? Can you have a dinner before or after the holiday that she would participate in? When would she like you to share presents with her?

    Skit blitz I hope you sleep better tonight. Take something. My medication ibrance lists insomnia as an SE so I had to do something. I tried pumpkin seeds, melatonin and ambien. Some nights were horrible just as you described.

    Today I was supposed to have a PET scan at 11:00 and it was canceled bc they didn’t get insurance approval. Just as well on my week off of ibrance I’m happy not to have all the PET anxiety and trauma. I guess no day is a good day for a PET scan.

    Mae you stay positive and I love it.

    I didn’t have much energy to do anything so I went on amazon and got my grandkids that live up north some boots, hats and gloves. The weather is beautiful so I’m enjoying the porch today until the kids get out of school. They’re all germs and booger’s so I’ll pass on that interaction. My grandkids go to a inside party event with prizes and activities so they’re safe.

    Minnie I hope your uncle is doing well and healing nicely. The advice I got for old age is don’t fall.

    50’s girl I hope you’re doing well with your treatment. I wanted to reduce my ibrance from 100mg to 75mg bc of the fatigue. My doctor said after the scans which didn’t happen today so I’ll be ordering ibrance 100 today.

    Sheila Marie I’m thinking of you today as you await your results. Breathe deep, count, use aromatherapy, dance to music, do whatever calms you dear and know that we are all here routing for you and good results.

    Runor thanks for the hugs. We need every hug and prayer we can get.

    Grannax I hope your 20 year procedure goes well and you get the longest use of that cow heart valve as possible.

    Manchester Lynn welcome home. We look forward to your vacation pics.

    Muddling I love tennis too and love Rafa. He’s getting old for tennis and this is the second time that I recently remember him pulling out. I’ll tune in and try to like someone else.

    Welcome sky, waves to parny, Lynwood, Daniel, Lynwood 1960,Gracie and anyone else I forgot. Make this day count y’all!!!☮️

    Tanya


  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Well, today DH got the health insurance re-enrollment forms for next year. The letter began, 'since you reached the cap in 2018' and you know what bull sh*t followed that opening. Nearly double premiums for next year. True, thanks to me, we did reach the cap this year. Do they even care that he faithfully paid the premiums every damn month for FORTY years and seldom ever used the insurance? Well, it's time for me to make some tough choices. Can't afford insurance, don't qualify for medicaid, not old enough for medicare even if disabled (there's a two year wait), I adamantly refuse charity, and I especially refuse to bankrupt DH since I hope and pray he will live for decades more. Oncologist appointment in two weeks and I will be asking him hard questions. Things might feel different if there was a chance of beating this but it's not possible at this time in the research timeline. What a day.

  • Grannax2
    Grannax2 Member Posts: 2,387

    I love to watch tennis, too. My DD played in HS and college.

    I think it's doubtful I will ever have heart valve replacement surgery. But it's good to know that it's a easier, safer procedure than it used to be. My DSister will have to have hers done again. She had hers six years ago and pigs valve only lasts for ten years. They went through her chest, now they go through the groin. My DS has done the anesthesia for many. Much easier on the patient.

    Meanwhile, today I'm feeling too tired to even think about having any kind of procedure. I'm having enough trouble just getting up to get my laundry done. It's that kind of Ibrance dance day today. My whole body hurts, I don't know if I'm paying for doing too much yesterday.

    Tanya I have ordered some gifts on line. They make it so easy to spend too much money. Ha.

  • micmel
    micmel Member Posts: 10,055

    Muddling~Reading that posting was not easy. I am speechless to think in this country we have to worry about survival for however long we already can with this awful thing hanging over our head. My oncologist always asks me about affordability of my medicine. Please get in touch with your hospitals financial department. And social worker. Your DH and you have worked your asses off. Take whatever grants are available, you're very important and there are ways. I know it's disgusting. My son doesn't have insurance now. It would take more than half of his bi weekly Income. Every sniffle he panicks. I hate the way things are it's just sickening. Just please don't give up. You're so loved.

    Grannax~Sounds like some serious stuff. But I'm thankful that they have options for helping such things. I learn something everyday here. Just relax and let your body rest. Ive learned ibrance dictates to us. Last week off of my medication was awesome. This months week SUCKS... convinced no rhyme or reason. I am starting month number #23. It does exhaust you for sure. Sending hugs.

    Tanya~I keep forgetting it is Halloween. I had to lol at the boogers comments. Boy is that true. Which is another reason why I cannot be giving out candy. I'm on a 15 antibiotic to kick this thing (Sinus) which I'm convinced is a side effect of ibrance, but then again, I was always susceptible to them before BC. Its a love hate relationship with our treatments for sure. So complicated living how we are forced to. Seriously, it becomes traumatic on a daily basis.

    I love you ladies all very much. I wish there was an easy answer for all of us. Shit stew for sure!

    Waving to Runor and Parry. Blueshine ? Haven't seen you at all. Divine? Gracie glad to text with you today! Lynnwood~ hows the funk beautiful? I'm tweaking. My meds. Gotta do something! .

    Mae~Yes your positive attitude is pretty damn awesome. I wish I was more like you that way. You add happiness to many lives.

    Lynne man~Welcome welcome back. Glad you're safe and sound. Can't wait to see the pics!

    I always think of Nan. Miss her as well.

    Skyfly~ hope your mom is doing good today!

    Daniel~ hug your family for us!

    Today one month Patty passed away. Keetmom more than a month. Breaks my heart all over again.

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Micmel, I've been blowing up my calculator and looking at everything. I'm willing to spend enough money for approx one further year of insurance. No more because he will need the rest of the savings to get him to Medicare and to live on for hopefully many years beyond that. I say a year...Maybe less with deductibles and out of pocket. I'm not going to take any handouts. Never have and plan never to in the future. Always, always paid my way from the time I was single, to my grad school, to married life, we paid our son's way through college through saving and being frugal from the time he was born and working all the damn time, doing the right and responsible things. Not gonna stop now that the outlook is bleak. F 'em. I'll calm down one of these days but reality has zoomed in closer than it was yesterday. Thanks for reaching out to me. Here is the only place I can tell it like it is.


  • moderators
    moderators Posts: 8,630

    Could any of this help, MuddlingThrough?

    Here are some resources that could hopefully help you get some financial relief:

    https://www.breastcancer.org/tips/compliance/financial

    • Begin by contacting the National Cancer Institute's Cancer Information Service at 1-800-4-CANCER (1-800-422-6237). They have information about how to get free mammograms, Pap smears, and treatment.

    • Many drug companies have assistance programs to help you get the medications you need. Your doctor, nurse, or hospital social worker may be able to refer you to these. You can also find them on the Partnership for Prescription Assistance web site.

    • Try calling your local Social Services Department. You may be eligible for Medicaid or other programs for low-income people.

    • Call your local Public Health Department to find out about local health care programs.

    • Many hospitals run free clinics where they provide medical care at no or low cost.

    Our section on Paying for your Care

    https://www.breastcancer.org/tips/paying

    http://mbcn.org/finding-financial-assistance/

    Call 211
    www.211.org or call 211 information
    Many communities have a 211 information and referral service funded by The United Way. Find help with food, housing, employment, health care, counseling and more. Available in English and Spanish

    American Cancer Society
    www.cancer.org / 800-227-2345
    Based on your location, assistance is offered to reimburse expenses related to cancer treatment.

    Cancer Care
    www.CancerCare.org / 800-813-HOPE / M-F 8am – 8pm EST
    Non-profit organization founded in 1944 offering counseling, support groups, education and financial aid. Avon Cares Program offers limited aid for homecare, childcare and transportation. Linking Arms Program provides limited funds for oral chemo, pain, and anti-nausea medications through Komen funding. Cancer Care provides information on other aid programs. They do not offer funds for basic living expenses. Eligibility is based on assets – defined as savings, CDs, checking, 401K. From the Home page, go to Financial Help > Financial Assistance > pdf application available online to be mailed in.

    Cancer Care Co-Payment Assistance Foundation
    www.cancercopay.org / 866-552-6729 / M-Th 9am – 7pm; F 9am – 5pm EST
    Non-profit foundation affiliated with cancercare.org that specializes in copay assistance since April 2008. They offer full or partial assistance with your copay. You must be insured (private or Medicare) with income less than 4 times the poverty level with consideration for high cost of living areas. You can apply online or on the phone.

    CancerFinancial Assistance Coalition
    www.cancerfac.org
    A group of 14 organizations who provide a searchable database of resources available to you based on your diagnosis and zip code. Enter both and get a list of organizations that can potentially help you, incluing those local to your state or area.

    Cancer Fund of America
    www.cfoa.org / 800-578-5284
    A physician must certify your diagnosis and financial need for assistance with costs
    of medical supplies and products.

    Genevieve's Helping Hand
    www.genshelpinghands.org/ 516-500-3702
    Offers small financial grants to be used by young breast cancer patients (under age 40) to extend their recuperation period after cancer related surgeries and procedures.

    Government Benefits Screening
    www.GovBenefits.gov
    An online tool which informs citizens of benefits they may be eligible for, including information on how to apply for assistance. On the home page, click the Start Benefit Finder button to take a quick questionnaire which will provide you with potential benefits. You do not need to provide your name or any other personal identifying information. There is also a Search box on the home page if you prefer to target a specific program or benefit. This site does not restrict search results very well so you may get more assistance programs than you are eligible for and/or interested in, so some careful analysis of the results may be necessary.

    The Health Well Foundation
    www.healthwellfoundation.org / 800-675-8416 / M-F 9am – 5pm EST
    A non-profit organization that reduces financial barriers to care for underinsured patients with chronic or life-threatening diseases. They provide financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies. To see if you qualify and if there is funding available click on the Get Assistance Now button on the home page or call for help with the application process. If no current funding is open for breast cancer, check back throughout the year as more funding may become available.

    Help Now Fund
    www.thebreastcancercharities.org/help-now-fund
    Provides emergency financial assistance to help people in active treatment with their rent and utilities. No phone number available to call. The website provides an email to direct questions to if necessary.

    Medicaid Benefits by State (Kaiser Family Foundation)
    http://kff.org/statedata/
    Medicaid benefits database–look up available benefits by state.

    National Cancer Institute
    www.cancer.gov / 800-4-CANCER (226237) / M-F 8am-8pm EST
    Government cancer research agency created in 1937; mission expanded in 1971 to include cancer information dissemination, including financial, insurance and legal information. All information is available directly on the website, by speaking with someone on the telephone, using email or having a 'Live Help Online Chat' session with an NCI cancer specialist. For easy access to any of these options, start on the Home page and click on 'We Can Answer Your Questions' near the bottom left of the page.

    National Council on the Aging (55 yrs and older)
    www.BenefitsCheckUp.org / 202-479-1200
    Non-profit organization formed in the 1950's to serve and advocate for older Americans. This comprehensive web-based service screens for benefits programs for seniors with limited income and resources. Their services include finding comprehensive benefits, prescription drug assistance, and medicare prescription drug assistance. You need to click on one of the three links and answer the questions to receive an on-screen list of recommendations for benefit assistance.

    Needy Meds
    www.needymeds.com / HELPLINE: 800-503-6897 M-F 9am-5pm EST
    Non-profit organization founded in 1997. They provide information on medicine and health care assistance programs. They do not provide direct aid. They offer information on Patient Assistance Programs run by pharmaceutical companies and show a listing of free clinics and other government assistance programs. On the Home Page click on 'Getting Started' -> 'Welcome New Users' and answer the appropriate questions for your needs.

    Patient Access Network Foundation
    www.panfoundation.org / 866-316-7263 M-F 8am-5pm EST
    For those eligible, financial assistance is offered for co-pays, deductibles and medications.

    Patient Advocate Foundation on CoPay Relief
    www.copays.org / 866-512-3861 / M-F 8:30am – 5pm EST
    Non-profit organization providing assistance with copays for prescription drugs based on financial eligibility and monthly disease fund availability. You must be insured (private or Medicare). Eligibility is on a case-by-case basis. You can complete the application online from the Home page (click on Start The Application Process) or by calling a counselor at the toll free number.

    Patient Advocate Foundation
    www.patientadvocate.org/report.php / 800-532-5274
    They solve insurance and healthcare accesss problems. The National Financial Resource Guidebook for Patients is a state-by-state directory of information for patients seeking financial relief for a broad range of needs.

    Partnership for Prescription Assistance
    www.pparx.org / 888-477-2669 / M-F 8am – 9pm EST
    This organization, sponsored by the pharmaceutical companies, is a single point of contact for drug assistance programs. They recommend programs and you can download the application, or have it sent to you by mail. This service is for those who are uninsured for prescriptions. Income eligibility limits vary by drug and program.

    The Pink Fund
    http://www.thepinkfund.org/ 877-234-PINK (7465)
    Short term financial aid during treatment.

    RX Outreach
    www.rxoutreach.com / 800-769-3880
    For those who financially qualify, they offer a 90-day supply of prescription medications for $20 – $40, regardless of the number of pills in the prescription.

    Social Security Disability (SSDI)
    http://www.ssa.gov/dibplan/index.htm 1-800-772-1213
    Stage IV cancer automatically qualifies you for disability and expedited processing of your application under the compassionate allowances program–a diagnosis that is terminal. See http://www.ssa.gov/compassionateallowances/. You have to have a work history and cannot currently be earning more than $1000 month. There are also benefits for your dependents and you become eligible for Medicare after a 2 year waiting period from the date of your eligibility. To apply click here.

  • SheliaMarie
    SheliaMarie Member Posts: 284

    Muddling, your recent posts have caught me off guard. I didn’t realize you we’re struggling so with depression, and I’m so, so sorry that you are. ((Hugs))

    Sooo... yesterday...

    For the first time since my dx my mom, husband and best friend were all out of town when I had an appt, so I had another friend take me. (I can’t drive myself due to all this pain, never mind the huge amounts of pain meds that I’m taking.) this friend means well, but she drives me crazy. First she was 15 minutes late picking me up. I am a stickler about being on time. I mean, this causes me major anxiety! So she comes bee-bopping down the driveway laughing because she’s late. When she realizes I’m not laughing back she blamed the traffic. Bullshit. We both live in the boonies... there is no traffic. We head out and all the way to the doctor she tells me about every person she knows with cancer, especially terminal cancer, and how they’re foregoing traditional treatment and choosing alternative treatment and diet change and how they’re just thriving now! Ugh.

    My pain was BAD yesterday, and I could barely walk, or sit. For the first time my oncologist was able to see how bad it was, as usually I’m much better for some weird reason when I go in to see him. He did his exam and we talked about the pain. He increased my fentanyl patch to a whopping 150 mcg. Let’s see if THIS helps! So, my scan results weren’t available yet at this point. MO left to go call and get them to send results right away.

    When he returned, I completely lost it. Tears streaming, admitting that this is the most scared I’ve ever been and that I don’t want to die and I just put it all out there. He hugged me and gently reminded me that we aren’t there yet.

    The typed report wasn’t ready yet, but he received a verbal report...

    There hasn’t been any change in my spinal met or my lymph nodes... but... it’s worse than that. I now have two spots on my left lung. One of which is in an area indicative of lung cancer. He wants me to have a biopsy on that spot to determine if it’s new lung primary or MBC lung met. Of course I agreed. They’ll be calling with the appointment. I’m devastated. There just are no words. And my “people” (especially mom and BFF) weren’t there. My friend that was with me is a good person, and she really does mean well, but I don’t trust that something might not “slip out” and this is news I don’t want shared, so that stress is an added bonus.

  • SheliaMarie
    SheliaMarie Member Posts: 284

    Continued...

    I have made the decision to not say anything yet. This news is going to devestate my children. And honestly, if it turns out to be a new primary, they’ll probably kill me before the cancer can. I’ve only recently quit smoking after the dx was made. They begged me for years before that to quit. And I wouldn’t. Not until the cancer came back and settled in. I quit a few times, once for 2 years, but ultimately I kept starting back. And now this.

    Well, on the way home my friend so graciously let me know that although she trusts me, she doesn’t trust my MO. Her brother in laws sister blames him for not getting all her cancer during surgery. I had to explain that my MO doesn’t do the surgeries, but then I just let it go. The important thing is that I trust my MO whole heartedly.

    I finally got home, took more meds and went to bed. My daughter made me get up to eat around 6 and I stayed up until my youngest got home from work at 9. Back to bed until 340 this afternoon. But at some point I realized at least one small solution to my crap situation... WHEN I tell my family, I’ll only refer to it as mets, never letting on that there’s a possibility it’s lung cancer. I know that sounds selfish but truly, I don’t know how I’m going to deal with the pain this is already going to cause my babies, at least I can avoid the additional pain ofknowing my idiocy may have caused it.

    So, yeah. Yesterday wasn’t a good day. But thank you all so much for your support. Please continue to keep me in your prayers (although if I’m honest, I’m not sure God thinks very highly of me... it’s always the worst case scenario when it comes to me and this f$”king cancer!).

  • micmel
    micmel Member Posts: 10,055

    Muddling~your name you chose is muddling through. You have to do that now. It's not a hand out, it's life saving medicine. You're not taking a trip to the Bahamas or anything. Please when you do calm down. Please know that you're so loved and yes that is exactly what you can do here. Be honest and let it all out. A million times if need be.

    Sheila~ I know that the lung is really scary, keytruda seems to be powering through as an option of lung involvement! My palliative care doc says she is pleased with results. I'm hoping you'll be able to have that! I am still in your pocket. I am sorry beyond sorry that you didn't have your support system with you when you needed them. It is never easy, like I said. We are all in this shit stew together. Remember together. I wish we all lived closer. No one really gets it like we all do. Down to our souls. ❤️

    Thank you mods for caring and sharing that information for muddling. She is our sister and we love her.

    ~M~

  • SheliaMarie
    SheliaMarie Member Posts: 284

    Sorry... I forgot to mention... we’re going to start Xeloda now. Any experience or advice is welcomed.

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    SheliaMarie, definitely saying prayers for you.


    Mods, thank you for the info. I will tag it to look into.


  • micmel
    micmel Member Posts: 10,055

    xeloda thread is very helpful. I've read up on it because I worry about my next option as well. I know you should prepare your hands and feet with udder cream... constantly covering them several times a day, and sometimes put socks over it to keep the moisture in and prevent cracking and peeling. A lot of people have done extremely well on this medicine and some even achieved NEAD... please don't give up.... I can Understand you're feelings of blame for the smoking....I felt my lump for a year and ignored it because doctors said it felt like a cyst.two different docs. I should have gone with my gut and moved ass. But I didn't. Thus de novo. My own fault really. I live with it everyday. So again you're not alone. Hugging you. Sweet sister. ~M~

  • micmel
    micmel Member Posts: 10,055

    Muddling~❤️💗🤲🌷 I’m holding your hand my sister.

    Much love ~M~