My Husband, My Life, My Love, My Family, My Cancer
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Divine~I am sorry to hear the cellular assholes have made their way around ibrance. I am wrapping you in a hug of love as we all limp together forward. Damn scans. No wonder we have anxiety!!!!!👿🙈 we love you sweet sister. Holding your hand. Much love ~M~
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Divine- Well crap. So you are staying on a CDK 4/6 inhibitor? That is good. Read that Verzenio works on CDK 2 also, I think. Maybe just tweaking the CDK med will stop those cancer buggers.
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Divine ugh! I am so sorry - I feel like learning about progression is a total kick in the gut. And it is all so weird to wrap one's head around. There have been some very promising studies coming out about this Verzenio that jensgotthis posted about in the Ibrance thread a couple days ago, if you are up for reading about it. I have heard that many people who have progression on Ibrance do wonderfully on Verzenio.
Sending you big hugs and extra ice cream and wine!!!!
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Divine,
I am also sorry to hear of your progression. I hope Verzenio works better for you.
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Thank you all for the wonderful support and encouragement! It truly helps.
This sounds weird, but I'm glad dh is finally back to work. That's a calm spot for me. I have the house to myself, puttering around getting little things done here and there as I sort out the latest on my health. I need equal amounts of alone time and time with others. Plus the job is a good distraction for dh at a time like this. He seems to like the work, too, and is just a few blocks away so at least that part is all working out.
You can probably relate to how awful I felt telling dh and ds about the progression. I told ds I was sorry to have to share the news with him. He is so incredibly wonderful, he said, “Mom, do not even apologize! There is nothing to apologize for!” He’s an absolute godsend of front line support for me.
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Hey Yall-
Does anyone on this thread know about the CEA blood test? I had my first test last week and my number was elevated. Trying to determine if that can be caused by the bone mets. Dr. Google tends to suggest that it is used most commonly to test for colon or rectal cancer. Advise is appreciated.
Hope you all are doing as well as can be!
Angie (masonsmawmaw)
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Please note it says for some types of cancers. Which includes breast cancer because mine runs it also. Can be effected by inflammation as well, a rising of them. My onc and I have discussed this specific test before because they. Fluctuate sometimes! I would definitely put a call into your oncologist or nurse aid (with oncologist) and get some answers so you’re not left guessing.
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Divine. Definitely a bummer. I know nothing about Verzenio either.
My ANC was up yesterday so I got my chemo. Then I slept all day and night. Truth gemzar does make you tired. I'm ok today.
I think I've had a CEA tumor marker test before. Mostly CA 15-3. Tumor markers have never worked for me. Even with all my mets in liver, lung and chest they never have elevated. 💞
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Grannax~Hello beautiful...... I'm glad you're ok today. I know that feeling of, like you were dragged somewhere and pumped with all this shit and sent packing home. To sleep it off. Damn cancer I mean really. I am sending you a hug. We ladies are tough champions. I'm not gonna lie!
Parry!!!!!!!!!!!!!!??????!💔
Daniel????? Leslie!
Lol @Gumdoctors comment on role call.
It's honestly only because I care!!!
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Angie,
I've been getting tumor markers done since 2006. My oncologist always used CA27-29 (which I believe is similar to CA 15-3).
I recently switched my care to Hopkins, and for my first set of blood tests there, they did a CEA tumor marker test. It was elevated (I now have liver mets). I'm not sure why they did that test, in addition to CA 27-29, except to see if there were clues about what was going on with my cancer. Clearly, it can't tell them anything about ovarian cancer with me because I've had a complete hysterectomy and oophorectomy!
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Micmel - I still have Army roll call every morning...so that's on my mind daily. I kniw its because you care. I love it.
Divine - I am so sorry to hear of your progression. And I can so relate to the severe gut punch. I had mine in July with severe progression to liver after 18 mos on Ibrance/Faslodex. First report from CT was one lesion 4 cm big. 2 wks later, after no tx due to severe Xeloda SEs, liver MRI showed that lesion grew to 9cm and 10+ more smaller lesions showed up. Bad news to horrific news. There was also progression with new bone lesions. Catastrophic failure of both Ibrance/Faslodex (18 mos) and Xeloda (10 whole days).
Somehow we can adapt to even horrific news. I have found some calm as this new weekly IV chemo regimen starts to settle into somewhat of a routine. Next scans are in 2 weeks so things may change up again...
I wish you the best as you navigate this news and your new course. God bless you...and we are here for you too.
Gumdoctor
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Bevjen-If you don't mind me asking, what was your CEA?
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Divine, Ugh, sorry about your progression and meds change. Hopefully Verzenio is an ok adjustment and kicks back the bone mets. Please let us know how you’re doing. I like the way you describe needing people time and alone time, I feel that way too.
Mel, The moon quote was perfect. Loved it.
Tanya, It sounds like you have lots of family with you. Are they staying with you or just in your area? Either way, I’m sure you’re busy!
Boo, Thanks for the greeting. It’s been a great supportive and comfortable place with all of you here.
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Micmel, love that moon! You don't have to be whole to shine, that covers all of us!
Keep shining ladies!
Thinking of anyone affected by Dorian. Also thoughts with everyone having scans, waiting for results. Divine, sorry to hear your news, but stay strong.
Mae, that is brilliant packing. I hope I can do something similar when we go to Santiago de Compostela in Northern Spain in a few weeks.
Love to all xx
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Dear Divine.
You and I are in the same boat. Let’s row together!
My cancer has progressed in my sacrum and pelvis, so new Onc ordered a CT, which I’m having on Saturday. Had a great first appt. with new Onc (from FL Cancer Specialists and Research Ctr.). I really like her, and she’s treated multiple patients with Sarcoidosis and cancer. So I feel like I am finally in the right practice. Funny, I thought Moffitt Cancer Ctr. was THE place to go. Not really. I am glad I changed practices. I feel like Ifit better at the new practice.
Anyway, I am not panicking....just another bump in the road. Divine, hope you are okay, and not too upset. I am going to be a soldier until I can’t be. When I can’t be, I’ll come here and let you all know.
Is anyone else like me? I don’t know if I’m being brave, or an idiot! Not sure sometimes if my reactions to prognosis is normal, or completely weird. I guess I just try to tell myself I’m going to be okay. It helps me to cope from day to day.
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Forgot to thank all of you who were in my pocket today. Man, I love this site. Seriously don’t know what I would do without all of you..
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Sorry about the progression Divine.
I’m around but having a few lazy days and sadly I’m nearly out of mystery/Detective shows on Netflix. On to find something new.
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Divine I was hoping for better news, as were you. I am sorry for this and hope your peaceful time setting your house in order helps you get grounded and re-groups for the next leg of treatment. Sad hug.
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Mae having lazy days here too!
I’m guessing you’ve watched Mindhunters?
Another great one is called The Staircase.
Xoxo
Philly
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BooBoo~😞man I don’t want this to keep happening to my people. I mean ugh! But I will say. When I experience progression, I hope I can be as solid and brave as you ladies. I mean you ladies are seriously amazingly wonderful and I care deeply for you all!
Philly~hello sweetheart always a pleasure to see you beauty!
Rosie~ 🌹🌹
Runor~Hello dear friend.
Minnie~another trip! Wow you go girl. 🌹🥂
Masonsmomma~Hope you get your answers!!
Mae~ that’s a problem for sure. Try bachelor in paradise !!!!
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Thanks Mel. DH and I were just talking about it, and the tears started falling. Guess I’m not as tough as I let on. This disease sucks! I told the PA today that in general, Oncs do not understand the psychological aspects of MBC like they should. My thinking is that they probably think “hey, you are not dying tomorrow” so we should put on a happy face. What they don’t understand is the uncertainty of this disease. Some last for many years....others are gone in months. So how are we supposed to cope? That’s what I’m trying to figure out now.
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BooBoo~I also just had a melt down in my sons arms. I’m sick of being sick and hearing of other’s people pain and sadness over this awful awful disease. I picture us all together, having your back! Waiting in the wings if you need anything. 🌹
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Mel,
This is why I Iove you so much, girl. Only my MBC sisters can truly understand each other. I hope I didn’t bring you down. It’s just that I tend to hide my real feelings, and I always put on a happy face for my DH. I am so worried about him, so I tend not to tell him what’s going on.
Thank you for always being there. You will never understand the depth of love I have for you and my other sisters.
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booboo and Devine,
I am so sorry to hear of your progression. Devine, I was reading the ibranc e thread and I agree with several of the other ladies. Maybe a second opinion is needed?
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BooBoo~I don’t call it being down. I call it support/feelings for my sweet sisters Divine and anyone’s progression that I’ve grown to love. I just feel it so deeply through my soul because I understand so much. I have experienced progression during my chemo on abraxane. I had 9 heavy treatments. Even during that. It helped the liver tumor. But I then found out it progresses to my bones in three places. Progression during chemo pisses me off so much. Like why even bother! Tortured one day, the next mental disappointments to stop a train. I am so with you. It’s scary !! 🙈🥴
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Yes Philly, I enjoyed Mindhunters, can’t wait for more. I just started Marple (Agatha Christie character) on Hulu but I think The Staircase will be next. I have a particular fondness for the old timey English mysteries like Midsomer Murders and Father Brown but I’ve already watched all those.
Back to the gym tomorrow.
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Mae~Been watching Big Brother this season. It’s also very good !!
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forgot to welcome Bevjen! I’m slipping ladies! I am pleased to see you here, my second home. I hope you will feel the love and support here from this lovely group of women.
Waving to Simone! 👋! Hope you’re doing well!
MJH~ I’m glad you laughed. We all need s good laugh from time to time !
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