My Husband, My Life, My Love, My Family, My Cancer
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Thanks ladies for all the well wishes for my blood test. I will be going here in a bit. Tanya- I do not feel any different. Last blood test - 2 weeks ago, mid cycle- ANC was 900. Borderline. Doc would like to see above 1000, and I would like to see around 1200. But we will be happy with 900. We will see what it is today. But feel no different.
Wow, Mae, that view is wonderful. That is your cabin? Neat. I live in Illinois so flat farmland. Corn and soybean fields.
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Mae: as a native Californian who has been hot tubbing since the 70's: you might want your hot tub somewhere closer because of bare/wet feet & night use....
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Tanya, I am curious how it is going post ablation as well, hoping for much less pain than you were dealing with.
Staying away from family is hard. My brother and his family are in my social bubble as we call them, even when we are more locked down. My sIL wants to keep an eye on me as she worries something will happen to me.
It is a beautiful day today. Had an earlier morning chemo, walked to and from the hospital. I always do that. I get the chemo nurses to give me a ginger ale and peekfreens digestive cookies. They are quite yummy and fuel my walk home. I am planning to put through a harveys order to go pick up. Want to walk for it as well. Keep up my energy as DB and SIL asked to go out with me tonight. Usually I am pretty tired but figure if I keep up the energy through walking, it will be helpful.
One thing I did learn is not to try filling out surveys while getting cancer drugs, I bombed out of a few of them. I'll stick to watching things next time. Watched the Young and the Restless while there.
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Santabarbarian, you make a good point. The weather out there is similar to Southern California where I grew up and it gets very chilly at night. I’m thinking we could compromise on a ground level deck just below and a few feet out.
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Planning to avoid the long post Herceptin nap I usually give myself. I mean to make this cycle easier by staying more active. Going to put in an order at my burger place and walk to pick up, about an hour long walk. My ultimate goal is 3 hours a day, whether indoors or outdoors. I don't want to give up the nutritious food I am eating and want to stop weight gain as well. I should be able to accomplish this between extra walking and the elliptical. Hoping this will combat the post infusion fatigue I go through for a few days after Herceptin. The exhaustion and drippy nose are my only two SE post Herceptin.I am able to walk quite far, albeit shorter steps and a steady, not exactly superfast walk. I also always breathe hard but I am OK with that. I am a chubby stage IV person and the fact I do walk around as much as I do is pretty awesome in my mind.
Mae, I missed the cabin entirely, very cool location, looks really nice. I agree with Santabarbarian, that location would be far on cool nights for sure.
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Just got portal message from MO--- ANC today 1300 (1.3). On to cycle 34 of Ibrance doing the on 5 days/ off 2 days schedule. See MO and do scans on Monday.
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Wow, Candy - that's great. I guess this is doing the trick for you right now. Terrific news!
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Yay Candy!! (No harm in posting this twice I hope?!). In your pocket for Monday’s scans & MO.
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Candy so glad to hear about your ANC results. That is excellent. Very happy for you.Count me in your pocket as well.
Wow, not sure if I was wise or foolish to push myself so hard on Herceptin chemo day. I walked to and from the hospital, that was fine. I decided since that went so well, I would walk to get my burgers. The walk there was fine.About 40 mins each way Treated myself to a small onion ring and pepsi and headed home. Oh my god, my breathing must have sounded terrible, I had quite a few people as if I was alright. I was alright, I was just breathing pretty hard, not short of breath but with a lot of effort. I found the walking a heavy effort so I slowed my pace. I always feel I need to push the physical for myself. I always used to take it easy after chemo, but I wanted to avoid the heavy fatigue. Oh well, I will feel better soon. It should help with any fatigue tonight when I am out with DB and SIL.
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Candy, that’s great news. I’m so happy you are back over 1000.
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Candy the numbers are astonishing! Happy for you great decision. Pocket duty for Monday.
Mae the cabin view is fantastic. Hot tub will be great anywhere but I understand about coolness in the evenings too. Maras on her way walking.
Golden and Mara ablation (I had all 4). The left side worked better than the right. I hope yours is pain free for both sides. I notice that as the day progresses my right side gets achy/sore by evening. Since the right side was most recently done, but past two week mark, I’m hoping that I feel even more relief. There’s no comparison to how it used to be.
Mara enjoy your evening out.
Mel the necklace is beautiful-a choker from the 70’s!
This thread turned the page on me and I don’t remember everything that was said.
SondraF Rosie booboo Simone Mel SantaB waving hello to all.
Tany
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Mae~ that is view is amazing wow. The hot tub has got to be closer to the cabin. I don't know about the facilities, but having to trek all the way up that far could be challenging. I just would flip to have a cabin like that I'm remembering your critter cam. From last year. That was nature up close!
Tanya~Hello darling. I hope you're feeling good.
Candy~ that's awesome my friend. Way to go. Get business done. And that is a lot of cycles of ibrance ! Go go go go!
Hello Goldens....Rosie....Sondra....Simone....moth ....BeVJen ...Mara....Santa...BooBoo...KBL
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Hi to everyone. Not much going on here. Redoing some things around the house. Had new carpet put in the bedroom. It stinks. I can’t wait for the new smell to go away. Other than that, it’s been pretty quiet.
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Thanks everyone for the well wishes and the pocket duty for Monday's scans. I am so glad I have this place to come to. You guys truly get it.
mara- You rock. I would not have even attempted the walking after having chemo treatment. Enjoy your family tonight then get some rest.
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Candy, good luck on Monday for your scan; I'll be thinking of you and waiting to hear the results. I'm glad your new Ibrance schedule is working!
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Mae, nice view!
Mel, that is such a beautiful momento of Tag. Glad you're getting one, too.
Candy, happy for your good lab results. In your pocket for Monday scans.
Waving hello to all of you.
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Candy thank you, for me it is mind over matter and I do not walk super fast. Small steps to avoid tripping and shuffling and I can go further. I plan to keep it up. I just don't like being sweaty but it comes with the territory. I had to give my clothes a quick wash in the laundry before going out with DB and SiL.
Had a good time tonight, we just drove to a park and sat in a van with coffees, stopped at SIL brother's home to drop something off and went shopping. I bought a few extra things. I liked the walking around because I believe that I will sleep like the dead tonight. Been up since 6 am and it is creeping up to 11pm. On the plus side, no nap was taken due to the activity. Not sure what I will do tomorrow but my day is free.
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Lee~Welcome to the thread Thank you for thinking of our sister. Hope you’ll stay in our living room!
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Nice to meet you Lee, good morning to Mel and everyone.
As busy as I was yesterday, I decided to take it more easy today. No exercise, just doing my money making on my laptops but also washing blankets today. I decided to not just wash and spin them in my panda, but dry them in both my heating rack, like a rack inside a tent that blows warm air instead of a dryer while the tumble dryer is busy, figure this would make it faster because each blanket would be partially dried from the heat. The drying rack in the tent was the first "dryer" I purchased before the mini tumble dryer and did well with clothes but things of course did not come out soft, dry for sure, but not soft. It can be taken apart and stored else where.
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Just got back from first infusion of Navelbine. They said the most common side effects are nausea and constipation, so I took Zofran when I got home. Will keep an eye on the other one.....oh what fun. The good news is the infusion only takes 10 minutes. Then they flush the port for 10more minutes. So at least it’s a quick in and out. Starting to get tired, so time for a nap.
Hope all of my peeps are doing well. We are supposed to get some cooler weather here next week (lows in the 60s), so I’m looking forward to that.
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Boo- Hope the new treatment is easy for you. And kills those cancer buggers. Rest for now, my friend.
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BooBoo1– hoping your new treatment has minimal SE while kicking BC to the next county.
DH came home today wearing a pink BC t-shirt. He was smiling from ear to ear cause he was supporting me. All I see is a pink shirt that tells the world I have BC (which is not a fact I share with very many people)
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Booboo,
Feel well. Good luck with this treatment.
Dodgers Girl,
That pink shirt would have me seeing red. The pink just always reminds me that I was originally diagnosed in 2003, and now it's 2020, and where has all that research $$ gone in those 17+ years???? And why don't we have a cure?
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BevJen, I am not a fan of pink October either. I could see the sparkle in DH’s eyes as it diminished due to my reaction of seeing him in that shirt.
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DodgersGirl, I hate Pinktober too as much as most of us do here. Most of it is focused on earlier stage cancers being cured if found early supposedly. I sympathize with your husband a bit too because he probably did think he was doing something supportive and it can be crushing to realize it has not helped the person he really loves. I am sorry for you both.
Booboo, good luck on navelbine may it help prevent progression and be gentle SE. I love Zofran and still keep some on hand, used mostly for scans to couteract nausea before contrast dye injection but the odd time Herceptin will turn my stomach in the first couple of days. Less now. If you are not using them, digestive enzymes can also help with nausea by helping make foods digest easier. They took away my peanut intolerance that I got from earlier cancer treatment.
Our weather here has been nice, warmer but sunny and not humid. I am not doing anything today as I did so much yesterday, exhausted post infusion. I have been washing blankets and rearranging where I store my tent dryer, not sure what else to call it. Just a heater with a zip on tent that vents out the top. It disassembles and am going to see about moving it to the living room. Good back up and good clothes dryer for stuff I don't want to tumble in the dryer
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Dodgers, we totally understand the reaction but I feel bad for your DH losing the sparkle of his good intentions.
Mara, I am amazed by your walks, good for you!
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Thanks Mae, I took a lot of inspiration from you and the ladies on the fitness thread. Zarovka was the one who got me started walking. I feel like I should have probably walked because I can say that I am exhausted today. I do feel that a bit of walking would have been helpful. I actually love walking, even when it is a hard effort like yesterday afternoon. I just like that I can feel really tired while doing it and when I cool off at home, I feel so good. Well worth it. I still found it nice of people to offer to help me when they thought I was breathing too hard and going extra slow. I thanked them and kept going.
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agree with the pink tober month coming up of October. Constant reminder. Although I know they are raising money. But who knows how long before a cure
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Hello ladies
I guess I’ll tell my DH about Dodgers girl husband and the pink t shirt to prevent a recurrence. We all feel your pain.
BevJen we were diagnosed in the same year. I had attended a BC walk in 2002 and then before the next walk I was diagnosed.
Booboo that’s great that the infusion doesn’t take a long time. I’m praying that this stops any more cancer growth. Well the cool weather affects my swimming but I know that swimming is winding down.
Anyone heard from moth? I think she wanted to know about back surgery too.
Candy I’m glad you have a pocketful of support.
Waving hello to all
Tanya
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Hi, Tanya,
Yes, we were diagnosed in the same year and with the same form of BC. Sneaky little ILC! I actually was diagnosed with lobular carcinoma in situ in 1990 or thereabouts, not too long after my son (who is now 30) was born.
I like being in the water too, but I like to do water aerobics stuff rather than swimming. But it's too cold here for that now, although our county indoor pools are starting to open up for reserved swimming (1-2 people in lanes, etc.) Initially they were not allowing water walking and the like. I think that's changed, so I'll have to check. It's easier on the body than even walking, at least for me.
Bev
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