My Husband, My Life, My Love, My Family, My Cancer
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❤❤🙏🏻🙏🏻
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Micmel you did such a great job! You showed them what diplomacy and civility looks like in practice. I'm glad she thanked you and offered that olive branch. You can smack her with it later but now just be there for your dad he needs and appreciates the nurturing kind caring love. Your DH and DD are amazing for treating you so thoughtfully and for being there for you.
I have a dysfunctional family too. My mom always tries to get me to talk with my sister but really its my sister who doesn't want to talk with me. I used to call her faithfully every month to not sever our ties. But after a few years I decided to stop. It was all one way me reaching out and sucking up and I said who needs this? Of course if there's ever a family emergency she will be there for everyone but she has some passive aggression against me that I always have to stay on guard for.
It's raining and miserable today. Not complaining just reporting the weather.
My doctor (Dr. Feelgood) not ONC. Told me to try a different type of cannabis wax. I tried it for two nights and didn't feel like I followed directions correctly or something. The consistency is sticky like sap and I was told to put a drop on parchment paper and then put it in the freezer for 3 minutes and then it will break off easy. That "easy" part never happened. It kept getting stuck to my fingers, teeth, lips and little applicator thing. A lot of the wax was in the tip (like the cap of a ballpoint pen). I couldn't get the sap wax stuff out so I decided to soak the cap in my tea water and just drink it. While I was drinking I felt fine. I went for a ride with my husband and came back like a sorority girl on a binge night. Whew I won't do that again but it was funny for one night. I felt like a real booze hound!!!!! I staggered to the bathroom and back and then feigned sleep so my DH wouldn't know the extent of my mistake. Giggling under the covers trying not to wake him up. I did finally sleep deep and sound.
Tanya
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Tanya, I was told the same thing by my Dr. Feel good. They so lied, just went everywhere but where I wanted it to. All over my fingertips, teeth and roof of my mouth. I haven't touched it since. I am going to return it. They will give your money back. I tried Sativa and am quite happy with it. I vape it.
Our pastures are ponds now, and still the rain keeps coming. No let up in site!
Micmel, It sounds like you have exhausted all avenues for your father. Does your stepmonster know that if the state steps in, they will take 50% of their assets? She can be forced to sell the house to pay the state. In fact, she should be doing that now. I have way too much experience with this! Just be there for your dad. If you are like me, he is all that matters!
Take care everyone! I do read occasionally, and I pray for all of you everyday!
Claudia
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Tanya~ thank you darling. I just don't see any other way for him to not worry about what's going to happen. I worry for him. He's anxious, he knows it's coming. He keeps asking when's he's going home. My sister was there today and so was my step monster. it's really hard to imagine him being alone there scared right now. I guess when he sees his Familiar faces, it makes him feel less alone and safer. I am going to try to go again on Tuesday, with my DD again. If my back will allow that is.
Bigbhome~ always so nice to see you. She is learning that the hard way. As of now, for him to get placement temporarily until she's better, they will intervene his social security until he is removed, and or the amount of care for the facility Is paid back. Either way hospice is really bad in this country and I Am Learning that as i go along. One day at a time is just all we can do. My back is blown again, from lifting him Thursday and Saturday. My goodness, people are heavy when they can't help movthemselves at all. It's like solid weight. But he doesn't really weigh much at all really. Hope all is well with you and your DH! Miss you around !
~M~
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Tanya, I’m happy you feel better now but must say I cracked up at your weed experience, literally LOL’d 😆
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Micmel, take care of only yourself this week and let your DH and kids know that so they will know to give all attention only to you. They must know you cannot help anyone before helping yourself. Love to you and know you have done superwoman help for your dad this week but time out.
Love Maria
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Helloto all the sweethearts on this board
And especially you micmel and bigbhome
I've been away for quite a while and I'm sorry ( I feel like I abandoned you all ) but the pain was to much when so many wonderful people, that I came to truly care for , started to suffer so much....my heart was breaking, truly breaking and I honestly didn't know what else to do....I'm sorry
Just wanted to let you know that all my cancer ( f*cker ) is still asleep and not ganging up on me right now and in March it will be 4 years since DX.. pretty amazing since the Mayo clinic gave me 3-7 months back in 2015. The amazing power of prayer and docs that don't give up on us stage 4 triple negative gals.
I have no hope of catching up on the conversation so I'll be lurking for a while lol
Keep shining bright, Nancy
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Yay Nan! So great to see you! 😀
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Illimae....so wonderful to see you too...I hope everything is stable in your world
Lots of love 🎈
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Wow Nan reading your signature you truly give me hope! When I was first diagnosed stage 4 I was very hopeful since I was ogliometastatic, but now it just feels like cancer is in too many places and I can’t get a leg up.
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OMG OMG OMG!!!!!Sweet sweet beautiful Nan 😂🤣🥰😍😜 hi honey. I am so thrilled to see you. My heart is filled with joy! I needed that today. I am so happy to hear you're stable. We love you. I am thrilled thrilled to see your name. My sweet friend. I've missed you so much! I'm smiling from ear to ear..
Tanya~ ty for your support about my dad. I go tomorrow for another visit. My back is shot. The muscles around it are pissed... I hope you're doing well. Much love my sweet.
Hello Mae and Parry hope today is a good one !
Marian~my real name is Melissa darling. Always nice to see you. Hope where you are isn’t too freezing like here. Right Lynnwood?? Ugh!
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Good morning, oops, afternoon Nan! When I read your post this morning, I cried happy tears! Happy, happy tears!! Never feel like you abandoned us. Never. You did what you need to do to keep yourself healthy and sane, we can ask and expect no more, or no less from anyone. I am so happy to hear your great news and it couldn't have happened on a better day. Today is my worst day on chemo and seeing you here this morning gave me a huge boost that I so desperately needed! So thank you very much for picking today! I am so happy to hear that your cancer is nice and sleeping in the corner. I just hope it stays asleep for a good long time. If I could wave a magic wand I would!
Unfortunately, I had to do as you did, and take lots of breaks. The loss of so many others just cut me to the knees and also we have had some issues in our personal life that have been greatly affecting me and my ability to share with others. I hope to start getting on more as I feel better. I have an appointment with a new oncologist from MD Anderson on February 4th and I am both frightened and nervous and happy at the same time. All these emotions swirling around are just enough to drive us to drink.
Tanya I laughed so hard when I read your description of how the medical marijuana made you feel. I have had some that have caused hallucinations, Voit hearing voices whispering in the wall and it's not been pretty. I think I have finally hit on the right combination but boy it sure is a long road getting here!
I want everyone to know that even though I have not been on here very often, I have kept up with your progress and I still pray for each and everyone of you everyday and when I see that you are having a rough time I send up extra prayers for you. I have been celebrating your ups and downs right along with you just doing it quietly.
Hugs and prayers, Claudia
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bigbhome, will you be coming to MD Anderson in Houston or is it a local clinic. If you come here, I’ll drive you to that drink, lol
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Mae, I don't know how we would survive without your wonderful sense of humor ! My appointment is here in Florida not in Houston . But I'm looking forward to eventually making it to Houston so you and I can go out for that drink together ! Although, I haven't had liquor in such a long time probably after a sipper so you would have to drag me out . I can tell you that when I get tipsy , I get giggly . I find absolutely everything funny ! But I haven't been Tipsy in at least eight years . Is that a good thing, or a bad thing I'm not sure!
Love,
Claudia
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Skittles is not feeling well today!0 -
Poor Skittles
maybe just a bit of a cold...hope it passes soon. Sure looks nice and snuggly0 -
Ohhhh, puppy! 😃
Currently in treatment (Herceptin & Perjeta) and having fun coloring (take a close look at the books, lol).
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Mae!!!!! Lmfao. That is hilarious ! I am going to adopt that phrase yes I am. Your shoes are cute too.
Poor skittles. Lil fella feel better.
Parry~Hi honey. Hope you’re well today !
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Okay pals, I read this on the Xeloda thread. It isn't my info. The post is by Miaomix. I found it interesting and a bit exciting. Oh, I pray this, or something else already in the pipeline, will be it.
Copying her post below:
"3 hours ago - edited 3 hours ago by Miaomix
Check this out...you unbelievers.....A cure for cancer? Israeli scientists say they think they found one
A small team of Israeli scientists think they might have found the first complete cure for cancer.
We believe we will offer in a year's time a complete cure for cancer." said Dan Aridor, chairman of the board of a new treatment being developed by Accelerated Evolution Biotechnologies Ltd. (AEBi), which was founded in 2000 in the ITEK incubator in the Weizmann Science Park. AEBi developed the SoAP platform, which provides functional leads to very difficult targets.
"Our cancer cure will be effective from day one, will last a duration of a few weeks and will have no or minimal side-effects at a much lower cost than most other treatments on the market," Aridor said. "Our solution will be both generic and personal." "
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Well, my tumor markers are way up. Having a Doppler and contrast to check the port out tomorrow. It may have to come out. Brain MRI in the next couple of weeks because I’m habing a lot of dizziness and pain in my head. Could have been better
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Muddling~ thanks for the smile wouldn't that really be something. Wow. Bring it on Israel!!
Gracie~I am thinking of you and hopin your port calms the heck down. You poor girl. You are in my thoughts. I am in your pocket come Doppler time
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Wow muddling, that would be great, life changing if it comes to fruition.
Gracie, I’m sorry, was so hoping for better news but only suspicions at this point. Fingers crossed the MRI finds nothing cancer related.
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Mae your post made my heart lighter! I needed such a simple light post somewhere. And your so good!!! I could never stay in the lines, haha and admit I do own a few coloring books.
Muddling I’m afraid to read the link because the Hope is too much, but I really really hope it’s true for all of us.
Gracie sweetheart your in my prayers. I hope the scan is clean and maybe it’s a rare SE. Sorry your port is troublesome too! What a butt head. Mines been acting up and today it was completely stopped. They put this stuff in it today hoping it would clear it up, took 2 doses and a few hours letting it work, but it did! Got 2 syringes of blood from it when we didn’t even get a flash before. Whatever they need to do I hope it’s not too rough and can be easily resolved
Well all but brain scans are in after a month + on Halaven...no new organs involved, they still don’t see anything in the left breast which is huge swollen and has 2 palpable giant masses that have very visibly changed the shape of that breast, some Thyroid stiff lit up, 3 new lung nodes, and few are slightly larger and some are stable. This CY scan was today and still no news on the brain MRI from last week. My vision is much worse so I know there are changes, but now I’m worried. My MO knows I handle news well so it makes me think she is trying to figure out what to do. Last I talked to her, mentioning the worsening vision, she said luckily there’s a bunch of brain people very interested in my case...so why such a delay? Ugh and this chest cold is rubbing my face in the mud.
Hope you all are hanging in there and dare I say thriving!!?0 -
Thanks everyone! Wish that cure would hurry up!!!!
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look at how big my grand puppers is. I can’t believe his head is two of mine. This dog has the best demeanor and I truly love him. He still remembers me every time I see him. Makes me smile every time! Hugs ladies0 -
Gracie!!! Hope this hug doesn’t hurt your port ! Much love sweet sister.
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Gracie, I hope you feel better and get some answers.soon. You've been too uncomfortable!
Micmel, Mae, and Parry, I'm skeptical by nature and do try to take big "cure" claims with many grains of salt. However.....maybe this is the angle that will be it. If not this one, then some other new treatments that clever researchers are testing now. I want to live and every person who has any form of this disease.
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Muddling~. Good morning. I think it’s High time the cure isn’t just a band from the 80’s. It’s starting to snow here. I was supposed to go see my father with my daughter. Who knows. Maybe an energy bug will bite my ass... and I’ll be able to go. I am not afraid to drive in the snow.... I kinda like it, it’s the other people I worry about. I just don’t want him alone. I can’t have him alone. ! I can imagine him sitting alone, as I have been alone a lot.
Sometimes life sucks plain and simple!!!
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I’d make you a nice pot of coffee or teaif I could & it would help!
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