My Husband, My Life, My Love, My Family, My Cancer
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High five Mae! A victory is amazing. Well done
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Mae, happy news about the bath. I still remember 4 days after my lumpectomy (which had complications) and I was still covered with that sticky red stuff they swab on you, and blood and other ooze and Hub went back to work and I was alone and decided to get in our deep, narrow tub. And then I couldn't get out because I was so seized up and in pain and not able to move and I laid there like a big whale and cried. But I love my tub. Somedays it's my only sanity! Glad you are back among the bathing. Your band choices ... hmm, from Alan Parson's to something that sounds like Asthmatic Fairies. I suppose you're a closet fan of Three Dead Trolls In A Baggie. I don't think they had many hits.
Hugs and prayers for strnegth to all.
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My new old fashioned faucet with running water and a drain that works. No, not finished one piece of the backsplash has to be put back on today
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Another faucet and sink that works in my guest bathroom. Anyone want to come stay with me?
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Two sinks that don’t work yet At least the faucets at installed in my master bath
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Parry~. Love you. You beautiful strong newlywed! Never say never. I’ve learned that along my way in this horrid journey. You’re not alone sweet sister!! I will hold your hand everyday! We love you honey !
Grannax~ ahh yes. I think we would all love a visit. I know I would love nothing more than to come and visit, sit and chat... drink tea and brownies or whatever Mae would decide to play on the music level! Alan parsons! It really looks lovely ! I’m so happy for you! You deserve it and have waited so long! Hugs hugs
Runor~ you always manage to make me smile. I went to see my onc Friday.... he complained about my weight. I was like dude. I was sick! If I got into my tub. I wouldn’t get out. My knees seem weaker and weaker each year! I don’t like the thought of you crying alone. Hugs my beautiful friend!!
Minnie~Hello gorgeous! I am sure you’re sound asleep by now. Another storm on tap for us. 8 more inches max. But yuck. Enough already please. Hugs my beauty!!
Stay safe in any weather my sisters. It’s good to be a long Sunday night!
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I have made a momentous decision. Finally, after a year of distrust, I am firing my MO.
On Friday I realized my mood was affecting my family and friends. I’ve put up with her sarcasm, gone against my gut feeling by taking Afinitor, listened in horror as she told me she did not like her patients to be knowledgeable or literate. I’ve known I wasn’t in the right place for a year.
What I didn’t realize until Friday, is that by going against my gut and holding in my feelings of being unsafe, I was getting cranky. I was swallowing my real feelings and it was coming out in hurtful ways to my kids. Losing my temper. Not myself. Not good.
I decide things by asking myself What is the best thing that can happen? What is the worst thing that can happen? In this case, there is no worst thing that can happen, she is the worst thing. I can only go up from here.
Tomorrow I will start the process of finding a new MO. I have already asked for help from my PCP. I will go to UTSW in Dallas. It is our only NCI facility in Dallas, a much smaller version of MDA. It will take about 40 minutes each way. But I’m done with trying to go with “convenient “. I need a breast cancer specialist, duh 🙄
So this is my epifany.
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Grannax ~ ohhh and that floor in your guest bath! Primo! I love the wood floors! 🙇♀️🙇♀️
I think you should be your own advocate ! Never settle!! Never!!
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Congrats on your decision Grannax, our MO’s must be on our team.
Honestly, the only Alan parsons song I know is Eye in the Sky but since DH works for him, I’ve come to know and appreciate the parson family, they’re really lovely people. I’ve never heard of three dead trolls but if I’m picking the music, it’s Jamaican Ska or British Indie all the way.
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From small victories to huge losses. The news of Z’s passing has me considering a stiff drink right now. 😭
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Oh no, what? 😢
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seriously no words. I’m just crushed. I’m sure we all are. Such a bright bright light a fighter tough as nails. So 💔😢 was afraid of hearing this. Ty Mae for letting us know
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I’m crushed! I’ll join you in that stiff drink illimae.
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RIP Z, a true fighter
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they say shit rolls down hill!!! I can't believe we are dealing with the loss of another force. I honestly have no words. You would think that since it was Z I would have so many things to say, because she was so many things to so many. I just hope her family knows what a fighter for us all she was. 💔😢.
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Mae~Since you are the one who found out, you should be the one to ask Celia to add her beautiful name. But what date ? 😭😪 it doesn't seem real. May she be running and biking and hiking all overthe place.
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I'm in denial about Z. The was bigger than life, smarter than anyone, assertive, encouraging. She can simply not be gone. Noooo
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I completely agree about the denial part of things. Evern seeing that picture. Makes it even more unbelievable. She was all about fighting This beast. No one could ever say she didn't give it her 1000% to be a good mother and a fighter at the same time. She astonished me with what she had accomplished! Brave woman flying To japan with her youngest girl to get treatment no one else would dare consider. She thought outside the box, and we need more people like that to advocate for cancer patients!
Fly free sister 🧚🏻♂️🧚🏻♂️🧚🏻♂️🦅🦅🦋🦋🦋🕊🕊🕊!
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checking in from Hawaii. I had to catch up on reading all the posts.
So sad about the passing of Z.
Parry don’t listen to doctors expiration date theories. Do they get sensitivity training. You’re a young newlywed!!!?
Grannax your kitchen/bathroom is gorgeous. Congrats on firing your onc!
The wifi here is not great.
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Thanks Mae for letting us know about Z. I’m so sad to hear your news. She was such an amazing advocate and role model. Rest In Peace Z. I so hate this disease and what it does to us, our friends and our family.
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I have felt like dog do do since this last Tuesday ac treatment. I do think dry eyes are a part of the vision problem. I felt like an elephant was sitting on my chest. Hard to breath and just not feeling great. I laid around all day just half ass miserable. I thought let me try my emetrol, that I swear by, even though this can’t be nausea, I had myself all talked into the fact I’m sure I now have heart damage from this stupid chemo!
Few hours later, I’m burping and feeling better. What? Nausea to me is like ick pukey stomach feeling. So i decide tonight to google it. Serious symptoms include chest pain and difficulty breathing. Omg, all these months I have been feeling like this and I had no idea!
The things I have learned for tips and tricks just from this cancer should qualify me for a degree in something, lol!
Sara
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oh anyone hear from scwilly? Do hope she is doing better
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I reached out to her last week to check on her condition and unfortunately her husband replied saying she is in hospice
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my god this just doesn’t get any easier. Scwilly is such a. Sweet loving woman also. Oh Daniel. Ty for letting us know. I knew there was someone sticking in my mind And it was her. I hate this horrible disease so much , taking sisters left and right from us. This is just seriously too much. Hug Leslie for us please. Good to see you.
Tanya~ Beautiful tanya. I love your pictures so much. You truly are a beautiful soldier, spending your time however the heck you want. More power to you And your awesome travels. I was in Hawaii when I was 13. I loved it. Diamond Head was magnificent! Best pineapple anywhere! Have so much fun and make those memories sweet sister.
Skitz ~ty for the reminder about scwilly. I am deeply bothered by this. Hospice is front and center for me because of my dad. Not something I want to even think About for us... if I’m going, I want to go fast none of this painful emotional Lingering none of this is fair.
Pots~AC chemo is ass hard. I have had to have several heart tests to make sure my heart was remaining strong and funtioning. Please call if you have the slightest worry.
Woke up to 8 or more inches of heavy heavy snow! Looks like it may be a while before I go anywhere. That’s not so bad I guess. When it’s better I’ll go visit my dad. I ve been so sick lately. He now has pneumonia from aspiration on some food particles. It is worrying me. I can hear a rattle in his lungs. Scares me so.
💔 how can we let go ever
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I think I need the drink for z as well! She taught us all to fight and keep going. She never stopped and researched for us all. We have learned more from her than she will ever know. I don’t think there will be enough booze for everyone on this website to honor her.
I’m so sad about scwilly as well. When your in the same situation as these two ladies are, horrible liver, it scares the hell out of you. It happens so fast and there isn’t a damned thing we can do about it.
I’m so close to my 3 year cancerversary. I remind myself I’m lucky to have gotten three years but sad when I think well how many more do I get?
I raise my glass to Zar
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well, seems like the 'sh*t hit the fan' moment has chosen us, too today. Leslie had a seizure a few hours ago and we are waiting at the ER to see a doctor. Just when the rest of her body scans came back normal. 😣
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Daniel~🥺🥺 I am speechless but really hoping it was related to something else. I had one before I had severe dehydration and had no idea. I am down on my knees begging. That she’s ok. Also, we are here for you. Waiting to hear!! In both of your pockets. 🕊
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Daniel,
Hoping and praying for the best for you both. You are such a courageous and generous caregiver for her.
Gumdoctor
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well, seems like the 'sh*t hit the fan' moment has chosen us, too today. Leslie had a seizure a few hours ago and we are waiting at the ER to see a doctor. Just when the rest of her body scans came back normal. 😣
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