My Husband, My Life, My Love, My Family, My Cancer
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Hello everyone! Finally getting to sit down and post! Had a busy weekend with my grandson and then dinner guests on Sunday. Yesterday I collapsed on the couch.
Micmel-Love the photos of all the packages arriving! Do you or your DD follow Pinterest? There are some amazing bouquets with burgundy flowers. Search for "burgundy and marsala bouquets". Unbelievable! I think Dahlias will be in bloom in September? Wow! Those linen prices are outrageous. Guess they charge so much-because they can. Isn't uncanny how easy it is for us to offer strength and comfort to those we love when they breakdown about our disease? It must have been so heart rending to watch DH experience that level of pain. I'm in hopes that it also offered some catharsis and relief for both of you. 50's girl has been posting on some other threads.
Minnie- best of luck with the cardiac imaging today and scan results tomorrow. So emotionally draining. Thinking of you.
Divine-sorry to hear of your sister. It catches us so off guard when an anchor in our lives becomes ill or incapacitated. I'm thinking of you and in hopes that your sister is on the mend.
Mae- what a fabulous cabin! Thanks for the great photos! When my sisters' DH was stationed in Abilene, we went to a park where you drive through and see African animals. It felt like the moon to me-such a different terrain. The giraffes put their heads right in the window and stuck out their purple tongues. Emus aggressive and my little nephew knew to become one with the floor mat!!
Gracie-think of you often. Is this your week off from Ibrance? I had weird pains sometimes during that week. and also at random; it usually simmered down on it's own. i took Ibuprofen/tylenol and used heating pad.
Keetmom-Ugh on the jaw neuropathy. Must be uncomfortable. BUT, yay on the F1 results! Another potential weapon against this damnable disease.Must feel great to have DD feeling well.
Blueshine-Hello! Enjoy your posts.
Tanya-Chicken soup for your Granddaughter? How absolutely perfect. I love my grandson so acutely! I know the drill on the hot flashes and sweats-such a royal pain in the backside...You and DH will have such a special time when he retires! So well deserved!
Bighome -worrying and hope you and DH are OK.
Grannax-the image of the Caddy that runor posted was whimsical and had me smiling. RE: your comment to car dealer, It's funny how we can have those moments of deadpan gallows humor! It does catch people unaware! But I consider it a win for me and it makes me laugh in a sneaky way when I remember it later. Soooo, I see that you did buy a Caddy! and what a beauty! Ooooh, you so deserve that smooth gangstah ride!!!
Lynne(Man) Nice weekend at Loon? I never learned to downhill ski, but took up X-country like a fiend in college. Many happy hours on trails in ME/NH/VT. I have not been since DX. Like you- I'll read! Hope your pain is controlled and tolerable just now.
Runor-you really did nail it with the Caddy image!
Sunflower-come to Maine in early October for an amazing foliage display. Return in winter and view a couple of our lighthouses in the snow, stay in the mountains in a cabin. Come in summer and eat lobster by the ocean. Then-GO HOME! We don't have much of spring and winter is waaay too long. There are downsides to the four seasons! Being a Maine native, I have adapted, but the long winters---UGH!
Hello to Lynnwood, 50's girl, JFL, Leapfrog and all other dear ones.
May the force be with you. MJH
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Wow!! I woke up around 1030 and this has been a busy place lol I love it! Where to begin ?!
Lynne(Man)~It was a difficult thing to witness, it broke my heart in millions of pieces. I love him more than myself. My kids are very strong as well. I have to give them credit. Mama raised some strong children. I see it happening daily before my eyes. I couldn’t ask for more, considering its alll that ever really mattered to me in life, was them all. I am certain, the way your DH loves you... it’s not pity, it’s fear of the unknown Of possibly loosing his love. You’re beautiful and don’t forget it ever. Are you a genius in secret? What a great idea about purchasing some or at least pricing the linens. Smarty pants!!!! I can’t even imagine being on taxotere for that long. The strength that takes!!! Wow ! Amazing woman ❣️❣️❣️❣️
Much love ~M~
I’ll answer others after doctors visit ! Medicine time !! Hugs
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Whoppee Grannax! You IS gangsta! Rock the pink boa!
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Love that caddy!,
Leapfrog, I can understand your problem. My walking is becoming difficult and I worry about not being able to do stairs. We have already purchased a little buggy, but after being active all my life, it's a constant worry. I'm glad you have messenger to keep in touch with your son. I use it a lot too to keep in touch with friends all over the world. Stay strong x
Happy Valentine's Day one and all. Xx
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MJH~ Hi there darling! So good to see you! I am really relieved to hear that 50's is doing ok and posting around town. I just worry like a mother hen, if I don't see people I grow fond of here. the packages aren't stopping anytime soon. Lol I have had about five packages average a day since we started. It's expensive. I am glad I only have one daughter. Or I don't know what I would do. I had blood work done yesterday. All the levels they watch for kidney/liver/ calcium etc... had nothing out of range at all. My tumor markers thank goodness fell to 22. I am thrilled that I have a baseline again to get me throughout three more months, before the dreadful scanxiety. I am scanning every six months these days. Which I am not complaining about at all. I'll take it. Happy Valentine's Day to you. Sweet woman. My daughter is crazy with Pinterest. Lol she shows me things everyday. Yesterday it was the mamosa Bubbly board. Lol
Much love ~M~
Minnie hello lovely. I am sorry you’re experiencing pain, I know how active you are do you have a pain management team. Like palliative care doc ? Mine is fabulous. They help me tremendously! Hugs to you ~M~
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MJH ~Love the creativity! Especially since we are doing a lot of the decorations ourselves. That's so sweet. I'm smiling big!! The snow man!!! Too cute. You're having a blast. I love it. ~M~ ⛄️ ⛄️💜 Happy Valentine's Day to you!
Divine ~ thinking of you and your sister everyday honey. Sending hugs and thoughts of caring your way. Much love ! ~M~
Runor~ you always make me laugh. Each and everyday. Thank you so much.
Grannax~ I would love a spin in the new rod. Do I get a boa too? Lol. It's an awesome car! Yahoo!
Bigbhome~ miss you lots
Nan~ 💜
Chelle~ I'll talk to you soon I'm sure! But love you anyway!
Leapfrog~ wherever you're most comfortable is what matters. I already have a bed in my Living room. It raises and lowers which I need because of my lymphedema and my spine met. The other mattress is too hard for me I do not do well at all no sleep for me! Hope you're getting out and walking like you enjoy so much.!
Tanya~ Hello beautiful! Hugs to grandkids, watch them gators!
Keetmom~ thinking of you hope your jaw is better sweetheart! Hugs for The girls
Chicago~ sending hugs of support my friend!
JFL~ hope all is well with you!
Sunflower ~where are you? Doing ok I hope?
Lynne(50's) so glad you're around. I was worried.
Gracie ~ waving hello my sweet girl. Hope you're doing better adjusting to ibrance. Hang in there I got good blood tumor markers again today. It works. Really it does. Thinking of you precious!
Much love ~M~
Omg I almost just lost this entire post wow. Ugh!
Mae????you alright my friend? How was the cabin... how is it coming along? Pics? Hope you had a good time?
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i just checked 50’s girl Lynne’s profile and it says the last time she posted was February 2, 2018 I’m officially worried! I hope everything’s ok with her and her husband. Hoping Bigbhome, is ok also. Haven’t seen her either. Hoping she’s feeling better! Geeze I want our peeps back! I care for you all. Much love 😥 ~M~
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grannax, congrats on the caddy, such a fun and powerful beast to drive. I drove my aunts 79 caddy coupe de ville for a while in high school, I called it the “rad cad”, lol
Got home super late and slept in. Doing well though and we really enjoyed our time away.
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Mae~ I can picture you in your sun glasses in a caddy for sure.. they sure are safe!!!! So glad youre back safely, and that you had a good time. Hope the cabin is coming along well! Hope you get some rest. Good to see you! Much love ~M~
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Hi everyone, (Micmel, sorry if I made you worry.) I have been off the boards for a while. I just needed to take a little break. I am determined not to let cancer control my life, and sometimes things on the boards can become overwhelming. At any rate, I am fine, and so is my DH. Lots of things going on in my family, so we have been busy with that. I also decided to do a deep top-to-bottom cleaning of my house. That led to painting the family room, redecorating guest room, rearranging things in kitchen cabinets and pantry, and on and on. You know how it is when things get started. Oh, and then I helped shovel the snow last week, too. Somehow it is my week for Ibrance break already, and Monday will be time for MO appt, Faslodex shots, and blood tests again. Where did the time go? I suspect that my platelets are low because I have bruises on my hands and arms, but that is par for the course.
I have a lot to catch up on. You have all had so much going on. I will check in tomorrow for a longer post. Right now I have to pull my grandson away from the tv once Shaun White finishes his last run on the half pipe. (My grandson spent the afternoon and evening with us and is spending the night here. He will leave for school after breakfast tomorrow. We thoroughly enjoy having him here, and loved the fact that he asked his mom if he could spend the time with us. He is a very sweet 13 year old.) oh good, White won the gold.
Have a good night.
Hugs and prayers to all, Lynne
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Lynne(50's)~ Yay! I am just so relieved to hear you're doing ok as well and your DH! I completely understand the need for breaks for sure and you're correct cancer can not run your life. That is something I think we all can agree on! It is my natural way to worry about those I grow to care about. I just wanted to make sure that everything was well. Sounds like you were a busy bee with cleaning and just shoveling snow ?? What??? Well that's something else, you go! So very glad to see you're name here. Relieved all is well, have fun with the grandson. So sweet he's spending the night. Memories in the making! So great to see young kids liking the Olympics. That's awesome. Goodnight and I am so glad to see you! ❣️❣️😉 ~M~
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omg I woke up today feeling great. Made my coffee and sat down for a morning tv show. Took a sip of my coffee and realized the milk was bad. Splat all over me, disgusting! Gag! So then I checked the fridge. Donezo! Beat! Game over, it was a good fridge it was. Took good care of us for 22 years and will be sorely missed. Now the punch line.... horn the heck am I going to pull $700 out of my rear end for another one. I have been planning a wedding and need that money!!! Wow. When it rains it pours. But I am holding onto my good tumor marker numbers. My wbc and rbc. Is a little low, but nothing too drastic! I am happy the ibrance is working. Not happy my fridge took a dump, the year I have to plan a wedding!! Ugh! The things everyone has to put up with Sometime. Have a good day beauties. Much love ~M~
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I wanted to share a special thing I purchased for my daughter. She hasn’t seen it yet and I bought it because if she wants real flowers, she will NOT want to throw hat bouquet at all. What I would like to do, is have her carry what I’ve bought for her and throw a small bouquet at the reception! This is what I got for her. I love love it. I’m obsessed with it. Lol. Let me know what you all think please !? It is her choice in the end!! ~M~ I’ll post it in a second !
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.....this is what I meant. I think it's magnificent and elegant and she can save it for her daughter if she chooses and can keep her bouquet instead of it dying. I remember mine was dying and it kept falling all over the place, petals drooping, it was lovely, but they died. So I think this is a better more affordable option for her because now she doesn't need flowers for herself. Just a few arrangements for the outer wood trim on the sides to pizzaz it up a little. ~M~ Saves money too because I bought it lol 0 -
good morning everyone! I wanted to let you know how much all of your support has meant to me. DH and I have a lot going on in our lives right now and I am taking a break from all things cancer. I'm going to stop the ibrance for a while and I'm hoping to be able to stop the letrozole to. My MO is not going to be happy but he's going to have to live with it. It's my body my life and I'm tired. The next few weeks the H and I will be going back and forth to m i l to stay with them until we get them moved into the assisted living facility we found for them. Between DHS accident, the issues with m i l and the issues with ibrance and Cancer Treatments I find I just need some relief from something. I also think the cancer has been defining me for almost 6 years now, and I think just for a few months I'm just not going to be defined by cancer. I'm going to enjoy what time I can enjoy. I'm going to take care of DH as he goes through one possibly two surgeries. Hopefully, after all of his treatments and surgeries and physical therapy, we can spend time together as a couple doing something that we love.
I will be praying every day for all of you just like I always do. I may read the thread occasionally but I really just want to stay away from cancer for a while. It has not been a good winter for me, sounds like it has not been a good winter for many of us, but it has affected me to the point where I have actually contemplating the end. Something's got to give. I think with my new mindset, I'm going to make it through all this. I know everyone thinks that the accident and dealing with my mil is probably taking on too much but honestly it is keeping me from wallowing in depression and despair and so I am appreciating the distraction.
Please don't worry about me. I am doing well! I have followed all of your posts and I have loved seeing the different pictures everyone has posted and all of the Loving Thoughts From everyone. Granex, I'm so excited you bought the Cadillac! You rock that Cadillac! Every time you get in it you should have on a pretty hat be all made up and look like a star that you are!
Micmel, I love how wonderful you sound talking about your DS is wedding! It sounds like the perfect distraction that you need it also. Enjoy every moment of everything to do with the wedding! There's so much planning and so much to do you feel like you're your run ragged but when the actual day arrives you need to just soak it all in because it goes so fast.
Nan, you remain close to my heart always in my thoughts and prayers!
Hugs and prayers everyone, spring is almost here so there's a lot to be thankful for!
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Grannax, love your caddy!!! You will look splendid in that jewel!!
Micmel, I have been trying to think about what to say to you about your DH. I know when I went through cancer the first time and Tom was alive it was really hard on him. He was a lot like your husband, he was absolutely my rock, but like your husband also he had his moments. He didn’t talk about it much, but I know that afterwards after things had calmed down, he told me there were moments when he was feeling very scared. It’s hard knowing that the person that you rely on for almost everything is going through the same thing you’re going through. Will be saying many prayers for you and your husband, as you go through this walk together. I know how much you love him, and I know he must love you just as much, or you wouldn’t be so happy with him. Big hugs sending you much love!
Mae, irs good to see you!
Bigbhome, i’ll be thinking about you and about your husband, I can’t imagine trying to take care of yourself and someone else while going through this. Tom has been gone five years, and I’m walking this road alone, however if I were in your shoes, and Tom needed me, I would take the back burner, and he would come first. Such a huge sign of your love for him. I wish you only the best in the next few months as you take some time off, and will be keeping you in my prayers.
Lynne(man), I’m doing a little better taking one day at a time. Not ever the happy person I used to be, and I find it hard to recognize any joy in my life anymore. But I know it must be there somewhere, or I wouldn’t be fighting. Thank you for your concern sending you big hugs!!
So I had my visit with my oncologist yesterday and got the results of all of my blood work up. All of my accounts are way down, and my tumor markers continue to rise. Because of the extreme pain I’ve been having in my neck for the last week he’s going to do an MRI in a couple weeks. He’s concerned because things should be getting better and instead they’re getting worse. I’m hoping and praying it’s just flare , and doesn’t mean the Ibrance is failing me.
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Gracie~I was in Terrible pain for months in the beginning of ibrance. I used lidocaine patches and it worked wonderfully until ibrance had a chance to work. Usually it's at least 3 months into it. That's when it really started to work for me. I think it would be too soon to take you off of the medicine. Maybe delay a start to get your counts back up some. They do that a lot. I just did it because of the flu. I start round 16 this week. My tumor markers were 22 yesterday. The ibrance does work!
I think Bigbhome is on round 27, she is due her break for sure. I adore you precious woman and respect and admire you're being the anchor for your DH during this time he needs you. We would expect nothing less of you becauseYou're a wonderful woman and we will be waiting here for you. I think of you everyday. I'll be sending love and strength across the miles.
much love to all. ~M~
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my results this morning show all stable, the lesions in the hip, pelvis area are stable, the liver lesion is very small, bloods usual, always have anaemia, heart is ok. Treatment given, then go next week for bone shot. I should be dancing, but after sitting in treatment room for hours, I just want toput my pjs on and watch tv. However I may just have a glass of wine.
Love to all, will catch up on posts tomorrow, have been a bit self obsessed last few days x
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Minnie~ That's wonderful!!! I am so happy to hear stability! I am thrilled.....you should do whatever you feel you want to do! I am happy dancing for you! Hugs hugs hugs ~M~ much love! Of course cancer means you have to take care of yourself. And it makes complete sense to be self absorbed, it's hard not too! Happy happy for you!
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Awww Bigbhome I'm gonna miss you.😢 caring for your DH during his recovery is absolutely top priority. And it's showing your love for him to help with his parents. I'm sure its a relief to him to know you will be by his side, Alzheimer's is such a horrible disease. Whatever surgeries he's having I pray for a good outcome for him. I'm sure you have good doctors that you trust. Tell him he has lots of ladies praying for him.
Your doc will just have to deal with your decision. Surely, at this stage, a few months won't make a difference in your outcome, but it would make a difference if you stayed on TX in your ability to care for DH. Sounds like a wise decision to me. I hope your MO will " get it".
I always picture you on horseback, that used to be my most relaxing, happiest place on earth. I think it is for you, too. So, even if you don't get to ride much in the next few months, that's where you'll be in my mind. In your mind, you can picture me all dressed up in my Caddy. 👒💄👠👓👗👛
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Grannax~ Has anyone told you lately how adorable and kind you are ? That was a very sweet and supportive post. Teared up my eyes. You’re a very special person riding in that caddy darling!
We do love you Bigbhome! Everyday you’ll be in my mind. We will be here waiting. In the meantime I hope you can feel the love for your DH And our precious you! Sending strength to your DH for his surgeries and to your MIL. Love you darling ~M~
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Thank you, Micmel. No one's told me that lately. But, that's one of the things I love about this thread. Being able to express encouragement (and receive it) to women going through similar things has always been important to me. It's just that in the world of MBC, you just can't find support on a local level. Going worldwide is new to me.
Thank you for creating it and being so diligent to respond to ALL of us.💞😘
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Grannax~ you're all the reason I did it. I wanted a safe place for anyone to have a place to vent laugh cry or anything or whatever you may need that day. I know things are hard and living like this is so hard. I wanted to build a circle of friends that can support each other whenever is needed. A place where you're always welcome and loved for who you are!!!!❣️❣️ And that is a very special friend.Thanks for your sweet words. 🤗☺️ I enjoy our thread also! Much love ~M~
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Thanks Micmel. Thanks too for all the support given in this thread. Means a lot to me. Night night from Spain. Holding hands across the world, our MBC group xxx
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Goodnight Minnie~ Sleep well and getsome good rest ! I was wondering did you go for the glass of wine? 🍷 I hope that you have sweet dreams and tomorrow is a sunny day to celebrate stable! 🤗☺️. Much love ~M~
I adore our MBC group. You're all very important to me. No one else understands. Everyone has times in their process with cancer when they feel the need to take a break because it is already overwhelming. But for me, I am different now, my days are different,my heart is wounded and I am sad. Knowing other people physically and mentally know how I may feel, I need that, it's vital for me to share my real feelings about how scared I am inside. Our place where anything goes, if it's important to you it's important to be let out! Hugs my sisters ~M
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I sometimes don't know why people do what they do.... unless their is mental illness that is undetected obviously. I cannot believe we have another shooting in a high school. It's just terrible. It's in Florida... so Tanya I'm waiting with baded breath to just make sure it was no where near you. I know we have another Florida as well, besides our precious Bigbhome. I realize people have been taking down information about where they are from so I am sending out thoughts of strength for the families,and people who were injured or unfortunately killed. It's all for nothing. Life is hard enough already without people going around shooting others. We need calm and strength, to get through everyday already. Tragedy is everywhere and I hate it. Much love ~M~
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I am overcome with grief at the horror that took place in Florida. There is no way to comprehend the reason for the tragedy because there is no explanation, no sense, no justification for the brutality of what happened. I am praying for the students, teachers, parents, families, and friends of those so deeply affected. I don't know how they will recover from this. I heard that his was the 18th shooting in US schools this year. 18!!!! 18???? It is only February. What has become of us? How can we stop this violence? We should not have to be afraid for our children when we send them to school. Our children should feel safe and relaxed. They should be learning math, science, art, etc., not practicing lockdown drills. My tears will not stop, yet I cannot even begin to imagine the inconsolable grief felt by those affected. I pray for their comfort and peace.
Hugs and prayers from, Lynne
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💔💔💔. So not fair. Those poor families. I share your thoughts Lynne. Makes me question the human heart and compassion. Or people not born with empathy or a conscience.. I am just sick as well. so unnecessary. We live in a crazy time. 18 shootings is disgusting. Be safe everyone. My heart goes out to those families and people injured or those who had to experience such horrible things. ~M~
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good morning sweet ladies. I am still so saddened by the high school shooting. School should be safe and productive. I told both my kids last night... think long and hard before you have children. This world seems to be falling apart. So distressing!
I went to bed with the slightest thought that my nails weren't fully dry. And guess what?? They weren't. Yuck. So now I have nails that have bed sheet marks in them. Aren't I so fashionable ? I should be rolling with Grannax bumping in her caddy! I found a boa. From my daughters old dress up kit and I am ready to go !!! Love you guys. Hugs all around ~M~
Thinking about Robin.....she's struggling. We need to send out bands of strength and caring thoughts. To our MBC sister. ❣️💜💕🤞 that the pain is taken care of for her!
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Hi everyone-no words on the Florida tragedy, my mind cannot comprehend the magnitude of this horrible event.
Minnie- yay! Love the good news!
Bighome-your words may not appear here for a while, but you will still be here with us.
Micmel-the bouquet is exquisite!
Love to each, MJH
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