My Husband, My Life, My Love, My Family, My Cancer
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micmel, this may or may not help but my perspective to dealing with this disease and the damage it does, is that I do the 5k, travel, etc for those who can’t and for myself when I eventually get to that point. I try to get what I can out of a day, so I feel like I’m living, not just existing. Also, I’m naturally a glass half full gal, that helps a lot.
I say go for it, do something fun and post the pic!
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Claudia~I can't believe you're going on another riding trip. You're amazing my friend. You go girl. Show us how it's done! Just be safe and take care of yourself! How has big b feeling lately? Today it's actually 40 which isn't that bad. But I'm still just chilling doing my puzzles. Relaxes me! Hope you'll share some pictures! Much love ~M~
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MJH, have to say I am glad I am not in the Basque region this week, as there has been a lot of snow in northern Spain this week, while we enjoy the sun in the south east!
NO1 we are a family of talkers, and we seem to have a similar group of friends, and as you say conversations can be hard to follow for an outsider, even those married or such to us. Think I will be exhausted as begins Saturday and booked every night for 6 nights in a row. Then might have one night off. Come back to spain on 22nd, have my birthday next day, but are going to put off celebrating until the following weekend, as back to Oncologist early on 24th. Phew:)
Micmel, can't blame your daughter wanting to be here when she saw the photo, I keep looking at it myself, sometimes you don't see the beauty that is just beside you, and that goes for everyone and everywhere! We don't see what others se
Just a thought for everyone too, I know we all worry about our other halves being left behind, hoping they have a network of friends, but remember, loved ones can be taken from us at any time, when we least expect it, so love each other, live every day best you can, chose to live with cancer, not to die with it. I try to follow this thought, some days it doesn't work, but I try
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Ladies, I have the flu!!!! Oh my goodness, I don't think that I've ever had the flu. I tested positive for Type B flu. My doc said it will take two weeks to get well. Also, I'm supposed to be off Ibrance for two weeks. My fever was 102 when I got to doctor. By the time I got back home, I was miserable.
No one is going to tell me twice to rest for two weeks!!! So tired. Michel, no adventures for me.
Big b. I will follow your riding trip and live it vicariously through your pics. I dream about riding again someday. 💞
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Mae~ I am going to try to get myself out and traveling more! My DH and I want to go to a tropical island together alone. I don't know what I would do with my foob though! I never used to be afraid ofa bathing suit, now I'd rather swim in a turtle neck! Ugh! But I do want to travel more and I am going to take some of your suggestions and work on it! Thanks Mae! ~M~
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Minnie~ your picture must be mesmerizing, it caught the eye of the moderators lol good work! Reporting from spain! How I would love to be able to see where my grandmother was from. This weather let up a little today, but I still didn't go anywhere. Maybe tomorrow. I miss my grand puppy! Much love and sleep well! ~M~
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Grannax~ OH. NO!!!! Not the flu. Please please make sure you keep a serious eye on that. 102 is high. And must be watched. I am so sorry you have the flu. That really sucks. You don't need this!!! I hope your daughter had the flu shot!? You need to rest up every single day during those two weeks and stay away from people and germs. Wow. You poor dear. I am so sorry. I hope you can nip this in the bud quickly. Sending you chicken soup and crackers. Gentle masked hugs!! ~M~Drink a lot of fluids. Lots absolutely lots !!
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Oh Grannax, I am so sorry you have the flu! You rest! Don't forget lots of fluids! Believe it or not, going extremely dehydrated, makes the flu look easy. Sending gentle hugs your way!
I saw new "fella" today. He seemed ok, until I disagreed with him. Then he went off and consulted Mo, who told him to tell me, that this was his order. Well! I told him that the only reason I was going to listento him was because the flu is going around. It really is unlike my Mo to insist on these shots unless I am going to visit the grankids. He rarely makes me follow up with bloodwork either. Oh well.
Micmel, I have to make myself do these things. Its not that I don't enjoy them, I do, its just easier to sit at home. So I tell myself to get up and do. It doesn't always work, but it works more often than not.
Claudia
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NO1~Hello there! So nice to see your beautiful self here again! I hope you andyour family had a great holiday! I hope it wasn't too arctic like it was here, finally we saw 40's yesterday, I walked outside with my scarf and mittens, I was actually warm. But it is very muddy and I would love to walk to walk my grand puppy, and I haven't seen him for a few weeks now, since the deep freeze, I just can't do It! I miss the ☀️ shine ! Everyone please stay safe and warm, because it's coming back next week! I saw the dreaded snow icon. Here we go again! Much love ~M~
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Claudia~ I have to say it does make me feel better to know you have to force yourself to do everything. I feel the same way! It's not just me! I have to prepare to do anything. I know you have been on ibrance longer than I have, so I was hoping it would be easier. You're certainly one of my heroes! I love to know you still ride. That is heaven to me. When do you leave ? I hope you can check in and post pics. How is bigb feeling last time you mentioned something was an issue with his leg? Was it ? I'm just hoping the precious guy is ok! Love you ~M~
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Micmel, BigB is doing better! The equine chiropractor comes this week and then I have a new farrier coming. Hopefully, he will be 100% afterwards. I have always felt that you have to keep moving forward, or you die. That had been my mantra since my original diagnosis. I have always felt that once you stop pushing forward, its all over. Sometimes, all that means is getting out of bed and sitting on the couch. Other days, it means going to the barn when all I really want to do is sit on the couch. You get the idea. It is certainly nothing heroic, it is just living.
Hugs and prayers,
Claudia
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Holidays were very quite in my house. I did all of my shopping online and wrapped the gifts slowly. My DD joined us for dinner. My son is out on the west coast so did a quick phone conversation with he and his family.
Have had significant pain in my left hip over the past few days. Had to take pain meds. I will usually try heat, ice, and ibuprofen before I reach for the narcs but this time none of my usually go to's worked so had to take the narcs. It did take the edge off but did not take the pain completely away. I have mets in my lower back and right hip but the left side hip pain is new.
It is raining today. First moisture we have had in over 100 days. Unfortunately it is not a big soaking rain which we so desperately need.
Start my next X cycle on Friday with all of its side effects so trying to get my meal menus and shopping lists done for next week. We eat Vegan/Vegetarian during the week and have chicken on the weekends. I am finding it harder and harder to get the energy up and to deal with hand and foot syndrome while trying to prepare meals so I have come up with a binder system divided by weeks. I place recipes with similar ingredients into the week and then shop and prep. Because the recipes have similar ingredients it helps cut down on planning, shopping, and prep time during the week.
Wishing everyone a wonderful day.
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bigbhome, I’ve felt the same way about moving forward. I have been asked why I still walk at work every day several times during treatment by coworkers, I either reply with “why not?” or “if I stop, I die”. FYI, there’s a Bitmoji for that, lol
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Claudia~So glad bigb is doing good. I meant to ask you that a while ago. My medicine Brain sometimes helps a lot. Not! Lol I totally get what you mean. But you and Mae both are honestly amazing. You're always on the move and always kicking some adventures or traveling ass! I am glad however I went to Maryland Iike I did, this is my week off of ibrance and I feel pretty good actually. I didn't go back to bed today like some days. I could sleep till noon. But this week has been kind. I'm going to see my grand puppy tomorrow. I miss him and it won't be negative 2degrees. Much love ~M~
Mae~ Today and yesterday I have done two puzzles. I'm so addicted. And I'm addicted to reading my Game of Thrones book series I got for Christmas from my DH, I am having a blast reading them and it's enjoyable for me. So I cannot complain about how I have been feeling. I am even considering going to the gym on and off hour to see how my body does on the elliptical once again. Slowly of course. But I want to try! You both have inspired me! I used to be a tank. I miss that feeling of strong and strength! Maybe I can work it back again, isn't that what remission Is for? To try to remain strong and healthy while I can?. I think im going to try. I don't know what on earth I would ever wear with a foob?!! Ugh! Now i am anxious again. Lol. ~M~
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NO1~ I have never experienced hfs. I have read some things about xeloda, for some people it works really well. I am so sorry your feet and hands are bothering you. For me with the ibrance it's my sore mouth and train stopping fatigue. Does x bring on super fatigue? I also did all my shopping online. Again someone got a hold of my credit card number! It was fixed quickly. But the internet has tentacles. We had our little blended family together and loved loved every second of it. I wouldn't trade having us all together for anything. It was a lot of fun. My DD got a gorgeous promise ring. I'll post the pic soon it's pretty cute! I prefer the quiet times over too many people to even talk too, there is too many. That is how it was at the eagle court of honor a lot of people and I knew a lot of them. But hadn't seen any of them except DH’s , DS and significant other. I didn't even think about bringing a mask. I am still not even used to having cancer and ever worrying about that. I am starting to think I'll never think that way. Especially now that my hair is really returning to the way it used to be. I hope against hope the ibrance will work for a very very long time. We all need our miracle! Hugs ~M~
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I love finishing a puzzle. There’s a sense of accomplishment that I really enjoy, i think it’s also why I’m such a workaholic, lol
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Mae, Love the bitmoji! I'm going to try to find mine! I totally get what you mean! That is why I loved showing my horses! You are constantly striving for improvement, training constantly and reaping the rewards of a good ride. In the show world, it can be quite political, who wins and who doesn't, but you know, you just know when you have a good ride and no one can take that away from you. It is such a sense of accomplishment and pleasure! I would be grinning from ear to ear, whether I got a ribbon or not! I picked up another venue for the challenge, so I went from trail pleasure to high performance in Tennessee Walkers and added Saddlbreds, who can be quite the challenge. I really miss it, but I will pick up a clinic here and there for something I want to learn. I have two great horses who are willing to try anything I ask. I am very blessed! And yes, my motto is that if you stop, you die! Harsh, but I totally believe it! I'm so glad that you are doing so well! You are going to need something too challenge you, after you retire! We are just built that way!
Hugs,
Claudia
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Mae and Claudia~ I am sure everything you decide to do, you will do well. I think it’s pretty awesome that, you’re attitude to keep going is a great think. Like a body in motion stays in motion, a body at rest stays at rest! I can agree with that. I am doing more each day, which makes me happy. But I am never going to work again. It’s just too much for me. So Mae more power to you my darling!! Hope everyone has a good nights sleep. I already can’t wait ! Hugs! ~M~
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i also have to say I am on ibrance and the fatigue sucks. 125 mg. And it does make me tired. Onc say no way to change to lower doesage since itsworking so well. But fatigue is a big issue for me. That I can't be go go go go like I want to be. ~M~
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illamae you're a rock star!!!!!!!
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Grannax 2 so sorry you have the flu. Do everything hey tell you and rest rest rest. Prayers coming your way.
Tanya
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My mountain plan is to get a greenhouse going with enough veggies to keep grocery shopping at a minimum. I also want to grow some grapes and have DH make wine. Other than that, there’s hiking, raising chickens, etc. I will have to find something work like to do though, maybe the property owners association needs a treasurer, who knows.
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Micmel
I started physical therapy last week. Yesterday I rode the bike for 8 minutes and did all the stretches. The pt advised me not to go to the gym until the pt is done bc I have really weak core since back surgery and 6 weeks later hysterectomy. I'm doing exercise at home through the fatigue. Sore muscles feel good again.
I went for a walk also on a boardwalk in Lettuce lake for the floridians, lots of wildlife. I felt better In The fresh air pushing past the fatigue and worry. The time flies.
Sleep tight all
Tanya
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No1
I hope you get all your meals planned out. I ventured out and bought some vegetarian fare and was too tired to prepare anything yesterday. Today I did make a smoothie with acai yogurt flax and blueberries. The trouble with that Is sent that's its filling. Then my dh has to eat. Energy depletion I see real. I pray your Se's improvespecially the pain and the treatment do their job so that it should all worth it.
Tanya
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NO1- You are so smart to do the meal planning the way you do. My DH likes a proper meal each night and even though I love to cook, I don't have the zeal I once had. Some days, my brain is so lame, I can't even think of WHAT to make! I've heard about the hand/foot syndrome with Madame X. I am sure that it will be in my future. Thinking of you as you endure this insult yet again.
Micmel, I felt very fatigued on Ibrance, and had a difficult time falling asleep. Less so on Falsodex, but I still have to make myself do things also. i have little talks with myself about how I'll feel better once I tackle this or that chore. My grandson is also very motivating because I am his Mom most of the time and he needs me. My DD is tons better and starting classes on the 22cnd, but still spends a lot of time in her room. She adores him, but sometimes it feels as though she is the big sister.
Bighome and Mae-you are rockin it, gals! May you always be out there going after whatever you want!
Grannax- I hope the Tamiflu minimizes your symptoms and that you can rest easy.
Love to each and may the force be with.....MJH
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Mae~ sigh at the mountain house. Sounds heavenly! Do you mean living semi off grid? Growing your own tomatoes and cucumbers and etc is heavenly. My DH did such a great job with the garden. Those were my most favorite days. I wasn't hurt and I could still work and bring in some pretty decent money. Then i got hurt! I love home grown tomatoes. Truly delicious. Cucumber and tomato salad. Makes me want some right now! I love your ideas and spirit. I realized you and I were both de novo. Mine just took a few weeks to figure that out. Unreal the odds of that happening. Although., I am learning it happens more and more to younger woman. Must be the foods, or growing up with something in the environment! I am 47, Claudia how old are you? Mae? If you all don't mind.? I'm just curious. I think keetmom is real young also. Chelle? It's truly boggling. If you think about it. Have a great nights sleep ladies,I'm going to read soon. So goodnight beautiful ladies ~M~
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Tanya~You have an excellent point about physical therapy before the gym. I like that idea and I am going to look into it like tomorrow, I'd rather have a more private start to begin anyway and I need to get my core evaluated and I definitely don't want to hurt anything. I know my arms are strong and I am strong as an ox, but my middle did have two major surgeries back to back, so an evaluation would be a great idea. Thank you very much for the suggestion! I am very excited to get back to the elliptical again even if it's slower pace.I could do 6 miles in 60 mins. I want that again someday. Even if it isonly after a good old Valium lol jk. Good night sweety. ~M~ be careful at your physical therapy sessions. I bet you'll do great. So awesome! 🤗❣️
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MJH~How many months were you on the ibrance, I am wondering if it's accumulative? I am going on my 16th month. This week though I have felt great. It seems like the more i stay out of bed, the better I am. I have more than just cancer. I have an injury to my right arm that makes it numb half of the time with damaged nerves. So it's a double challenge for me, during the surgery for the nerve brachial plexus surgery, they paralyzed my right breathing nerve that is activated in my right lung when my brain signals a breath. So I only breathe on one lung. So that's a triple challenge! So it is certainly a shit stew somedays. I know we all have our issues. But I am happier to know you also experienced some major fatigue on 125 mgs. meaning it’s not just me. Not that I am happy for your fatigue, by any means!
Claudia I believe was on that, but was lowered. Down. I asked. But no dice. Rest well and glad to hear DD is doing well ! 😌
I wanted to post my DD at Christmas with her fiancé Alex. IT was a moment for my bucket list, something I got to see. It warmed my heart. Very much. ~M~
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This was Christmas Day! ❣️☺️💗🤗💍 my precious daughter. Who I adore. ~M~ I adore him as well! It was in front of our second mini tree in our diningroom. We usually open Christmas Eve presents in there, but this year he had her, on a scavenger hunt! It was great! ~M~ 0 -
micmel, I’m 42, diagnosed just over a year ago at 41, both my mom and her sister got bc in their 60’s. It’s been a shocker, for sure but I can’t change it, so I make the best of it.
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