My Husband, My Life, My Love, My Family, My Cancer
Comments
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I agree on the google part of things. Sometimes it does bring you to a thread, if the wording in the search engine is matching. I was worried more about my diagnosis and information that way. I try to stay vague as well, no last names etc such as things that really tell the tail of anything personal! I don't even use my real name, unless of course we speak outside of BCO, which does occur occasionally and I am thankful for Those friendships more than words can express! Especially the One in particular, who seems to be there for me more and more. We talk everyday and it is a constant sisterhood I adore. I just wished we lived closer. This BCO has brought me an angel for a friend and I couldn't ask for more. All of you are very special, if someone wants to read our daily stories, they must have a lot of time on their hands! I care for each and every one of you! This is like my second home....so as always personal stuff can stay that way! Personal!!Much love ladies. Big hugs. ~M~
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Im sorry lynnwood, I guess I assumed it was common knowledge or that everyone found out fairly quickly. Please do be careful but hopefully we can all still have some good, not too censored conversations.
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I just googled my screen name and nothing come up! Honestly if I entered my real name a heck of a lot more things come up. They have all kinds of sites that list your name and address and family members and spouses wether they are ex's Or not! But honestly there is really nothing to worry about with this BCO pages unless you're using accurate personal information! I mean never post phone numbers in the forum, obviously! Sometimes firs time names aren't bad.. but not really like last names. I have sent cards to a few friends here! You just have to get to know someone before you exchange anything personal! I really have nothing that major going on that anyone would want anything from me. I have stage four cancer, I am already up to my neck in medical bills, I am a hermit basically and I have nothing worth invading. My DH I have never mentioned any real name or anything.
I think everyone at least on this page really hasn't posted anything on the forum that would be a bad thing. No one knows who you really are Lynwood darling! I have done surveys and actually have been to the BCO offices. They were very discreet and non evasive. Never really asked to much personal information, that couldnt be found online already as a form of public record. I am not that worried about it. I would however not like my diagnosis listed below to be used for any reason. I mean my insurance and disability know that I am really ill so. It's not too much that everyone doesn't already know. If that makes any sense at all!? Pictures don't have full names attached, and your screen name isn't your real name. I wouldnt worry darling! Or.... change your screen name and don't include your diagnosis! If I were to make any change it would be the removal of diagnosis, but other threads, before I started this one, didn't like it if it was blank. Especially for treatment based questions. I suppose it has to be your decision! I am going to bed. Sleep well everyone! Much love ~M~
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have to say I'm shocked if this isn't private. Puts you off sharing photos of family.
Time to get up in Spain, DH is making me pancakes for breakfast. Happy Thursday x
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Micmel.... thank you for your lovely words. I'm glad you're beginning to begin (if you know what I mean) to improve, even just slightly. Take it very easy. You don't want to relapse. If you go out, please wear a good quality mask. I always wear one to the pathology lab and the oncology clinic and I hardly go anywhere but if I do I don't touch my face till I've got home and washed my hands thoroughly. If I'm just popping to the shops I smear the outside of my nostrils with Bactroban antibiotic ointment as we were told by a friend that he avoided the Northern Hemisphere flu when travelling in Europe recently by doing this. His wife and daughter refused to do it and both became ill.
The poem is beautiful and I can relate to it but I do try not to dwell on such thoughts as they can lead us down the pathway to Melancholy, I find. I try to live in the moment and not to think about how it "should" be. It doesn't help me, although I do look longingly at my car, which I've given my son to drive, occasionally and dream of zooming down the freeway at speed! I'm improving at my exercises though. I can now do everything I used to do except for running and walking and anything else active! I've been working on squatting on the floor flat on my feet and then rising to the balls of my feet and balancing without holding onto anything and I've achieved that goal this week. This, after being bedridden for two to three years, is amazing to me. It took me about three months to get back to that level, along with the other exercises I do.
Anyway, before I toddle off for dinner, I popped in with my scan results and it's good news. My CT shows that, after a year on Ibrance and Letrozole, my organs are still clear and my bone scan was stable. No better, but no worse. Stable is good enough for me until the next scan which I'm sure will show some regression. The reason? My neutrophil level didn't drop as far as usual after the three weeks on Ibrance and I've been able to start a new cycle after only one week, instead of two as has been the case since I started on it. In fact, my neutrophil count after one week was the highest I've had, even after two weeks off it, which means more treatment can be delivered and that's why I'm delighted.
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Mae~I agree.... these boards have been here a long time and I have never heard anything being invaded personally! Pictures can not really be tagged and pulled up online unless you have a tag comment that will come up with it.
I tried several times yesterday to research my screen name and honestly Nada came up. I then used my real name and all the info sites came up. For find a person and etc. they had name and family members listed and previous addresses I've lived. I feel a lot More secure with my screen name then with my real name for sure! Photos get buried in these postings. And there are many many threads and categories.
I once received a PM from someone who said they were a young high school student doing research for school and wanted to ask me some questions about my illness, if i would allow. I did some minor research and noticed that that person had only two posts and had just opened their screen-name/account. I notified the mods and they squashed it immediately, because they don't allow solicitation or bothersome pm's you don't approve of! You can also block people that seem to be shady! I just filter everyone I speak to personally through PM! I have never had a problem. I believe if you use the internet for anything your foot print is there. I love being here and honestly. What could anyone gain from ladies fighting cancer. I already know there is a possibility that my medical doctors already use my medical information as comparison basis. So I honestly don't know what else anything would be invaded honestly. Just my thoughts.
My daughter is in full wedding planning mode I can't believe that I will get to see her get married. I'm Kinda in shock, they wanted to do it before I wasn't able to Be involved and heaven forbid not able to walk. They wanted to surprise me and it did. She's growing up. She is going to be the most magnificent bride .
Just like Nans amazing daughter looked! I honestly didn't see this coming. My Daughter said she could never go through getting married without her mother by her side. My heart then proceeded to explode! One of them marry ill get to see. My son turned 21 yesterday! He has a headache today! So close to having the flu, hope it was worth it. Hangovers are the worst. I have no desire to even drink anything at all. Not just because of interactions. Just because I don't like it!
Leapfrog~ awesome stable scans!🤗🤗🤗🤗🤗🤗🎈🎈🤗 yay for you that's awesome. Two good sets of scans, lets keep it up! So Nice to see you posting. Missed your sweet words! ❣️
Minnie~ I love your family photos. I don't really think with as many people, who use the internet will even know who you are, no less where you live and details. Remove where your from, if you feel concerned. But nothing turned up for me when I searched my screen name. The only time I have ever been brought to this site was if I googled something asked in the form of a question, related to cancer. The search engine took the words used and searched for similar text and sites....that was the only time I was brought here! By using that feature of google, for my questions. Brought me here to you guys. Which I wouldn't change. I hope you have a good day darling , i would like some pancakes! Yum
Much love ~M~
Waving hello to everyone. Runor...good prognosis.... bigbhome....Grannax....the Lynne's.....NO1.......MJH...Gracie...blueshine..Chelle my girl....thinking of you all!
Keetmom~ schools can be brutal with that. That makes me so mad, that you would have to worry about that on top of how nigh you have to deal with Emma and how sick she is. How can they not understand. They are educators for goodness sakes! Sending love and hugs to you all. Stay healthy please. No flu for you!!!
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BIgbhome, I am so sorry to hear about your husband and how shocking to you that you heard it! I read your post about him wanting to pack it all up and take off with the horses and my heart overflowed with warmth. He is giving you such a gift! We get wrapped up in money thinking that it is going to keep us safe from all the random badness in life. We are wrong. It does not. If you can find a way to be comfortable letting go and riding off into the sunset, who knows, maybe side saddle, then do it. Enjoy the man who is willing to lay it all on the line for you. I also hope that you have some good news, a simple fix to your tummy troubles. You've had too much dumped on your plate recently.
About the privacy of posts. Anything you post in a thread can be found with a Google search. It was in fact those very Google searches that lead me to threads that made me aware this site even existed! Before that I never knew there was a breastcancer.org. I never had a reason to even think about breast cancer sites, cause breast cancer happens to other people, as we all know. I am grateful that over and over I was Googled to this forum. It has been invaluable to me! When I post I do not expect privacy. While I consider myself prudent and selective about what I put out there I am not overly private. I am willing to talk about anything to anyone who wants to know and I do not worry about my name coming up in searches.
However, it was learning that my private messages are not private, that mods can look at them anytime they want, THAT pissed me off! If you don't offer private messages, then don't pretend that you do. Call them what they are, possibly snooped in messages or side chatting that only mods can see. But to call them private when they are not? That is false advertising and misleading. I feel more vulnerable knowing that the Powers can look in anytime they want. THAT is an invasion of my privacy on something that is clearly promoted as PRIVATE (but isn't).
Micmel, so relieved that you are sounding better. You had me worried there, girl! And now you get to be motherzilla of the bride? Oh dear. I'm sure we all look forward to reading about your adventures.
Hope everyone finds peace and better days. I saw pussy willows the other day, it reminds me that spring always comes!
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Leapfrog, YAY! WOOHOO! I have said it many times, and I will repeat it now - stable is one of my favorite words. It must be a relief that your neurophils are rebounding more quickly now. That is one less thing you need to worry about. I hope you have many more years on leterozole and Ibrance. It is amazing to think of the impact that the development of Ibrance has had on so many of us. Just a few years ago it wasn't available at all, and now it is considered a standard treatment and has opened the door to similar drugs. Let's hope and pray that more impactful drugs are released soon and that they will lead to longer lives and even a cure. I should say cures, not cure, because I believe that the answers are complex and varied, just like MBC.
Lynne, I hope you are starting to recover from your hell week. I admire your attitude. You seem to be able to look past the difficult times of your treatment and see forward to the good times that follow and matter so much. Your family sounds amazing. You are lucky to have everyone so close. Are you all getting together for Sunday's big game?
Micmel, A WEDDING? HOW WONDERFUL! I have all sons, no daughters, so I have never been the mother of the bride. I sometimes think that I really missed out since I couldn't go shopping for gowns with a daughter. On the other hand, I do remember how exciting it was to shop with my sister for her gown. She lived and Canada, and I went up there to shop with her. My mother wasn't there......hmmm, there must have been more to the story. Maybe my mother went there for a follow-up shopping trip. Well, at least my Mom helped me shop for mine. She was very helpful, but looking back, I think she knew which dress I loved and wouldn't have spoiled it by telling me if she didn't really like it. I have wonderful memories of those days with my mother even though it was 100 years ago. I also remember the big smile on my Dad's face as well as the tears welling up in his eyes as he walked me down the aisle. These next 8 months will create wonderful memories for you, your daughter, and the rest of the family. Enjoy every moment. Oh, so much to do. I am excited just thinking of it.
Bigbhome, What a frightening experience you had with your dh's accident. I am glad that you were able to talk to him before you saw his truck. How is he feeling? Did he experience soreness, aches, and pains the next day? How are you doing? As far as pulling up stakes and traveling is concerned, there are no right or wrong choices. None of us can see into the future nor can we go back for a do-over. We just make the choices, follow through on them, and enjoy the path we travel. If you decide to continue on your current path, you will find happiness and perhaps a bit of heartache once in a while. If you decide to go in a different direction, you will find a different happiness and different heartache. That's what life is all about. I have a feeling, just from what you post, that no matter what you and your DH decide to do, you will focus on the joys and stomp on those disappointing moments.
Like others here, I think that I found these discussion boards through Google, so I know that posts are out there. I never thought of the fact that the mods could read my PMs, but I hope they have better things to do than that. None of my messages have been worth reading by anyone other than their intended recipients. I would hope that the mods wouldn't share those messages or any personal information they contain with "outsiders". Frankly, it seems that nothing in this world is truly safe from outside observers these days. I guess we have to be careful.
Oh no, I always seem to go on and on and post very long messages I will stop for now.
Hugs and prayers from, Lynne
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Runor~your ears must have been burning! I was just thinking I hadn't seen you. I am happy you're here! thanks for the kind words for me being sick, it's been a rough start to the year! Especially for some of my MBC sisters. I would take the flu ten times over as long as bigbhome DH is ok!! That is just terrifying. What we all face sometimes as regular women cannot be explained when MBC comes into play and something happens. It's a mind FUC*! I hope you are feeling well and everything is ok with you my friend! Adore you! ~M~
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Bighome-enough is enough. You must be beseeching the heavens for some relief, you must still be stunned about your husbands' awful car accident, AND feeling at the end of your wits with the GI issues. I'm confident that your doctor can help you get relief. I'm here in your corner wanting the best.
Leapfrog-STABLE!!!! One thousand hallelujahs!
Lynne(Man)- hoping you are feeling well enough to attend your friends' husbands' memorial service. Your scan results just have to show stability after all you've been through with this flipping chemo.
Micmel- so happy for you! Your daughters' wedding! Yay! How lovely!
I am one of those people who does not worry about privacy(other than things like credit cards compromised). I figure everything that happens with me has happened to someone before. I would never want anyone on this site to be in jeopardy with insurance of any kind, though.
shout out to all my MBC sisters-hope things are copasetic with all of you. best, MJH
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Lynne(50's)~ I love your posts. The longer they are, the more heart felt and real you become to us. I love the fact that you know us all so well, and we know you! I am excited about the wedding. I immediately equate that to exhaustion and pressure to look a certain way. So I am going to force myself To remember it's not about me. My precious daughter is a woman now! It's a special time. She's so beautiful and kind. I want it to be perfect! For her! Thanks for the kind wishes. Hugs ~M~
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MJH~ Thank you very much I am thrilled. I honestly didn't see this coming so soon. I knew he gave her a ring at Christmas. But I really expected a longer engagement! Not that I mind. But I just want her to be happy. I do feel so joyful to be able to be apart of it! I am fighting everyday this awful beast, for these times. Hope you're doing good. And all is well with your world and your precious daughter! Much love ~M~
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Congratulations Leapfrog. Fantastic news xx
Micmel, mother of,the bride will be wonderful. Enjoy every minute, and stress over dresses, shoes, flowers etc etc. Perfect thing to take your mind off worries.
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Thanks everyone for your congratulations. I love the way we all understand how good it is to be stable. It's great to be able to just say the words and we all know what it means to us to know that this disease is being controlled.
50sgirl....I agree with you when you say how lucky we are to have these new drugs but, you know, in Australia, Ibrance only became available in May last year which is disgusting when we know that the US and 50 other countries made it available a few years ago. Even now it's so expensive it's out of reach for everyday working people. I'm just so fortunate that I was given a place on a trial that Pfizer is holding, trying to persuade the Australian government to put it on the PBS (Pharmaceutical Benefit Scheme) so that all women who need it can afford it. The reason the government agency gave for not putting it up as a recognised PBS drug is because Letrozole is keeping women alive quite well and that the first trial ~ I think they were referring to the Paloma 1 trial? ~ showed that it only gave women who were given the actual drug ten months longer than those in the control group. I read that and was so angry because Ibrance hasn't been in use long enough to know exactly how much longer we can count on and because that trial was stopped because the women in the control group were falling so far behind the Ibrance group. Further, even if it is only ten months, for us with MBC ten months is long enough to hope that another therapy will be made available. Ten months is A LONG TIME when you're looking at your mortality. I'd better get off my soapbox but I just can't believe how shortsighted they are and the callousness of it. Women are dying while the government makes excuses because the reality is that it will cost $10 million in the first year if they put it on the PBS and more each year after that. They're putting a price on women's lives.
Tanya....I felt really sad for you reading your post. I'm so sorry you're in that position and I hope you have lots more time to enjoy your life with your husband. I wish the same for all of us.
Micmel....look after yourself and enjoy the time between now and the wedding! How exciting!!
Bigbhome....I'm only just catching up with your news. What a fright you must have had. I have to go back and read some posts properly. I've only had time to skim today. I don't know how it is that I have so little time. I was talking to a friend who visited today and saying that cancer is almost a full time job, with making sure we take our drugs at the right time (I have a day sheet and write down each drug and the time I took it so I don't lose track), trying to keep well by careful hygiene ~ not that we didn't before but we have to be extra careful now to avoid infection ~ trying to eat a healthy diet when we don't really feel like eating at all, at least I don't. So many little things, not to mention the big things like appointments for scans, blood tests, oncology visits which all take up so much of our time and energy.
I'm not too worried about privacy. I don't reveal anything untoward!
Hugs to everyone
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Micmel, a wedding is SO exciting!!! What a milestone!!! Enjoy all of the planning and excitement!!!
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good morning ladies. I am thrilled. Came out of no where. But I am beyond happy that I am getting this chance. I never thought it would happen. It seems the mother is way more important in a daughter wedding, than the sons mother part in the sons wedding! Why I don't know, just seems that way I will cry the entire time. I would cry at The opening of a Kmart! Much love to all, thanks for the well wishes.
Bigbhome~ Hoping your husband is ok and you're slowly calming. I worry about you. I worry about your DH, a love like that Is one for the Love stories of this thread for sure! We have such loving people and couples here. Good women with good men...make us have a happy life!
Love you guys. Grannax hope you're ok! And your car money is in your hands.!
Leapfrog~ being busy isn't a bad thing. At all. It gives you less time to harp on the fact that you have cancer. Allows you to take charge and live. Medicine scheduling is also a full time thing, I had fallen behind on that. Because of this raging flu.i am slowly regaining my strength and I am still very tired. I went to bed a little later than i would like, sleep is like golden nuggets of time for me away from this cancer! Time to dream about who I once was. Glad you're stable ! So very glad!
Waving hello to MJH....Gracie.....my Chelle.....my Nan.....Lynwood.... I am so thrilled thank you. The dress part stresses me. How do you dress up one boob? 😞😥 my insecurities high on display. I have to keep remembering it's about her. My beautiful daughter!
Minnie~ hello beauty! How is Spain today? Woke up with a dusting of snow. It's cold. But DH is here so then it becomes warm and bright. Much love my friend.
I am sharing this picture of my dear daughter and my soon to be SIL. (Who really already is ). Love to all ~M~
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.....my sweet DD and Soon to be SIL!! 💗💗💞💞💜💜❣️❣️🤗🤗🕯🕯🍷🍷👰🤵🎩 💐0 -
Micmel- popping in to say congratulations on your daughters engagement! Such a wonderful time ahead for you. She is lovely
Enjoy
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Iwrite~Thank you so very much for the congrats. I can't believe this is even happening! I am so thrilled for them. I honestly never thought I would be able to see that happen upon my diagnosis. Here I am out two years, and being given this wonderful gift. Our family has had such health problems with my mother falling and now not able to walk. Or my brother and his major heart attack. This is just what the family needed. It's very kind to come and wish our family well. I appreciate it so much. Love seeing you here. Hope all is well with you and yours sweet woman. Hugs and a 🌹 for you! Much love ~M~
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micmel I can hear your excitement about your daughter getting married. So happy for you and her. Short engagements are good. My daughter had a very short one. Back in 2009 my DH was two years out from pancreatic cancer DX. We didn't know how much longer he had, so it seemed appropriate to have a short engagement and a small wedding. But, only 2 months, I almost fainted. Tami was 37 so not a young bride. It all worked out. We offended a few aunts, because it was so small, but it's history now and they have been happily married for almost 8 years. They have beautiful pictures, lots with Bob walking her down the isle. He died one year later.
But, I also remember it was a little overwhelming for me at first. I was just getting over a surgery that went horribly wrong, requiring over two weeks in the hospital and two months of IV antibiotics at home. Now, I'm supposed to plan a wedding? I wondered where the energy would come from. I can imagine, micmel, you might be wondering the same. It was a divide and conquer thing. Short shopping trips, etc. Also, some delegating. The pics of the reception are absolutely gorgeous, just what she wanted with my touch. I was over proud of the outcome.
You can do this, Micmel.💕🌻🌷🌸🌺💍💐💒
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I will get my car money next week. There were delays because Bob's name was still on the title, widow fail. 😱 But, it only took 3 forms and a notary to fix that mistake. At least I was able to find the title and the COD, the adjuster was good to sent me the rest of what I needed. So, it was Fed EXed yesterday.
I found out from my PCP that I'm anemic again. I've had a lot of trouble with that in the past. Summer of 2016, a few months before my DX of MBC my iron was seriously low. I had to have IV iron. Now, I look back and think it was the cancer that caused the anemia. I've been surprised that my iron has stayed normal all through my TX, until now. Also, it's time for a colonoscopy. UGH. The indignities we have to endure. So off to the GI doc I go. Too many docs. Grrr
My DD is going back for her first day of work today. She really likes her part time job and is glad she's finally able to go back. Her eye surgeries really help with her headaches. My son bought a house yesterday! It's a milestone for him and my DDIL. They worked 12 long years together so he could become a doctor. So, now they they have their big " doctor" house. It is so beautiful, not ostentatious, but high quality and big. Just what they have been dreaming of all those years they worked so hard. I'm so happy for them.😀
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micmel congratulations on your DD upcoming nuptials. She is beautiful - drop dead gorgeous!
Grannax I’m happy your car money is in the mail.
Bignhome I hope your Dh is ok. Such a horrible scare.
Leapfrog thank god for stable those words are like soothing beach waves to our ears.
MJH thanks for the shout out and I hope you are good today.
Shout out everyone 50’s girl Lynne, keetmom, Chelsea, and anyone I may have forgotten.
Had a rough two days some new pains but I went to PT anyway and the therapist asked if I was allowed to be there lol allowed. I enjoy it and I miss being active. I slept like a baby afterward from the afternoon until the morning. Of course had to change my pajamas from night sweats but I went back to sleep as soon as my head hit the pillow.
My ONC is changing me to 100 mg on Ibrance I can’t hack the fatigue. I have scans Friday and prayerfully I hope they are good bc I want to go down to 75mg as soon as I’m able.
Acupuncture tomorrow have a great weekend all.
I may remove some personal info as a precaution (tying my camel) but I think that so many have my info bc of all of the years in the medical system. I pray that God protects us all from any malicious misuse of our information.
Tanya
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Hi all, there is so much going on it's crazy! I went to the doctors yesterday, they did blood work and a urine test, a CT scan of my stomach and found nothing out of whack. I just can't believe this is happening! I told them that if they cannot get my quality of life more improved then I am done. I feel like I have been on a downhill slide physically and mentally for the last since since Thanksgiving. This can't keep going like this I'm afraid to eat I'm afraid to drink I'm afraid not to eat I'm afraid not to drink. That is no way to live.
DH went to the doctor finally and our lives are going to be forever changed by this accident. Just what we needed to hear but you know life goes on. We are working on getting his medical test done to figure out how good bad or indifferent his prognosis is going to be. He played tough and didn't want to worry me so I had no idea all this stuff was going on with him. Had a couple of big shocks this week not good! Then would I did take your advice and after today's conversation with Sil, we are turning it all over to her and we are no longer going to be able to be involved. To involved in their care. Unfortunately, a lot of things that DH was hoping to take care of for them has now been taken off of the table by the doctor.
I hope everyone has a wonderful pain-free, stomach issues free and happy weekend!
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Micmel, your daughter will be a beautiful bride and you will be a beautiful mother of the bride!
Spain is cold at the moment. There has been snow in our region, which is unusual to say the least. I'm starting to long for summer. Remind me I said that when it's too hot to sleep.
Best wishes to everyone. I'm seriously suffering scanxiety. Have myself convinced it's not good. All prayers welcome
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Minnie, I am praying for you , for good results and for less scanxiety. We will be thinking of you and are here for you. I am tired of winter, too. I keep asking my DH why we live in New England. The snow is pretty, but the cold goes right through me this year. Brrrr. I must be completely honest and tell you that I will be complaining about Summer's heat, too. I guess I just like to complain.
Bigbhome, Your posting has me worried. First you - are any additional tests planned? Are there any medication that you take that could be contributing to the way you feel? There has to be some explanation. Will you get a second opinion? Would your PCP be more likely to investigate non-cancer reasons for your symptoms? Sometimes MOs (and we mbc'ers) assume that everything is due to cancer, but it could be completely unrelated. It might be something that requires different blood tests or at the very least a different perspective. I am sure the stress in your life isn't helping. Now your DH - You said that your lives will be forever changed by the accident. My heart stopped when I read that, it sounds so dire and scary. I know that you don't want to reveal info here, but I do hope that things improve. I hope you don't mind, but I have said a special prayer for both of you.
Hugs and prayers from, Lynne
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Grannax, I am glad you will soon have the money from your car. Have you started looking for a replacement? I can't say that I ever enjoyed car shopping. Is you anemia severe? Many of our treatments as well as the cancer itself can be hard on our blood counts. I get excited when I see mine inch up for a month or two only to have them head back down again. I see no rhyme nor reason to what they do. Oh and a colonoscopy on top of everything else. Aren't you the lucky one. I have had to reschedule mine 4 times due to low neutrophils or low platelets. My name is well-known at my GI's office.
Tanya, I hope you see a marked improvement in your energy level at 100 mg. I was only on 125 mg for one cycle because my neutrophils dropped to 400. I was very tired during that first cycle, but I have felt much better since switching to 100. I hope you find relief from your pain. I am adding prayers for good scan rests for you.
Hugs and prayers, Lynne
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Lynne(50s), Thank you for the special prayers! I'm not sure which of us needs it more at this point myself or my DH.
I saw my palliative care doctor yesterday, when she called me to give me the results that everything looked like they would expect it to for a person with my condition. I asked her what are we going to do to find out what is going on. She said they think that it will resolve itself and I will be feeling better and better everyday. Well that's not happening. I'm having pain again today, I'm having nausea, I'm so bloated it's disgusting. So I really can't answer any questions for you because they couldn't really answer any questions for me. A lot of tests a lot of time, I say it was a waste doctor says well at least we're ruling things out. True, but it would be nice if they figured out what it was.
As each new test is performed, and after each new doctor visit related to the previous tests, it turns out this has significantly impacted DHS life. I think we are both reeling from the information that we are receiving. The only good news that we have gotten
. please pray everyone DH just called and we have to go to the hospital emergency room immediately.
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Bigbhome, I am praying for both of you. (((Hugs)))
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bigbhome~ you can bet those thoughts of strength and love are coming your and DH's way. Take a deep breath, you're a team you and him. Hold his hand and just having you near him will help tremendously, I am hoping your stomach issues are like my stomach issues, part of this flu going on. I also feel bloated nauseous and eating is a very tricky thing. I wasn't feeling this way the entire time of the flu and has really only been a week now with this. I still feel funky and still just not ok. It's all in my stomach and a little dizziness. I am hoping it's the crazy flu. That's gotta be it! I am think of you. Hugs to you precious woman and your family. 😞 ~M~
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Minnie~ we all understand the scanxiety that we go through. It really a mean thing to have to put someone through. I am sending thoughts of strength and good results. Yes I am! Cancer is just such an awful thing to deal with. It makes living life, that is already so hard to navigate, that much harder. It's time for a cure. That is really really needed. Thinking of you Minnie! ~M~
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