Ringworm drug for dogs (Fenbendazole) might also cure cancer
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hi all....I don't know from where to start...let's say that I'm back home now and I'm not feeling that different than usual....so that's good...very happy about that!
So, I'm in THE BIG CHAIR, and a caring nurse of puertorican descents, is opening the valve for dripping the premeds. We are talking about how good their pernil is, the tostados, and the Cuban sandwiches we have all enjoyed in the past, that are hard to find nowadays in Manhattan.,..she then asks me if I've eaten anything. I tell her no, I didn't want to throw up. She said don't worry about that, the premeds will take care of everything ( and they did) but I think you should eat something....not good to be on an empty stomach on this medication.
For weeks I had been craving authentic Italian comfort food. Specifically: a hero sandwich stuffed with imported Genova salami and fresh mozzarella cheese, NOT exactly what I or santabarbarian would consider healthy foods to have, especially at a time such as this, but there you have it!
As luck would have it, right across from the hospital there's a high end Italian grocery store. I sent my friend Sylvia there with loose instructions, and she returned with the most authentic and delicious hero sandwich, which I ate with gusto, while the medications were dripping in my blood and the Benadryl was about to make me pass out. But I held on to the sandwich through it all, as if my life depended on it..We discussed the character in our favorite BBC show Fleabag, and before you know it...it was all over...I was free to go!
I swear, it's true...I can't believe it myself, but there's something to be said about comfort foods, because I know that from now on, every time I think about my first infusion, I will think with pleasure about that delicious sandwich and not the infusion! I managed to totally disassociated myself from the Doxil and what I was undergoing
So, I figured, maybe, eating forbidden foods, is my unconscious trying to making me believe that there's nothing wrong wit me...that I'm as good as the 10 year old healthy and athletic Italian girl, I used to be, now if I start eating Nutella sandwiches...we'll be in really deep deep troubles...
MO prescribed a reduced amount of the Doxil, and will stretch the time to four weeks between infusions to give me more relief. He thinks Doxil is the one for me! He joked and told me that next month, when I go back, I'll be begging him to keep on Doxil....he's a funny guy that one!
But, I did vent with the nurse about the fuck-up regarding my lack of updated genetic profile, and the fact that although my MO spoke of a doing a liquid biopsy, he didn't place the order, so we still don't know if there are any actionable mutations.
But, enough about me!
I want to welcome MiriamWillits and Okiemom to our fenben group, may you find useful information and great support and love among our special group of people.
I want to thank Yndorian, Snooky, Goldie., JFL, Nicole, Santabarbarian, and Greekninja for your support and perspectives on our predicament and the choices we all make to increase our odds of survival.
Take good care and be well my friends....let's all have a pleasant weekend...
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great info Miriam about the Lysine to take care of mouth sores, Thanks! I already have that handy....
and the lack of H&F problems is very encouraging. My Mo will listen, if I tell him I can’t function, he would lower it! Let’s hope....
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Frisky: once during chemo I wolfed down two ham and cheese croissants in about 4 minutes.
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you crack me up Santabarbarian! I'lm having a real belly laugh, as I could never envision you anywhere near ham...but I’m sure they tasted so gooodddd!
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They were fantastic!!!!!!! In the middle of being horribly food averse, it popped into my head as a food I could imagine eating-- boy was I right.
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Snooky, too many and too young are getting cancer, and in my own belief, not only is it Monsanto, but the chemicals used on plants, drugs we give to the animals, how we contaminate our water and soil, polution, etc. etc etc. And look how obese young people are and the children. Oh and lets not forget aboutradiation from electronics, gamers, babies playing with parents iPhones or tablets. I once saw a mom and child in the store, child had the phone, got upset and threw it. Mom looked at it to see if screen broke and gave it back to the child! And as for micro waves, I hardley ever use mine.
Frisky, so glad you had a "good" day with your infusion and got to enjoy that yummy sandwich. Why not indulge, what's it gonna do, kill you! One of my favorite sayings! Being Italian, I am sending some of my spaghetti, sauce made right from everything in the garden, except for pasta and meat. Cyberly sent of course!
Okie, welcome and how cool to know of Joe. I had no doubts of his story.
I feel grateful that I have lived to be 60, many don't get that oportunity. I have lived a wonderful life, with great family and friends. Do I want to die, of course not. The only think I want is to not have to suffer. I believe Z went rather quickly and then there was Patty who suffered for a very long time. And I think the gal who started the Ibrance thread went fast, it may have been someone else, not sure. And Wendy. Just a few that I can think of.
Well, in a few hours I will see my labs. I get quite anxious, even tho I always expect things to up! I don't know why I let it bother me so. I feel great, albeit the sickness over the last month. I feel normal and have no pain, never have. Never even got sick during chemo. I joke with my MO, "are you sure I have cancer?"
I'll check back in later with lab results and hopeful I can get back on the FZ soon! Enjoy the photos or scroll on thru!
Photos removed
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Hi everyone, trying to catch up on all the posts. Yesterday is the first day that I've felt somewhat normal (In my head) since Rads ended two weeks ago. I didn't expect that reaction. I know what you mean Goldie about sick of being sick and not being able to do anything.
Frisky the view out your cabin window is breathtaking. What a wonderful retreat. Goldie wow your homestead is the stuff of dreams. Kudos to you and your DH for living your dream. I'm wondering if that's why X is working so long for you. Your diet would be ideal, full of live fresh veggies! Wonderful. I too am a gardener/grower, of course, on a much smaller scale. This summer has been hard though,F because the Toxal has made it very difficult to go out in the heat. (which normally I love to do) I feel like a heat stroke is coming on.....but it's so quick! about ten minutes in the sun is all I can do.
Okie. Welcome to our thread and thanks for sharing your info! How fantastic it would be to know Joe.
Y... You seem to be doing ok. huh? You have a wonderful attitude.
Welcome Mariam.....Wish you all the best of luck on the Fenben protocol. I recommend joining Joe's FB page, the folks are very encouraging. Love reading their success stories.
So Frisky, the first infusion is over. Hope every single one is just that easy for you. Hope you slept well last night and have no SE's .
Not much happening in my life right now. Been in bed mostly last 2 weeks. lol. Got sick of thinking about "c" so I haven't researched so much. I have nothing to share on that score.
I think about each and everyone on this thread daily. We are a good team.
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Frisky...great great great...puerto rican food at Malecon...they have 2 location in the city I prefer the one on 97th and Amsterdam...my husband is puerto rican the restaurant is actually dominican food but the to stones and the rice and the rotisserie chicken is really really good.
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Goldie: Wow! What an amazing stash you've put up. I'm impressed. I manage to mill applesauce in the fall, with my husband's help, but all those vegetables are knocking my socks off! Loved those photos. I think they are the "pictures that say a thousand words". For me, they tell so much. Amazing and a plug for girls on chemo. Go get 'em, girl. Nice hair, to boot.
Frisky: Suddenly, that sandwich sounds really good. That's not my go to type of food, but I still like the sound of that. And yes, sometimes you just have to throw caution to the winds and splurge. We need it.
Snooky: I've done 3 weeks as per Joe's schedule for the Fenben. Haven't tried all the other stuff, though I'm on Berberine (Chinese, lowers blood sugar), Turmeric, Silymarin (I've got mets to the liver) and that thing with Bromelain added. Good grief, I sound like a nut.
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whaooo Goldie what a great lifestyle you have! And all that good food you manage to grow and preserve, I’m so jealous....that was going to be my ideal lifestyle when I retired, but I then was diagnosed with cancer and I’ve been unable to move forward. I’m very happy for you! I hope the lab results are normal and you can get back on the FZ.
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Thank you ALL for all the great info. Have been following this thread for a month. Started Fenben this evening. Joined the facebook group and have been reading many helpful posts and links.
https://www.facebook.com/groups/mycancerstoryrocks/
Had to stop chemo because it caused severe neuropathy. Desperately looked for "natural" anti-cancer substances, that scientifically target the cancer cells without hurting healthy cells or the immune system. Turns out there are MANY proven aids we can take that will obliterate cancer and not give us side effects. Thank you for posting your discoveries and experiences.
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so Snooky, I think my MO plied with so many steroids, I was up all night regardless of the 4 cups of camomile tea and the 10mg of melatonin I took to pass out. I end up watching the whole season of the THE BORGIAS in bed on my iPad....
around 6 am I slept for about 90 minutes and then I was up and about for the rest of the day, was able to really concentrate on the editing of my book, went out to dinner with friends, of course every bite tasted amazing, had them over till a few minutes ago, and my mind is still not about to shut down anytime soon, regardless of the two cups of camomile and melatonin I've already taken
I'm not complaining....I rather have the energy, but of course I wonder what's gonna happen when I finally crash!
Wishing you well....
Nicole thank you for telling me about Malecon...I think I ate there once and really liked it...will try it again next time I'm uptown....
Miriam...I did it again tonight...I ordered a poached peach for dessert, that was served with an amazingly fragrant mint sauce and a scoop of vanilla ice cream....great summer winning combination of flavors..I'm blaming it all on the steroids....
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Cascadians welcome to our group....please, please, please share your knowledge with us. We are all searching for safe alternatives to the traditional treatments....
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Frisky Hope that you were not part of the NYC blackout.
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Well, I was right. Labs not all that great. The only good thing is my liver enzymes have come down to 110 and 56, from up into the 1500's. Norm is 40ish. TM's took a huge leap and I'm hoping it's because I've been sick. Just not sure what to do with the FZ, if I should go back on it or not. See my MO tomorrow. My DD is heading back to the island on Tuesday. More for a break and she misses her home and fur babies, I think she will be gone for 10 days. Surgery, fingers crossed, will be August 1st. I'm still feeling pretty good, been a cleaning fool. But I do have to stop and rest every so often. No more strong urine odor, no more fevers, no more napping.
Miriam, it's a LOT of work to do that canning, especially such big batches and sometimes takes me 2 days. Hardest part of the "maters" is blancing and peeling. Kills my back standing at the sink for hours doing this. My DH helped me with that large batch. But usually it's just me. Lots of work, but I enjoy the rewards. Actually have sketti today with some of the sauce I put up. Thank you for the hair compliment. I have always had long hair. And they say when woman get older, they should have shorter hair, but I just can't !
Hi and welcome Cas. Hoping FZ works for you, as we are all hoping the same for ourselves!
Oh Frisky, those steroids are cruel. We get the benedryl in IV that makes us crash and the steroids that keep us up! When I was on IV chemo in 08, I did 20 mg of the melatonin and when I take it currently, which isn't often, I still take 20.
Hoping everyone is having a good weekend. Off to more cleaning for me!
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Goldie...how weird to have such contrasting results...if I remember correctly, inflammatory conditions or infections can affect the markers. They are not always reliable....so I hope that they reflect that you were not feeling well. Are you due a pet scan soon? that might clear things up...although, other things light up other than cancer cells....feeling stronger and better is a good sign in my book!
One way to find out if the FZ caused your liver markers to jump up would be to start again and then check the results. The small amount we take is not supposed to affect our liver, but no one really knows, we react differently to the same medications ...I am now taking 1g for four days and 3 off, because the medication comes in 4g and that seemed a good idea. I'm getting a pet at the end of the month. If there's no changes, I will take it every day and see what happens...
You know, growing up in Italy, I used to help my mother make hundreds of bottles of tomato sauce for the whole year! It took us days to wash and cook cases of delicious San Marzano tomatoes, and bottle the sauce that we extracted with a special little machine....it was a labor of love that paid well throughout the year...I’ll never forget the aroma of ragù sauce on sundays..I could smell it from blocks away when I returned home from the church after the mass every Sunday...those were the days...for this italiana..
Snooky I was spared the blackout last night, but was very concerned because I live on the ninth floor in a huge co-op building and it would take a tremendous effort to get up and down nine flights of stairs in my condition.
I'm finallycoming down from the steroids because I had a deep and long sleep last night....woke around 10 this morning feeling worn out....got to take it easy today...
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Frisky, I don't get PET scans. Nuclear bone and CT with and w/o contrast in January. Then CT with and w/o contrast a week or so ago when I was in the hospital. Everything they did was negative, except for the UTI. I really do think the infection is what caused the TM's to go up. I know they aren't reliable, but when I hit my 5 year mark and MO said ok you are good for a year. And here I go again, Ms. Bossy. I said no, I still want to see you every 6 months, with labs every (don't remember how often). Well my TM's were going up each time, no symptoms on my end, so we do a scan and there it was, in my hip. It's only a needle poke, so I want it done. Glad you were hit with the blackout. Anxious to see what your scan shows at the end of the month. How soon do you get results?
It was my Aunt Sadie that taught me how to can in my late 20's or early 30's. So everytime a can seals and pops, I call it "kisses from Sadie" I see my MO tomorrow and maybe I'll start back on the FZ. 8 hour round trip drive to see him, another reason I only see him every 6 weeks, instead of 4.
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Welcome Cascadians....so what are some of those "aids you have been taken that can obliterate cancer cells"?
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I'll chime in with cancer-cell-obliterators (also obliteration may result from a combination of 'debiilitators')... Most of these are discussed in the Jane McClelland book, "How to Starve Cancer."
I think maybe it's easier to do this stuff earlier in time. I am NED right now after very good treatment outcome. But I think there can still be stem cells swimming around in me and if so I want them to self destruct. Waiting for a met may give away a tactical advantage. So I am doing some of this below, and considering a course of mebendezole/doxycycline off label in the fall. It seems very low risk to me and possibly immense benefit. I have been waiting to be stronger and feel more normal post chemo, and let my system rest before throwing a new thing in there.
Heres what I do now
-Hyperbaric oxygen treatment (forces more oxygen into your blood cells)
-High dose Vitamin C IV- much higher than oral dose can convey, Vitamin C acts as as a pro oxidant and kills cancer cells while not harming healthy cells.
-Metformin,
-Melatonin
-baby aspirin
-a bunch of antiioxidants & nutrients (reishi mushrooms, super greens, ECGC, and many more), as recommended by an experienced integrative MO who I had a consult with, specific to my situation and cancer.
HEAT is very effective against cancer - infrared sauna or hyperthermia...
One of the most potent cancer cell killers is vigorous, large-muscle exercise. I do not have the link at hand but sustained exercise basically forces your blood through your body at high pressures that stress or kill the cancer cells, which have weaker membranes. Every time you exercise you are squishing cancer cells!
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Santabarbarian: have you readed about LDN? Low dosis naltrexone. You are TNBC, you can added it to your arsenal. I can not take it because it seems not to work as well in E+/P+
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Santabarbarian:
I read your post with interest about things that you are now doing to obliterate cancer cells. A couple of questions if you have time:
1. Who will prescribe the mebendezole/doxycycline combo? do you have an internist who will do that, or will you ask your MO?
2. What is your dosage of metformin? I am pre diabetic so my internist willingly prescribed that for me -- 500 mg.
3. are you taking a single baby aspirin a day?
and finally -- where/how do you manage the hyperbaric oxygen and high dose Vitamin C stuff? I wouldn't even know how to arrange either of these.
Thanks for any information that you can provide.
Bev
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I do 1000 mg of metformin. MO prescribed when I asked. I have no diabetes or pre diabetes, but he felt the anti cancer effects were clear.
I will ask my MO, and then fall back to the integrative MO I have consulted with, re mebendazole and doxycycline. I suspect I can talk them into a 30-60 day course or similar... may not do them simultaneously; will think about that.
Yes one single baby aspirin daily (or slightly less... lets say 5/7 days a week).
I googled my town and "high dose vitamin C IV" and found a couple of places that give them. One was more like a day spa and the other was a suite of naturopathic physicians. I went with the physicians. I did two or three IVs a week during chemo and now doing once a week for maintenance. I do Oxygen in am and then go straight to IV. They work synergistically. I would feel activity and achiness in my cancer breast when I did them during chemo. I also used a lot of heat during chemo.
Same w/ finding a place for Oxygen; I googled and I found a provider. It is very mainstream for wound healing and other conditions so it exists in many places.
I am lucky to have a friend who is a MO who has been very supportive of these ideas. She give me the courage of my convictions as did the Chicaho Integrative MO (Dr Keith Block). My local MO was pushed to his limits by me but the great outcome might have opened his mind...
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Santabarbarian, I completely agree with you about the tactical advantage. I'm planning to do fenben cycles this way: 3 month in, 3 month out, almost during first year. If everything goes well, I will begin to make longer breaks between each cycle, but I think twice a year should be the minimum during almost 5 years.
My own arsenal: Fenben, apricot seeds, colloidal silver, dmso, iodine, kalanchoe (leaves and tincture) Chinese weevils (you have to eat them alive 🤮) celecoxib, vit.complex, magnesium, borom, lysine, tryptophan, MSM, chloropyll, euphorbia turicalli latex drops, herbs teas... etc.etc...uf! I'm tired LOL
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Thanks to both of you for some information about "nonconventional" things to do.
Santabarbarian, did you do a consult with Dr. Block? I have looked at his website, but am unclear if I can simply do like a one-time consult or if it has to be a more long term connection. I am on the East Coast.
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I did a consult with Dr Block which is a 4 part consult. It's $1800. Worth every penny. The things he recommends have a lot of evidence behind them, even if not always a double blind clinical trial. He is very evidence-based on all his recommendations.
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Goldie, all of that looks delicious! I bet it's worth every minute you spend! I hope your daughter is well. Your hair is beautiful, do not cut it.
Frisky, I love italian food, my grandfather was italian, he really enjoyed mascarpone... yummy! Get some for your next doxil!
Snooky, I wish you a quick recovery from rads.
May all the ladies of this thread have a good start to the week. Hugs!
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Have been doing a lot of research, using books, websites, and articles. Have looked for substances scientifically shown to target and obliterate cancer cells and not harm the immune system or healthy cells. In response to some requests to share what I've discovered, I will try to post the word document table pages I've been working on. Word -> PDF -> JPG to upload here. Yes I'm swallowing a lot of pills! and making smoothies and salads to incorporate all the foods, powders and liquids.
It is recommended, in order to hit the cancer from many directions and angles, that one uses a variety of substances shown in different ways to target cancer.
The foods are the most important, consumed whole, raw and organic for the most part, although sometimes it is good to steam or sauté some of the vegetables and spices. The supplements are used for about 6 months to saturate the body with substances that it probably has been deficient in, to sweep away the cancer.
I am asking my MedOnc for liquid biopsies, blood tests that show how many cancer cells are circulating, what their genetic make-up is, whether they are forming tumors, where they are located, if they have developed resistances, if they have mutated. Liquid biopsies show all these things. He is freaked out and not wanting to order the liquid biopsies. He seems to believe the patients shouldn't know what the cancer is doing! I most definitely want to know what the cancer inside my body is doing, precisely. I cannot do more chemo because the chemo I did destroyed my nerves: severe neuropathy. So I have to find alternatives! I have come to terms with dying but am not at all ready to just roll over and die without trying to survive!
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Cascadians WHAO! That's one amazing compilation you have there, and you have just stage one? Good for you and thank you for posting so precisely. It will be very useful to me, and many others, I'm sure.
Thank you santabarbarian for your precious info and doctor details, and every one else for posting your alternative protocols...it's all very good....I'm supplementing based on MO Gonzales protocol, but I unfortunately stopped doing all the detoxing rituals he prescribed, and maybe that's why I've had progression in the liver after four years of taking medications. Something I got to live with...
I need to find an integrative oncologist in Manhattan, that has a therapy to offer, apart from typical supplements that we can all get from amazon these days. Not easy...
Yndorian...I make an amazing tiramisu with mascarpone cheese....it might be time to make it again....delicious anytime, but cold especially during the summer it's even better...glad to know you're Italian too....
Goldie, sorry you have to drive so far to get your scans, but maybe it's a good things, since you've been doing so well all these years without having been subjected to all those radiations. I'll get the results 5 days later, after my MO reviews them.
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Everyone, just a note that ER+ and ER- supplement recommendations differ. TNBC is negatively affected by Glutathione, for example....
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Well I don't know what stage I'm at. That's why I want the liquid biopsies. Because I had a very aggressive tumor with poor prognosis (diabetic and was extremely fat but losing weight) and had to stop chemo long before it was 'properly finished." So I'm doing everything I can. Just found out my insurance will cover an integrative naturopathic oncologist so will try that but cannot afford the IV Vitamin C and Mistletoe which I want.
My insurance is great for Big Pharma stuff, drugs that I can't take, too toxic, too many side effects, got very sick. Doesn't cover any of the "alternative" methods except acupuncture which I'm going to try.
Thank you to everybody posting their alternatives, extremely valuable info, thank you everybody.
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