Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Goldie, Nicole: I agree! So much contradictory information! It is very frustrating! It is also very sad that we have to do our own research. And all those reports end up saying "ask your doctor". If I trusted my doctor, I would not be looking for the magic bullet somewhere else.
Frisky, thank you but I don't think about chemo, rads and tamox as "curatives". To me, those treatments are just "bureaucracy" (a very harmful obligation), I'm doing all it because if something happens to me (or maybe I should say when something happens to me again) I do not want my family to reproach me to not being fried or poisoned enough. Meanwhile, I still have the hope that fenben will work. Kisses
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Goldie and NicoleRod, I too find the conflicting advice about various supplements frustrating. I take a lot of supplements intended to help with BC. I have gone off some on specific meds due to potential interactions. However, I never know exactly what to do. I recently planned to start milk thistle as I have heard it is great for the liver. However, I then read about a chemo interaction and decided to hold off.
Frisky, along the lines of what you mentioned, I do think a lot of people follow this thread and are waiting to see how fenben works before jumping in. On the iron front, if you have low iron, you may want to consider herbal supplement ashwaganda. I have been suffering from low hemoglobin/anemia for a year or so. I started ashwaganda a month ago as I heard it boosts blood counts (and is also thought to be a BC-fighter) and my hemoglobin is now higher than it has been in a year. Almost normal again. I started a low dose, non-heme vegetable iron supplement 2 or 3 months ago after my MO suggested an iron supplement. I have tried to avoid iron until now because it may help tumors develop their blood supply. I figured the low dose, non-heme vegetable supplement may be weaker in that regard than the meat or fish-based, heme iron although the non-heme iron is also less effective at combatting anemia. The non-heme iron did slightly improve my hemoglobin but this recent, bigger jump seems to be related to the ashwaganda. Ashwaganda is also supposed to help with energy.
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JFL, thank you sharing your perspective on FZ and your experience with the various iron supplements. I'm familiar with taking ashwagandha for the support of the adrenals which should affect fatigue and well being, but maybe I'm not taking enough because I've never felt different, the way the 324mg of ferrous solfate affected me.
For a few days there, I felt normal....healthy and strong....even my sister tonight , on the phone from Italy, could tell that something was different from the tone of my voice. This morning I went shopping and I definitely had A LOT more energy than usual, and I had not been out in days, which would have made feel extremely sluggish and out of breath...
It's recommended I would supplement with 8mg, but that much is found in a 3oz hamburger, and that has never affected my energy levels or hemoglobin levels.
I know it's dangerous to take too much iron, and have decided to stop taking it till I get tested. And now I have your suggestions and maybe should double on my ashwagandha intake and see what happens.
As far as the contrasting information is concerned for me it's very simple: our regular genius type oncologists don't know anything about nutrition and supplements and since everything they do is predictable, dictated by the FDA and the pharmaceutical companies, they tell us to NOT take anything, because it's simple that way. After all, do you think they lose any sleep when we are inflamed, weak and in pain? I don't think so.
we have to research and weigh the risks and benefits, but one thing is certain: every time I stop taking magnesium, omega 3, and the other 30 to 40 supplements I don't feel well. So that's how I decide....
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On supplements, the only opinion I will listen to is that of someone who is knowledgeable about chemotherapy AND is open to/ experienced with supplementation, such as the Integrative Oncologist I saw. If you ask people which BOTH disciplines under their belt, supplements are considered very, very helpful. Integrative Oncs are the only ones who have both data sets in their heads and have followed a lot of patients who are doing both chemo and supplements. (My MO , though not a big supplement recommender, looked up all the supplements I was counseled to take, and did not object to anything.)
The integrative Oncologists are ahead of the curve on off-label drugs too. I asked him about mebendazole and doxycycline and he was very open to their use. I will ask him for a prescription if I can't get one from my home MO.
I take a lot of supplements, and (like you, Frisky) I notice a much better sense of overall wellbeing on them. And my old aches and pains are gone. I take ashwaganda too. If you take it, it is good to do at night, as it is slightly sleep-inducing too.
Re iron, liquid chlorophyll can raise hemoglobin. You can buy a minty tasting dark green chlorophyll at the health food store and add a squirt to your bottle of water. I did this when I was a little anemic during pregnancy many years ago and it worked well.
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Santa You're absolutely right about the integrative oncologist being the best at figuring out the supplements debacle. I'm basically taking more or less what MO Gonzales, RIP, prescribed when I was first diagnosed. Can you believe my first oncologist, younger than I, died from an heart attack couple months after I met him? Can't make this stuff up....and he was not going to take my case because he didn't think his pancreatic enzymes therapy would be effective because my cancer was too widespread....life is mysterious....
Chlorophyll sounds good for many reasons....I'm gonna add it to the increased ashwagandha intake.
Sonia, You're stage 2, don't let them fry or poison you too much and you'll do fine with all the complementary therapies you're doing, and who knows....maybe our genius type oncologists, one day soon will finally figure out something that actually works...
watching the Emperor of all maladies was such an eye opener on how many defeats they have suffered..the poor things....it's kind of embarrassing and yet mind bugglinthat they're still sticking to the genetic cause of cancer after so many failures
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When my wife was on xeloda, she used the scheduled time off to load up on supplements like curcumin and oil of oregano, which otherwise might (I say only say might) have interfered with the metabolism of the xeloda. Unfortunately as she is now on ibrance with letrozole, the letrozole is taken every day. So she has to be more careful about what might possibly interfere with it. She takes vitamin C & D daily, melatonin, metformin, maitake extract and lactoferrin. I've probably forgotten something. The maitake and lactoferrin are both immune enhancers, and won't interfere with drugs. They both have some evidence to suggest they may directly act against cancer. There is some interesting research on lactoferrin in various forms having very strong anti cancer properties in mice. They have experimented with it charged with iron, and in a nano particle, and it was a knockout blow to breast cancer in mice. There is also a study where they used plain lactoferrin on stage 4 colon cancer patients and it lowered their tumor markers.
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So ladies, would you continue with the milk thistle, I'm just so scared. A year or so ago, I did the big medical marijuana. Ingesting A LOT of THC, supposed to be the cure. Then I learned that THC is NOT good for ER PR+. Was I responsible for making the cancer worse? Who knows, there is no way to know. Need to call my primary today, urine cultures were sent in 2 weeks ago, certainly they have results by now!
Still feeling good....knock on wood! If I continue to feel well, we may head to Moab on Monday, but will be glamping at the Hilton, instead of our camper which we have stored there. We will only stay for a few days.
Frisky, I did not see any negative stories. If I remember correctly, it was more of questions.
Snooky, if I knew where you lived and you were close to me, I would come hang out with you. Glad you reached out to your kids. Do they know you are depressed and lonely? Can you talk to them about it, or one that you might be closer to. That sounds bad, one that is more understanding, that could talk to the other siblings, to take turns visiting you. How many kids do you have?
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Oh Goldie, that is the most sweetest, generous thing to offer to me. Sadly, I'm not at all close to you. I'm on the other side of the Mississippi. lol
Lots of news yesterday. Wow still in a bit of a shock. My oldest (of three sons) had his third baby girl three weeks ago. My youngest son and his wife took me to see the baby yesterday. Precious......Precious. He suggested (out of the blue) Mom, lets have a movie night every week! This is major for him, so I gather he knows more than I had thought he did.
And then my youngest son and his wife announced they are pregnant with first child! AND he showed me pics of a new home he's closing on. He said mom, there's a bdrm for you. Come as often and stay as long as you want. (an hours drive from me)We got you a pool. (Had to stop the tears, I guess if I go on Zeloda I won't be able to do a pool) His wife, Reeza. has no family in this country so she's going to need me.
Don't think badly of my kids, when I was diagnosed they were right there for me. But, I shut them out. I didn't want them to have to live through a cancer diagnoses with me. But in trying to protect them.....I hurt them....but they understand now.
So, things are going to get better. The thing is they don't understand. They equate stopping chemo with cured. Sad... But, we'll all get through it.
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Snooky it sounds like your kids love you very much.... that is beautiful. Congratulations on your grandchildren and on having wonderful kids.
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Oh Snooky, look at all of those blessings. And what sweeter than new babies, I know, when they are YOURS! Please take advantage to what your children are offering. Talk to them about what is going on with you, it will not only help them, but you as well. When I was first diagnosed with stage IV, I didn't want to tell anyone, especially my children. I actually spoke with my UPS driver, he is their age and I knew him quite well. I asked him how he would feel. I said I should definitely tell them. There was one person that I did not tell, and that was my mother. Until the day she passed, just this past March, she hounded me about my hot flashes, how are they, do you still have them, are they bad, etc. etc. etc. So telling her I had stage IV would have been horrible for me! As for the pool, I'm not a pool person, but maybe you can go in for a bit and shower after? So so happy for you! Big HUGGLES from me to you.
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Husband 11... you said your wife is taking Metformin right? Isn't that a Blood sugar lowering med?? If so ...it says you are not suppose to take Maitake with that...it can increase the effects here is a link on the MSK site about it..
https://www.mskcc.org/cancer-care/integrative-medi...
Also read that it induces ovulation.... I cannot see how that could be helpful if someone is trying to suppress the ovaries/estrogen? I do not know a lot though about this stuff..am I interpreting this wrong?
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Nicolerod, my wife has long had her ovaries removed to reduce estrogen, so no chance of ovulation. Metformin appears to improve the outcome in type 2 diabetes patients who were taking it. Whether is helps regular folks is still to be determined.
Good point about both drugs lowering blood sugar. However my wife suffers no discernible ill effects of low blood sugar from the maitake extract and metformin combined. Perhaps the risk is mostly theoretical, or only in some persons, or only with high levels of metformin. She has taken breaks from the maitake when we go on vacation, as the bottle doesn't travel well, and she hasn't felt any change. She has problems with sleep, but not energy levels.
The maitake has done wonders for her blood counts. At approx. 5 years out from initial chemo, her counts had never recovered. She went on maitake and they over doubled in less than a month. Whether it fights cancer or not is to be proven, but for her the mushroom extracts definitely help low neutrophils caused by chemotherapy.
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Husband ..thats awesome to hear that none of those issues affect her. I wish I could take it...but the thing with the ovaries...I wont risk that
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Snooky, I'm very happy for you! God blessed you with wonderful children and grandchildren! Those little angels are and will be your best medicine! HUGHES
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Santa, Goldie and Sonia. Thank you so very much for the kind words about my children. God did indeed Bless Me. They really are great kids. The worlds a better place because they are alive.
Can't leave out my Second son, when I found out I had cancer, I thought about assisted living. Brandon and his wife (son No. two) said no way. You're going to live with us. But, I know financially for them, it would be a struggle and truthfully there just is no room in their house. However, Brandon drives two hours on my chemo days to pick me up and then bring me back home. His support doing that ( and my Jesus) is what has gotten me thru chemo.
I just never wanted to be a burden on them.
I think I've done all of them an injustice by NOT letting them help me. I'm seeing that now.
The support of this group is fantastic....you've carried me. But the support of family and more interaction really is what I need.
HUGS to all of you
Also, two of my Dau-in- laws Moms died from cancer while in their thirties.. Dau-in-laws were both 15 at time. I did not want to dreg up memories for them.
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Well, heard from my primary today. After 7 weeks now, I am told it's E Coli. He has been gone for the last week, so I am just now being told, which he did apologize for. So another antibiotic.
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Oh Goldie, So glad that you finally found out what the issue is. Now you can take the correct med and will better in just a few days.
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Goldie glad you got an answer...may that antibiotic punch that ecoli to the curb. If doxycycline is effective, it would serve two purposes. Doxycycline is a powerful anti cancer, it's known to block one of the cancer pathways according to MD Lisanti
Snooky, so happy to know you have a great family supporting you.
Dear husband, your wife experience with Maitake has compelled me to buy some I ordered two bottles. It's deeply discounted right now on Amazon. I'm 175 pounds, can you please tell me ow many drops should I take daily. I would appreciate your help with this crucial calculation. Thank you
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Snooky: have you seen this? You are famous girl
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OMG Snooky is famous!
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Frisky, the work they did at Memorial Sloan Kettering on breast cancer patients with maitake D extract was to determine the impact on the immune system and the optimal dosage. They found that as dosage increased, so did the effect. However, the immune system being complex, and having many measurable parameters, some eventually began to fall as the dosage exceeded a certain level.
The end result was that 5-6 mg/kg bodyweight/ day was determined to be the optimal dosage for use in future trial.
So doing the math for my wife, weighing 55 kg, 55x5=275 mg max / day
The 4x version that she buys (same product as the standard, but 4x the concentration) works out to be 3.7 mg/drop.
So, for her, that means 275/3.7= 74 drops per day maximum
If you are using the standard potency, then you would need 4x as many drops.
Following the dosage trial at MSK, there was a further trial done with patients suffering from myelosuppression syndrome. The results using the prior determined dosage of MD extract confirmed that it was effective at boosting their blood counts. I know that for my wife, it most certainly does.
There is also a Japanese hospital study where they followed patients using MD extract and they used a kind of wishy washy criteria for success that combined both shrinking of tumors and less quantitative data, like fatigue and general well being. They reported the MD extract worked well on patients.
There is also a compendium of patient files from Japan where they used typically only 125 mg MD extract plus 4 grams of whole maitake per day. The reported some highly successful treatments and even what appeared to be cures. I recall the longest they followed a patient with a "cure" was for 2 or 3 years. These were a couple of metastatic breast cancer patients whose tumors simply disappeared using only the MD extract plus whole maitake. We buy whole dried maitake from Oregon Mushrooms. Its actually pretty tasty in soup. It is best absorbed when cooked for a while in boiling water to release the medicinal properties.
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Husband, interesting about Maitake and your wife's blood counts. I was just telling Frisky my hemoglobin jumped in a few weeks time after starting Ashwaganda. However, I did start Maitake D-Fraction Pro 4X and Turkey Tail supplements at the same time. I also started taking a special, critical care probiotic. I started Maitake and Turkey Tail for their anti-breast cancer benefits. My hemoglobin improvement may be a combination of supplements . . . or mainly driven by the Maitake. I ordered the same Maitake and the same Turkey Tail as those used in the successful breast cancer trials. Frisky, I have been pale white due to anemia for so long. In the last few weeks, the color has returned to my face. I feel like I look more like myself.
Snooky, congrats on the expanding family! You should be able to go swimming on Xeloda. When my feet were at their worst due to HFS, I would make sure to wear some sort of sandals or those water shoes in the pool. However, I never stopped swimming. Were you thinking about HFS or another symptom that would prevent you from going in the pool?
Goldie, such a relief to finally find out what you have going on, although super frustrating it took so long for the docs to figure it out! I hope the infection clears up quickly now that they know how to treat it.
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dear husband thank you for your clear explanation of the mathematics. I figured that I will need to take around 100 drops a day. I ordered the 4x type. I have also couple jars of turkey tail mushrooms I found in the woods that I dried and pulverized, I will take those as well.
Question : should I take the 100 drops all at once or take it in two servings?
JFL, you surprise me every time! Ashwagandha, Turkey Tails....Maitake....have you been seeing an holistic oncologist? Glad all these remedies are working for you as well. Today I doubled my ashwagandha pills and I was able to enjoy a really long walk in Washington Square Park. We had beautiful windy weather at 10.00 am.
Yes, Snooky will make our group famous when she reports all our success stories to Joe's blog!
Yeahhh
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Frisky, I am laughing trying to figure out where you picked Turkey Tails in the woods in NYC
However, I presume you found those outside Manhattan!0 -
JFL...I found them upstate NY near my little cabin...I even brought a small log back to Manhattan because I found it absolutely beautiful. For months I was watering and growing the turkey tail in my apartment....see..I was nuts there for a while..a lot easier to just buy some extracts...the big one are polypores, the tea is delicious and lowers blood sugar levels
My polypores....
Polypore tea brewing...
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Oh Sonia, thank you so much for posting that. You have no idea what that means to me. I've been wrestling last few days with a lot of negative emotions. (I have OCD which right now is out of control). I've been begging God to show me what is going on and to send me some help. And there they are his angels praying for me! I've made myself sick with too much stress, stomach upset, headaches, constant anxiety. To me, that is God telling me. I'm still here, my plan is still in place. Have peace and keep trusting me.
For the first time ever I'm having pre-scan anxiety. Onc wants scans first week in Aug. I've been struggling with my decision to go off Taxol. It's causing such extreme depression and the neuropathy in my left leg that I asked the ONC to stop. So, I've been telling myself that it is stupid to go off a treatment that is working and trying a different TX that might not. I feel selfish regarding my kids. I don't know what to do. So I desperately need prayers to help me through this decision.
My neighbor, yesterday, out of the blue told me, you know I'm still praying for you. Wow.
I've gone to IVchemo early in my diagnosis. The breast tumor had gone onto my skin and my Onc wanted IVchemo to stop it from spreading and possibly clear it up. And it has. It also shrunk my breast tumor in half and same for my one lymph node. And most of the nodules in my lungs have dissipated. But it's done nothing for bone mets, they are still growing and a couple more have showed up. But I've told myself it's not worth it to just spend most of my days in bed, interested in nothing, caring about nothing.
oh FYI, my Onc doesn't think Taxol causes depression. But I had my 6mos physical from my primary yesterday and she said that chemo (taxol) sure does cause depression. And anti-depressants does not work for it. She mentioned Alex trebeck (sp) which has told the press that his chemo treatment has caused him extreme depression. I also read that Radiation can cause depression.
I've battled clinical depression, panic attacks, Ocd for the last 40 yrs. This runs heavily on my mom's side of the family. There have even been suicides from it in my family tree. I've had it under control for last few years until I started Taxol. So, If I only have a few years left on this earth.....I don't want to live them that way. And I know that there are other lines of treatment that could work for me. But , now I'm questioning my decision. Hence my stress level.
Does anyone know if Nuclear bone scans pick up mets in the brain? Headaches are worrisome. But, then again, the "worry part of my brain" is working overtime.
I have to go to Joe's FB page and thank them and tell them some of my story. I just finished my 12th week of Fenben, I only take the Vit E with it.
So, that's where I'm at..
JFk Yes, it's the HFS that concerned me. Thank you for the info.
Praise God.. He is still taking care of me.
Today is going to be a good day
'
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Joe's group is recommending this as a safe and effective colon cleanse. It only contains magnesium and citric acid. They claim it cleans the entire colon while you sleep.
https://www.amazon.com/.../B01B.../ref=twister_B077XVC17F...
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Frisky, DrAlx recommends this site for various mushroom products. They are tested and are the real deal. Check it out. They have numerous products.
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Hi Snooky...I'm so sorry your suffering so many SE. I find it disturbing when MOs deny the obvious and well listed problems associated with chemotherapy. I thought you were going to be done with Taxol at the end of this month...if your MO wants you to continue, can you request a reduced dose, a sort of maintenance dose that can keep the cancer down without causing as many problems? I’m sad knowing what you’re undergoing right now. I hope things will settle soon and you’ll be able to just coast for a while....
I’m familiar with Paul Stamets work and his products, that’s what I’ve been using in addition to my foraged good.
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Snooky,
I am a CASA (Court Appointed Special Advocate) for Foster Youth, so I know a lot about trauma, anxiety, and depression. The thing that helped my youth client the most was Neurofeedback. Anyone struggling with anxiety, sleeplessness, depression etc can benefit from it. The differenece it made for her was so profound that I did a course of NF to try it for myself. I did not have depression or anxiety but it totally improved my patience and it made my sleep much better and more restful.
There are numerous NF systems, but the one I am familiar with is called "NeurOptimal" -- which I believe is the best one and is widely available. It is basically a "mirror" for the brain to watch itself... and very simple: you hook up sensors to your scalp with a waxy paste, plug into a computer with the program, and the sensors can pick up the activity of the brain while you listen to music through headphones. When the right brain activity becomes dysregulated or jumpy, there is a click, like a skip in a record album-- an interruption in the music you are listening to. That's IT. The right brain hates the skips and clicks. Very rapidly, the right brain realizes that its own activity is what is generating the clicks... and it starts modulating itself in order to NOT cause clicks. So in every session, the brain is "practicing" being calm and integrated (in order to have click-free music). No conscious effort involved. Sessions are about 30 minutes and the average number needed to feel the difference is about 6-8 sessions. So, very rapid. Most people need about 20 sessions total but severe trauma cases may need more. After a session, you feel a "post-massage" feeling of relaxation.
ANYONE who is struggling with panic, anxiety or depression should know about this technology. It is safe because the brain decides how to adjust itself (no clinician needed!). You can rent the system and use it at home or go to someone's office.
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