My Husband, My Life, My Love, My Family, My Cancer
Comments
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Micmel-No wonder things are crazy for you.....sinus infection, going off non essential meds? It's a lot to deal with, and thoughts of upcoming holidays. I am reading that a lot of gals are dealing with Ibrance fatigue-I remember and it's pretty intense- made me sooooo frustrated. I am so much more of a couch potato than I ever was, and I make no apologies. I had horrible sinus problems when I was getting the IV chemo foe the Stage I BC- turns out it was more of an allergic reaction. MO recommended Nasocort, which took several days to work, but it saved my life.
Grannax-how are you? My 94 yo Aunt has an aortic stenosis with a small aneurysm. Surgery is too risky, but she has lived with this for several years and expects to live several more! The echo will show exactly what's happening-may it turn out to be an "Oh, never mind".
Minnie-your poor dear Uncle; getting hurt on vacation is the pits. I'm sure you are stretching yourself to help, like a the trooper you are.
Lynne(Man)-welcome home! Hope it was amazing!
Muddling- i know how disappointing it can feel when the one little thing you've looked forward to doesn't happen. We all especially need our special cup of tea, or that new catalog to browse through, or a favorite TV show, or watching birds at the feeder. Small things that make us feel alive and forget about this damnable a-hole of a disease. I hate to hear of your insurance dilemma; in my opinion, health care is a basic right for all.
Shelia-MBC-the gift that keeps on giving. What a rough day you must have had- first your fruitcake friend and then crappy news about lung spots. I am thinking of you and hoping the biopsy reveals something benign-which could happen. I would recommend that you consider the SS Disability; you will be approved quickly and after 2 years you will be eligible for Medicare. I worked my butt off too, and never had any handouts- but to me, it is like getting my SS early because I will not live out my "natural" life. You have earned this. You could possibly use a portion of it to help pay for the private insurance as well.
Tanya-so smart to avoid all of those germs and boogers. It is so satisfying to shop for "warmy" things for grandchildren!
Bighome-you OK?
Skitz and Micmel-try reading an instruction manual for a TV or something-guaranteed to induce sleep!!
Seriously- thinking of all of you as we continue our plight, and hoping you are warm and cozy, relatively pain free.
Sharing some photos for color and some sense of normalcy.
Love , Mary Jane
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Micmel-No wonder things are crazy for you.....sinus infection, going off non essential meds? It's a lot to deal with, and thoughts of upcoming holidays. I am reading that a lot of gals are dealing with Ibrance fatigue-I remember and it's pretty intense- made me sooooo frustrated. I am so much more of a couch potato than I ever was, and I make no apologies. I had horrible sinus problems when I was getting the IV chemo foe the Stage I BC- turns out it was more of an allergic reaction. MO recommended Nasocort, which took several days to work, but it saved my life.
Grannax-how are you? My 94 yo Aunt has an aortic stenosis with a small aneurysm. Surgery is too risky, but she has lived with this for several years and expects to live several more! The echo will show exactly what's happening-may it turn out to be an "Oh, never mind".
Minnie-your poor dear Uncle; getting hurt on vacation is the pits. I'm sure you are stretching yourself to help, like a the trooper you are.
Lynne(Man)-welcome home! Hope it was amazing!
Muddling- i know how disappointing it can feel when the one little thing you've looked forward to doesn't happen. We all especially need our special cup of tea, or that new catalog to browse through, or a favorite TV show, or watching birds at the feeder. Small things that make us feel alive and forget about this damnable a-hole of a disease. I hate to hear of your insurance dilemma; in my opinion, health care is a basic right for all.
Shelia-MBC-the gift that keeps on giving. What a rough day you must have had- first your fruitcake friend and then crappy news about lung spots. I am thinking of you and hoping the biopsy reveals something benign-which could happen. I would recommend that you consider the SS Disability; you will be approved quickly and after 2 years you will be eligible for Medicare. I worked my butt off too, and never had any handouts- but to me, it is like getting my SS early because I will not live out my "natural" life. You have earned this. You could possibly use a portion of it to help pay for the private insurance as well.
Tanya-so smart to avoid all of those germs and boogers. It is so satisfying to shop for "warmy" things for grandchildren!
Bighome-you OK?
Skitz and Micmel-try reading an instruction manual for a TV or something-guaranteed to induce sleep!!
Seriously- thinking of all of you as we continue our plight, and hoping you are warm and cozy, relatively pain free.
Sharing some photos for color and some sense of normalcy.
Love , Mary Jane
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Happy Halloween! This is a Witch carousel that I made several years ago when I was certifiable!0 -
My grandchildren carving their pumpkins! They really got into it!0 -
you’re such a sweetheart MJH. Sometimes I think I’m going looney. But all essential meds. Have to go I need to figure out what is causing what and figure out what I can or cannot put up with. It’s always so good to see you. I have extreme ibrance fatigue. It’s a doosey.
Hugs to you !! ~M~
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Ok, so maybe I still am certifiable! This is end of soccer season cake and what it looks like when ghosts play.0 -
My DH has a Halloween birthday. He always wants a pumpkin pie. Indulged him with a bottle of 18 yo single malt scotch, so he is a happy fellow.0 -
love the pumpkins and the grand kids. Ty for sharing. I needed to remember today is Halloween!! Love the costumes to see later. I'll look out the window. But can't get sicker. Thanks for caring. ~M~
That is one awesome looking cake. What a super fun day... oh to be young again. Or not sick again.
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here is my plate!! That ghost is adorable. I love it. Happy birthday to your DH!!!🥃 👻. 🎈🎈🎁
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Shelia- forgive me, I think the insurance portion was meant for Muddling! Guess I am muddling also!
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Sheilamarie, sending love and big hugs, and remember no one is perfect. I was a smoker for many years, giving up (for,the,last time) a year before my first diagnosis. Even 12 years later I could still light up!!
Muddling, I hope you find a way through. At least in the Spanish system I don't have to worry about insurance. They are quite advanced and seem to have all the drugs mentioned here.
Thanks for best wishes for my uncle. He was operated on today, so shall see how he is tomorrow.
I am exhausted after treatment yesterday and the additional worry over my uncle. He is my Mothers only surviving sibling, her little brother, and it is upsetting her lots
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Mary Jane - it’s okay. I knew it was for muddling, just hoping she knew
You are incredibly talented!! That carousel - I’ve never seen anything like it! Wiw
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Minnie~ your uncle is in our thoughts and I am hoping he can heal and gain strength. You're an incredible woman. I am so glad you can support your mother. I hope things improve everyday with him .Try to rest whenever you can. I hope you're eating. Thinking of you all. This has been a rough week. Love to all ~M~
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MJHJAN1014, happy birthday wishes to your DH. I also have a dessert plate here and a pretty glass for some pie, or ghost cake, and some scotch! :-)
My DH has a birthday soon and he got a bottle of ten year old scotch. 18 year old scotch sounds amazing. Maybe Santa will put some under the tree for us.
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MJ, that pumpkin pie looks delish!
Sheila, sorry to hear about the ordeal of the friend taking you to the onc’s and then learning of the recent developments with this disease. Thhinking of you and sending many hugs you way.
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I am wondering why I am craving cake. MJH ghosts cake! And the pie. My goodness that's one bad thing about NOT giving out candy. There are no left overs. But honestly. Some years I would spend $60 on candy for our neighborhood! We would get 100's of kids. Are at least here the weather was pretty nice decent!
Thinking of you all!
Much love ~M~
As if today wasn't weird enough. I got a text from my estranged sister of 15 years today asking to see me again. My nephew also wants to see me, he said to her he was young and didn't have anything to do with any of It. I have to agree he doeshave a point. My son could use a good male figure. Some how one of my sister kids made it through the flames, and came out wonderfully. The problem is my sister threw me away, years ago during the divorce and it got really ugly. Watching half of my family support my xhusband over me. I suppose healing wounds,is not a bad thing. But my mental or emotional state cannot handle any stress whatsoever. So I have to really give it some thought! Hope we all have peaceful sleep.
Shelia~ thinking of you. Muddling you too!
~M~
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Sheila, I’m sorry your current treatment hasn’t been working as hoped but glad you have a plan going forward. I don’t blame you for keeping details of the lung issue to yourself and hopefully it is not a new primary. I stopped smoking after dx too but I’ve had a few on occasion and get dirty looks from DH every time. However, if anyone dares tell me how to live, I remind them “life is short, do what makes you happy”, lol, yeah, I play the cancer card.
Micmel, how did the bra contest go?
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Divine~Hello beautiful! Always love to see you here. How was trick or treat in your area?. Weren't you renovating your porch? Hugs my friend.
Mae~It was definitely a fund raiser. I didn't stay long because of my sinus infection that I'm finally kicking. I was disappointed in the set up of the bras. You just could not see any real detail in the back of any of them and the lighting was poor. The raffle price to vote for one is $10 each vote. Its a good cause I agree. I enjoyed doing it for sure. But it definitely did not show case, the hard work of all those women. I don't even even know who won .
......this is the set up. Never did any justice to any of them. Some of the short people cannot see the top, and the ones on the bottom you really had to make an effort to see. I'm going to send a nice letter suggesting they change the set up. It was way too pink and way to flashy for me. One woman had on a sequined ball gown floor length silver with a pink hue. Now don't get me wrong, she looked great, but I wondered, there could be no chance she had had cancer before. Not in those shoes, and honestly not in that dress. Even my DH said it was too much of a slap in the face to the women that struggle to even find something to feel comfortable in. I chose my black jeans and my dispensary gave me a shirt from their business withs Breast cancer ribbon on the back. That was about as flashy as I'm going to get!!!!But a nurse made my night. She chose me as her favorite and made me something special. I found out the bras get showcased in their offices with our stories with them. Thanks for asking ! I would design a bra again I enjoyed that much. Thank you so much for asking ! How are you doing and what are you doing with all of your time ? How is DH. Always good to see you!
Anyone heard from Bigbhome? I hope she’s doing good! Thinking of her. As well! Blueshine also! Been a while. Hello JKL, Runor.... sandy.... hope everyone rests well!
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Mae - do you know how hard it’s been receiving this news and not going out to buy a pack? It was always my vice in times of stress, and I’m not sure I’ve ever been this stressed...
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This is what she made me. She said it’s fake so it never dies. She is a beauty. I adore her ! She made going worth it Something told me that I should go to this event.. I would have never have known she chose me, this event was ran by my recon team. I don’t go there very much. If I want the right boob reduced and a nipple tattoo, I’d go back again. But the thought of another surgery isn’t something I really want to entertain. I’ve honestly had enough already! 
Have a good night Mae and ladies. ~M~0 -
Sheila, I do know and I sympathize with the stress. When DH and I left the vet after putting our boy down a few weeks ago,I made him stop at a gas station to get me a pack and a few minutes later we were home having a bourbon and coke along with it.
I admire your willpower 🙂❤️
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Sheila, it makes sense to keep the info about your progression to what you know....until you get other info, you don't know whether it is MBC or lung cancer. I flipped out when I heard that I had a progresssion to my lungs...and I never smoked, so please stop beating yourself up. The shock of a progression is hard enough to take. The reality is that they don't know why some cancers progress to the lungs, or to liver or bones???When I am stressed I eat sour chewy candy....Candy=fat=more estrogen=feeding cancer cells. Sigh.
Muddling, my heart breaks to hear that your future is tied to whether you have insurance coverage. I hope you can find a way forward that allows you accept help, not as charity, but as the benefit of being part of a community.
Micmel, I'm relieved to hear that you're looking at your drugs and getting rid of stuff. I wasn't on Ibrance as long as you have been but I remember two things- a constant runny nose/cold symptoms and fatigue. I hated the fatigue and how it would sneak in and take over.
I’ve been sick the last two weeks with a cold that my grandson brought home from daycare. I can’t seem to shake it and have been dragging my butt. I’m only now starting to feel like there is life after taxol. I had forgotten what “normal” felt like. Lol, I can do two things in a day now.
I’ve been drinking about 4 oz per day of tart cherry juice for almost a month now for my gout and neuropathy. My gout has settled down so i actually have days where I have no pain when I walk. The neuropathy is still there but my feet don’t feel like blocks anymore when I walk. Iwas surprised, it has made a difference.
Be well.
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Pots~Hello lovely. So nice to see you back. I was getting ready to bring out the personal message to see if you were ok. I know he constant feeling of sinus cold issues ever since the very first month I started. It's incredibly challenging and frustrating but I need to stay on this ibrance train! I needed to get rid of al NON essential meds. I was a total zombie. I Am hoping this does the trick. So glad you're feeling better!
Shelia~try medical marijuana vaping. It's not smoke and it has the same habit movements as smoking. Plus it will have medical benefits. Many doctors have told me that they believe it isn't everywhere inside me , Is because honestly, I've vaped marijuana on and off since I was injured in early 2009. I am serious when I say it helps. Even the CBD oil has healing and pain properties !
Muddling~ thinking of you. Waving to Mae and Minnie. Tanya, Grannax, Bigbhome, the Lynne's. MJH, Parry, Runor,Gracie,Lynnwood,skyfly,Bella,JKL,GP... sandybeaches...Daywalker...Chelle my girl, Nan, missing you everyday! If I've missed anyone I'll be back!!
Much love to all ~M~
Just saying. I eat whatever I want. Twix are pretty darn yummy. Lol I love hard candies also. These days our foods are jacked up on hormones, so I don’t really think it could possibly be just sugar. More like a combo of environmental and our food and the things the pump the animals with and the food they are fed. It’s virtually unavoidable. My whole life it was always, everything in moderation. I was in fit fit fit shape when I was diagnosed. My body fat level was under 15% BMI index. Which is more lean muscle than anything. I was a powerhouse. Of muscle and strength. I was 45 and stronger than ever. The. Day I was diagnosed I ran 6 miles in an hour. I did that everyday, except weekends. I would lift free weights after and I was built!! I didn’t have a bad diet. So. I believe it’s a random thing. A cell just goes rogue. That cell speeds to other cells as we know and then it forms!
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Pots, the plan is to buy the insurance for approximately another year and then see what's next after that. Only God knows the outcome. Thanks for the encouragement.
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Good morning ladies
I havent smoked in over 40 years and I have MBC.
I love good food. Fattening food. Fried chicken macaroni and cheese steak pies cake chocolate. I regulate myself so I don’t make myself sick but really with all the nausea and pain I do like to enjoy what I’m eating. I also like to see other people enjoy what I cook.
Muddling I hope some of the info the moderators gave you is useful. My husband and I both worked and raised 5 children. He still works now at 68 even though he retired from two jobs and gets a military pension that’s what it takes. His retirement had a good health plan and when I got cancer the first time I used the insurance from my job. I hope his insurance continues to cover us. He’s always been so frugal, juggling bills and repairs. We never had a handout just content with what we earned. I pray all goes well and your treatment is covered. I don’t care who covers it I know that all the money We pay in taxes should take care of us when we get old and sick.
I’m at acupuncture. Weird new pain today right hip in the front. It’s making me nauseous can’t wait to go home and relax
Waves to all. I thought I posted yesterday but I don’t see it today.
Tanya
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Micmel-
Thinking of you today. I don't post much but follow this thread. You are such a ring leader! Always in my prayers for you to have better days, mentally and physically.
God bless you sweetheart.....
MM
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Muddling~ I agree with Tanya's point about paying taxes into the system. You should apply for disability social security immediately, stage four is approved quicker. The sooner you start that the better. I hate that there is a wait for medical coverage. I never understood that at all. I can tell you I am in the “catastrophic" category already. But there is not a thing that I can do about that! This disease is hard enough without adding expenses into it. Thinking Of you and your DH..
Tanya ~ oh how I love to eat as well!! You made me hungry just naming some of those foods. I hope your hip pain is just one of those jumper pains we MBC patients seem to get every single day in different areas. I seem to get some in my rib areas. Not to mention my shoulder area. Ugh! What we all go through collectively on a daily basis would stop a train.
I love you guys !
Sheila? Honey. You're also on my mind.
Much love ~M~
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masons~Hello! 💗 what you posted for me really warmed my heart. Thank you so much. I know how hard this disease can be. Around my area I don't really know anyone in our boat, so I value the connections and sharing our lives together because we have to have the support. Many days having this thread to maintain has kept me grounded. I realize I truly am not alone when I read the words. My family (not DH and kids at all) Are cuckoo, so I had to make my own family. I consider this thread part of that family. If I help one woman smile a day, or feel like they are cared and loved. I've done my job for that day. Even if I suffer and am suffering everyday. It's not always about me. It's about being a team, and lending that shoulder when maybe your day is a good one. Today I feel great. I'm cutting out all non essential meds as I have mentioned and I'm already seeing the differences. I've realized anti depressants are evil. I strongly believe after what I've experienced, for me, they made things worse. If I'm going to be alive. I want to know it. I want to listen to my kids and DH and actually comprehend and be helpful while im around. Being drugged is no life. I really appreciate you taking the time to reach out and let me know you follow the thread. it really helps me know, starting it was a good thing. All the love I put into the thread actually is felt and is a unconditional constant thing here. We need unconditional always. Hugs to you sweet friend. Much love ~M~
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Shelia, so sorry to hear that crappy news. I figure it might be good to list some positives to help!
• there are treatment options! Promising ones at that
• your doctor is listening and taking care of you & your pain management
• the spine and lymph nodes aren't worse
• you weren't forced to share the news since f&f were away allowing you more control (I still haven't been able to share my skin mets and how they are progressing with my fiancé...it would rip him up all over again). I count this as a positive because whether you would share immediately or not the power to choose is in your hands.
• you have many people who care about you and are with you all the way
• you have a whole community of people here that you can talk to and relate to knowing they are in this along side you
• there are people living with worse diseases & situations (I say this not because it's something to be happy about, but it helps me personally keep a better perspective when I want to sit in a hole and feel bad. I can say hey I only have stage 4 cancer while laughing and crying)
• whatever the lung stuff is you've caught it early enough to not be having symptoms
• you aren't still smoking! we all do things we regret or know are bad for us sometime in our lives. Don't be so hard on yourself especially when you have already made the decision to move away from whatever it is that you regret. For me sugar is my cigarette and I haven't been able to quit yet
• medicine & science are advancing everyday
• you are living now vs 50 years ago in respect to treatment options and pain management
• you are strong & I can see that from your signature. You've gone through a lot and are going to fight this all the way!
• you probably aren’t taking the life you do have right now for granted
Sending you lots of love and hugs
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Shelia, so sorry to hear that crappy news. I figure it might be good to list some positives to help!
• there are treatment options! Promising ones at that
• your doctor is listening and taking care of you & your pain management
• the spine and lymph nodes aren't worse
• you weren't forced to share the news since f&f were away allowing you more control (I still haven't been able to share my skin mets and how they are progressing with my fiancé...it would rip him up all over again). I count this as a positive because whether you would share immediately or not the power to choose is in your hands.
• you have many people who care about you and are with you all the way
• you have a whole community of people here that you can talk to and relate to knowing they are in this along side you
• there are people living with worse diseases & situations (I say this not because it's something to be happy about, but it helps me personally keep a better perspective when I want to sit in a hole and feel bad. I can say hey I only have stage 4 cancer while laughing and crying)
• whatever the lung stuff is you've caught it early enough to not be having symptoms
• you aren't still smoking! we all do things we regret or know are bad for us sometime in our lives. Don't be so hard on yourself especially when you have already made the decision to move away from whatever it is that you regret. For me sugar is my cigarette and I haven't been able to quit yet
• medicine & science are advancing everyday
• you are living now vs 50 years ago in respect to treatment options and pain management
• you are strong & I can see that from your signature. You've gone through a lot and are going to fight this all the way!
• you probably aren’t taking the life you do have right now for granted
Sending you lots of love and hugs
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