My Husband, My Life, My Love, My Family, My Cancer
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I’m here, doing fine. Had my every 6 month endocrine follow up today. All went well but they’re increasing my thyroid meds, as my blood work was not exactly where they want it to be.
My houseguest has moved on to another opportunity, it is quiet but so nice 😀. Other than that, not much going on here, just gym workouts, housework and lounging around.
All my dogs would’ve texted different things but mainly asking when I’d be home, I think, cute thought though.
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Mae~ have you watched the masked singer ? My television sister??
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New countertops in my master bath it’s called Calacutta Venato Quartz Love it so much Kitchen and guest bath are done too BUT the plumbing is not completely finished So, I’m still camping in some respects. My only drains are in the toilets, my water is only from the fridge, my new, beautiful faucets are not in yet 😑 Hopefully all will be completed on Saturday. There were problems replacing my 33 year old plumbing under the sinks. Inconvenient things happen during remodeling
Plus, I had a really bad reaction to all the epoxy glue smell in my house. By the time I realized it they were starting on the third countertop. I opened all the windows but it was too late I had to call 911. They walked in my house and said you have to get out of here for 24 hours. So my daughter came to get me and I spent the night there. I was fine later that evening
I’ll post a pic of my farmhouse sink too
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Micmel I’ve thought about the cam too just to see what they do all day! The secret life of dogs...
Grannax the counters look so so lovely!!!! Glad you got away from the smell though. Those chemicals are obnoxious and probably not great to breathe in anyways. My bachelor degree is in interior design and the stone you picked is one of my favorites. Quartz is a great material, very underrated imo.
Hope everyone else is doing well or hanging in there. Love & gentle hugs to you all
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Grannax~I am so glad you’re ok. Thank goodness you had the thought to connect calling 911. I may have just suffered it out. Thank goodness for daughters! The countertop choice is so lovely. It really brings in some nice bright surfaces to bounce some light off of. I would love to do that. It’s sounds exciting. Minus the camping part. I was never good at that. I’ll admit it. My poor DH had to purchase top of the line cabellas cot. Now I cant even camp at all. Soak up your new remodel and enjoy every second. I hope they finish soon for you!!!
Parry~lol a secret dog life. You may have something there ! They are persnickety creatures for sure. Hope you’re feeling well. Looks like blood work today for me! Ugh! I hate the smells when I walk down that infusion center hallway. 🥴🥺 gosh I hate that! 😞😪
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Oh Grannax --- I LOVE IT ALL!!!
While you are temporarily inconvenienced, it will be SO WORTH IT!!!
Enjoy.
Gumdoctor
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The smell of the infusion center used to give me anxiety to the point where I’d throw up. I brought some amazing oil I could roll on and it helped soooooo much. My smell was plumeria & some Hawaii smell. Never thought it would help, but now I even have candles I light to help me sleep at night. Smell has always been a sensitive thing for me. Hope your blood work came back A OK!
Pain has been more manageable with the new meds and dosage. Finally got to see my MO in person today after not seeing her since the 11th. We talked about what we needed to do to move states and buy our big beautiful house I can ‘retire’ in. Her face said it all. Doesn’t look like it will be possible. She thinks with how things are progressing and responding I have less than a year left. I knew I maybe had 3 and I’ve gone through 1, but damn it was a punch. Sorry to share such shitty news and drag the mood down. Thanks for letting me share here and (hopefully) not expecting positivity all the time. Gem/Cis chemo #2 bright and early tomorrow. Praying to God it works and he sees fit to keep me here longer.
Take care sisters, BIG hugs to everyone
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Oh Parry, What a day you’ve had. I don’t think shitty is enough to describe it. I don’t always have the gift of words but I am here to listen to whatever you have to tell us, no matter what it is. This MBC life has taken all expectations we thought we had and thrown them out the window. I hope you’re one who surprises your MO, and that you feel good enough to do some fun things with your husband. Hugsto you, new friend.
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Parry, we share the good and bad, no apologies. I believe in possibilities, so I’m gonna dream big and send you my best vibes for a better than expected improvement in your treatment.
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Parry, your news just plain sucks. Good, bad, or ugly we’re here for it. Hmm....not to challenge the MO but...where would you rather be for your last bit of time, however long it is?in your dream home or where you are now? If your answer is dream home, can you ask your family/friends to help then get cracking to make it happen? If a move is not possible, what about renting in that area for bunches of time? I think finding a way to live your dream is really important. Big hugs.
Love the reno’s Grannax...admire your stamina to see it through.
Micmel, how did today go?
My CT scan results today show no evidence of metastatic disease in abdomen, chest or thorax. Lung nodules stable. The exemestane is doing its job, I am so very happy and grateful. We played with our 16mo grandson tonight....spending time with him reminds me how precious time is for me and for all of us.
Big hugs and be well,
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Grannax - that kitchen!
Parry, I felt stricken reading your words. I am so sorry. I hope your doctors are wrong. Just wrong.
Micmel, is that cold getting any better? I sure hope so!
I drop in to read all the time but not much to say. I think of you all. This place is a touchstone.
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Parry, I am sorry about the reaction you received from your MO. Someone on one of the threads here once wrote that none of us has an expiration date stamped on our forehead. That statement has stuck with me because it is so true. No one truly knows how long any one of us will live. Each of us is unique. Even when our diseases, symptoms, characteristics, and stages seem comparable, our bodies’ responses can be very different to the same treatments. There is so much still unknown that it is impossible to predict a timeline for any one of us. I have seen people here who lived for years after they were told that they had little time left. I have seen people fade quickly when they were expected to live for a long time. There is no crystal ball. There are many ways to react to this disease. We can sit back and wait to die - worrying about it every minute. We can push ahead and do everything we want to do in spite of the disease. We can settle on a plan somewhere between those two extremes. Only you can decide what path you want to take. You have planned and lived through two weddings since your diagnosis. That is no easy task, but I know that you experienced great joy from having those beautiful events and sharing them with those you love. Moving to your dream house is still an option for you. Only you know if that is the right choice. Whatever you decide to do, embrace your decision because it will be the right one. We will be here to support you. I hope that you outlive all expectations and amaze your MO. You are in my thoughts and prayers.
Hugs and prayers from,Lynne
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Well said 50sgirl. And how are YOU doing? Hi Micmel..just jumped on your thread. Good to see so many familiar "names".
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Perry. No words but praying. Thanks girls for the compliments on my kitchen. I'm just about done with the camping out. Tomorrow the plumbing will be fixed. I don't care if nothing else gets fixed, I need my dishwasher and sink and drains.
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Grannax, SO beautiful!!! I know you will enjoy. Parry, what a punch in the gut. I know oncs have to try to be upfront with us but I feel like that was a little extreme, especially knowing that with those words, your dream would be crushed. I say go for your dream!! Move forward and enjoy! Try not to let some hurtful words crush your dream. I’m sorry that you had to hear thst
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Parry~I am seriously going to say that NO ONE knows. When I was first diagnosed. I was told flat out. You have three years. I passed my third year in January and have been stable since my heavy ended chemo ended. But only because a doctor thought outside the box. Only because a doctor saw me as young and Took a chance on me. Tried something new. I saw my oncologist today and he told me he has an arsenal of new things coming our way to try. Medicine that will not make you loose your hair which is my requirement... I’ve always informed him and DH and family I won’t be going through that again. He said there are so many things on the pipeline and coming down the pike. Hang on. Try anything. As long as it’s your Choice. You don’t have to give up. As Lynne said no date stamp. I even drink the milk a hell of a long ass time after the sell by date. IMO. You dream that dream and have that home with your beloved. Why? Because you still can! Do it now and to heck with anything else. You are what’s important here0 -
Runor~ Hello darling! Always love seeing your name. It lights my days with a smile. 😬 see my shiny teeth?
Lynne~ hello beauty! As always so well said. I love you my friend you’re beautiful inside and out! We need our other Lynne back (Man) my heart is heavy missing her.
Lynnwood~ Hello lovely~ snow coming our way yet again. Nuisance snow to me!
Pots~ Oncologist visit went fine. He’s challenging me to break his off lice ibrance record. I said we had a lot of ladies rocking the ibrance train. Blood work was beautiful as he said. Keep it up. Markers were normal. I cannot complain. XGeva shot kicked my rear end and I can feel it. Sleeping is my pal this month.
Grannax~ I’ll be over Monday for our first tea and brunch in your new kitchen. Im so happy for you. You deserve it. Our star 💫!! Lovely choices for sure. Gorgeous
Sandi~ Hello my friend. I am very happy to see you here with my second family, would love you to pull up a stool and have a drink with all our familiar friends here!
Gum doctor~ welcome back hope all is well!
Skitz.... Mae.....Minnie....Elleonwheels....GP.... Blueshine...Tanya my girl Hawaii?? Masonsma....Daniel and Leslie.....Iwrite....Bella.....Rosabella....Boo Boo, can’t wait to finally meet! Chelle my sweet love. Nan miss you! Rosie.....Donna.....Gracie....Hi my sister!!! 💐🥰 Nanette... for whom is special. anyone else I have forgotten (for now) I’ll be back. Love to all ! Miss Bianca haven’t seen you either. You okay?
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Micmel, good report!! Did you get all the Cheetos dust out of your pocket? I was crunching on them all along. I will go Monday for blood work and Xgeva and see the doc. I only see him every other month. That's often enough. I just see the nurses in between. I like them, they're so sweet.
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Muddling ~yes good report. I cannot complain. I did have a few stray ones left for me after the onc meeting. Thanks for the left overs. Should I bring something special Monday for your pocket ?? Maybe brownies. A little Chocolates for us all. Rowdy bunch lol. Nothing but good wishes for your visit. I only see my oncologist once every three months and that’s ok with me. I have to scan at the very end of May. 😞 I am sooooo sick of the scan thing twice a year. I was glad to hear of his arsenal of medicines to be put on. I asked him if it would be xeloda.? He said no. There are other ones I would get first. Xeloda is good for liver and organ involvement he said. I am thankfully holding on to bone only. So it was good to see. He was almost giddy at how well I’m doing. It made me feel good. But honestly. It doesn’t matter because all I want is a cure. For us all!! That’s what I pray for and dream of every day. My sweet sisters!
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Micmel, there is so much in research and development for MBC. I pray the next big breakthroughs will come soon. There are exciting ones in trials already and more good ideas coming along all the time. Yes, bring brownies on Monday, then come along to Outback for a steak meal for lunch. 🍴
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Michel- good report! Sometimes the way you feel bc of treatment doesn’t make it feel like it matches up with the good news from the doctor. This is the hard part of it all!
So I did round 7 of the ac chemo. I think it’s kicking my butt. My vision seems kind of sucky lately. I’m sure a side effect. On the good side my tumor markers were down again! I’m getting so close to being back to the normal range for the tumor markers, it makes it all seem worth it.
I will have a cat scan and heart test in a couple of weeks and continue on if the heart is ok. I just don’t know how long my dr will keep me on this ac chemo. I feel the doctor is pushing me this time with this chemo.
I have all this coming up the same week I’m leaving to see my son in Colorado. Plus if heart is ok I’d have chemo and then need my regular two blood transfusions before I go. Phew! I didn’t get out the door yet and I’m tired.
Parry- when I first asked here about ac chemo you replied to me! I was upset I wanted to buy a car but knew my liver was bad and my outlook was not so good. You told me if you wanted to buy a car do it, don’t wait! So I say to you girl, go go go, live your dreams now while you can. The doctor has no way of knowing what drug will work and why and for how long. I pretty much had the end of life talk given to me by one doctor and now my tumor markers are back to near normal. It may last me a week, a month, ten years, I won’t know and I dont think they will either. You have trials yet you could try to. Don’t let them beat you down! I looked at my doctor and said “well I just don’t feel as bad as your making me sound, I’m not giving up”
WE must fight on the best we can with our brave face it's all we can do.
Love to u all!
Sarah
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Hello Skitz~How are you? We are waking up to about 6inches of white powdery snow. Brrr. I can take some snow but it's after Presidents' Day so. Wtf?? Hope you're doing well after AC I had AC 4 rounds then 9 of abraxane... you're amazing. That is hard stuff. But markers down is good.
Parry~ get as many opinions as you choose. No one doctor thinks the same exact way. Some even stretch protocols if they see a possible benefit. Find them. They are out there. I have a feeling they are really wrong about you. I just feel it. I've been told I'm a little weird that way. Sometimes I think people are right. I know it sounds strange but I have been known to feel things a certain way, and I am usually right. Now I'm not saying In anyway I'm like the Long Island medium or anything of that nature. I just get thoughts and flashes of things sometimes. Get feelings of good and bad. I'll give you an example.
On my way to blood work. I said. Ok lord. It's in your hands (even though I struggle with belief) I need some kind of sign here. I'm struggling and I am scared. I said it loud and I meant it. A few minutes later the number 22 popped into my head. Out of no where. When my tumor markers came back two hours later, they were honestly 22. It's happened two times in different ways already. There are also many many More of them it may sound weird. People tell me all the time how it freaks them out. So hang in there. Something good is coming your way. Get the house moving. My sweet sister. Find your dream!
Love to all.
Hello Muddling. Outback is one of my favorites Yummy lobster
Sheila Marie. Honey? You ok ?
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Just FYI: Bestbird's wonderful book about MBC is now available in paper back on Amazon. I already had her generous free download, but I bought the paper back version for easier reading AND to take with me to the doctor when needed. You probably already saw this on other threads but wanted to share in case it could help you. Following is the link to that topic.
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Parry, I think Lynne said it all. Don't think of the end day, live each day and enjoy each day as much as you can, and you can say anything you want on this page. We are here to listen. X
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Hey gang, Today I celebrate small victories.
The 1st was an email reminder of an upcoming concert that I bought tickets for in October. At the time, I was nervous since the concert was nearly 6 months and 2 scans in the future but here we are, in a few weeks I’ll fly to Wisconsin and take my BFF to see Weezer/Pixies.
The 2nd was a simple soak in the tub. A few months ago, I wouldn’t have been in the tub while home alone due to treatment related muscle loss and knee problems but today I did. I’ve been going to the gym most days and following a fitness program from my cancer center, now I feel much stronger and it didn’t even occur to me that I might be too weak or fall or anything like that.
I hope you’re all doing well 🙂
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Mae~ like I said you are the coolest person I know. Weezer! That’s awesome. Hoping for more reporting correspondence from you! Nothing like a bath. My bathing days are over. I. Could take one. But I honestly don’t want to look at my paperdoll stitched body and scars upon scars. I would need one deep as my neck to feel covered. I often wonder if I will ever swim again. Bubbles bubbles! Love Lots of bubbly bubbles!
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Minnie~Hello lovely lady! How is your weather.? We are on top for another 8 inches Tomorrow! I’m hoping it snows my DH in.....sonhe can’t leave in the morning!
Waving to muddling. How awesome bluebirds Mbc is available on amazon. She’s wonderful! Thanks for the information!
Much love to all!
Still Livin!!!😘🧁🥰💐💙 big hugs. !
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Thank you so much everyone. Your words and thoughts mean a lot to me and lift my spirits. It’s weird knowing the bad could come soon and knowing prognosis, but being hit with the reality is surreal no matter if it’s what comes to pass or not. I hope to be poking around for a while longer yet. All in God’s hands as it’s his plan at after all.
Skitz do you have really dry eyes since being on AC? I did and it made my vision a little worse just from them being sooooo dry all the time. You’ve done a lot of AC no wonder your feeling it a bit! Hope you week goes ok, you can do it
and thanks for reminding me of that advice. It’s easy to give and not always remember to take, lol. Hugs to everyone. Thanks for all the support and understanding for the highs and lows. I’ll be rooting for everyone and your scans/goings ons
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I have running water and faucets in two sinks. It's so exciting to see the water run. Lol pics tomorrow.
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