Ringworm drug for dogs (Fenbendazole) might also cure cancer
Comments
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GOLDIE She is on traditional treatment too. A anti-hormone. Begins with an L.
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Anotherone,
jojo text said she was considering adding xelda with Celerbrix for a kill phase
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yes , but that now. What about all those 4 or 5 years in the past ?
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It would be so valuable to get a full profile of women who are getting success, just like you are asking. What did she have, what treatments has she done, when was the fenbendazole brought into the equation, and what else, conventional and alternative was she taking. We need a Joanne Tippens, so to speak, as a role model.
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Hello everyone!
Goldie: I'm happy you have had those beautiful vacation days. You deserved them! I want to see the new picture LOL.I am also glad that you can continue with Fenben without further setbacks
Anotherone and NicoleRod: I read the post and, as far as I understood, she started recently with the fenben and the mclelland protocol, etc. I think I understood this: she was diagnosed with bone mets in 2014, she didn't do anything of conventional tx. Then she was diagnosed with ovarian and peritoneal mets in 2018, and she had some issues with ascites, which she could control now thanks to fenben, ldn, and the other protocols. She said "now", which makes me think that she started with all that not long ago. I guess we will have to wait for her to return to the thread to answer the questions, but I think that if she managed to reduce ascites, that is already a positive progress👍
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Snooky, the hormone drug is Letrozole, not sure if I'm spelling it right.
Sonia, here is the picture.
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you too look good
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Goldie, welcome back! You look very pretty and mighty happy in that photo with Darby Hinton!! Good for you!
Has anyone ever experienced widespread itching from fentanyl patches withdrawal? Or is that a symptom of metastasis of the liver going wild?
When I went back to the the country last week, I forgot to take the fentanyl patches with me, and I went without for a whole week. I developed a widespread itch especially at nighttime and a restlessness as I tossed and turned in bed for hours. Now that the medication is out of my body, I want to try to do without. But I'm suddenlywondering if these symptoms are more likely to be associated with mets to the liver, or are SE from the Doxil....hard to figure out...
I explained the situation to my palliative care doctor, but im waiting for an answer, and meanwhile I'm wondering if someone on this board has had a personal experience getting off fentanyl that had the same type of SE. Thank you all!
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Frisky: I hope you find answers soon and that itching is nothing. Hugs to you
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when I was going through withdrawal from narcotic painkillers many years ago I remember gut wrenching feelung as if the body was scrunched up when I could not fall asleep. Day time was ok. May be you feel something similar? Why not to check your liver enzymes and bilirubin- I think it is bilirubin that causes itching , no?
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hi girls, Frisky hope that you find your answer soon.
I'm going through my own hell here. I've been off treatment since 7/15 and the skin nodules have grown back. My ONC wrote script for capecitabine on 7/29 but to hold it until the results of my scans from Aug. 8th were seen. Aug.12 the apt with Nurs prac. said yes we would start the capectabine But he main ONC was on vacation in India(he had to sign off on the script) and would not be back until Thurs. last week. She told me to call the office on Thurs. and they would tell me when/where to pick up meds. (was suppose to be at their pharmacy in their office building. So I did call on THurs. the Main Onc had signed off on approval now we needed to wait for ins approval. THur afternoon and Friday went by and I heard nothing.
This morning I noticed the all the nodules had a slight glistening around the bottom of them as if they are seeping. Called the Onc office. Nurse said there had been a change a different pharmacy (across the street from them) were going to fill script. I could pick them up there or they could over night the order. I said please overnight.
Problem solved.....or so I thought!
Afternoons mail brought letter from Medicare and the capectabine had been denied!!!!! (Because I don't have part
Another call to office where they told me that Medicare was now my primary ins. and the one I'd been using had become my secondary. The secondary will cover but can't use them until I get the Medicare mess cleared up which would take a least a week. Called Medicare. Well, they have lots of calls right now and wanted me to leave info and they would call back in 48hrs. The nurse had mentioned me purchasing the medicine for 160 a month I called back and said please, it's panic attack city here let me buy a months worth while I get this ins issue cleared up. She said she would call back. Well, the pharmacy in the building called me back. The price quote was wrong. It's 120 for ONE week I said I don't care at least I can get started. Only problem is they were closing in 20 minutes and I live in a different town.
So, the plan is to go pick them up first thing in the a.m. and then gather all this info, go to my son's and have him help me figure this out. He worked at a Hospital admission for years and he understands this stuff.
So I doubled my Zanax for this afternoon and am trying to destress. Really upset that they wasted so much time with this.
So, I guess the Fenben is not working. Last week I double my daily dose and up'd it to 4times weekly.
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hugs snooky
Re fenben - We know little , but we ought to try.
Any favourite activities for distressing- guided meditation, walking , scrabble?
It is sh.t even without being stressed. Wishing to you for stress to subside and navigate insurance maze with least loss of nervous energy. Hugs again.
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Snooky sorry about the stress you're undergoing and the various delays...I know how you feel...
I was wondering, as I was reading your story...is it possible that the modules might be breaking up because they are healing? There's couple way for healing to occur. One way would be for your body to absorb and dissolve the nodules, the other way would be for your body to break them down so they can clear up externally.
Whatever the case, don't give up on FZ yet...it might not be working now...but we know that persistence is the name of the game....sending you hugs. I hope you get your medication soon and the combination produces fast results.
Sonia Thank you for your support....I scratched myself less today. Ihope to get a good night's sleep tonight.
Anotherone, tests will take place on the 30th....I dread the idea of going to the cancer center before that time, since after they find out the reason they still won't be able to do much about it.
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Boy oh boy, can cancer treatment feel like a giant frustration nightmare! Like we're trying to run (from lethal danger!) through waist-deep molasses --- those stretches of time when the patient feels they are the ONLY urgent person in a world of super-slo-mo everyone else..... forgotten followups, stupid hurdles, results that take eons to get back, the times you want to call and remind them, but yet you don't want to be a pest, so you don't (but should have cuz you finally have to), all the anxiety of having to watch your own back in a thousand-step process, the right and left hands often clueless to one another's duties (making sure imaging goes to right doc, duh).....meanwhile the patient is trying to be a "good patient" until said patient's melt down finally solves log jam.... Oh yes while puking, power-sleeping, food-averse, and having 22% of brain bandwidth of normal and 5%of the RBCs.... ARRRGHH.
Snooky -- all of us feel you on the intense frustration of unnecessary delay!
I wonder if you could use some powdered fenben in something inert like Bee Magic and put it on your skin? There is also another topical thing, discussed above used on melanoma I think, that is escaping me again?
You're almost back in the treatment saddle and that will feel a lot better! And you can appeal to have the out of pocket reimbursed. This too shall pass.
xox
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Frisky I think rashes can happen when the body detoxifies. Maybe your liver needed help and recruited your skin.
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I hope you're right Santa...I hope that's what it is....
meanwhile to help clear the situation up I've been indulging in 71% French Valrhona dark chocolate...when I go they will find squares of dark chocolate in my hands....under the pillows and in my night table....
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Thanks girls for jumping In to comfort me. Love those hugs. The thing is....last 5 days I'd been hitting it hard since I was off treatment and didn't have to worry about any interactions. Fenbez twice daily, Massive amounts of trans glutens, L-lysine, serrapeptase and anything else I had here to rise my white blood cells to attack. And it seemed like I felt it working. And again, I had biofilm die off from intestines. I was tired but just plain old tired not the drug induced fatigue which feels different. I thought I was making progress cause I felt different in an unexplainable way. Felt like myself, clear headed, no depression.
Just so you know....I'm not quitting fenben. Guess today's events just surprised me. And Frisky, I at first thought the same as you, that the treatment was working and it was breaking them down. And maybe it is, I don't know.
Ok..When I had nodules before, the taxol turned them rock hard. The onc said don't itch it. Well one day I did accidently hit one and off it fell. There was nothing underneath. So....I tried gently moving another one, it too feel off easily with no pain, blood nothing. SO I removed them all. The largest one was strange looking LOL Imagine a wasp's nest that's what it looked like. It was the same color with all those little holes inside of it. Under this one was just a couple very small bumps.
This seepage Is odd looking. A slightly yellow looking small drop. Several are circling all the nodules. But it does not drip, it dries up. And the seepage started overnight on all of them.
I put some baking soda/water on the nodules and it stopped the burning. When I saw it this morning, I had a positive feeling about it. It was just the insurance issue that got me all worked up..
Feeling much better now.. I really feel it's going to be ok. Just wish feeling good wasn't so difficult.
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I think there is treatment for increased bilirubin itching. Just to keep in mind if it does not go, sudden onset and it coinciding with no patches hint at fentanyl specially if otherwise you feel similar to how you felt before.
Chocolate is all right , I have visions of me dying on WC with my pants down 😧.
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Snooky glad you are feeling better. I am so sorry for what you are experiencing gosh how stressful.
I was thinking the same thing Santa said about putting it on topically or what about putting some bennonite clay on topically?
I also read about a woman that took fenben and had mets (I cannot remember where first) but also had them in her liver and the first ones went away but the liver seemed to be getting worse..Joe told her to start taking the fenben everyday and she did and then they cleared up to. I read this the other day on his blog way down in the comments I believe. Maybe you want to do everyday?
I am praying and believing that all this is a sign the fenben is working!!!!!
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Glad to hear the particularly down moment was not that long lived.
I may say obvious thing but obvious things are often forgotten - it is normal that we feel down often. Let alone when having to deal with issues of coverage- that one is stressful for healthy people to deal with let alone someone in our position as one feels against the system on which one depends , it is super stressful.
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Anotherone, totally get what you are saying. Positive reinforcement to what we know. And you are right about doing it alone. I live alone also even though I have three son's who would show-up in a New York minute if I called. But still, like you've insinuated they would not get it.
Nichole, That's a good idea. I have clay here too. But right now there's no burning nor itching so I'll keep that idea In my back pocket.
Although I'm not the type to make lemonades out of lemons lol I've thought of two positives
A) Since the cancer is clearly visible we can use it to see if the Zeloda is working way before 3 mo scans
I asked for and was refused the one week on one week off schedule. Looks like I might just get it!0 -
Snooky now that you painted a vivid picture, my bet is these nodules are coming off all of them...the big one will slowly break apart till it scabs and when the scab falls off...you'll find new healthy skin under it...I see it as your immune system kicking ass...pardon the expression. All you have to do is keep the area as clean and dry as possible...and keep on taking antioxidants while you're off madame X.
Let's all meditate on this possibility: what if by the time you actually get the pills.....
You don't need them anymore!
That's what I'm projecting right now...you go Snooky, you kick those nodules to the curb once and for all!
Freedom....freedom at last
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OMG Snooky, nobody deserves to suffer such a stressful odyssey for their medication! I understand you, here in my country is the same, it really tests anyone's patience. I also think you're kicking those nodules. The remedy that Santa did not remember is diclofenac cream. That is what Husband applies to the stain on his skin.
We all got this. Good night and hugs to you all, ladies
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Slept for only 4 hrs. Been sitting here drinking coffee. I know not good. Used to be a huge coffee drinker but knocked it back to a couple cups in morning only. Right now it's my comfort food.
Found out that this miss-up is my fault. During June and July when I was telling docs that taxol had thrown me into a huge depression and I wasn't taking care of anything.....well, during that time I'd been mailed various forms in the mail from Medicare that should've been filled out. I'd thrown all mail into a box. Found it all unopened last night as I was trying to figure out how all of this happened. So, when I go to the ONc's pharmacist this A.M I'm taking everything with me and see if she can tell me what, if anything, can be done quickly to turn this around.
Wish me luck and pray for me. I'll let you know later on this morning how it goes.
Big HUGS to all of you
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I am not sure coffee is bad actually (in modest quantities of course which a couple of cups seem to be)
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Snooky I hope you get the help you need this morning to straighten the whole situation out. I too set things aside...it’s due to our depleted adrenals that are no longer able to cope with the unceasing issues that keep on coming up. If you can, take some ashwagandha.
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Frisky, I have not had any itching, but never had those patches. I did have horrible itching when I was on a higher dose of Xeloda. I hope you get it figured out. Do you have a rash too? Maybe some aloe or benedryl?
Oh Snooky, what a mess, I'm so sorry. That price they gave you is actually very cheap. I pay nothing for mine. They have assistance for it, but I can't think of what it's called. I'll see if I can find that information. Usually the pills are 500 mg ea. I take 5 a day for 2 weeks. How many will you be on? And if you want to do 7/7 then try it. It's YOUR body, it's YOUR choice. Lots of gals are doing the 7/7. Amazing that those nasty things came off. Praying they stay off as well. Oh no on the unoopened mail. I did that too, but thought they took care of it at the doctors office, it wasn't my medicare, but the assistance program I was on.
Sonia, how are those headaches?
Thank you all for the compliments. We went to a movie opening that Darby was in, and there was a scene that he didn't have a shirt on. looking really good I might add!!! I need to go back and delete some pics and such that are way off topic. Such as the issue with my daughter, and personal pictures. Wising you all a good day. Sending love and huggles to everyone.
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no rash Goldie...just random itching here and there...it's diminishing which leads to believe it was part of the fentanyl withdrawal symptoms...it's funny, it's 10 days I'm without the patch, and now I'm starting to feel the pain it was relieving....I had gotten so used to it, I couldn't tell anymore what good it was doing....if ithe pain continues, I'm gonna have to use it again....but I would rather not....
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Snooky, good luck getting the red tape sorted out. So frustrating. We should not have treatment delays due to red tape.
One of the meds used for skin cancer is topical flourouracil/5-FU (same drug as Xeloda, although Xeloda is in an unactivated form that activates when it comes into contact with certain liver enzymes). My DH used it on a pre-cancerous lesion on his nose. Perhaps if need be, you could get a tube of that, which is probably less expensive than Xeloda and will last for a long time.
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Good Morning everyone! Although I had intended to come on forum yesterday, I had nothing left to give. Forced myself to stay up to 730 so I could take the pills and then I fell into a much needed deep 8 hr sleep.
Goldie-- I'm on 1500 twice a day. I paid 240 for two weeks worth. This isn't a "co pay" the insurance would pay nothing. So I bought them outright at the pharmacy's price! They graciously let me do this for one cycle's worth.
Yesterday was a nightmare. I was at the doctors for 4 hrs while two different departments made phone calls trying to get Medicare straightened out. They couldn't. They did manage to get me a 4000 grant BUT it only pays out-of -pocket co-pays Since I don't have insurance that will cover the medicine I don't have co-pays , I have 'I" pay the whole damn thing right now. But, this is just something to get through, Build character, huh? Yea...MRI scans scheduled for this Fri. are in jeopardy since I don't know if Medicare Part A will pay.
Just driving the twenty miles home after being at the Onc since 7am didn't go well. Drove into a massive thunderstorm, 60 mile an hour winds, almost zero visibility on a two lane highway with hail plummeting the car. I was asking what's next God? Got home totally soaked and shivering. I grabbed a sandwich, shucked off the clothing, crawled into bed wrapped in the warm covers and fell immediately asleep. It was way too late to take the morning first does of the capecitabine. I spent the afternoon on the phone talking to one stupid person after another. I stopped trying finally, I have no patience for stupidity. Current plan is to go to local SS office and get them to figure it out. That's there job, right?
I will go to a town of 150,000 inhabitants and the local SS office is only open from 9-noon on Wednesdays. What? Is the government that broke?
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For the good news. I planned my first dose at 7pm and since my stomach was already upset from stress, I did the brat diet for supper. I took a Zofran anti-nausea pill left over from chemo. And had Imodium on hand. But I did not take all three pills last night as my system was way too stressed and so I just took 2 pills, 1000mg. It was uneventful.
Yes Frisky, I took the Ashwagandha. But no Fenben yesterday since I'd done 5days in a row. I took two Milk thistle since I read on the Zeloda thread that it helps with HFS. Not sure which supplement that I should take today. Damn chocolate sounds good! I've purchased the memory form shoes, different creams and I've read all the advice that you've given on the Zelodax thread. So I'm ready for any event. My onc said that if my hands start to crease or turn a red or yellow color to call her ASAP. She said I'd much rather have you stop the meds for a couple of days than letting HFS get worse and you need to be off for a week.
Just thinking about yesterday is stressful so I'm going to leave it at this.
JFL-- I asked my ONC about that cream. She said you don't want that. It will break the nodules open, get crusty etc.
Hope all of you are coping well and I thank GOD daily that you're all my friends who care.
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