My Husband, My Life, My Love, My Family, My Cancer
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Thanks Micmel. Sometimes it’s hard to remind myself of that seeing the skin mets spread so much and the consistent bad news. I’m still hoping for the best. I just need to find the one treatment that will beat it back. All in Gods Grace and I trust him and his plan. I’m trying to get a second opinion at MD Anderson in houston since my husband wants to raise our kids there and it will be a good place for his career. We can also buy our dream home there. I called and they said they only accept employer sponsored insurance no private plans or anything else. They have a clinic there specific for TNBC which I’m hoping will be able to handle things better than my current MO. Still have hope and we are still pursuing our dreams.
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Parry~ My sweet sister. Yes your dream home.... yes your children. Focus on the future. God does have his plan for us all. Although I understand people wrestle with faith as I do. I believe in the power of love. The power of that feeling like nothing else matters. Cling to it. Make it become your heart. Breathe for it. Love for it. Live for it. You two have already beaten some amazing things together. Two weddings. I couldn't even put together one. Without sheer exhaustion! I know the skin mets are scary honey. Of course they are. But never stop asking every doctor you come across. Second, third, fourth opinions. I believe in your love with your husband....you are so special, and I believe in you.
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Micmel, that's amazing about your letters. It's so great that you get to pull them out because you lived it. Just wonderful!! Btw, I tell my DS I love you to the moon.. all the time. It comes from reading him that book when he was young. He is now 21. I still say it.
I pop in on other threads here and there. A regular reader, but I don't post an awful lot. I've changed treatments so many times that I can't seem to find a home on one thread.
This thread intimidated me because you are all so wonderful and supportive of each other. I'm generally not so nurturing. It takes a certain mood for me to reach out.
Lynne, thanks for making me feel welcome. I'm currently on Gemzar and Cisplatin. Two cycles down.... we'll see.
Hi Parry. You are one brave bitch! (In a good way).
🌄 ABeautifulSunset
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Sunset thanks! I’ll take it, lol. We are on the same treatment too. Let’s hope it kicks cancer butt! It’s definitely kicking my blood counts so it’s doing something.
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Beautifulsunset~well welcome home then.... there are no rules or hang ups. Just love and support. Whatever you feel like you want to offer is fine with us. We just love on each other and are honestly a loving group with hopes and dreams for each other's successes..... I hope you will find this place your home here with us. There will always be a stool with your name on it. Because once you're here. You're never forgotten! 🥰. I absolutely love that book. I read it every night I could to my kids. It means so much to me. A lot of those make me swoon with memories. I'm glad we Already share a memory within this book. Much love to you ! ~M~
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ABeautifulSunset, I think that you have underestimated the value of your contributions to the discussion boards. I have always found your words to be informative and supportive. It doesn’t matter how often you post, you are always welcome.
Hugs and prayers from, Lynne
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Isn’t that the truth ? Our suffering has to mean something. I believe it is friendship and love.0 -
Parry, I go to MDA. If you come down and are up for it, we should have lunch. I love all my people there, especially my neuro rads onc (Dr. Yeboa). Anyway, PM me if you have questions 😀
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good morning lovelies~. I hope today is a strength filled good day for us all!! A little chilly. Like 10 ? With wind. Gross. Still waiting for News from Daniel and Our sweet Leslie.
Hello Mae~~~Tanya~~in Hawaii more pics. We need happiness. Parry~~Blueshine ~~Donna~~Minnie, beautiful Minnie~~MJH thinking of you~~Masonsma~Bigbhome ~~~Lynne(50’s)~~Rosie~~Bella~~Runor~~Daywalker~~a beautifulsunset~~Grannax~~lynnwood ~~skitz~pots~~Muddling~~stilllivin~~our Lynne(Manchester)who we miss so much...Chelle....Nan...Gumdoctor.....sandibeaches....Gracie....
Elleonwheels...Miss Bianca....Footprints...bincolorado......Holmes.....marianelizabeth....
BooBoo
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Good morning Mic! And everyone else. Pouring rain here. As if it isn't hard enough to go out. Oh well, intimately rain is good. Onward into the day!
Sunset
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abeautiful~Hello there. I had a day filled with napping. I was too tired to visit my dad today which makes me feel badly. I’ll go tomorrow and bring his laundry back. It’s actually a very daunting thing visiting someone everyday even if they are 4 miles away.
Much love to all ~M~0 -
Good morning all
Special hugs to Parry and MJH. I hope this new treatment works like gang busters.
This is a picture of my mom 85 years old doing the hula dance. Alas she tried to record me but didn’t know how to use the phone.
Love and hugs to all.
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Tanya~ I love to see your smile. I enjoy seeing the closeness that you share with your family. Hawaii is a very special place. I have many memories. Since I was 13. The pics aren’t as good as yours. Lol.
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I’ve been reading our thread while on vacation with my mom. It really has kept me pushing forward each day through fatigue a cold, a broken walker. Pushing through because each day I’m reminded of how hard we fight for any moments and goodness. This disease has no conscience or care about its destruction.
Some days in Hawaii are gorgeous breezy and warm. The birds chirp happily and the ocean is clean clear some times flat and uneventful and other times waves churning and slamming into lava rocks spraying and reaching everywhere.
Today’s my last day here.
Tanya
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Tanya - How wonderful that you could enjoy and share Hawaiian paradise with your mom.
Beautiful!!!
Gumdoctor
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that is a beautiful picture and what a wonderful memory of spending time with your mother. Safe travels home.
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Parry, it rang a bell with me and felt I should share. Love and hugs to our beautiful bride. X
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Off to sleep, ready for flight to London tomorrow. Overnight hotel and Friday morning flight to Victoria via Seattle. Excited, very excited to see my family. Just love them so much. Will follow while I have wifi. Thinking of you all. Tanya, Hawaii looks amazing! We are having a weekend away next weekend, an airbnb with the kids by a beach. Fingers crossed for sunshine ☀️ will take whatever comes. X
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I’m so sorry for all of you who are mourning the loss of Z. I didn’t have the pleasure of knowing her but I was still rocked by her death. The reality of our diagnosis is brought home when one of us who was so much alive leaves us.
Tanya, love your pictures with your mom!
Micmel, hang in there and be kind to your body. Sleep if you need to.
I have genetic counseling results appt on Weds. I wasn’t sure if it would really be any help since I’m already at this stage but apparently it may be helpful in deciding future treatments. My father had bc and lumpectomy at age 88 which is a big red flag I’m told. Not stressing the results but curious now.
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I have an appointment with my new MO. Her name is Dawn Klemow,MD at UTSW Dallas. She's a breast cancer specialist, my appointment is March 25.
I'm so grateful that she is still taking new patients. My PCP knows her. That makes it even better.
Things are better today with the family drama. I'm excited about that, too.
I had a long, busy day. I'm officially pooped.
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Thanks everyone for thinking of us and keeping us in your prayers. So far nothing conclusive has been found that would motivate a seizure. We are back home but we have another brain mri scheduled soon to see if anything shows up.
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Daniel, back home is a great start, I’m very happy to hear it, please give our best to Leslie.
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Daniel~~That’s what happened to me.. combo of empty stomach and medicines taken too closely together that’s absorbed too quickly.. I am hoping against hope that is what has happened for Leslie. You’re a good man being By her side. Please send her our love. Gentle hugs and supportive thoughts. Much love ~M~
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Minnie safe travels
Grannax hope your appointment goes well and the new MO is just the right fit.
Daniel its good to read she is at least home. Sometimes I think no obvious culprits are better than it being something incredibly bad, but there’s that unknown factor that is hard to accept. I hope they find the cause and that it was something like Micmel said that way you know and know whether to worry more or not. Sending you both gentle hugs.
Tanya I’m so glad you are having a great time! Hawaii is my favorite place I’ve ever been to. It makes me happy to see a sister living it up in such a beautiful place.
Micmel hang in there and there’s no shame in napping! You are such an amazing strong woman and your dad is so lucky to have you back in his life during this time. I’ve started taking fresh homegrown wheatgrass shots daily and even that is a chore so I can only imagine how hard it is to caregive and visit each day.
Thank you so much everyone for all the special thoughts and support. Words don’t seem to adequately express how much your kind words and thoughts have helped lift me up in some darker times. I knew there was support here, but I didn’t realize just how much it does help. Thank you.
Take care everyone hope you have good restful sleep and a good day tomorrow
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I love you ladies. And Leslie’s Daniel!!! Always in your pocket rooting with love and unconditional friendship!
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So weird how things hit you and you don't expect it. My DD was on her way to work and she sent me a little video of a song that was playing on the radio. “Dancing Queen" by ABBA..... she said this songs reminds me of you. The tears started coming down my cheeks as i listened to it and bawled like a little three year old, who couldn't have a cup cake. The memories flooded back of her dancing around the house and doing her little performances.. smiling at me like the world was our oyster. At her wedding reception when this song played, we all formed a circle around her and she danced.It was and will always be a magnificent memory, that can bring me to my knees.
Now she's 23 and married on her way to work sharing a feeling in her heart about the same song. The love and memories built with your family are priceless. Feel them. Let them take you over.. even if it's just as long as the song allows. We may never understand somethings. But love is definitely something I do understand.
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A candle that burns twice as bright.... can only burn half as long. I read this somewhere today and it rings so true.
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