My Husband, My Life, My Love, My Family, My Cancer

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  • blueshine
    blueshine Member Posts: 247

    MicMel, I can see you are feeling better, because you saund more like yourself . I like to read your emotional posts . I hope the leftovers from the flu are gone and you'll get more energy to prepare the big happy day.

    Hugs and love for all


  • micmel
    micmel Member Posts: 10,057

    MJH~I am really touched that she chose to wear it. To me it makes sense. It's a magnificent bridal gown and the best part is it's free. After what she wants done with the sleeves, maybe $100 tops i would say. But the one she had picked out i was worried her legs would be cold and her arms this way she is covered. She does look amazing in it. If she would keep the sleeves the way they are and just have the seamstress take it in around the front and back for her, the sleeves wouldn't be so puffy. But if she wants to cut them, I am in full support mode. Whatever she wants, I'm going to try to get for her. She's going to be paying for some things as well. I've already paid for the wedding invitations and the deposit for the venue and I am within one pressing of another button to spend another $150 on the Center pieces and some decorations. Maybe even $200 by the time it's all added up. But I want it to be prefect for her. DJ's are really expensive. That is my next feat. So far I had a price quote of $895. Ouch! That's too much. May as well bend over, some pricing is just plain ridiculous! Linens for the tables, linens for the chairs. Napkins. Plates and silver ware. Beer and wine only. Wedding cake.another $300.00 Which she is buying, catering. Which she has also arranged and picked everything she wants. That's another $320. The three helpers for the reception to bartend and clean up and take away the dishes and serve the food to them at the buffet. Another $320.00 it's freaky. How much things cost. Much love to all ~M~

  • micmel
    micmel Member Posts: 10,057

    Blueshine~I feel like I am still trying to recover fully from the flu. It's hard. I am already tired enough. Thank you so much for asking! 🤗 I have been ordering up a storm, for the wedding, it's amazing how the things we like have been surprisingly the same. It's been very joyful so far. I am so proud of the woman I am seeing come out in her. It's going to be a wonderful family event. I am thrilled to be able to plan with her. This will be memory making moments everyday! Hope all iswell with you and your family. Stay healthy. No flu ! Yuck ! Much love ~M~

  • Leapfrog
    Leapfrog Member Posts: 406

    Tanya.....thanks for reposting Pat's article. I meant to copy it to my laptop yesterday and forgot so I've done that now so that I can share it with anyone who's interested. I'll be thinking of you during the weeks leading up to and after the scan.

    Minnie and Lynne...still thinking of you as you wait.

    Hi Micmel......Hug

    I can report that I had lunch out today! Very, very casual but it was "out"....you know that place that we're all forgetting exists? My husband has a business colleague from the UK over here in Perth (Australia) this week and they sprang a surprise on me and came and collected me to go for a bite to eat with them in between their commitments. It was just SO lovely meeting someone new and interesting and hearing about the places in England that I'm interested in, having watched a lot of British TV documentaries on the countryside. As a second generation Australian with my roots only just planted in Australia, I find the English countryside calls to me. Perhaps an ancestor's DNA is strongly represented but, regardless of why, it was fascinating to chat with someone from a different place. AND the big thing was I felt WELL!! I've felt very poorly for the last two weeks so I think I'm now into my "good" spell during the Ibrance cycle, thank goodness, which means ten days when I can enjoy a slightly better quality of life. I'm learning to grab onto these good times and make the most of them.


  • micmel
    micmel Member Posts: 10,057

    Bliss~ Passports?? You mentioned going with DD to get passports? Where are you going my friend ? I'm lucky if I get to the local market. Lol I love to live vicariously through the ladies here, they do a lot of traveling. Mae~ is our on site reporter....Bigbhome loving you from the miles. Missing your beautiful ways.minnie just got back from an amazing trip to Ireland, our Lynne (Man) back from Hawaii. Just fantastic. Women here. !!! I went to Maryland for my DSS eagle court of honor, does that count? Lol

    Leapfrog~ way to go on lunch! Way to go that DH wanted to share that moment with you! His friend from the UK which I also find interesting., he chose to spend with you! Awesome ! Sounds like a lovely afternoon. I am also so glad you're feeling so well. I went to bed late again last night. Since this wedding was announced, all I can do is search for things we need for the day! The poor UPS man will be having one stop shop place to deliver all these package stuff to my house! So far I think ive ordered 26 things. this week alone. I want to make a trip to Michael's crafts and Joanne fabrics to check it the flower petals. But it's snowing and I don't like snow, or going out into it. Who knows maybe I will later.she chose the chair accents and table colors. I am thrilled with her choice. Have a great day be safe. Love you ladies. ~M~

    Chelle....🤗🤗🤗🤗🤗🌹🌹🌹💜💜💜💜☺️

  • Grannax2
    Grannax2 Member Posts: 2,387

    micmel. I love your DD choice of venue. Will the wedding and reception be there? It seems like young people these days do think outside the box. How perfect to wear your dress at that venue. I'll pray for beautiful weather and for your energy to be better than ever that special day. I think you said it's in May.

    February is treating me better than January did, so far. My insurance check is in the bank, so maybe my DD will go car shopping with me this week.

    I got to have some much-needed time with my grandchildren on Monday and Tuesday. I also got to see my DS new house. It's beautiful, perfect for them. They will move in March. My DD started back to work and it's going well.

    I don't see my MO until March 11. I still have a few questions about F1 test but think I understand it better than I did at first. It's a hard read, then you have to put what it says in perspective. MBC is multi talented and does not follow the rule, creates new pathways and alternative ways to feed itself. Mind-boggling!

    After being off my TX when I had the flu, I am now feeling the effects of being back on it. But, I've been able to do what I've needed to do. Next goal, make a wise choice in buying a car.

  • micmel
    micmel Member Posts: 10,057

    Grannax~ had a long post all ready and then it is gone! Arrrgghh I don’t like that!!I wanted to thank you for the kind words about my DD's venue for her wedding. I am having so much fun planning with her , seeing her excitement and sharing everyday has been such a wonderful memory I have been banking. I am thrilled. So glad your car money has been received. I'm so sorry that happened to you, everyday is another challenge we face with something or other. I hope your family is doing well. I want nothing but a great 2018 for us all. Including scans. And or the word cure Perhaps.

    I heard from Bigbhome today, she's still investigating her stomach issues. Her DH is doing as well as can be expected after something so traumatic. I told her We loved and miss her and want everything to be ok! 💜💜💜❣️❣️ Love you friend. Much love ~M~

  • micmel
    micmel Member Posts: 10,057

    She is not getting the table cloth in the photo but we will be doing the chairs this way. I love the burgundy color with the white, it will really POP, I am having so much fun. I did get to Michael's crafts. We are all good on the centerpieces, I have everything I'll need for us to make them together. She works fulltime, so on her Days off and on the days I feel half decent we can work on getting everything together. I don't want anythin hanging over our heads. Here is the chair color scheme she chose! I love it!! image....Hugs to all ~M~

  • tanya_djamila
    tanya_djamila Member Posts: 1,541

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    MIcmel I love the color scheme. All this wedding planning is keeping you busy, excited and happy. It's wonderful I feel it through the computer!!!

    Yesterday I went for a walk after physical therapy. Did I mention I've been off Ibrance for 10 days due to changing dosage amounts. I'm feeling a little strength in this tired body lol. My walk pictures above.




    Minnie, Blueshine, Grannax, Leapfrog, Lynwood, MJH, Big B Home, Anyone I forgot have a wonderful day.

  • Lynne
    Lynne Member Posts: 368

    Micmel-Beautiful venue! How wonderful that she will be wearing your gown and veil! I'm sure the wedding will be amazing! Yes it was a great game! I love it when they are close. Those darn Pats always try to get it down in those last few minutes. This time, it didn't go their way. I'm glad your Eagles finally won a Super Bowl though.

    Bighome-Please let us know how you are doing! Worried about you!

    Minnie-Enjoy your Rugby (and I hope you enjoyed your steaks too!)! I've never seen a game. I saw a hurling game though when we were in Ireland, that was interesting.

    Had my every 3 month scans on Mon (extra 2 days of diarrhea from the barium I have to drink). The reports look mostly good. I'll find out on Fri what the plan is. Most of the results were good. I do have one new nodule in my pleura, and many tiny ones in one lung. Also my fractured vertebra T4, is now 60% instead of 30% loss of height. We'll see what she says...

    We so far have 4 inches of snow, from the 6-10 they said we would get. In a lull right now. It's suppose to last until midnight, not sure if we will get anymore though. Hopefully, not. I'm good! The mountains can get it for the skiers, snowboarders,and snowmobiles, leave the southern part of the state alone! Headphones

    Hope everyone is having a good week!

    Lynne






  • Lynne
    Lynne Member Posts: 368

    Well I see I missed some posts after I posted.

    Micmel-beautiful colors. Glad to hear Bighome is ok.

    Tanya-Great pics!

    Leapfrog-Glad you got to get out of the house! That's my goal when I'm feeling well. I went out to lunch with Mom today, right as the snow storm was starting. We only went a couple of miles away, thankfully. The snow was coming down an inch an hour. I stay home most days though. Pretty boring.

    Grannax-Glad you got to see your grandkids! Mine bring me such joy, everytime I see them!


    I think I'm all caught up now! LOL

    Lynne


  • Minnie31
    Minnie31 Member Posts: 494

    Leapfrog, what a lovely surprise. Glad you got to talk about something else. Change can be great for,us. Like Micmel, all,the wedding planning will help you too. Love the colour of those chairs too. When we have other things to think about, it's a good thing, don't you think? Tanya, that's what you see when out walking? Holy sh.....t!!! Never see anything like that here. Grannax, glad your February is better than January. Glad we have some news of bigbhome, sending my best wishes to her and DH. DH and I have had a night away tonight, a gift from our daughters for my 60th. Timed nicely between treatments, and only 10 minutes drive from home. I love to,travel, and this was travel without the waiting in airports, or packing for a big trip, but we both felt like it was a holiday!! Nice meal in a restaurant we had never been before, breakfast in the morning too, and 10 minutes drive home. DH is snoring after polishing off most of the wine! Here is the view out to the Mediterranean. Love to all, have a good Wednesday ximage

  • Minnie31
    Minnie31 Member Posts: 494

    Lynne, glad your report is looking good. Know what you mean about the diahorea. Good luck for Friday. Hurling is a fast and furious game!! Take care x

  • micmel
    micmel Member Posts: 10,057

    Lynne (Man) hello sweetheart. I was so happy to see your name here. I am glad your results are looking stable. That deserves a serious high five! All we for to hear that word stable! It was a tremendously great game. I am beyond done biting off my nails watching it lol. It was a wonderful thing to finally have the eagles win. Traveling in between treatments. You're amazing woman! How much snow did you finally end up with? We got rain and ice and slush, now everything is freezing outside so tomorrow will not be a rosy commute. Thanks for the wishes on my daughters wedding, been so much fun. I am just happy I am here To help her, we are realizing that her real father wont be very much help at all, maybe that is why this is happening now, because she needs me around to help and I am being given this wonderful chance I see this happen. Last party We three was for my DS graduation And it was so very much fun as well. I do enjoy being creative and planning! So much fun. Can't wait to see a centerpiece come together. Even though we have plenty of time. It's nice to know what needs to be done. Preparing early never can hurt!

    Tanya~ I can't believe that you see that when you walk. Such wild beauty, aren't you afraid ? I have never seen an alligator except in the Zoo. I don't know if I would be fast enough to run away. Good grief brave woman. You're something else. Thanks for sharing that with us. What a beautiful purple bright flower. I love it. I am noticing every single flower I see, while planning this wedding. I want her to have everything she wants. I know that when the time comes and the we are at the reception, I will be able to look around and know I did everything I could for her, her entire life. and so did my DH. Her real father never did anything for them. Everything they have. They have gotten from he and I. I will look upon her and this with pride. I have given raising them my all and I adore them. My sweet DH and I have sacrificed what is going on 15 years of living in two houses separately during the weeks. So the kids could have their familiar lives and grown up not losing more than they had too. So that was the choice we have made. Now my DD and her DH will tskenover renting our house here and I will finally move with my DH. I will have to get a new team medically. Which is kinda freaky. I adore my palliative care doctor, she's amazing and she listens. A good combo!

    Minnie~ that is so beautiful, I am in awe of that beautiful scenery. Clear skies and lovely hillside view of the Mediterranean! Wow breath taking ! So it's Happy 60th birthday to you beautiful! 🎂🌹❣️💜🎈🎈🌈🍰🍭🍩🥂much love ~M~

  • Leapfrog
    Leapfrog Member Posts: 406

    Hi, I'm just dropping by to share this article with you and I'll be back later to check on you all.


    https://www.theguardian.com/science/2018/feb/07/cutting-asparagus-could-prevent-spread-of-breast-cancer-study-shows

  • micmel
    micmel Member Posts: 10,057

    Leapfrog~Thanks for sharing with us! I always like to read whatever I can in hopes to see something positive about the future medicines we may be able to benefit from, and or anything that can be done. In my min slower is knowledge! I am so glad you're having a good 10 spell. I am also on my off week as well. I hope you have another yummy lunch and enjoy walking a sweet nice walk. I've noticed that everything seems so much richer since diagnosis, the colors are brighter and wind crisper And I feel It more, the feeling of freedom has left me, instead I've become more aware of my surroundings and the beauty I didn't see quite the same anymore!. I guess others feel that way? Have a good day ladies.

    I have been doing so much shopping. My goodness it's tricky. Expensive things will choke you. Ugh!! I have 32 orders out from amazon. And etc. other places. We are trying to keep things reasonable. Renting real fishes costs .55 a plate. We need like 100 for food and cake and etc. I can get silver paper plates for the appetizers. So I chose this after the brides go ahead! Ill attach next. They look magnificent. And I wanted everything to match. Thanks for letting me bend your ear ladies about this wedding. But honestly it's just what I needed. I am busy with planning. It helps me keep occupied, I think after this is done I'm going to look into volunteering someplace. I need a small something to do for like two hours every other day or something. Just something ! Much love ~M~

  • micmel
    micmel Member Posts: 10,057

    imageThese are the plates I chose. They are beautiful, not real but really are heavy and feel like it. Perfect for the wedding ! So exciting ! Much love ~M~

  • MJHJAN1014
    MJHJAN1014 Member Posts: 622

    Tanya-LOVE your photos! I am a nature freak! My sister lives in the Florida panhandle and I enjoy seeing all of the critters and birds there.I hope the walk left you refreshed.

    Minnie- Oh, I can hardly stand it! Spain is among my favorite countries. my last visit was 3 days in Barcelona and 11 days up the coast in a rental house up in hills overlooking the Costa Brava. Stunning!

    Leapfrog- I saw that article. I love asparagus, too. Seems that asparagine is in so many foods that are good for you. it's only been proven in lab mice, so who knows? What does everyone think?

    Micmel- the burgundy is such a beautiful, rich color! I love the way you are putting this lovely wedding together. Our oldest is a wedding planner. Maine is a huge destination for summer weddings with our striking coast and pretty farmland. Some of the weddings she does are in the hundreds of thousands of dollars range! For one day or weekend? No thanks! Popular here are receptions in refinished old barns, and also large tents near the water. I can just see what a magical wedding this will be with the sweet venue and all of the love going into the planning! Relieved that you heard from Bighome.

    Grannax-how is the car shopping coming along?

    Lynne(man) -Some storm, huh? I'm liking your scan report, except for that flipping vertebra. Does that cause you pain?

    Sending my best to each of you-MJH


  • micmel
    micmel Member Posts: 10,057

    MJH~ Thank you so much for the sweet words. I honestly hope it turns out wonderful... I have been having so much fun helping her giving my advice, listening to her wonderful thoughts and ideas. She lights up and is full of happiness and life. I almost wish it was next month. I'll have to have scans in May. Tomorrow's blood work and XGeva shot. So that will bring it out three months, since last scan and last bloodwork.

    Putting aside the awful flu....I am feeling pretty good! I feel I had To stay on ibrance I would. Just to remain stable and in remission! I want to feel this good at the wedding as I do now. But planning it sure is a lot of fun. For sure! Expensive but worth it. The deliveries of decorations and items are starting to arrive. Truth be told, I'd like to tear through the boxes the second they arrive. But I'll have to restrain myself. It's her wedding. She deserves to b the one opening them all. So I'll await patiently. The centerpieces are going to be a lot of fun to make. Still have to figure out the bridal shower stuff. I know I have all summer also, and spring but when you get paid monthly. You start realizing that's not very much time at all. So I want to have everything we need done and organized! I don't want things to be crazy! Hope all is well with you! I have never been to Maine, I would really love to explore the coast!! Pictures I have seen are lovely. And the fall. Wow! Have a great pain free day! Much love ~M~

  • GracieM2007
    GracieM2007 Member Posts: 1,255

    Having such a hard day today. I have no idea whatsoever why I am fighting this. What have I got to look forward too? Chemo the rest of my life....with all of the se's....and worrying about even being around my grandkids for fear of getting sick....what a life. I have become a shut in. I hate this.

  • micmel
    micmel Member Posts: 10,057

    Gracie~ honey.. I remember the first few month on ibrance were very hard. Your body takes time, to adjust. After the first few month it leveled out for me. I have been on ibrance for 15 cycles and getting the flu was the only time I actually got knocked down sick. Maybe the sniffles here and there but honestly, not terribly sick at all. If you’re around your grandkids just wash your hands a lot and don’t be terribly face to face if they are sick. My kids work at a bank and money is dirty. The fatigue will take getting used to. Don’t shut yourself in at all. Go live your life. If you should have issues. Maybe they would consider adjusting the doseage. Just don’t do that to yourself. Washing hands is key! You’re fighting bcuse youre loved, and because you love. I know it’s hard. I just take little rests or naps if need be. Don’t stop living, especially if it is working for you!! Love you my friend. ~M~
  • Lynne
    Lynne Member Posts: 368

    Minnie-Beautiful picture! It sounds like you had a nice evening out.

    MJH-I am in some pain with that vertebra, but I'm always in pain. It's worse at night, or when I stand or walk too long. I've just gotten used to being in pain I guess. We got about 5 inches here, then rain (that turned to ice, it's all sparkly here today) and another couple of inches on top of it. Hubby wants to go up to Loon this weekend, so he can ski, and I can just hang and read a book. He hasn't gone skiing yet this year, and bought new skis last fall. He usually skis with his brother, who is 4 years older than him (58), but his brother has been too busy. I wish I still skied, but I gave that up about 10 years ago. I stuck to the beginner trails anyhow (even though I started skiing at 16). I had 7 years in the middle where I was either preggo or had a baby at home, so I never got good at it. He started at 7, and goes on the expert trails. It will be nice to get away.

    Gracie-Big hugs! I know what you mean about feeling like a shut in. I too am home most of the time. I too am afraid of the grandkids giving me the flu or some sickness. I too wonder why I am fighting (I'm sure we all have our moments), but then I remember all of the people who would be missing me if I weren't here. I was hoping my scan showed new tumors or growth so I could get off this crappy chemo and move on to the next one. I'm sick of being out of commision for a week and a half (sometimes more). I get to feel good for a week and half (although I now have neuropathy in my fingers, toes, hands and feet all the time now). I'm going to keep chugging along, as long as I can tolerate it. If it gets to be too much with the se's, I'll just stop, even if it's the last treatment they have to offer. Quality over quantity! Maybe you can ask them to move on to the next treatment if you are feeling that bad. I'm so sorry!

    Micmel-Yes it is nice to hear all the news about the plans for the wedding! Such an exciting time for all of you! Something to take our minds off of our baloney!

    Bloodwork and the oncologist tomorrow. I hope the white cells are in the normal range, probably not though (the past 3 times they've been low, but always come back up on chemo day the following week).

    Have a good weekend everyone!

    Lynne


  • Minnie31
    Minnie31 Member Posts: 494

    Gracie, I had a day like that last week. What is this all about? Just remember your family love you, that's why we carry on. I was feeling worried as to where I am leading, not wanting to be a burden. Had a good heart to heart with DH. Some more questions for my Oncologist next week too.

    Lynne, best wishes for Friday xx

    MJH, spain is so beautiful, so many places to see. Every day when I look out of my window, I am so,grateful for the beauty I see.

    Micmel, happy shopping/organising. Great to be busy honey xx

    Love to all others, keep well

  • micmel
    micmel Member Posts: 10,057

    Lynne(Man)~ I am sorry that you're always in pain. That does start to get to you after a while, I ended up napping, not intentionally, at 420 pm and woke up at 6:00pm. But I am already ready to go back to bed! I have to go and get my Shot and bloodwork tomorrow! It will get me outside. And out of the house. I am thankful to be able to focus on the wedding. Packages are starting to arrive, decorations,,, pieces of the centerpieces we are going to make. Her cake topper arrived today. A beautiful rhinestone, and it's just what she wanted. Her Mirrors and the cylinder vases for the tables/centerpieces. Some of the filler I purchased yesterday at Michael's and others are arriving in the mail starting what seems like daily! That's also exciting. Sorting through happiness is what I call it. just want to be ahead of the game and not To be be panicked as it gets closer.

    I wish her real father would have stepped up and offered to help her with things. He's such an ass. I'm sorry to say that, but honestly he really is. My DH has been in her life for fifteen years and she is 22. He's been the one constant along with me. Our relationship has shown them what real love is. That's why this cancer thing happening to my family is really sad. I am all my children have. Their real father lives in his mothers basement since the divorce (which I was more than fair with). He really doesn't and hasn't done well. I was the driving force behind him and everything he did. With my DH now I don't have to be another mother. I have an actual partner I can count on. Such a difference. But like you said nothing like a wedding to forget our bologna. I want you to feel a pain free sleep my friend. You deserve it.

    Has anyone heard from lynne(50's). Hope she's ok. Been since feb 3. Looks like we both have blood work tomorrow... I'll be thinking of you!! Strong woman. My neuropathy was horrible and that was after 9 abraxane and 4 red devil. I can't imagine how many you have had already. I just couldn't not walk!!! Wow at you!

    Minnie~ Spain is magnificent, I can't tell you how many beautiful things I've seen you show us. Keep it up. Absolutely lovely. I am certainly keeping busy, which means i am certainly spending money. Ugh!! Expense is crazy. Oh well I am enjoying. So that means it's worth it all. Feels like it is so far away. But I am not giving up on the planning. I want everything to be done. She's picky. So I have some challenges to find. Lol. Have a restful sleep. Much love to all ! ~M~

    Waving to.... bigbhome 💜

    Keetmom.. hope Emma is doing better with her headaches. And the dreaded cold !!Thinking of you!

    Lynne (50's)

    Runor

    Grannax

    Tanya

    MJH

    Chelle

    Nan

    Blueshine

    I write

    Mae.... where ya been girl. You ok darling ?

    Gracie💜

    Lynwood🤗

    Leapfrog

    Bliss......

    JFL

    be safe and sleep well. If I forgot anyone I'll remember!! Much love ~M~

  • MJHJAN1014
    MJHJAN1014 Member Posts: 622

    Gracie-sounds like you are really feeling depressed and hurting. Sending hugs and wish we could have tea. I have been battling a real lack of motivation these past few weeks and have had the thoughts you are describing. It's like a drone dropped a package on my doorstep, (signed, sealed, delivered) that says "You have a disease for which there is no cure. You will go through a series of treatments with increasingly challenging side effects. Your life will be significantly shortened." Sometimes the package is so tiny, I can't find it, and other times, it's like an elephant in the room. I tell myself, "there will be a time to die, but it is not today; when the time comes I will face it." I do not want this abominable disease to rob me of today.

    I had this realization today that you are on both Ibrance and fulvestrant. I was on Ibrance/letrozole. and now on just fulvestrant. No wonder you feel so wiped out! I have had a rough time with fatigue and aches/pains since starting the fulvestrant.

    Are you living by yourself? If so, i would think that would be challenging. Could your grandkids come to you when they don't have colds, etc?A nurse at the hospital I go to recommended a book to me. I have not read it, but she found it helpful. It is titled "The Power of Now" by Eckhart Tolle. maybe it would work for you.

    Anyway, you are not alone and you are not nuts for feeling this way. This is some rough sledding. love to you. MJH

  • MJHJAN1014
    MJHJAN1014 Member Posts: 622

    Gracie-sounds like you are really feeling depressed and hurting. Sending hugs and wish we could have tea. I have been battling a real lack of motivation these past few weeks and have had the thoughts you are describing. It's like a drone dropped a package on my doorstep, (signed, sealed, delivered) that says "You have a disease for which there is no cure. You will go through a series of treatments with increasingly challenging side effects. Your life will be significantly shortened." Sometimes the package is so tiny, I can't find it, and other times, it's like an elephant in the room. I tell myself, "there will be a time to die, but it is not today; when the time comes I will face it." I do not want this abominable disease to rob me of today.

    I had this realization today that you are on both Ibrance and fulvestrant. I was on Ibrance/letrozole. and now on just fulvestrant. No wonder you feel so wiped out! I have had a rough time with fatigue and aches/pains since starting the fulvestrant.

    Are you living by yourself? If so, i would think that would be challenging. Could your grandkids come to you when they don't have colds, etc?A nurse at the hospital I go to recommended a book to me. I have not read it, but she found it helpful. It is titled "The Power of Now" by Eckhart Tolle. maybe it would work for you.

    Anyway, you are not alone and you are not nuts for feeling this way. This is some rough sledding. love to you. MJH

  • micmel
    micmel Member Posts: 10,057

    today is blood work and XGeva shot. I just want to go back to sleep. It's the only place my mind and body rests together. When usually one or the other will play some games with me called name that pain? The problem is there is never a prize at the end of that show! I slept ok. Is just never enough. Never. I fed the dogs, you would think they have never eaten before. Wild pack of animals! Our rescue dog is getting old. And he tries so hard To keep up with The hound dog, but his back legs aren't doing too well! We know he's getting older, but we love him. Hope everyone is well today. Love you all ~M~

  • micmel
    micmel Member Posts: 10,057

    ok rescheduled my bloodwork and shot until Monday. Just need that extra weekend to continue to drop the rest of this flu after effects. I intend on sleeping all weekend! The nurses agreed with me, shesaid they have been seeing a lot of the flu.....sooo back to bed for this bonzo! ~M~

  • illimae
    illimae Member Posts: 5,739

    Ugh, lost post I guess, I don’t see it. Anyway, been busy with work and a follow up appt. for thyroiditis discovered during my initial staging. Levels have gotten more off target, maybe due to treatment, I’ll be starting thyroid meds next week, hopefully my only SE is weight loss ;)

    DH and I are heading to the cabin for a long weekend (9 hour drive). I’ll post some pics later.

    Wishing everyone warmth, wellness and good scans.

  • micmel
    micmel Member Posts: 10,057

    Mae ~ hi there beautiful! I really dislike losing a post, especially when it's usually a long one. Wow a 9 hour drive ???? My goodness I would hate that. Where the little bit of mets I have are at my spine and it hurts to sit too long. Laying is ok because it stretches it out. I hope you have a great time and please be safe on your travels! Can't wait to see the pics. I hope your side effects aren't too bad with any new medicines! I already take way too many pills a day. I just dropped my remote control for the television on my port. OUCH!!!!!! Good grief. Have a great time darling. Much love ~M~