My Husband, My Life, My Love, My Family, My Cancer
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Tanya~What round are you on? I’m starting 47 month on it ? I sewed a lot today and my back is letting me know! I just finished my round. Get a week break
Anyone heard from Moomala? Philly we miss you!
Candy~I think you’re fantastic! That’s enough for me! Kind hearted person. For sure! 🌹
Bev Jen ~hello to you. Sondra,Rosie,Bliss,Moth,Dodgers,lynnwood, Chicagoan,Runor,Rosie,Simone Maggie,Minus,Mae so happy for your meals!
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Moth, yesterday was a “lost day” for me too, for the same reason of fever and sleeping. When it gets time for my bile duct stent exchange, I start getting these low fevers. Exchange is next week. Hopefully I won’t have a fever on stent day and get turned away, although I did have the required pre-procedure covid-19 test today. Blzzzzaaaaahgluhhh!
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Shetland, that is the sound I make when I accidentally eat a Brussel sprout.
All this talk of sanitizing and trying not to get contaminated...throughout this covid thing I have taken a wet, soapy, bleachy cloth with me everywhere Hub and I go. After we have been somewhere we get it out of its designated baggy, wipe our hands, door handles, truck handles, etc. Then it's popped back in its zip top baggy. When I get home I wash it in hot water and more bleach, hang it to dry for next time, its designated baggy right beside it, ready to be re-used.
I get up one morning and there is a mystery on the counter where the cloth and baggy live. The cloth is there. A baggy is there. Only not the baggy we have used repeatedly for months. No. That baggy is gone. Instead an old ratty baggy full of cookie crumbs is on the counter. I knew immediately what had happened. Hub, in his early morning fog, as he was putting his lunch together, took his cookie baggy out of his lunch box, set it on the counter, grabbed some cookies from the cookie jar, grabbed the first baggy he saw, stuffed the cookies in and shoved the baggy in his lunch box. He stuffed his cookies in the germ cloth baggy!! HE'S GONNA DIE FOR SURE!
And in case some of you are wondering what I'm doing while Hub is up in the wee hours making his own lunch (I hear the judgement), I am sleeping. Way back in the very early days of our marriage when I was still thrilled to be a happy homemaker and endeavouring to impress my mate with my domestic skills I made fancy lunches with effusive sandwiches. One day he came home and complained, COMPLAINED because I had assembled his sandwich in the wrong order. The cheese and mustard must never touch. Lettuce and mustard can touch. Meat and mustard can touch. Tomato or peppers can touch the mustard. But never, ever the cheese. Because that is wrong. And that was the last time I ever made him a sandwich. Lecture ME about sandwich construction at your peril, Buster.But now he takes cookies in a germ bag. It's hopeless.
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Holy moly - just woke up to this Kelly Preston news?! I didn't even know she was sick! And just two years?!
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Sondra, I read this too when I woke up. I didn't know either, and now I'm curious as to what type she had, etc. I think about all of the ladies on here able to live with Stage IV for many years and hope this will be me too. I get concerned because it's in my stomach, and I've read when it's in your organs, it's worse than bone. I hope I can find information about what type she had. If anyone else finds any, please post. I can't imagine what John Travolta is feeling, first his 16-year-old son a while back and now his wife. So sad.
Runor, I hope you were able to hold your husband off from eating the cookies. I have a feeling once he opens/opened the bag, he was able to smell the bleach. Yuck. I know I would have been the same way if my husband complained about my sandwich making. He makes his own sandwiches most of the time anyway, but I make most everything now. I'm a horrible cook. I hate spicy foods, so my poor husband is always putting Cajun spice on his food to give it flavor.
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CNN is reporting that Kelly Preston was being treated at MD Anderson -- her husband thanked them as well as doctors at "other cancer centers." No info yet on what type she had. Don't know if we will see that.
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I was just telling my husband I hope they say what kind of breast cancer it was, but I agree, they probably won't.
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I suspect that was a finely worded statement due to the Scientology issue...
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I totally forgot about that, Sondra. We’ll probably never know.
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Hi friends! I am still out here - just struggling with back pain and many many doctor appointments/MRI/etc etc. A lot going on right now and I just have not had the space to write or attend to much. Big hugs to all!
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Yea as I had sat waiting for the PET scan... (which I am positive there is progression) first my fasting sugar is the highest its EVER been at 107....I have never been over 99 and usually am around 89....then I read that Kelly Preston died of Breast cancer.... UGHHHHH Just what I needed to hear. Literally now...I am hearing about someone dying of BC like every single week.
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Hi everyone, we’ve been traveling to see family and friends the last week and a half. I was so nice to get out of a covid 19 hot spot and go somewhere where there are very little cases. The grandkids are growing up so fast. They are 7, 5, and 3 so full of energy. I sure would like to bottle some of that up and use it on my 3rd week in my cycle.
I had forgot about cancer for a bit until I read about Kelly Preston. Nicole, I know what you mean it’s so hard to stay positive after reading about people dying every week. I left a fb group because of that. I pray you can find something that gets you to stable for a long time.
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Nicole,
My husband is a diabetic and I have been classified "pre diabetic" for a number of years. Remember that testing for blood sugar is just at a moment in time, and many things can increase your BS. A "normal" blood sugar (fasting) is up to 99, I believe, but that is a slight increase. Could be from meds, could be from something that you ate over the weekend. Also, I have noticed that when I do have a PET scan, my jumps a bit. So I don't think that's necessarily diagnostic of anything.
Hope the test went well.
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Sending my best good vibes to all the scanners here. RIP Kelly Preston, just shocking.
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Dr. just called. I progressed and now new tumor in scary area...C7 Im sobbing...I have C and T spine MRI at 545am now tomorrow... and there's more...progression of the 2 liver tumors and they think I have a fracture in my sacrum where my met is...I have pain there too. but C7....she mentioned something about possibility of eventual spinal cord involvement.!!! so now...what on top of all this SHIT I am going to be paralyzed from the neck down??? Im sobbing.
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Just checking in. Although it takes ages to catch up here, one advantage is that the concern for someone who looks like they might have bad news coming and then it turns out to be OK a few pages later is on speed! Mae had me worried for a bit there, but looking on the up now.
Sad to see Jaylea in hospice, but been learning that just because you go in doesn’t mean you’ll never come out... I know people who have had spells in a hospice to deal with pain management and then are discharged once under control. Hopefully someone who knows will update the living room.
Re COVID it’s actually quite reassuring that so many of us have spells of melancholy and anger about how stuff is being managed, from treatment confusions, appointments messed up right down to face masks ( nice one Mel).
Personally I haven’t been near a shop for 4 months or seen family/ friends in the flesh, apart from my neighbour. Scottish government have been pretty clear and firm about what is expected of us and the First Minister Nicola Sturgeon is handling things pretty well, considering. She barely conceals her frustration at times in Parliament and on the TV daily briefing, which has been picked up by Glasgow comedian Janie Godley (find on YouTube, if you can understand the accent) who voice overs some of them - lots of swearing, but the key messages are there and they have been light relief for some of us, including Nicola herself! One advantage of living in a small population (5 million in the whole of Scotland) is that we have a chance to possibly eliminate the virus from our own population, although we know it will not be eradicated.
Those of us in the official ‘shielding’ group receive regular letters and texts and while the only real movement in the last week has been to allow us outside to exercise and we can now go further than 5 miles to do that, at least we can access free grocery boxes weekly (we haven’t taken that as feel others are in greater need than us) and finally get priority delivery slots at supermarkets, which did take forever to sort out.
Like many of you I also picked up the sad death of Kelly Preston....I bet we are the only group of people who immediately think what type of BC meant that she only had two years......
Thinking of you all as always!
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Hi everyone,
It is so sad to hear about Kelly Preston's death because of breast cancer. John Travolta has been through so much. I don't know if anyone here knows that when he was young, his girlfriend, Diana Hyland, an actress also died of breast cancer in his arms. This Breast cancer is a gift that keeps on giving. Although, with today's Corona virus, everyone's attention has been shifted to Covid 19. I hope everyone has a safe summer.
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Kelly Preston said in an interview years age when Jett was sick that they did lots of alternative med things and cleanses etc. I do wonder if she accessed alternative first and then conventional.
But at the end of the day, it doesn't matter. Even if she accessed no treatments. It's an awful disease with no guarantees. There's no wrong way to walk with cancer - everyone makes their own path
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Nicole, I'm not Christian anymore but KJV psalm 23 is always a comfort. Deep breaths. we don't know what treatments they'll recommend for the spinal mets, and the tumor board is a great idea.
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I’m so sorry to hear that Nicole. Sending you virtual hugs
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oh Nicole. I’m so sorry to read that. Ablation ? For the liver. Worked for me. I hope they knock it down really good. You are in my thoughts and sending my strength!
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welcome back Karen and Moomala Glad you’re ok
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Nicole, I am so sorry to hear about your scan results. Devastating and scary. You need to be cut a break here. You may be able to do radiation on that one. Thinking of you and praying for you.
I was shocked to learn about Kelly Preston. I suspect she did chemo more recently as I saw a recent picture of her in a wig in the article about her death. No one looking at the pic would detect the wig unless they knew themselves and have seen similar really good wig. I forgot about the Scientology thing. Yes, that is likely why there was no news of her developing breast cancer. I do also wonder whether she started with alternative therapies and delayed before having standard treatments. Also, some people just decide they don't want to subject their bodies to harsh treatments anymore and make a choice to stop treatment. We will likely never know. She has a 10 year old. So sad.
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Thank you ladies
Micmel We are looking at TACE for the liver...but my bigger concern right now..is the C7.
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Nicole, is radiation to your spine mets an option? I’m sorry to hear about your progression, please let us know the treatment plan, if you feel like sharing.
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Re: Kelly Preston - that second son she had real late too and I thought they did IVF for that? If I remember correctly it was needing cells or something for the sick older child. I guess if anyone knows a good wig it would have been her husband haha. Jokes aside, Travolta has always seemed like a good guy (weird religion stuff to the side) who is kind and generous. I hope she got to go out on her terms in the best way possible and I hope her family are able to grieve in private as long as they need.
Karen - don't worry, soon as you guys clear up there some minor officiant pissant from Westminster is guaranteed to make a call and bring it with him I imagine! I guess we are going to masks in shops now down here, which is fine by me, its not like I go to many shops anyway. And although I got the shielding letters (two months late) I never shielded but I never really went anywhere either.
Moomala - happy to see you,but not happy to see you are still dealing with back pain
Nicole - hang in there and let's hope those scans tomorrow give them good information to make the right treatment choice on that vertebrae!
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Good luck Nicole with the scan and hope they can offer some treatment where you have progressed. Sending positive thoughts your way.
Sondra, we also are told we should wear masks indoors at stores and on the bus as well which makes sense. We don't have to do it outdoors. My area is also moving to Stage III of opening. Think that means gyms, restaurants can open up their indoor facilities. I confess, it will be a while before I would go inside a restaurant or gym, possibly until a vaccine is available. I would just prefer to avoid it altogether for now. I don't worry to the point of feeling stressed, but I don't mind being as cautious as possible in the meantime.
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Thinking of you Moomala!
Hope that you are able to eat and get some pain relief.
Take Care!
Stacey
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Nicole,
I just had my pelvis radiated, it was just 5 treatments, not without some side effects but all in all, so doable. They can radiate the C7! I know in the past you were anti-Xgeva, but it might make sense to try it short term.
Take care,
Stacey
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Thanks Ladies..Illimae...I will definitely update you all.
Sb...yes...I you remember correctly my feeling with Zometa/Xgeva..(I was allergic to Xgeva so it would be Zometa in my case)...I don't know that, that is the answer..but I do think Faslodex can possibly help???>> yes I failed Ibrance/Letrozole/Faslodex as my first line..but we do not know which failed...and I don't think it was the faslodex because I didn't have any bone met progression on it only liver met progression.
Someone in the Liver met thread just told me radiation to the skull base can be very bad...but I didn't know C7 would be considered that area since its like the last vertebra before the thorasic spine??? So now I am thinking that maybe I shouldn't do it????
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