My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Bighome-I'll be missing your posts. Sending prayers to you and your family. I don't blame you for taking a break from all things cancer. My oncologist offered me a break, just for a couple of weeks. I am due for chemo the day before we leave for Disney in April, so I told her that's when I'll take a break. Hopefully, I'll have more "get up and go" to chase those grandkids. It's our bodies, so we can do what we want. Your oncologist probably won't be happy, but I hope that he/she understands.
Minnie & Gracie-Congrats on good scan results. Gracie good luck with your MRI!
Grannax-Congrats on your Cadillac!
Micmel-Beautiful bouquet! I still have mine from our wedding 34 years ago. I didn't want to throw it. I think I would have had to drop kick it, it was so big (30 red roses with stephonitis, baby's breath, spider plant leaves, and ivy, in a cascade shape), the handle on the back actually broke (after the ceremony and most of the pictures, thankfully). I was going to have a mini version made to throw, but my mother talked me out of it, and said I would throw it. I didn't! That going to bed with your nails not dry, is something I would do. It made me laugh. I hope your sheets didn't get stained! Back to the drawing board for you!
MJH- We ended up not going to Loon for the weekend. He couldn't find a place to stay. He did go skiing at Sugarbush in VT with his 2 brothers and a couple of other guys. One of his brother's friends has a condo there. He drove up there at 5:30am on Sat (he stayed home and watched our grandson, so my daughter's and I could go to the movies Fri night), skied all day, stayed the night, then came home by noon on Sun, because it was pouring. It's a 3 hr ride from our house each way. IHe has Monday off this weekend, I asked him if we could getaway and stay at his parent's house ()they are in FL until May, it's on a small lake, and is very quiet up there, only an hour away and it's free!) for the weekend. He didn't give me an answer yet. I just need a change of scenery!
Lynne-I turned on the NBC to watch the Olympics yesterday afternoon, after I came home from lunch and shopping with Mom, and right away, Breaking News came on. I thought it would be the president, or his press secretary coming on. I was horrified when I saw kids running from their school yet again. All I could think of was Columbine and Sandy Hook again! When will this ever end? So senseless! I am praying for those poor families that lost a loved one, and the entire school and the community. It breaks my heart!
Well, it's suppose to be near 50 here today! I suppose I should shower and get outside, maybe scrape the little bit of ice we have left in our driveway (the section that never sees the sun). If the sun comes out (it just came out! YAY), I'm going to sit outside, with no head covering so I can tan/burn the top of my bald head, to match my face color, and read a book. I've been coughing the past couple of days, I hope that won't delay my chemo tomorrow! I'm taking Mucinex twice a day, and last night I took some Nyquil. I actually got 4 hrs sleep last night, Tues night I didn't sleep all night, but got 3hrs from 6-9am. I hope I get more tonight, darn steroids!!
Good luck everyone! Hugs and prayers!
Lynne
0 -
Micmel...love the bouquet!!! Oh my gosh who wouldn’t! That thing is gorgeous!!!!
Lynne (man) hope your break gives you much energy!!!! We are supposed to go to Disnetworld this summer with the grands!!! Hoping I can make it!!!
The shooting...gosh what can you say? Our world is so screwed up!!!! I worry about what my grandkids will be facing as they grow up. It certainly doesn’t resemble anything that we grew up in!! I don’t watch much news because now every bit of it will be fodder for the politicians and pundits ugh!!!!
Really worried Ibrance may not be doing the job!!!
0 -
MJH~ Hi there! Hope all is well with you and yours. My DH is up early this week so I keep thinking it’s the weekend! My days run togther. I thought the bouquet was exquisite myself. I hope she likes it. I wanted something special. I have to say if it was me. I would NOT be throwing that to someone. I would want to keep it. It wasn’t cheap either ! Hell I will just walk around with it lol have a good Thursday darling! ☺️
Lynne~ I can picture you drop kicking your bouquet, I laughed out loud when I read that and DH looked over at me and laughed. That happens a lot. You guys always keep me smiling. It is nice here today also. I went out for a little bit. It was nice to have to the fresh air. I think that is your intention as well today. I had a tough morning with constipation, I mean what a viscous thing. I ran out of murilax and thought I’d be ok one or two days. Well I was wrong. Next time I run out. I’ll be sprinting to the store witht my pink boa on to buy it. No matter what. Just sheet torture. Sorry if it’s TMI. But I think we have all been there at one point or another.
Ok it shower time, another thing I truly hate. Just another opportunity to see what I’ve become. It’s good to know that once a year I would fit in anywhere!! Halloween!!!! Lol much love to all ~M~
Yay again for Minnie’s good news
0 -
Gracie~ Hi there sweetheart! I know it's hard adjusting to the ibrance, it was me for me also, after three months it leveled out. Maybe you could receive a lower dose, maybe suggest that, it seems to be what most women do when they have counts that wont Cooperate. 100mg seems to milder. Just a thought for you. I also use lidocaine patches when I have the bone flare around my spine area. Works really well. You need a palliative care doctor!!! I love the bouquet also, I just hope my princess without a country will!!!! Relax and rest. I know I slept a lot the first few months. If your body needs the rest, there is a good reason! Much love ~M~
And btw. I have neck pain everyday since I went on ibrance. Sometimes shoulders also. It can be quite sore. I use the patches there also. It helps. Mine is chronic. Some days are worse than others.
0 -
got the bouquet today!! It's amazingly beautiful! I love love it. I hope she does also. Hugs to all. Have a great great day!?
.....and that's just one side !!! It's lovely. ~M~0 -
Our cancer center doesn’t have palliative care unless you are untreatable...in other words not until you are in hospice. I asked my onc and he said, no you aren’t at that point yet!!! Sheesh!!!
0 -
No hospice, they do work with those kinds of patients though and I am not there either so I agree completely. The hospital here has a pain care team for long term chronic patients. I have just been approved for the medical Marijuana program, I am going to try the creams and oils for pain in my spine that I have chronically. Plus I am hoping to take the edge off of my severe fatigue from the ibrance. So i am going to tour a dispensary Saturday for the opening. I will Be getting my card sometime next week. I hope it can make my need less for the stronger opiates. I hope it helps me!! You need apain management team my sweet and those patches. I am hoping against hope ibrance is working! Maybe just a lower dosage for you! Much love ~M~
0 -
Good afternoon, I only have a few minutes, and I have a lot to say, but I will just concentrate on a few points right now. Hopefully, I will have time to come back later this evening.
Micmel, it broke my heart to read your words to your children. I understand why you feel that way. It is scary sometimes. On the other hand, I hope that people will not be afraid to have families based on the terrible things that happen. I firmly believe that for every person who resorts to senseless violence (regardless of the reason), there of are hundreds of thousands, maybe millions, of good people who would never commits such an act. Somewhere out there people are working to improve things. It is hard work, but there are heroes everywhere. Maybe someday it will be your grandchild, or mine, who will step forward to do something amazing. Maybe they will teach tolerance and reconciliation and help to stop prejudice. Maybe they will discover a breakthrough to cure cancer. Maybe they will help solve the energy crisis or stop some type of pollution or resolve/reverse global warming. Maybe they will just be good people who will make the world a better place in very simple ways. Every good deed, every act of kindness, every positive step taken helps. I need to believe that things will get better.
Lynne, I saw a Mini today while I was out. I thought of you and sent you a virtual hello. I hope you get away for the long weekend. A change of scenery is always a good thing.
Gracie, What medication are you on along with Ibrance? I have been on Ibrance and Faslodex for about a year and a half now, and my counts are not dropping quite as low as the once were. I did drop to 100 mg after cycle one. I am surprised that palliative care is only offered to hospice patients there. It is available here to anyone with cancer or chronic illnesses. Are there any pain specialists in your area?Have you thought of getting a second opinion?
Big, we will miss you. I am praying for you and your DH.
Minnie, WOOHOO for your good news!
Gotta go.
Hugs and prayers from, Lynne
0 -
We all need a break from cancer land sometimes. Bigbhome, take care, we all wish you the best and please do check in once in a while
Stopped my Xgeva shots for a couple of months to get dental work done, turns out the painful spot is self inflicted, I’m brushing too hard, lol. Well, it wouldn’t be the first time I’ve been told to relax my efforts a bit but it is so nice to leave the dentist with just a cleaning, no root canal, no cavities!
0 -
Gracie~ that magic mouthwash is awful. It did nothing for me, but make my mouth feel like I just had novacaine to my entire mouth and I drooled all over myself. For five mins and then the pain came right back again. I use Biotine every four hours or more if needed. It helped my mouth better than that expensive magic mouth wash did. Everyone's different so try both if need be. It just worked better with biotine. Avoid acidic drinks and ketchup, tomatoes. Stuff spicy. Etc... that seemed to help. Also yogurt helped as well. Hugs my friend ~M~ Usually insurance doesn't cover the mouthwash. Mine didn't.
Lynne(50's) you made some really great points with some of the things you said. I have always dreamt of having Grand children, the world is becoming more and more evil and it's like evil is closing in on the US. So many things are such a mess. My DH works so hard and makes a great living. But everything is so expensive, everything. I don't know how anyone is ever meant to get ahead in this world. Even now, as an adult I struggle. Disability is not how i pictured my 40's that's for sure. I'll be 48 this year and every year seems like more be more violence, that really has the potential to harm the entire population. That is crazy. I just want them to think long and hard about what they have to offer and to make sure when they make thatdecision, to be prepared with money saved and one heck of plan!! I don't want them to ever struggle like I have. I realize you have grandchildren. And you definitely have a better prospective to that for me. I thank you. Much love ~M~
0 -
Mae ~ hi there. Glad to hear you got a clean bill of health for your dental work and no cavities is always a plus!! I love my sweets. I'll have to admit! I get my shots every three months now. Had mine Monday. It was ok. Claritin did it's job. Very few issues. Thank goodness. What's on the menu for Sunday?! Bachelor winter games has started. And celebrity big brother !! Great shows on now!
Much love ~M~
0 -
Sunday will be celebrity big brother and meatloaf with my usual crew and my bff who is flying in from Wisconsin for my 43rd birthday on Sunday and Monday (I was born in Korea and there’s a Day time change between here and there)
0 -
someone is having a birthday! That is awesome! So very very awesome. How interesting that you were born in Korea. Fascinating woman you are miss Mae! ❣️ Celebrity big brother. Love it. Ross cracks me up. Watching Shannon! Hugs to you! ~M~ I will wait until Sunday to wish you an offical birthday!
0 -
Lynne, no pain specialists either. I asked specifically for palliative care to help with pain and those types of problems. Our cancer center just doesn’t have it. Sucks, but not much I can do about it
0 -
I did go for that glass of wine last night and was so sleepy I was in bed by 930, Feel so sad today for all those poor families coping with losing someone after the school shooting. Why do people need guns? There is enough suffering in this world without them. I suppose it Is a complicated issue.
Tonight I have been out to celebrate Chinese New Year, so happy Chinese year of the Dog everyone!!
I am wondering if here in Spain they have Ibrance? Will ask questions, I see they have started a program in Canada, so maybe hasn't reached here yet, so possibly you ladies are very lucky to have it.
Night everyone, take care x
0 -
Thank you all for the good wishes too xx. I would like to name you all, but I have to keep scanning up and down the page on this damned iPad . Sorry
0 -
Gracie, Wow, that really does suck. Maybe there is a palliative care specialist in your area, someone your PCP can refer you to. Sorry to harp on this. I just wish I could help. Why are you worried that Ibrance isn't working? Because of pain? Are you taking Femara with the Ibrance? I hope that tests show that it is working well. I will keep you in my prayers.
Mae, Brushing too hard? That must be an issue that dentists and dental hygienist do not see often. I think they usually tell people to do a more thorough job.
Minnie, Navigating between pages on an iPad can be challenging. My iPad often has a mind of its own. I can be typing along, and when I look up, some of my words have been completely changed. Sometimes I watch as an entire sentence and its meaning has been transformed into gibberish. I see that the words were typed correctly but then change. Really, I am not crazy. If you ever see that one of my posts makes no sense, it could be because I didn't proof-read. Then again, maybe I have lost my mind.
I went out for breakfast with a friend this morning. She is one of the few friends who knows about my MBC dx. It was refreshing to know that we could still spend 2 1/2 hours chatting together without talking about cancer. (Both her parents died from cancer, so she understands what people go through.) She did ask how I was doing, but it was just in passing as if it were like any other normal subject.
Micmel, The bouquet is beautiful. I have never seen one like it before.
I saw a new Ibrance commercial. Instead of Julie, Alice is shown having her day of "new normal".
Good night everyone.
Hugs and prayers from, Lynne
0 -
Gracie~. I can help you with the pain patches, if you need help with them. The other ones that are close to the 5% lidocaine patches are called salon Pas. They are over the counter patches. Maybe give them a try. I give some of my patches to my 76 year old stepfather for his back because he still paints for a living and he loves them. He said they help a lot, your neck and spots could benefit from them. They also have prescription strength patches and the lidocaine ointment. I have them both. They are a dream. The ointment goes where the pads won't. It was how I made it through my lymphedema pain and flares and the bone pain during the three month wait for the ibrance to work. If I can help in ANYWAY. Call me! Much love friend ~M~
0 -
Minnie~ I hope they have ibrance in Spain!!! My palliative care doctor told me Monday that they have three women still going great on it. One woman has 45 months under her belt and the other one has 40 the third one is rounding up 35 months. I am starting round 16 on Sunday. I wish I didn't have to start again. Since my flu and the break I was advised to take to get better, I feel awesome. The fatigue is lifting and I have energy to do things . I have to find a mother of the bride dress. I have to try it on though, and I hate that! Glad you're celebrating and having fun! Hugs to you ~M~
0 -
Lynne ~(50's girl)~She loves the bouquet!!! She doesn't want to throw it. She wants that to be her bouquet!! Which is what I wanted. We will get a real, small real one to throw, but she teared up and said how special it was and hat she's never seen any bouquet like that ever at a wedding. Made me cry. Then we both were crying. It was a moment I'll never forget. Life can be so beautiful and so terrible at the same time. How can that be ?? Enjoy the rest of your evening! I am already tired ! Much love ~M~
0 -
Hi my dear sisters ! I haven't posted for a while and I just lost a very long post. Ooooo.. I couldn't stop writing, because I got my first results after diagnosis .They are good and even showed healing. It was a huge relief, after being emotionally paralyzed for a week. Now I can breathe until the next time.... I was surprised because I didn't finish even the 3 Rd cycle of I/F.
I am behind with the reading, but soon I will catch up. The tread is growing as a mushroom after rain.
Grannax, congratulations on your new car.
50s, happy to see you again.
MicMel , the bouquet is so beautiful !!! Enjoy every second of the time spending with your doughter! Love is healing and has amazing power! The bouquet brings memories about my wedding bouquet, that fell apart hours before the ceremony. Luckily my best friend saved the situation .
I have to apologize for my not so good English , especially when I express emotions. But I understand you guys perfectly.
Hugs and love for all
0 -
Blueshine~ Hi there! First off congrats on the good news on your results. That is huge!!!!!! Doing a happy dance for you. Good thing no one can see me. Lol that's fabulous and yes take that deep breath and celebrate and relax. We don't get to really do that much, the relax part of things.
The bouquet is ever prettier in person. She was truly touched and she loved it. I remembered my poor bouquet after the reception and through the pictures and everything's. It was in sad shape and I never got to save any of it. It was all limp and dying. Wasn't anything worth saving. Now she will be able have this forever, it was a touching moment. Now onto her jewelry and my dress! It's a job! But don't getting me wrong. I'm having a ball! Good to see you! We understand you just fine!!!!! Hugs to you my friend ~M~
0 -
Lynne, yes because if pain and my tumor markers continue to rise. So, it’s worrying.
Micmel, I never even thought about Salon Pas...I see the ads on tv, but it just never came to mind! Will definitely be looking for some, thanks for that suggestion
0 -
Gracie~ you’re welcome my darling. Ask your onc about the ointment. That helps a lot also. Penetrates the skin. Works wonders! Going to bed goodnight lovely ladies. Hugs to you Grace. ~M~
0 -
this is the jewelry that my daughter seemed to like, so I ordered it for her. I picked out one dress that I liked. But since diagnosis and my lack of ability to run like I used to... the weight is there. And I don't want to look like the holiday hamm! Ugh! Some stressful stuff. But I think the jewelry is also lovely !
Not too much. But elegant. Really goodnight this time lol ~M~0 -
Lovely jewellery Micmel, very pretty. I have no palliative care here in Spain. I have learned more from all you ladies on this site. You have given me questions to ask, which have helped too. I suppose with 2 languages also, it can cause problems, though I speak Spanish quite well. Oncologist s are so busy, you feel guilty for taking up too much time. I've never heard of Ibrance here, so don't know if it has been approved here yet? I could be Julie lol!!
I agree that it is good to go out and not talk about cancer, so I love that my friends can ask if all is ok, then we pass on to the usual women talk, putting the world right! However also,there if I need a moan
X
0 -
Minnie, I think ibrance is typically prescribed for HER- , not +, like we are. Perhaps that’s why your not familiar with it. Are you on Herceptin currently?
0 -
Minnie~ I agree with Mae, most likely you wouldn't have that because of the HER+ status. I don't really. Know too much about anything other than the lines that are open to my type. Didn’t even connect that her +, smarty pants Mae!! Ibrance works but it's rough. Makes you just insainly tired and the fatigue Is the train that won't stop. You're most likely Julie!! Because our Mae is!!!! from the sounds of how active you are. I can see you very well may be a Julie!!! Now I need to see this new commercial, wondering what sports this one will try? Cancer living is. SO hard! Much love.
I'm just waking up it's 1030. I'm so pathetic! Most people have been at work for hours and I am just exhausted 24 hours a day! Yuck yuck! I wish I was Julie active !!!
Have a great sleep Minnie! Hugs my friend ~M~
0 -
Mae ~Gm to you, hope you slept well and I know you have your meat loaf planned for Sunday and celebrity big brother I am enjoying. I am voting for Ross or Shannon. I like them both. That NBA Metta peace. Is he really even in the game ?? He doesn’t really understand it I dont think, watch him win. Lolololol. We always like the same shows. Have a good day my friend. ~M~ much love to you!
Chelle~ how were those cheesesteaks? Made me hungry. We miss you here !
Nan~ always keeping your seat warm. 💜❣️
Gm to everyone else. 💜💜
0 -
yes Mae, I'm on herceptin. I wondered about the + and -. Explains it, because they seem pretty up to date here. I do get tired, but I refuse to let it rule me, out and about as much as possible. We have beautiful weather today and tomorrow, rain forecast for Sunday, so that will be my duvet day x
0
