Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Snooky hope your next trip to SS gets everything settled. Just FYI I believe every SS office in every state has always had 1 half day. Or at least I know 5 years ago here in NY they did and 4 years ago in Texas and VA they did too. My friend in CA (near City of Hope) said they always had 1 half day as well. I think thats the way they have always been.
Praying this gets resolved quickly for you.
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For those who use supplement here's some links.
Human studies on b12 levels and cancer
https://www.sciencedirect.com/.../pii/S1877782115002854--------------
https://journals.lww.com/.../Effect_of_vitamin_B...Thanks for info Nichole... I did not know that.
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Oh gosh Snooky, what an ordeal you are going through. Damned government and damned insurance companies. As far as the xeloda, I take 2 in the morning and 3 in the afternoon. Usually about 10 hours apart. I can't do 12, especially since you have to eat. I hope you get everything straightend out.
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Snooky I'm so sorry you're experiencing unnecessary stress. Our health care system really sucks! I dread turning 65 and having deal with Medicare...my hope is that FZ would have worked by then.
I do wish the same for you and all the other courageous women on this board, that we are all made whole again, and no longer have to cope with these type nightmare scenarios....
Last night, I couldn't cope with my lower back pain anymore, and put on a fentanyl patch. For the record, it took 10 days for my body to clear a drug that's supposed to works for 72 hours. My body was so saturated, I could no longer tell how effective it was...now I know...I will not try living without it again.
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sorry to hear about your pain frisky. Re Medicare- additional motivation to get better
. Interesting to know re fentanyl, who knows when this info may be useful to me, I better store all the info possible..0 -
just popping in as a lurker here to give hugs and love to everyone.
Snooky I Hope today is a better day for you. I’m glad you are resting so much. Sounds like your MO is on top of SEs for you, which is so good. I don’t think my MO would be so “aware” that he’d give me these precautions. He’s more of a “wait and see what pops up and then deal with it” kinda guy. I wish he would rather hand me a list of things to potentially prepare for with the medications and how to deal with them, if they occur. Would make it a LOT less scary moving along.
Frisky glad you have the patch and I hope it helps your back! Pain is the worst, can really bring one down mentally. I hope the fentynal gets it under control. I finally gave in to taking naproxen every day to try and calm all the joint inflammation in my body. I am finally understanding the importance of getting on top of the pain cycle before it explodes and becomes difficult to manage. I also know that it sounds like you are in much more severe pain hence the meds you are using. Does the patch work well locally? Do you get the opiate effect from it systemically or is it working locally only?
I am continuously hoping and sending love to you all using the fenben. It would be super duper fantastic if it works!!!!
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Snooky,
I'm sorry you are having so many issues with medicare. I hope you get a better response going into the office.
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lovefromphilly...the fentanyl works systemically, and at 25mg it's very subtle....for the past four years, I kept on thinking that it wasn't doing much because I would feel pain when I was more active than usual.
Going on vacation, and being forced to do without it, didn't change my pain level initially, I was just restless, sleepless, and experiencing pruritous which I attributed initially to the lesions in my liver.
But, since I've been back, I've experienced pain in my lower back, right when I get up in the morning. Yesterday, I returned home in pain, after my usual walk around the neighborhood....so last night I put a patch on and I'm starting to feel better
I have not suffered from SE, and I didn't think it was addictive since a few times I would forget to change the patch....I hope this helps youmake a decision. Let me know if you need further information
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Ladies, I send good wishes of healing to you all. I have my own mess here, but even if I don't post much, I wanted you to know that I think of you. Big HUGS ❤
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Snooky, I dont know whether you can get your rx transferred to a major pharmacy chain but you might try to see if you can use a coupon from this site. When we didnt have insurance yet and had to pay everything out of pocket, we used this site a lot and got good deals. If you insert your location, you will see what chain around you offers the best discount.
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Sonia, we too wish you well. when you're ready, please don't hesitate to share what's going on with you...were here for you! Maybe can help. Are you still undergoing radiation therapy
Look how Daniel had information that might help Snooky get her medication.
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From Dr Axe...Disarming cancer.. I'm still trying to digest this.
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MCP - I took it prior to surgery as it also reduces metastases. I am going back on it because I just saw evidence about prostate cancer being very susceptible to it and my AR+ TNBC next drug might have been xtandi, prostate cancer drug, off label... so going back on it. brand name Pecta-Sol
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thank you Snooky and Santa for adding another natural supplement to our cancer killing arsenal...
These days, I use this delicious red tea I make with a product from TJoes and add to it quercetin powder, vitamin C crystals, potassium citrate and resveratrol. I can add the petca-sol to that....easy...
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Frisky, Thanks for your support. I appreciate it! I haven't started the real radiation yet. The other day was just my first appointment with the RO. Silly of me, I thought everything was going to start that day! Yesterday I had my CT and tatoos. I had a hard time getting the right arm position. Now waiting again...
My life is a completely disaster right now. My mother's dementia seems to be progressing and she is getting complicated with other health problems. My father has problems with drinking, so it's another concern for me. My ex-partner (I separated a month before my dx) crashed my car (full destruccion) so I am dealing with all the insurance paperwork ... My house seems to be against me (things that break, pipes that begin to drip etc)
Obviously I'm not working, my brother gives me financial help.
But worst of all, I feel physically weak ... I don't know but I think my kidneys have not recovered from the chemo... I'm very tired, I have fluid retention, I can't stand the cold, I have palpitations, my tongue is white ... all those symptoms are the same I had years ago when I suffered from kidney failure. I'm scared... Sorry to say all this, it has no relation to the thread.
I have tried 3 days of FZ and again I have neuropathy, so I will leave that protocol on hold.In a few days I will go back in the thread and clean some messages of mine so that the new ones do not have to read so much about things that do not correspond to the topic. I keep reading your posts, but sometimes I don't intervene because I don't know what to say and I feel bad when any of you feel bad.
Hugs to you all
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Sonia, please don't delete anything....we are here present for each other through thick and thin...
I'm so sorry you're experiencing all these problems. You must be feeling overwhelmed by your parents care taking, plus your own health issues. Do you have siblings that can help care for your parents while you undergo the radiation therapy? Perhaps a relative?
It's obvious you are stressed out, and need to just take care of yourself for a change. Is your doctor aware of the problem you’re having with your kidneys? Do you have medications that can help you?
I'm really worried about you Sonia. I do hope and will pray that you get the support and help that you need to see you through this rough patch.
Much love....
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yndorian , that is not just a lot but heaps of a lot to deal with. Hope you will see someone with regards to kidneys , of course you are scared. I feel for you not being able to relay on state for financial support - that is another whole layer of problem that we take for granted not having.
House issues when things break can get me down even without cancer , kidney failure, not working and not having income and not having gone through separation !
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Oh dear Sonia, I can't express how sorry I am that you have to go through all of this. Having dealt with depression and stressful situations most of my adult life, I do know this. As Frisky said, take care of yourself first. And don't let all the different problems build up in your mind or your body will shut down when it cannot handle more stress.
Make a plan and work on one problem/issue at a time, all the while asking Jesus to help you figure it out. Step by step is the way to handle this. Deal with most important issue first and then leave the rest for later if possible.
You're afraid your kidneys are shutting down...so, what can you do to alleviate that fear? Whatever tests you need get them done. And then that issue will be solved.
Weakness, dizziness, fatigue.....are you eating? You're an expert on supplements are you taking things to help your mental well being? White tongue....is it thrush? Because if your systemic fungus infestation is back, it can cause a lot of the systems you're mentioned. And don't discount die-off from taking the fenben. All that toxicity in your system can really mess with your emotions.
When I first meet you on these boards in the Taxol forum, I meet a very strong, confident, determined and very caring women. At your core Sonia, that is who you are. You're just tired right now. Trust yourself and trust Jesus to help you through all of this. Medicate or read the bible, listen to opera, whatever works for you to ease the stress.
I'm praying that God sends his angles to comfort you
HUGS and Love
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yndorian (((((((hugs))))) do not delete any posts we all NEED to vent and we all do not mind listening. You need to be able to do that here thats what we all are here for. It's hard ...I know I feel like sometimes venting here and telling all of you what's going wrong in my life (besides cancer) just feels so much better than telling people that are at my home in my personal life. I feel like they don't understand fully that we have not only the regular "life problems" that pop up but we have Stage IV cancer on top of that and that has it's own set of problems and SE's as you know.
I am so sorry about all the issues you are facing. House problems and repairs and car repairs can be so stressful and you know the saying ... "when it rains it pours"...it just like you are having to deal with everything all at once. That just stinks!!!!
I just prayed for you. For the Lord to give you strength to see these issues through and for the Lord to lead you to the right medical professional to diagnose any issue that may be wrong with your kidneys.
Please vent away. Take a deep breath, cry if you want to....just know that we are all here for you.(((((hugs))))
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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC49725...
It might have been posted already - it's about loratidine (claritine)
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Oh, dear Yndorian, big hugs from me!!! Take care first for the kidney problem. Radiation can wait, financial issues you are going to solve when you step on your feet. We are so far away, I wish I could be closer and help you at least with one thing. You are wonderful, are strong and you are going to be ok
Much love
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Anotherone,
Interesting article and I hadn't seen it before. in the Jane McLelland "metro map" in which she outlines the various pathways that cancer can go to, she suggests the use of loratadine to prevent one of the glutamine pathways.
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I have seen a complementary therapy doctor ( she used to work in respiratory medicine as a doctor so she is a doctor ) - she given me a list of supplements similar to what Jane had in the book and advised propranolol, claritin , dipiridamol , hydroxyquinine, naltrexone , melatonine (apart from metformin mebendazole and statin I am already taking) as repurposed medicines.
I am not going to do all of them as I feel I am rattling already with all the pills...
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Anotherone,
Yes, I have the McLelland book and have been trying out some of her stuff but I cannot deal with all of it -- like you, it's just too many things to take, in addition to the omeprazole, BP meds, thyroid meds, and other stuff I already take for other "afflictions." It does get a little bit crazy for sure! Interesting that your complementary therapy doc specified Claritin -- loratadine is the generic for that. Did she specifically tell you to use the Claritin formulation?
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What dosage of loratadine is used?
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she actually used the term "loratidine " , it was me who referred to it as claritin. Yes it does come under glutamine(or glutamate?) pathway in my doctors lost. What is even more interesting is that pathway is subdivided further in steps and the doctor stressed the steps most relevant for metastatic disease to be the ones resulting in autophagy - macropinocytosis and sequestration of nucleotides or something like that. It is for those specific steps that claritin was recommended. Other disruptors of them are berberin, curcumin, dipiridamole and dihydroquinone.
Dosage was unknown in the Dutch study but as those were normal people taking it for normal issues ( not in a study) I assume it was in the usual dosage for allergy - ie 10 mg tablet daily. I have read elsewhere that either content of it in the blood or effect was not dose related from 10 to 40 mg so one may as well use 10. If anybody has any further info please share.
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Husband,
That's my one problem with the McLelland book and protocol -- I'm still working my way through the book, but I don't see specific references to particular dosages. So I am just taking the standard dosage that Anotherone mentioned above. Inasmuch as I have mild environmental allergies anyway, and live with two dogs, I am always stuffed up and so the loratadine helps with that as well.
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This might apply to the above conversation, I don't know. When I was on Taxol chemo I read a paper that said Celebrex was a COX2 inhabitor. The research paper said that it made Taxol "work better" ( sorry don't know the right terms) I asked my ONC to prescribe the Celebrex, she declined. But she said that Claritan was also a COX2 inhabitor and if I wanted to I could take that once a day. She said that you must take it with food for it to be effective. She said that ibuprofen is also a COX2 inhabitor.
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Geesh, this thread is just too quiet! I miss all of you. Wanted to share that after making phone calls for the last 4 days non stop, My iPhone is smoking!' I finally reached a department of Medicare that can help. In addition, since I am on limited income, the State's financial aide department seems to think that they can pick up the cost of the Zeloda. I will find out more in the morning when Medicare calls me back. THey promised they'd call in 24 hours which will end at 1030 in the am. tomorrow.
In addition, (remember no treatment from July 15th till I started Zeloda this past Tues., my tumor markers are pretty much holding steady!!!!
CA 15-3 July 29 was 17.6
CA 15-3 on Aug 12 was 19.5
My Ct and Bone scan on Aug 8th mentioned "tumor flare" and inflammation in my breast so that explains the slight increase. I can only think that Fenben has been working!
Praise GOd.
And also, Zeloda has been good to me so far. NO SE's ...I know I know, lol only been on it 48hrs. But I'll take it.
Good night ladies
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Snooky, 48 hours without SEs are better than 48 hours with them for sure !
Yes any NSAIDs ( non steroidal antiinflamatory) apart from paracetamol are COX 2 inhibitors - I am not sure loratidine's action was via COX though.
BevJen, there must be reference for doses if you look up any in vivo studies or case reports online.
Melatonin for example was recommended between 10 and 20 mg/day , so is propranolol(said better 20 for both of them). Metformin I am taking 1000 mg daily and statin 80. Mebendazol 100 mg - standard chewing tablet dose for dewarming.
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