Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Fisky,
Yea I too am taking it with Faslodex... Also with Lupron and Letrozole and Xgeva.
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Yes! Just finished my last session of radiation. Praise God, I made it. The last two or three were iffy.
The Dept of rad therapy give me an award praising me for the things I had to go through, but I stayed the course.
One the botton of this award was this which I wanted to share with all.
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What Cancer Cancer Cannot do
It cannot cripple love, it cannot shatter Hope. I cannot corrode faith. It cannot destroy peace, It cannot kill friendship. It cannot silence courage. It cannot invade the soul. It cannot steal eternal life. It cannot conquer the Spirit.
Author Unknown
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Snooky I’m so happy for you! You’ve made through the radiations...now you can enjoy the results. Less pain and no progression! Congratulations!
As as far as that encouraging poem they gave you, I only wish it was true...in my case the opposite has happened. Going in and out of hospitals, having no energy, and having to take horrible medications, was NOT what I had in mind when I retired at 49, and it does negatively affect everything in my life!
It’s only the positive stories from Joe Teppen's and Jane Mc Lelland that bring me hope. All the other fake news stories, bring about only that scene in Jaws, you know....when all those fishermen in small boats enthusiastically think they’re going to catch the big one...I find it impossible to forget what the Richard Dreyfus character told them...
I want to apologize in advance for offending people's hopes with my POV, but the only way to stay alive for me is to be realistic about my predicament.
I have a meeting with my MO tomorrow morning that I know I’m going to hate....I feel like the monkeys that get caught while holding on to the banana stuck in a tight mouthed jar....if only it could let go of the banana ....if only I could open my hand...I would be free...
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Woo hoo Snooky, glad you are done with all the worst of it, chemo and radiation. Your diagnosis is not that old, 2017? And you are on the FZ, right?
Frisky, you are pretty new to this as well. You are entitled to your POV. I encourage you to make sure keep a positive attitude, along with dealing with reality.. Thinking negatively, which I don't think you do) is not going to change anything. Not sure how old you are, Frisky is pretty young at 49 or early 50's. I know this sounds horrible, but having it only in your bones, like me, is a good thing that no organs are involved. And are you doing FZ?
I am 60, been dealing with cancer since 2008, stage IV since 2014. I'm happy to be here, but let me tell you, not a day has gone by, in the last 11 years, that cancer doesn't cross my mind more than once! There are people that have it worse than me, especially children, young diagnosed with stage IV right out of the gate, some even pregnant. There is a gal on here, she is 70 (Denny), she's been stage IV for 18 years!
A song that helps me, also makes me cry, is by Sugarland and called I'll stand back up.
The video.
Go ahead and take your best shot,
Let 'er rip, give it all you've got,
I'm laid out on the floor, but I've been here before,
I may stumble, yeah I might fall,
Only human aren't we all?
I might lose my way, but hear me when I say,I will stand back up,
You'll know just the moment when I've have enough,
Sometimes I'm afraid, and I don't feel that tough,
But I'll stand back up,I've been beaten up and bruised,
I've been kicked right off my shoes,
Been down on my knees more times than you'd believe,
When the darkness tries to get me,
There's a light that just won't let me,
It might take my pride, and my tears may fill my eyes,
But I'll stand back up,I've weathered all these storms,
But I just turn them into wind, so I can fly,
What don't kill you makes you stronger,
When I take my last breath,
That's when I'll just give up,So, go ahead to take your best shot,
Let 'er rip, give it all you've got,
You might win this round but you can't keep me down,'Cause I'll stand back up,
And you'll know just the moment when I've had enough,
Sometimes I'm afraid and I don't feel that tough,
But I'll stand back up,You'll know just the moment when I've had enough,
Sometimes I'm afraid and I don't feel that tough,
But I'll stand back up.0 -
Snooky: Congrats for finishing your rads! I wish you an easy recovery.
Frisky: I'm also one of that people who can not see anything positive about cancer. I'm still too angry with this disease! But I expect good news from your fenben experience, I really do. I can't probe in myself if fenben works, so you and the other ladies in this thread are my hope!
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Goldie, Yndorian thank for your perspective and uplifting song.
I'm actually 63 years old and the cancer did recently progress to my liver while taking xeloda. But a 2cm tumor takes a very long time to get that big, so I have to conclude that none of the medications taken for the last four years stopped progression. And we know that chemotherapy works for a few months at the time while weakening our ability to survive those same treatments. It's an horrendous catch 22 we face, which is exactly what scares people about a cancer diagnosis. On top, I have lost whatever little respect I had for doctors and medical institutions. I never trusted them, and never will. I'm amazed at their ineptitude and failures rates...their unearned egoic attitudes....OMG, how do they get away with all this quackery is beside me.
Knowing there are long term survivors like you, Danny, and some others is very encouraging, but also alarming since you still have to take the damn medications, and since the doctors don't really know what they are doing—they have no clue on why sometime the drugs work—no one can ever afford to feel safe....even Joe is preparing for the worst....thus the conundrum that's getting me down. No one is ever free and can go back to normal.
I'm going through a therapy transition right now, and as you all know, they are always psychologically tough....fear of the unknown and lack of trust, I guess...and why exchanging our experiences and courage on this site is so helpful and important..so thank you All for being here and bringing a welcomed and more balanced perspective to my dark feelings..
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Goldie, did you hear anything further about hepatitis v no hepatitis? Which liver enzymes were at 1000 / now at 500?
Frisky, your "frisky" sentiments about this disease are always welcome here.
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Frisky, I think the poem was written by a Christian. This person knows that it doesn't much matter what happens in this life. And God does put us through the fire just as any earthly father corrects his children. But you can't lose your soul or your salvation,
I've had a rough life and if I didn't have Jesus in it, I could not have survived. So that's where I'm at with the poem. And if GOD wants to take me home shortly well, by golly, I'm ready to go. Don't want to preach to anyone just trying to explain why that poem touched me heart.
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Changing the subject…..Our Gov. just signed a bill making marijuana use legal. It starts in JAN. But, the best thing about it, is if you need it for a medical condition, you're allowed to grow 5 plants.
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Snooky do share yourself, your beliefs and poems....I'm sorry if I gave you the wrong impression...that's what we are here for....so many other people might find beauty and relief in the sentiment expressed, Maybe even myself, if I weren't feeling so sad at having to see and hear the sentencing from my MO today....
Does anyone have good seeds to share? We could start our marijuana mini farm today? I love the idea!I would grow the plants around my healing altar....
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JFL, I thought I posted that. Anyways, all negative. My primary called me yesterday, him and his wife are friends of ours as well. He called to check on me and is still very worried about my liver enzymes. The ones that were high was ALT, they were over 1500 (normal is 5-46). That was the 17th, on the 21st, they had dropped to 500, which is still high. The AST on the 17th was 158 (normal is 10-41), I don't know what that one was on the 17th. Also my bilirubin, on the 17th was1.7 (normal is 0.2-1.3)
Anyways, he thinks it's the Xeloda. I said, I've been on this drug for 4 years. He says I know, but I think your liver is trying to kill you, or something like that, and encouraged me to stop taking it until I see my onc. Well, I'm really hoping it's the FZ. I finished Wednesday with week 5, I sure hope I'm not killing myself!!!!
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Goldie...another perspective on your liver situation could be that FenFen is killing cancer cells and the liver is struggling to eliminate them out of the system....at least that's what I hope it's happening....taking a break from xeloda would through a process of elimination point to the culprit.
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Thank you Frisky for what you wrote. And I do know what you're going through. My three sons went to the ONC appt. that first day to find out the necessity of it since I'd only been on two lines of TX. The love in my boys eyes convinced me to do it. Also, you might remember that I had several nodules on the outside of my breast that were growing together at a fast pace. I was worried about ulceration. Well, the first three months cleared that up. Praise God.
Ok about the marijuana issue....I think I gave you the wrong impression. The Governor of my State signed it into law. Don't know about the other states.
My heart goes with you today at your appt friend.
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Frisky, I believe you or Snooky, or maybe Y had mentioned before about the liver trying to get rid of cancer cells. Frisky, I missed that you had mentioned your onc appt. Good luck today and make sure to let us know ASAP, huggles from me.
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okay folks....listen to this story....it's a good one....
Today I brought a friend with me to the hospital for moral support. Her job was to ensure I wouldn't open my mouth and let everything that was brewing inside: anger, disappointment, sense of betrayal, distrust in the therapies etc etc spew out at my MO, whom, as coincidence would have it, had recently become the father of a baby boy, and would be of course in seventh heaven....
First I had a total check up and blood drawn on another floor, then I talked to a nurse in details about my experience with the trial medication, and then when was time for my MO to enter, a woman that I had never seen before walked in and gave me her business card...she was a social worker...
Of course I end up having a therapy session there and there....where I was able to be completely honest, and end up having my feelings validated. To make a long story short, by the end of our talk I felt free and grateful to her and to my MO that had been smart enough to use her as a shield and save the day for both of us. That spark of intuition and intelligence, made me appreciate him all over again.
By the time he walked in, I was able to honestly congratulate him about the new baby and to have a good talk about my future treatment.
First he agreed we needed an updated genetic profile of the cancer—they had botched using the cores from my biopsy which was my primary cause of my anger—which he will accomplish with a liquid biopsy, I will undergo a pet scan to ascertain my overall cancer load, and after some heart tests I will receive my first infusion of Doxil, which I chose based on JFL experience. MO said was an excellent choice, and the Italian nurse Alexa told me she would have no trouble sticking an appropriate vein without a port.
He has promised me to prescribe the least amount and to space the infusions every 4 weeks instead of three.
So, four hours later, after sharing a wonderful Indian lunch with my friend, I'm magically back to my old self again, free from all those negative feelings that were making me unhappy, and looking forward to using Doxil in combination with FenBen to get rid of this cancer, hopefully FOR EVER!!
So that's another frisky story for you!
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Frisky, I'm so glad that you have had such a personal angel today! And I bet that the PET that you will have to see your "general condition" will be better than you expect. Then the Doxil add to the fenb can finish the work. Good luck!
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goldie0827, I hope you don't mind me butting in, but I've been told something hepatitis-related by a chemotherapy pharmacist at the medical center where I was treated. I was asking about the elements of the Fenben protocol in relation to my current drugs. The pharmacist cautioned that they'd been seeing patients currently on chemo who were also taking high doses of tumeric coming down with autoimmune hepatitis. This is purely anecdotal and limited to one center (and who knows what else the patients were taking), but I thought you might want to know. (Please feel free to private message me if you have any questions.)
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JMouse I wonder if tumeric and curcumin behave differently in the body? I saw an integrative MO, and he put me on a high dose of curcumin during my chemo and continuing today. Curcumin is a derivative of tumeric .... but maybe there is something else in tumeric that is removed when curcumin is isolated? As far as I now the only 'issue' w curcumin is that it is a blood thinner...
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santabarbarian, that's a really good question! Your experience with your integrative MO sounds encouraging. (And an integrative MO sounds really helpful.
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Goldie, I may have missed your post about the results or just have a bad memory. Do your doctors know you are on fenben? 1500 and even 500 are very high for ALT. When one of my liver enzymes jumped over to 5 times the upper limit of normal (I recall it being in the high 100s or low 200s), I was forced to take a break from my last trial medication per the trial rules. The medication was causing all my enzymes to rise higher than they have ever been before. My body couldn't clear it sufficiently. If your doctors do not know, I think you may need to tell them about the fenben. Fenben has promise but it hasn't gone through safety testing in humans either alone or in combination with chemos and targeted therapies. The people trying it on this thread are essentially guinea pigs. Also, even if it is a case of fenben working and your liver being overtaxed due to too much tumor die-off too quickly, that can be a life-threatening issue and needs proper monitoring. I am concerned.
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Frisky--From Joe's page. Not sure if it would interest you
Not sure if this will help but I've tried various pancreatic enzymes to suppport my digestion and all raise my blood sugar, which I suspect is from the amylase. On trying to find a practitioner who can supply me enzymes they used to use on gonzalez program I found a place in hong kong that consults on the original kelly program who gonzalez learnt from. They provide the formulated enzymes
They aren't cheap, but I though I'd try a punt. My digestion has never been better. My stool colour now darker brown, smoother, less undigested food matter. If interested look up lifeclinic in hong kong. They can post to you.(hehe ..can't get the bold to turn off.)
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http://imidaho.net/nutritional-support-for-cancer-diagnosis/Snooky thank you for that info....Joe has been misinformed. Gonzales used his own blend of pancreatic enzymes that were imported from New Zealand were animals are treated humanely and they are not sick like ours are. I still have a canister left that I use as a digestive aid.
The problems with the pancreatic enzymes therapy are two fold: first the FDA forced the removal of the active ingredient in the enzymes that killed cancer cells, which drove William Kelley—the creator of the therapy—to madness and to close shop. He had cured, by then, thousands of terminal cancer patients. The other problem is that more than 200 pills have to be taken—on an empty stomach—every day, and two coffee enemas are done to cleanse the liver, which is a lot of pills for a therapy that once the FDA messed up, became dubious at best. I did it for 2 years while on Letrozole.
The original Gonzales formula can still be obtained from one the companies that Gonzales used before he had them manufactured privately. This is it. Gonzales never mentioned Hong Kong, but maybe over there, they are allowed to use the whole pig pancreas without FDA interference, which would make it effective.
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Frisky, sounds as if you found peace of mind? If so, I am so happy for you and that you had the Social Worker to speak with before the MO visit. Wishing you a long run with Doxil. I've never had, what are the SE's?
Mouse, if you read back you can see my posts. I do not take Turmeric or Curcumin, nor do I have hepatitis. Been dealing with cancer for 11 years. The FZ protocol with the dog de-wormer, is what is used on a 10 lb dog. I certainly weigh more than 10 lbs…..LOL!
Santa, Curcumin/Turmeric are supposedly highly estrogenetic. So perhaps that is why you were on a high dose, being ER+
Curcumin is a naturally occurring chemical compound that is found in the spice turmeric. The two words are sometimes used interchangeably, but the technical difference between the two is that turmeric is the yellowish powder used to flavor foods, while curcumin is a chemical contained within turmeric. In Indian and Asian cultures, turmeric and curcumin have a long history of use as a traditional herbal medicine, and Western medicine is beginning to study the potential of turmeric in treating diseases such as cancer and diabetes. As with any health supplement, consult your doctor before taking turmeric or curcumin supplements.
Also:
https://www.turmeric.com/womens-health/forms-of-estrogen
Curcumin has been shown to be toxic to cancer cells—both estrogen sensitive and hormonally non-sensitive types of breast cancer. The turmeric compound can also inhibit the cancer-causing effects of estrogenic pesticides.
But then on the other hand, you can read the total opposite. So what do we believe?
JFL, (saying with a smirk) no, my docs do not know. I did take a 2 week break from the FZ. Perhaps I should take another few weeks off? Yes, we are our own Guinea pigs for sure. I should be getting my milk thistle today, to help with the liver.
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Goldie glad you asked....Doxil SE can include severe heart problems, fatigue, nausea, diarrhea, high fever, compromised immune system....you know...the usual long list of benefits one can expect from poisoning one's self, BUT the infusions are spaced every three weeks and there's no hair loss...I'm going to try it because I have no other choice but picking my poison from among the usual menu of chemotherapy agents. My MO reassures me that my body can take it...but they never look at the damage...just the cancer markers.
Where are all those new and exciting promising cures people seem to be enthusiastically expecting on some of the other boards? Beats me!
It's baffling how many illusions people will create to protect themselves from madness. These same poisons have been used and been failing us for the past 100 years....yet we are expected to enthusiastically submit ourselves to the inevitable doom. If this is not madness, I don't know what is....so maybe volunteering into turning delusional and compliant could turn out to be a good thing for me
Of course, I'm not sure how much I'll be able to cope with the SE once I actually start....I have a week to talk myself out of viewing hospitals as deadly concentration camps....i got to stop watching Soylent Green...it won't be easy, but now I have the social worker I can call for help if my delusional state wanes. My hope is that FenBen comes to my rescue and conventional therapies don't destroy too much of what's still working in me. Hopefully, I'll be able to survive the occasional heart attack.
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Frisky......I think that I gave you the wrong impression. The little snip that I posted on digestive enzymes was not spoken by "joe". One of the group on his page stated it. There was a long discussion.
And yes, I read a couple of years ago about the sad story of Dr. Kelly and then G.
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Frisky!!!!!! Remember your body believes what your brain tells it. If you go into Doxil infusions thinking about all the awful SE you will have, then your body will make it come true for it. Think positive. Doxil is killing the cancer. You have enough knowledge to rebuild/or suffer no damage at all from the effects of Doxil. You know this is true. Positive Thinking. You're in Charge not the Cancer.
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Goldie: you have had adriamycin (AC + T is adriamycin, cytoxan and taxol) wich is the same drug that doxil, doxorrubicine. Doxil is a liposomal form of doxorrubicine. It suposse to be a better form.
Frisky: my worst SE from that drug was low wbc, but I didn't have any infection or fever, I have taken iodum during all the process (I still take it). Iodum is a miracle, effective against infections as antibiotics and a body nutrient at the same time.
My poor english language knodledge limits to me a lot and my phone don't have an automatically translate so I hope you all can forget my typping horrors LOL
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thank you all for your positive responses...I want to also be positive about the whole thing...
maybe, similarly to all the oltre medications I've been on, once I start I'll get over my worst fears and get used to it....and probably miss it, like with the capecitabine, when I'll have to move on...
If everything elsefails, I'll have a stiff drink before the infusion....kidding...
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goldie0827, I'm so sorry. I totally misremembered your situation. Thank you for pointing that out so nicely. My apologies.
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I just watched the most uplifting and beautiful film on Chopin's life and music..what an amazing genius....
last night a mediocre film on Steve Jobs....another one of my favorite people....
I don't feel so bad now about my situation....it's all part of the many unpredictable aspects of life...
Nel domani non c'è certezza....admonishes an old Italian proverb...in tomorrow there's no certainty....
the Buddha was right....we can only live fully in the moment....so May you all find joy and inner peace in what's in front of you, right here right now...amen!
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Frisky, I did miss both Xeloda and Doxil when I had to move on from them. Can't say that about the other drugs. Xeloda will be in my future again combined with another drug. I asked about combining it with another drug when it stopped working as I wanted to stay on it. My MO said no at the time but is now open for just about any treatment plan for me. I am officially off the grid now.
Yndorian, your English is excellent! I just looked up Iodum, which is iodine. Interesting. I didn't know it helped fight off infection. I do eat dulse, a salty red seaweed, for other health reasons. It that has 800% or so of the recommended daily allowance of iodine in one serving. It also has a decent amount of iron and certain B vitamins. I should start eating it more regularly. I love the taste.
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