My Husband, My Life, My Love, My Family, My Cancer
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Flu shot is a good thing. But this is bad! Take a steaming hot shower and dont touch door handles. Clean with Lysol And if. You have a mask wear it. !!!
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Hi to all you, my dear friends! I am still here, reading your posts very often . At night i start reading and than too exhausted to write. Full time grandmother for my two grandsons, one 14 months. the other 17. Tons of work and I don't know how i am still able to do it. Maybe the time with the little one charges my battery .
Micmel, you are amazing, you mentioned me a few times.... You don't give up on nobody her .. I love you. Let God gives you strength to support you on your dad's last journey .
i am happy with everybody,s good test results and preying for the ones with not that good news to find the right medicine to bring them back to stable.
love you all Elena
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Thanks Micmel, will do! Glad you are feeling a little better! Take care of yourself!
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Micmel, It seems your dad isn’t ready to leave yet. I don’t know if he has a specific disease, but we often hear of people who surprise their doctors. Your reconnection with him seems to be good for him and also seems good for you, difficult as it’s been.
Gracie, Sorry to hear of your sick son in law. Hope you escape any illness. We had family photos last week and our youngest grandchild (age 1) was running a fever and obviously sick. I was nervous since my counts were low too, but didn’t want to say anything. (Hubby was ready to, but not sure what we could do.). I don’t know how we can avoid the germs that are everywhere.
Grannax, Great NYC pic. In my newnesswith this diagnosis I have already felt the paranoia that can come with the various tests and appointments. Lately my mind is set on optimism because I finally have treatment started, but I know that nothing stays the same. I hope your X treatment (Xeloda?) is a long and good one for you.
Holmes, Hello. That’s great that you’re doing well with your daycare!
Muddling, Just wondering if you’re aware of the Pfizer Co-Pay benefits for Ibrance? There are some exclusions but if you have private insurance it is a big help.
Tanya, Hawaii sounds wonderful about now! Hope you can get away from it all (or close) for a while.
Pots, That must have been a great adventure, Australia & New Zealand. Glad your feet made it through.
Parry, Hello to you and hoping you’re feeling good today. I love your spunk through all this stuff you’re dealing with.
I’m in a holding pattern with blood recheck next Weds. Hello to anyone I haven’t “met” yet. You’re rays of sunshine to each other, I can tell.
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Blueshine ~I was missing you. I never usually forget special friends. I just wanted you to know I had noticed. I honestly care very much and want to make sure everyone is doing well. When I don’t see you. I start to worry! I’m happy to see you back again and how awesome are you full time grandma?!
Hugs and more hugs! ~M~
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Thanks to everybody for your well wishes! Am hoping the flu shot will help out. Just went in the bedroom to give him a sandwich and forgot to put on a face mask!!!! Oh well... I think I could just as easily get the flu at the store or somewhere else. .....I hope. Hope I’m not just hiding my head in the sand!!
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Rosie~That is exactly what the doctor has said. Maybe he liking things the way they are. Maybe he wants to stick around and live a little longer, now that he sees things have changed dramatically. I just want to make peace of it all, and somehow it’s happening. I am appreciative of this time and chance I have been given. I’m so glad I didn’t squander it. Last night though he was given Tylenol. I’m worried he will have gotten it. His over working body cannot take it. They told us, if he gets this It could be a very bad thing for him immediatey! Ugh the horrorible flu! But he did have the flu shot. So I pray that helps him. I have off of visiting yesterday and today. I need it! For sure
Gracie~~Oh no! Wash those hands. Lysol the knobs. You poor dear. I’m sure that, If you're going to get it . Most likely you have been already infected. Tamiflu can help if you nail the symptoms early it kicks it to the curb. Good luck.
Much love to all!
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Tanya That’s the Island 🌴 I went to last May. So glad you have a place to stay. Hotels are soo expensive. It was the first vacation I’ve ever been on where I loved it so much I said. I don’t want to go home.
Love the story about your cousin.
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This is the current state of my remodel in my kitchen The good news is that my new quartz countertops will be installed this afternoon Pinch me, I cannot believe it’s really going to happen I’ve waited 33 years for this moment Meanwhile, My only drains are my toilets, only place to wash hands is the showers, only water comes from fridge, no dishwasher All this until tomorrow evening when my worker comes to replace old plumbing under the sinks and install my new faucets Well worth the wait but it does require adapting and changing old habits for awhile 😐
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Grannax~ Our star deserves her cabinets !! Yay!
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okay today I am going to say I feel like ass! Started the day pretty good. I have blood work and XGeva shot tomorrow and i hate everything about it. I just don’t want to go. I really just don’t. I’m so sick of this state of my life! SICK!!! 🥺
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Micmel,
Tell us how you really feel...
Seriously, I can relate to these feelings you describe. Take a deep breath. Find just one someone/something around you that you love. Treatment tomorrow is a blessing in that it will give you some more decent time to enjoy that special someone/something. We are with you in these impossible moments...
Gumdoctor
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Gumdoctor~I totally know that I am Not alone in my feelings, sometimes I just get over whelmed as we all do. It’s been three months since my last blood work. I guess it’s a trigger for me. Not to mention, I am still coughing up a storm. Nagging cough just doesn’t go away. I know it’s from the flu last week but ugh. Go away already. Right Runor? Yuck cough and sniffles, runny nose ! Tissues stuff my
Pockets like a squirrel.. I am also convinced I really dis like freezing wind. Brrrrr ugh no!
I’m hanging on somehow. Thanks Gum doctor. I am always one to just belt out how I feel! I hope everyone knows this is the place for it ! Much love stay warm please !
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Micmel, it'll be all right tomorrow. It will even be a warmer, nicer day. I'll bring Cheetos when in your pocket so when you find the cheese dust, you'll know who to blame. 🌞
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Micmel, I’m in your pocket tomorrow just don’t stuff your snotty Kleenex on me please. YUP, I so dislike the 3 month reckoning too.....I think it is what sets this disease apart from so many others
Gracie, Micmel, runor ...and anyone else with snotty noses...Have you tried a Neti pot for you runny nose? You can probably get it at a drug store or Walmart. Works like a charm for me to help dry runny noses and head congestion....may also help with your cough. I swear by it.
Welcome Rosie, this is the best group ever.
Here’s a picture of me feeding a wallabie in Kuranda, near Cairns.
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....and because so many of you are feeling like crap, I thought it might cheer you to see some coral in the Great Barrier Reef, taken from the glass bottom boat. I would back out on the water in a heartbeat, Tanya....I bet reefs in Hawaii would be amazing too
Yes the coral in the bottom picture is blue...it was so beautiful that I cried.
Be well,
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Omg I would have cried also. Such natural beauty to be witnessing. Thank you ladies for the support. I love each and every one of you. Much love ~M~ no snotty Kleenex. And I will look into the nettypot.
💐💐💐💐
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micmel- thinking of u today. We both have doctor appointments today and I know we are both going to get good news! If so I'll do Round 7 of my acChemo!
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Skitz~Hi there darling. I’ll be with you in your pocket. I had to reschedule my blood work and shot until Thursday. They want me to rest another two days to make sure my counts aren’t too low. I feel like this cold will not go away! I’m sleeping for a living at this point. Only good for you today my sister!
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Great pics grannax and pots!
Waiting for your vacation photos Tanya.
Micmel, I hope you feel better soon. I’m sure the winter weather and being sick is making things tougher than usual.
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Hello to everyone!
Moving along in my treatment plan adjustment. PET scheduled for Monday, echocardiogram Tuesday, MO visit Thursday. Spending next week in Portland I guess. Fortunately it is a cool city and only 30 minutes away. First Doxil infusion and potential Y90 TBD. Feeling some tingles in my upper spine, so guessing there's activity there. MBC, the gift that keeps on giving......
We are having a nasty windstorm here with freezing cold temps. Keeping the woodstove heavily fired. DH left me with a cord of beautiful kiln dried wood that burns like a dream.
My sister's best friend, who lives in Texas, sent me a box of Meyer lemons from her tree. I made lemon squares for my friend and neighbor as they are her favorite. She was diagnosed with DCIS a year ago which returned this year, So she just had double masectomy with expanders put in place. It has been a painful recovery for her, and now she has to go and have a chunk of tissue surgically removed. It is not healing well because of last year's radiation. Feel for her; she and her DH have been knocked on their butts by all of this.
Working on more specific plans for our Disney trip in April. Feel a bit like a deer in the headlights; there so much advice on "how to maximize your Disney vacation". Reading it gives me nervous ticks. We are doing a moderate amount of planning, but planning on a relaxed pace.
Hopefully everyone is feeling OK, or improving at least. Thinking of you all and sending hugs. Mary Jane
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Hi Everyone, hope all those nasty colds and flus dissappear quick. I had a bad cold back in January. People here have a habit of hugging a lot and kissing both cheeks, very European! I have been avoiding as much as possible, especially if I see tissues or anyone coughing, hold my breath and try to avoid any germs. Use that hand sanitiser!!
Tanya, enjoy Hawaii, sounds like you need a break. Blueshine, sounds like you could do with one too! Pots, love the coral! Grannax, hope that kitchen gets sorted quick. Mary Jane, we have lemon groves all around us, so we do pick the odd lemon for a lemon drizzle cake!!
Only 10 days till our trip! Getting excited, though usual bloods on Friday followed by treatment and xgeva shot. Nothing is going to bother me this week!
Micmel, as always, look after yourself. Hope your Dad is ok too.
Love to everyone, in pockets for scans too xxx
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appointment was very good today! Ca27.29 was 56.7 last round and down to 40.3 today. It is taking awhile but seems to be working. (Knock On Wood).
In three weeks I’ll have a heart check and cat scan and if all shows good and bloodwork stays good, I’ll continue on ac chemo.
Getting two bags of blood tomorrow, seems to be my normal every three weeks.
Micmel hope you get better soon! Seems like stuff is going around here now so I best stay in more to be safe.
Sarah
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skitz~I'm hacking away. I feel like my lungs are going to pop out. Coughing isn't even accurate. I am glad to hear you had a great visit. Very good!! I will be doing mine Thursday afternoon, in hopes my counts will rebound enough for the shot.
My son in law went to visit my father today for me and brought home his clothing for me. It was a full load already. A huge comforter as well. I get breaks Sunday and Monday and Wednesday nights. But in between I am on laundry detail. I sent anti itching cream for his skin. Since his liver is breaking down, his skin is itching from the toxins. This is thick wonderful stuff. It worked well for me when I was healing from all my surgeries.
I also sent two water bottles. He is like me and likes fresh fresh cold water with a lot of ice. Every time I go I check it. He was eating his krimpets one in each hand. I was so happy that my son in law went for me. It was special. I need help I can't do it alone, even if he is only 4 miles down the road. It still is a lot of extra things I am not used to. Not to mention being in an old folks home with sick and coughing people isn't somewhere I should be. But I really want to see him. It's like an invisible pull to me. I want to make sure his laundry is smelling fresher and cleaner than any laundry in that joint. The nurses told me they can smell whatever I use when they open the drawers and that everything is so soft. That makes me smile. It's such a personal thing, your laundry. It's a touch of home. Brought to him. I guess it's what I can do. Somehow, it makes me feel better.
Gum doctor. How are you? Nanette thinking of you !!
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micmel - bronchitis is going around here but maybe check for pneumonia as well. Make sure you ask Thursday when you go. My doctor said today if I think I have bronchitis call right away he will just put me in an antibiotic right away for it.
Sara
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Skitz~ you definitely have a Point... the coughing is a concern. I feel like a rag doll with sore ribs and back. I am getting a humidifier for my room. The dry gas heat isn’t helping. I’m going to nap. My only peace and quiet. I washed my dads laundry and I am going to take them back this evening. I feel drained more than usual. The dogs Let me sleep until 813!! It was something else but the body needs rest.
Hello to all! ~M~
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coughing coughing coughing. Wow. This one is a doosey. Still no blood work or XGeva shot. Not strong enough. Gonna try Tomorrow again. Sleeping is my only escape. Hugs to all. Stay flu and cold free. I hope !!
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Sometimes when I am not home and I want to check on my dogs. I wish this !!! 🐾 🐾 🐾! Mae? You ok in there ?
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Micmel I feel u on the sleep escape. I wonder what my dogs would text back to me if they could, lol
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they would text back that they stole my snacks!! Or had an accident on the carpet.. lol I’ve even thought about a nanny cam. To keep an eye on the little suckers. !
Hope you’re feeling well! Hugs to you Parry!!
~M~
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