Lita57
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Hi Lita - thanks for sharing re sky pilots!
Agree about the boiled potatoes - I prefer a potato salad with some bite.
Sending a hello....and I live vicariously through you!
Oh, the places you have been! 🙂
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Lita, I hope your trip to to S Cali goes smoothly and that you find it enjoyable, through all of the struggles. I still recall a picture you posted a few years ago where you were posing in a silly, smiling manner in front of your space at the mausoleum - it was a funny picture in a twisted way that only we here would understand. I thought you were so tough then being able to confront the realities of all of this and attack them head on, with humor no less. You are so organized! I am equally amazed that you have continued to cook such amazing meals, despite fatigue, pain, vision problems amongst other issues. Your DH is certainly a lucky, well-fed man!
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Lita..we should have started a Lita Cookbook. I keep thinking if you can cook, why can't I?
Well, the answer is that I suck in the creative kitchen world. But my DH is awesome..so I am well fed!
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Is anybody else misplacing things and forgetting where they put them?
This happens to me ALL THE TIME NOW, and I'm sick of it. It happens within seconds after I laid my hands on it. Sometimes I'll find it again but most of the time I don't...sigh...important notes on scratch paper, phone numbers.
Guess I'll have to start taping stuff to the walls - so ANNOYING!!!
L
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I don't have cancer, my sister does. I misplace things all the time now too. I'm 52. Like that within seconds thing. I think it may be my anxiety expressing itself. It must be three times a day I go to the basement to get something and think...now why am I down here? And it's only a flight of steps.. not like I journeyed far away. Went to the grocery store and bought a cartload of stuff but forgot the bread I had gone there for. It's mildly concerning. But I'm saying it may be related to age, anxiety, normal forgetfulness.
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LIta:
I have been lurking on this thread for a few years now. I have to say you astound me and inspire me.
I wish you love, peace and joy always.
wallan
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Yes Lita! Agree with ChuckL...it's multifactorial. I find that's it's worse with worry and stress. I work full-time & beyond...and get really stressed with that in addition to thinking about cancer crap and wishing for more time / less fatigue to care for more stuff around the house....and take better care of me. Sometimes I feel like I'm living to work instead of working to live! ...and then my sweet Pepper dog died 6/01...and I feel lost and even more forgetful lately....
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Lita, agreeing with ChuckL and Chemokaze, that forgetfulness is related to age and normal forgetfulness, plus anxiety/worry and stress makes it worse. We need to be paying attention to where we put things to establish a memory of it. If we're worried about something else, we will easily forget where we left our keys or purse.
There are techniques to help. Try establishing routines, and have a logical place for everything. My keys go in my purse, and my purse goes on the doorknob. If I don't put those things away in their places, I will need to search the house for them. I put my phone in to charge next to where I am working at the time. Before I walk out the door, I say "Keys, phone, purse," otherwise, I may leave the house without something.
I hear you with paper notes. My downfall!! I've been trying to keep a small notebook for myself, instead of putting notes and numbers on scratch pieces. All those notes will be in one place. When I'm done with a note, I can rip it out of the book.
One time I lost my glasses, and no one could find them. I later figured out I had taken the glasses off while changing into my PJs, and had placed them on the bed, rather than the nightstand. When I climbed into bed, the glasses bounced onto the rug (didn't hear that), and under the bed.
My husband loses things every business trip he takes. I attribute that to the disruption of traveling, anxiety and being out of his routine.
Best wishes!
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Lita, I'm thinking about you...
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Thinking of you today Lita.
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This is the worst I've felt in 3 yrs. Recent PET said stable, but i call bullshiz on that. Dry heaving, horrible back pain, miserable stomach aches so I can't sleep, headaches, unbelievable weakness...i need help getting off the toilet and into bed. I don’t walk...i shuffle. Something's definitely going on. I see dr tomorrow.so miserablei can't eat and spend every waking minute in the la-z-boy with heat and massage going full blast
I think my chemo dosage is too high because of lymphedema wt gain, and that might be causingal my crappy se's.
Stay tuned...
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(((HUGS))) Lita.
I hope your doctor can adjust the chemo dose to lessen the se's.
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I can agree that changing the dose could offer some relief. Hope they can help you out soon.
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Hope you can talk with you team soon, Lita. Gotta get you feeling better
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Lita: I'm glad the pet scan said "stable" but I'm sorry that you are feeling so bad. I hope that your doc can find SOON the balance between "stable" and QOL. Hugs to you
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Lita- I hope you get relief soon and the MO has s plan to help. It sounds like
You need some relief from the Lymphedema. That extra weight can really make you feel awful as well. I remember all to well. Do you have a massage therapist who can help with the swelling? That really helped me.
I really hope you feel better soon
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Lita- you know your body better than anyone! Fingers crossed that you have some answers soon. LE sucks! I just have it in my right arm and breast. I imagine having it in your legs would be worse...legs do alot of work! Sending good vibes (and saying a prayer for comfort and QOL!
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also on your side rooting for you Lita. You definitely know your body. Get some rest now until you can get that team into action tomorrow. I hope you can sleep well. Thinking of you ...
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sending gentle hugs and I hope the mo can give you something for these awful SEs
Maire
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Sorry to hear this Lita. Pls wear a light clothing to protect your skin from breaking down due to edema.
My prayers for your comfort and safety,hope your MD will givr you something for relief of your symptoms.
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Big gentle hugs, Lita. Keep us posted and I hope chemo dose reduction gives you relief.
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Lita never mind the gentle hugs Sister I'm sending a big fat sloppy kiss on the cheek and a bear hug. I wish I were closer girl. You are one of my favourites and I love you from afar.
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Lita: I hope you are doing well. HUGS
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Lita, thinking of you today. Sending warmest and tightest hugs I can! And of course daily prayers.
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Lita57, remember when you were close to signing up for Hospice..was it 2 years ago? Treatment seemed to give you a reprieve and your postings showed us how you have managed to live, travel, cook, and help others with good advice here on BCO- especially when it comes tp dealing with brain mets.
I want your humor..geez..remember those Negan diapers? We all wanted that order info.
So I hate to see you lose your vision, your mobility, your spirit. But you continue to find a focus each day. I don't know where this incredible strength comes from. I guess you are just an incredible woman. Period.
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I think you can still get the Negan "Shittin' pants" at walkingdead.com
In the mean time, I'm hoping this little "vacation" from chemo does the trick.
L
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computer got hacked staying off for a while
L
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Lita we haven't see you for a few days. Love and peace to you, DH and DD. Safe passage, nikki
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All- PLEASE CHECK OUT THIS THREAD ASAP
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