My Husband, My Life, My Love, My Family, My Cancer
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Mae~I hope you have a delicious dinner and time with your friends! I don't even want to go outside for any reason whatsoever this 28 degrees high during the day is the pits! I don’t remember a winter this cold steadily this soon. February ehhh maybe. But we have many months still to go trough! Hope you're not too cold in Texas. I have a mountain of blankets. My friend told me yesterday that my dogs blankets were nicer than some of her people blankets. It was never on purpose, they just kinda adopted them. I am going to read and go to bed early! We all know how much i love bed!! It is only three o’clock and I am already thinking bedtime. I start another month of ibrance tonight. So dinner has to be prompt
Have a good night tonight! Hugs ~M~
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Lynnwood~I am sure most of the people who post on the board would know them. I just wanted them to know, they were cared for everywhere, since I don't post that much outside of this one. Occasionally steam room, and Lita Kandy or patty. I hate Cancer and hate what it does to people, good people. Just want as Many good thoughts to be going their way. I appreciate, you saying you feel welcome. You should !its your thread too! Everyone makes the thread! It's truly a sisterhood for me. We go through things together. It helps me tremendously, to be able to focus on my family In a more positive way,because I just whined to you guys for two hours. It helps. Much love ~M~
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Micmel, Since you would like people who are not Stage IV to become part of this thread, perhaps you should consider moving it out of the Stage IV forums. I think that many people who might enjoy this thread would be reluctant to post to it or even read it when they see the message at the top that asks that people respect the fact that it is for stage IV only. If I were not stage IV, I would be inclined to respect that request. Perhaps you would see even more people join you if the thread was elsewhere. Just a suggestions if want wider participation.
Lynne
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Lynne~not too many people that aren't stage 4 really post here. I often wonder sometimes those without a profile at all, what that means for profile information? I like being nestled with other people who are living exactly the way we are. Sometimes if they do post it would be a sorry i am not stage four but ....... I don't know that a lot of people who aren't stage four would even want to post here anyway. I know it's upsetting for Some thinking they might end up having mets. I just meant that this thread. Doesn't know boundaries when breast cancer and love are ivolved! I need my stage 4 ladies, but am happy when I get some good feedback from everyone, at any stage ! Hope you're warm! Hugs ~M~
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Hi Gals- really busy week last, glad it's over. Yesterday, my right side pain was strong enough to keep me lying down much of the day. Hurts most when bending or twisting. Luckily it is not so punishing today. Saw my MO on Friday and I am to report to him if pain gets worse, otherwise we are holding out for that March scan to see if the Fulvestrant is working. Still encouraged about participating in the clinical trial for the mutation I have sometime in the future. Got my haircut last week, and I swear, at one point I looked like an Oompah Loompah! I said to self -she better be planning to do a little styling here, or I'm gonna be ripped! Turned out great , though.
A very close friend stopped by today to tell me that she has just been diagnosed with DCIS. She's pretty shaken, and truthfully, so am I. You don't expect this to happen to your friends. At least I could offer her some factual info, and giant hugs of course. She will be having her lumpectomy on Wednesday.
Mae-loved the cartoon with the exploded biscuits! So funny!
Runor-I am so with you on the downloading housewife duties onto some other entity.
I don't know who raised the issue of dripping sweat when housecleaning- OMG, wouldn't life be so much more pleasant without this accursed side effect???
I had read about LindaE54 on another thread. it is a sad and solemn day when we lose a sister.
Lita, Kandy, and Patty-follow them on other threads. Talk about inspirational people......
Grannax- hope your the recovery is coming along well
Gracie, Tanya, Leapfrog, NO1, Lynnwood, Lynn, 50's Girl, Micmel and each one of you- hope this finds you at peace and resting easy. May the force be with you at all times- Love MJH
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Michel. You actually have quite a few people posting. There are a lot of people who read and enjoy your thread! Keep on truckin'!
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MJH~ I am very sorry that your friend has cancer. No one ever wants to hear those words. I hate the word pretty much more everyday! I hope that she gets on a good treatment, and it will kick some butt for her.
I get mad at myself thinking. How could you have missed that you had cancer ? It’s my body....I should have known. Don’t you think I would be able to tell something was wrong? Then the lump. How are we able to fight something that begins so silent, and is so evasive.that once it is found. You’re either getting chemo, or losing a breast, and all along you’re thinking you’re doing what you should be. Excersising, everyday. Its mind boggling. I hope your friend does well. She’s lucky to have you in her corner. You’re a wonderful support and she already has a book of knowledge in you! Sending hugs your way. Much love ~M~
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Fraidy~Welcome to the thread and thank you for your sweet words. I have to admit I enjoy doing it, I enjoy knowing that if this thread makes people smile, or want to try something new , or come for some support and some unconditional loving. It makes me so happy when people share that they enjoy the thread we put together. ITs just easier for me to let it out here, then to be the woman known as the wet blanket at home. I can focus on my sadness or frustrations here and be able to give more love to my family after the venting is done. This is a sisterhood and I have grown so fond of each and everyone of you. Without you all, it would be me rambling alone in my living room! Thank you so much. Gentle hugs ~M~
Speaking of sister ......Claudia? You alright love?
Chelle? Miss you. Hope you're feeling better! I hope everyone is warm and safe. ❣️
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.....our one dog Tag is becoming an old man, he trips around a lot and falls sometimes, because of arthritis. These two dogs have been together since they were 2 years old, the red One is Tag and he is 10, he had just had an episode and my DD had caught him in her lap. Our other dog Deeohgee, was worried about him and gently Laid his toy on his back, in hopes that he would play and Be ok. It was really very sweet like he was watching out for him. He’s getting so weak and his legs give out. Apparently the humans aren’t the only one that can sense that he is not steady. Deeohgee can also! Poor dog. It makes me sad because we just have to sit back and watch. Sounds way to familiar. Good night ladies. Stay warm. Sleep well. Much love ~M~
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Good morning ladies ~ another chilly night! I woke up three times. I lost my top cover like five times. Arggg. When it was hot I wanted cooler temps. Now it's freezing and I want warmer temps. I can never be satisfied withthe weather I suppose. I had a strange dream, and usually I don't remember them, I remember filling out some paperwork for a doctors appointment and I kept telling them I had Cancer... they kept saying they didn't see it and had no record of anything like that. So I kept yelling at them about all my scars and my missing boobala, and they kept saying everything was a mistake. It wasn't a pleasant dream, had to wake up realizing that it was all just a dream! Now I'm having coffee and I hate that everything leads me back to cancer. The evil seeds. Hope all slept well. Much love ~M~
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Good morning Micmel! Sounds like a frustrating night. I hate those! I have a jam packed week this week, 2 Dr appt, hair day, equine chiropractor, drive 2 1/2 hours to mil to meet reactors, to get a number on value of house and then hopefully get it listed. Puppers need baths. Farrier for horses. All done by Sat, at which point I will be loading Motor home and horse trailer to leave on Mon for camping trip! Whew! I need to rest, just thinking about it! Don't worry if you don't hear from me this week, I will be reading.
Happy week all!
Claudia
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Claudia ~
honey....all I can say is wow. You're something else. I knew you were busy with the house. But all that in one week? By the last appointment i would be crawling on my knees, just to get into the car! Visions of my bed, would be dancing In my head! Good luck with the doctors. I hope it's only routine. I'll miss you! My DS has been wrestling with some kind of stomach pain and bug. Nothing has seemed to help! Funny and stupid thing is, he is the only one in the house that HAD their flu shot! It's running rampant. so please be careful, and wash those hands! Get a some rest when you can so you don't get sick! Be safe! We love you! ~M~0 -
Claudia wow that IS a week! Sending you extra cyber energy to help 😁
Mel, so sorry you had a bad night! Hate those! I slept well but had a rough evening. Between the zofran and the painkillers this week I ended up with horrendous constipation!!! First time that’s happened since my first go round with cancer in ‘07! Took two different medications and am a tiny bit better but wow!!! Forgot about that with zofran!!!
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Bigbhome I'm confused about which house you are selling, which house you are building and where you're living now???
I think you're living in Florida now. But that's confusing because do you have three houses? You do have a busy week. My favorite part is going on the trail ride.
My husband and I went on one trail ride. It was back in 1973 in Arkansas. We went with the Northwest Arkansas Cavalcade in Devils Den State Park. We tent camped with the group, brought our horses and went on long rides everyday. My favorite vacation. Have fun on yours.
I think my flu is over, well not completely. I have no fever but I still have cough and no voice. And I won't be running any races! Ha I am going to attempt going to the grocery store tomorrow, my big adventure.
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Gracie~ hello sweetheart, I every single day use murilax, no matter what. I take 19 pills a day and if I didn't I would be outside howling at night in pain b cause I have experienced it to the point to where I was ready to go the hospital. I'll spare you the scary details, but it felt like I was splitting in two. Use the murilax every single day! It really works well. Just don't miss a day or you'll resemble the rabbits!!!! The pain is another wonderful delight to to add to the list of side effects to they fail To mention. It really bothers me. Just like ok you have to have a mastectomy, but only briefed over the logistics of the fact that I had every lymph node removed from my left arm. HELLO? people? Ya think that might be worth mentioning to the patient. ? Ah nope! Oh there is a small chance that you could get lymphedema! (In the snoopy teacher voice wahhhh wanhhh wahhhh wahnhh wah)! Well I got the lymphedema bad. It felt like a balloon filling up with fluid and running out of room fast!!! I was what he heck is going on here. It was really scary and I was in such pain. I went to the breast surgeon and she was like. Hum hum yeah it's lymphedema, we told you about this. I was like who did. The little fairy that stole my breast???? It was very devastating to know I had yet another condition come out of no where! It Really upset me. Another arm I couldn't really use. My right arm was already injured before cancer, I walk around with two arms that barely do well with anything anymore. But I always say some people have it worse.
Sorry that you're having problems, ibrance can be rough adjusting to it. Sprint to the store for murilax, Inject it if you can. Lol jk obviously! But seriously, the first day you can take more than one doseage to help. Trust me on this. I swear by it. I also have my arm well under control, thanks to my own research and persistence! I mean I think that those doctors, (some of them) would see you bleeding from something , and say oh I can see you next Thursday to bandage that up! Don't worry about it. I think they either have to many patients. Which is sad because that means almost ever other person has a chance of getting cancer at this point. When I go into my Oncologist office. It's like a freaking deli counter. They are everywhere. Young, old , middle aged. It's like always packed. I can imagine that is how it is, in every state, town , just everywhere! What is causing so many people to get this disease.?? I hopeYou rest up darling. Buy murilax in bulk ! I do. From Costco. Without it, I might hurt someone. Lol jk. Much love ~M~
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Grannax ~Good morning darling! I do believe that Claudia is still in Florida. Which is where her animals are. She wants to sell her furniture and some things before she moves. I believe is in the process of having it inspected and priced! If I am wrong please correct me Claudia. I sometimes suffer from 19 pills of confusion!!
I am sorry you got the dreaded flu. My DH and DSS went to the doctors for a check up and they told them that it is running rampant now here bad. I'm afraid to get it, apparently only 10% of the strands were caught in this shot and it's crap. My DS isn't feeling well for two days, but his is stomach ache!! I don't know how your flu felt.?Although interested in knowing because of the miles!?I hope you continue to feel better and drink a lot of fluids! My DD just said she woke up with a sore throat!! Does anyone remember the movie with John travolta"the boy in the bubble !" ??? Well I need one of those protective barriers. Everyone in my house has been sick since the week of christmas. It's enough already! Winter just stinks! Feel better. Hope daughter Is well! Much love ~M~
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Micmel, over on the lymphedema threads you will find many angry women who were not clearly informed about the possible side effects of removing lymph nodes.
I had only one lousy node removed. Surgeon said she dug around quite a bit and cut down into lower layers looking for others, but she never found more nodes despite having injected me with the green dye (which made me break out, head to toe in a red blotchy rash, I am allergic). So with only ONE node gone I should not have had any problems. WRONG! I had lymphedema in breast, armpit,m arm, side, ribs and the boob itself. I have managed to mostly find ways to deal with armpit, side and rib swelling. However, every morning the FIRST thin that greets me is pain in my breast, which swells and hurts. Weirdly the pain in my breast is where I did NOT have the lumpectomy. This tends to panic me because it was pain in my breast that made me have a mammogram in the first place last year and started me down this shitty road. So now when my boob still hurts, my brain automatically says, oh, it's more cancer.
Hub and I were talking about cancer and between bites of toast he said, breast cancer doesn't hurt, and I flipped my lid. Yes it does! YEs it does hurt! This idea people have that bc doesn't hurt is wrong! There is a thread asking if you had pain before initial diagnosis and many women said yes. Ugh. Sometimes I wonder if he's been paying attention at all.
I will be managing lymphedema the rest of my life. I have exercises that help, but sometimes the swelling wins. And it hurts. Aches. Feels like someone is injecting fluid in to the back of my hand. It is so gross and awful!
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Runor~I agree completely I wear my sleeve and it helps a lot. But it will be forever a side effect and condition that haunts me. My pain near the armpit but down further on the arm. My hand rarely swells, it is just such a Shame that women weren't more informed. It is quite painful and limits function at times. If I lift things, the next day, I feel it.
I also completely agree that breast cancer hurts, my tumor in my breast hurt so badly when it was angry and big, that it hurt to take a full breath or to bend over it was dangling pain. Awful,I couldn't wait for it to be gone. They chose chemo first, which shrunk the tumor almost to where I wasn't able to feel it. But it certainly did hurt. The pain is what finally made me be forced to do something about it!! Ugh! Bad memories, But very real memories as well. Happy day off, for some of you! Hugs ~M~
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Thanks Micmel! I did use dulcolax yesterday and on my gosh, the cramping! Will try Miralax
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Hi everyone. My husband is at it again. He sent me a message on facebook. I found a cheap flight to Jacksonville. I asked him what was in Jacksonville (never been)? I said I'd talk to him when he got home from work. My mother said just go. Of course having dr's appointments week 2 and 3 after chemo, and felling lousy week 1, it's hard to plan a trip without having to reschedule appointments. The long weekend in Feb he picked, I have my blood work/oncology appointment on Fri, and am probably having my scans done that week before my appointment. I asked him why he can't wait for our trip in April. He didn't give me an answer. It is nice of him to keep planning vacations, but it just messes up a lot. Don't get me wrong, I appreciate it, and he's wonderful, but everyday looking up vacations (when we already have one planned in a few months) is making me a little stressed. (runor, I don't mind the rotten tomatoes).
Last night I was talking to my friend on the phone. She chopped all the ice off her walkway on Saturday and hurt her back. Of course everything melted with the 50 degree and rain the next day. She had to have someone come over and adjust her. She could at least walk a little. The way she described it, it sounded like sciatica. Of course when I went up to bed my left sciatica was so bad, I yelped getting in the bed. I blame her (LOL). It's been bothering me a little for a couple of weeks (and I didn't shovel!). I ended up taking a muscle relaxer and an oxycodone, and slept on the heating pad. I got up this morning and still in pain (great trying to sit on the toilet), and took another muscle relaxer and tylenol (I hate taking the oxycodone during the day) and am sitting on another heating pad. I hope it goes away soon. I really don't want to get a steroid shot. I guess I've been sitting too much!
We are suppose to get 3-7 inches (maybe even more, per the weatherman) Tues night into Wed. We lost tons of snow with the rain we had this weekend, so I suppose we need to make up for it. Of course the southern part of the state is getting the most again, instead of the mountains up north. I always say it can snow boatloads up north for the skiers, snowboarders, and snowmobiles, and skip the south. We're back in the teens today, but it's suppose to warm up after the storm, into the 30s. I keep reminding myself that it is only January, and our winters last until March (and sometimes April, and May we get snow).
I hope everyone has a great week! Hugs!
Lynne
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Gracie~I believe the main stimulant in the murilax is actually water so drink up t uses the water naturally inside your body and take it two times today. Just until you feel like you have a handle on it.You won't even have a Cramp if you use this everyday. I swear by it! I don't know what I would do with out it. Even one day sometimes, I can feel the difference. But seriously it's the best I've found. I have tried everything. It's actually easy and no odd taste! Much love ☺️~M~
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Lynne(Man)~Hello honey, my advice is to just say to him, point blank. “Honey, I am just not feeling up to it, I don't feel good and it's making me anxious". Just like that. Just be as honest and as kind as you are here. Ok maybe a little nicer. Lol. But just be honest. You don't have to go, or maybe even suggest he go with life long friend or a family member, just because you're worried about him always being the care taker. Reverse it on him. I sometimes don't mind being all alone. My kids are in and out of the house like a track team. Running here, running there. Maybe because your DH wants to keep moving and doing things is because it makes him forget about what's going on. He can still do things he loves with you........ so Maybe that way it doesn't make him think much has changed. You could try to just make it about him.... make a huge fuss over everything he does and how he deserves it. It could work ..... unless of course you don't want to be alone sweety! Just take a deep breath and have a talk with him, because it sounds like his planning isn't going to be slowing down anytime soon, better nip it in the bud! Big hugs darling, I hope your chemo goes quickly and you're done and feeling your better days! Much love ~M~
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Hi Lynne, I love your Dh! The spontaneity of it all! I am envious! If my Dh did something like that, I would be over the moon! While I understand the aggravation of rescheduling appointments, I agree with mom. Go for it! This is the way the man shows you that he loves you. He wants to make as many memories with you as possible! Go! Oh but if you are flying into Jacksonville, I would love the opportunity to meet you! I live south of Jacksonville, on the way to Orlando.
Grannax, I am so glad that you are on the mend! Wow, what a terrible time for you. I had to laugh when I read your post. I have one home, in Florida. I am driving to Merritt island, to help mil and her husband, who has Alzheimer's, meet with reactors, in order to get their house listed asap! She had has, of course, waited until it's critical to do this and Dh and I are concerned about someone taking advantage of the situation. Unfortunately, we smell a rat in the woman who has volunteered to help her out. I won't bore you with the story. I used to be a real estate broker, and I still keep a finger on the pulse of areas of interest. Elder abuse, neglect and fraud are rampant in our state because we have so many elderly. I have dealt with these issues off and on for years and am definitely thinking that they are at serious risk right now. So I am going to do what I can to help. I have volunteered numerous times over the past 6 years, but she is not interested in me, only my Dh. So it says a lot about how bad things are for her to accept my help.
Had the weirdest thing happen today. I had bloodwork again this morning to check my low neutrophils. I had a Neupogen shot last week, stopped Ibrance before the end of my cycle. My bloodwork shows that not only have I not gotten any higher, but I am now actually lower than last week. This is a first! Oh well, more appointments to schedule into an already packed week.
Hugs,
Claudia
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Claudia~you're amazing helping out people! When the hurricane came , there you were helping your friends. I have to say that it's a pleasure to know you. I think that you and you're husband are really go getters and you do what you want to do. I am more of a homebody. I enjoy familiar surroundings, I also find that my lymphedema cooperates better with my specific bed. Otherwise I feel like I am laying on rocks! I wish I could carry my bed around like a back pack , maybe then I would want To travel more. Not to mention the expense of it all! Yuck. But that woman is very lucky to have you as a friend Lynne~ it would be wonderful to meet Claudia. She's a beauty for sure! Everyone have a safe warm night! Much love ~M~
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Hello girls!
I have been reading for a while,and still haven’t caught up. Busy thread now!
Amie - you,your Dh and your lovely daughters are in my prayers,always! I hope they can figure out how to stop Emma’s headaches. You are quite the warrior! She has your strength,and will get through this! How is your Dad doing? I hope you can manage a little time for yourself!
Granx- so glad you are getting over the flu! That is rough when combined with cancer tx and all of the se’s! You and your grand daughter look so much alike! Beautiful! Sending love and hugs to you your Dd and Gd!
Claudia- I need a nap,just reading your schedule! I would get the Hermit award! I love being home. It has been many years,since we have traveled out of state. We did all that when the girls were little. I just no longer have a desire to go anywhere. These mountains are all I need! I like Mel,just don’t have the energy. You are so 😎 cool! You look fabulous,are an expert equestrian,loving wife,mother and grandmother and you still manage to do yoga and look like a thirty year old. Wow! Please take lots of pics and have a great time! I will travel vicariously through you!
Minnie- I love the pic! Enjoy Ireland!! I have always wanted to go there. Looks so beautiful!
I will have to write later. Kids just got here with a boat load from Costco.
I don’t want to lose what I have already written,you know how that goes❤️❤️
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Gracie, I was given a stool softener to take twice daily on this Ibrance cocktail along with Senokat. I will try the miramax as soon as I'm done because it is a constant battle to keep everything moving. After my surgery in June I learned a thing or two about how severe it can be with the opioids for pain management. Whewwwwww
Mae I loved your biscuit container explosion. Yeah it's like that most days.
I think mostly stage IV people are here. I remember years ago when I was on a Stage IV amazon site at Stage III and realized it I quickly bailed out. It scared the mess out of me and now 14 years later here I am.
Micmel the lymphedema in my arm is proud to represent 28 removed lymph nodes. But after my masectomy I had six weeks of physical therapy which was lymphatic massages from head to toe once or twice a week. It was fantastic and I hate that it ended. I was in New York then at Stony Brook Hospital. Oh also the center was fabulous the Baldwin brothers (Alex Steven William and ...) opened a breast cancer center dedicated to their mother because she (Carol Baldwin had breast cancer in 1990). I think she's still alive. My point is I think you can request a referral.
Have a good night all rest well
Tanya
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Chelle~Hello darling! Glad to see your beautiful face here today! It is very cold here today again and I didn’t go anywhere! I just don’t care too the word I the flu is terrible an that is one thing I can certainly stand to avoid. My DD has been sick before Christmas, she’s already feeling bad again. .... I told her zpack does nothing !!! DS also sick again , his stomach aches. Been sent for blood work so they can check the testing or celiac disease, which now i hope it’s just big bug!! It’s a always something to worry about. Get some sleep tonight! I always say I’m going to bed early, but then insomnia sets in. Grrrrrr certainly is fatigue ! My favorite time of the day. Is bed!!! Already ready, if im honest. Sleep well. Much love ~ M~0 -
Tanya~I have been through months of the therapy and it did help. I have all my Decompression wrapping toolsand I do wrap my my arm if need be. It's isually under control, but some days, it's a bear. I guess it just depends on what I do that day. I have been resting it today. Hoping tomorrow is even better!! Much love ~M~
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I have a pillow on my bed just for my arm. Sometimes I fall asleep with it straight up in the air, it relieves the pressure. After I wrote those things about Carol Baldwin Breast Care center I started to think about spending the summer with my daughter and seeing what research is around in their corridors. I was reading a lot about QOL on another thread and survivors reducing their Ibrance to 75mg with the same results. I'm going to ask my doctor about this also before I destroy my ability to make WBC. Also someone said there is a study to see if 25mg works as effectively. I can't even imagine how that would affect my QOL. We'll be back at the gym and running races. I know I'm 60 but I did so enjoy running. Going to PT makes my muscles feel like they want to be busy again, but then the fatigue hits.
ITanya
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Tanya~I have begged my onc to lower the dose and he said basically no way. If it's working, he doesn't want to mess with any of it. Another problem I hate is, the sore mouth. Especially the end of the first week and beginning of second. It's like you ateway to hot Pizza and it's burning every part of your mouth. It's annoying and it really does hurt. Then there is captain fatigue. The idiot! Steals our energy! Grrrr. I know exactly what you mean. I eve looked into renting an elliptical machine at home and couldn't find a company that would rented to homeowners, and a new one is like over $2 k. I don't want to join the gym again, because the ride alone Is maybe 15 mins away. By that time comes, I won't even want to get out of the van and go inside. I'd rather nap in the back of the van! I just know in my heart. I am not there yet. Hoping one Day I will be. But if I am honest. My body would rather sleep and my mind would rather run. It makes me so upset. I miss that part of myself!
Sleep well everyone. ~M~
I’ll take 25 Mgs. If only that was an option! I’d be all in. I also wish we could just stay with one treatment, it’s bad enough to have to take something for the rest but of your life , but to have to fear that he one you’re on may fail, is just another layer of torture we all have to face. I hate it ! Grrr.
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