Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Anotherone,
Thanks for info about dosages. I was referring specifically to the Jane McLelland book, which I find a little bit difficult to follow. Near the end of the book (which I admit I flipped to first) she provides her "metro map" for different pathways that cancer takes. There, and in the following pages, she seems to indicate which things are best to take to block the various pathways, but doesn't say the dosages -- at least that I can find. So I will look around and see what some of the other recommended dosages are.
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she may not know herself.. may be some legal issues with indicating dosages. I am not sure there are any commonly accepted dosages anyway as it is very much an experiment so one does one's research or finds a provider who has certain protocol..
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Supreme Court Justice Ruth Bader Ginsburg undergoes cancer treatment for pancreatic tumor
I wish, we had a way to inform this woman of the FZ protocol....she has no chance otherwise!
Such a great human being....
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Frisky, What is not understood about RGBs pancreatic cancer is that it was fortunately caught very early, before it had spread- they discovered the mass when she was getting a scan for colon cancer, which she had some years earlier- they removed the pancreatic tumor surgically and most of it was benign, but underneath were some transformed pancreatic cancer cells. But they got it all and she's been fine for a decade (even tho some jerk in Congress at the time predicted she's be dead in a year.) I presume the photos they published today were just her going in for checkup scans...
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Crap!! She is such a survivor, the pancreatic cancer came back after all this time?!!
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Anotherone thanks for the info on the meds! Hope things work for you and you tolerate all of it with little to no SE's
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Ref: Claritan...I don't think that worked in my case in preventing Metastasis as I have been taking Claritan D almost every day for years....
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Nicole, now that you say that, I am realizing I spent many, many years on claritin and it didn't stop me from developing mets either. I switched over to zyrtec a few years ago (for allergies).
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For the sake of knowledge ....Claritin blocks only one of the 16 variations that are part of the three major pathways that cancer uses to advance which are: the glycolic, glutamine, and fatty acids. So if fifth ave is blocked and The cancer cells can't get to their Starbucks in the morning to get their danish....they will go to eight ave and use the diner there and have a cheese sandwich, if that's blocked, they'll go somewhere else and have a steak....and so on and so on...if all the feeding grounds—pathways—are blocked AT THE SAME TIME they won't be able to function well, they are starved, weakened, and can therefore succumb to low-dose chemotherapy which delivers the coup de gras....
the current war on cancer is a lost one because chemotherapy will kill us before it kills cancer stem cells...Somehow, they have learned to survive and metastasize...FZ can kill stem cancer cells also....but don't take my words for it, read the story for yourself told by the people that survived and are alive today. It's useful knowledge, considering our odds....
So far, the metabolic approach has saved more lives of stage 4 pancreatic and small cell lung cancer patients—for example— than in the past 100 years with conventional therapies, where the survival rates are zero....
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Daniel....Thank you so very much for that information. They have deep discounts. Very good to know because as of now, Sat., I still have no resolution from Medicare
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Snooky what the heck, how can Medicare not cover Xeloda? That's scary and ridiculous at the same time! I hope you get it resolved. What part of causing undue stress to a sick person they don't understand?
This country is so third world when it comes to basic human rights...maybe they've figured that considering how sick we all are, and how much they are poisoning us with their processed and contaminated foods, toxic drinking water and polluted air, the gov would go broke if they provided the quality health care the rest of the developed world takes for granted
Let's face it's not coincidence that the majority of people gets sick when they are no longer useful to our utilitarian system.
The truth is one in two Americans will be diagnosed with cancer in their lifetime, the other half simply have not gotten a pet scan yet...SADDDDD....
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Snooky,
I don't know the whole situation with your Medicare stuff -- in your original posting about this it sounded like you may have missed your statutory deadline for signing up -- they are pretty strict on that, and if that's the case, you may have to wait until the next open season, which will be around October 1 for 2020 coverage, I believe.
I do, however, listen to Sirius radio (this is not a plug) and there is a very interesting program on there called Healthcare Connect. It is run by this guy, Andrew Rubin, who is not a doctor but who figures all of this insurance stuff out for NYU, from what I understand. People call in there ALL the time with complicated Medicare questions. He also supposedly answers email questions from people if they are addressed to him through twitter -- he also has a website but I just looked at it and it's temporarily down -- it may be because he just got back from vacation, but I don't know. You can still reach him via email through Sirius radio.
In any event, google Rubin Health and/or Andrew Rubin, and perhaps he and his team can help you with your issues. They seem to be very good at what they do.
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BevJen--- That is exactly what happened. I did not know that when you turn 65 you HAD to apply for Medicare. The sign in period was Jan thru March of this year. (for my age) So,, I did not sign up till this past June. So, I only got Part A which is mostly hospitalization. I am automatically enrolled in 2020 to take effect in July of2020.
Now, since I've been disabled and low income I've had to live off of SSI and Medicaid for the last several years. In June of this year, I applied for and received SSD off my ex's claim (married thirty years, he met someone off the internet and off he went) The SSI office "told me that I could buy into Medicare Part B and that they would send me the papers. I filled in papers and in return I received Medicare Part D which is prescription drugs. Part D will not pay for Zeloda because it's a Chemo drug. (Part B would have} But I don't have Part B. THey sent wrong papers apparently Buying into Part D was a huge mistake it would seem.
Meanwhile, I have Medicare primary and Medicaid as secondary. ( Monthly income is just 1100 per mo) Since I'm low income I receive both. But Medicaid WILL Not cover it since I have Medicare. Medicare told me whomever told me that I could buy into Part B was incorrect. Part B also covers dr visits and all the blood work etc. I've to find out if I am covered for any of that!
My state seems to have many different regional divisions of Medicaid. On Thurs I spoke with a women (from Medicaid) who was willing to delve into the system for me. She and her supervisor told me there is a program for situations such as mine and gave me a different number to call to talk within the correct division of Medicare. I called but only got as far as the Cus Service Rep. She took all my info and talked to someone in her office and ASSURED me that I would be called back in 24 hours. She called me late Fri to make sure I received the call back. When she found out that I did not she was furious and said she'd make sure that someone would call before they closed on Friday. No one called.
The plan was to talk to a person in this division of Medicare and ask specific questions which this representative and her supervisor (from Medicaid) needed to know to untie the states hands so they could step in and cover it. So the state's been waiting for me to call them back since early Thurs morning.
Meanwhile my ONC"s office keeps telling me it's vital that I have Part B as if they think/know that it's possible.
I've lost the love, support and family connection of several of my siblings over this info that I'm sharing. They are all about self effecticy…."if you can walk, you can work" attitude. To them, I'm one of Hillary's deplorables. My family is the preverbal Family God and Guns that you read about. (this does not include my children)
So, that's my story
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snooky that sucks. And that kind of dynamic is VERY fear based and narcissistic. I am sorry your family members are not coming through for you. It is NOT your fault. HUGS
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Snooky,
So sorry to hear all of this. In the best of situations, Medicare is complicated. But when you are facing all of what you faced, it's even more complicated.
Again, I would google the people I told you about. They seem to have all of the answers. You can also look at medicare.gov, which has a TON of information (not all of it neatly arranged, but it's probably all there). I don't know anything about the interaction between Medicare and Medicaid; hopefully that will get cleared up once you talk with the people you mentioned in your post. I would start with them and see if they can help you out.
Any drug that can be infused/injected in a doc's office -- example for me -- faslodex -- falls under Part B of Medicare. I don't think it's a bad thing that you've got Part D -- any pill that you could have to take would be covered by that, presumably.
Also, remember what I said in my last post: you can STILL sign up for Part B during open season this fall -- but it won't take effect until January 1 for the 2020 year. If you miss the original signup period, you can still sign up -- but they penalize you a bit in what it costs bc you still have to pay for Part B. It seems that what you want is Part A, Part B, and Part D.
If they understand the situation, I would push my MO's office to help me out. They should have someone who could call around for you to help you.
Good luck. Missing the Medicare deadlines happens for all sorts of reasons, not just having an illness. My good friend's husband missed his signup window for a couple of years, and he's not sick or disabled. So it happens -- don't beat yourself up about it.
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BevJen you are so awesome!! I love that you take the time to post such useful, helpful stuff for us. I know you do it for me often. ((((hugs))))
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Santa, I totally understand all of that. And I bare none of them a grudge or ill-will. One fears what they do not understand and there is no way that they could understand my life unless they've lived it. And I wouldn't wish that on anyone.
I was born an innocent baby like everyone. My parents were very strict and delved out punishment that today would land them in jail. My first period of confusion was Catholicism . In grade school, I was taught certain ways that God wanted us to act. Yet at home, my drunken parents practiced none of it. And although us kids went to Mass every Sunday, my parents did not. Confusion.
I had a speech deformity as a child and when I spoke my words were not well understood. I was a constant source of amusement and bullying in grade school. And at home. My parents laughed at me too and at parties had me recite poems and such for the extended relations. Of course, they could not understand me. More laughter.
All of this I've always remembered. What I did not remember was the sexual child abuse by the hands of my great uncle. When, I had my first panic attack in my mid-twenties, memories were trying to surface. Instead of the "shrinks" trying talk therapy, I was given Valium and strong anti depressants. Which of course did not work for me. So I've lived a life of depression, panic attacks and extreme OCD for over 40 years. It's impossible to quit taking these drugs now. I've tried , more than once.
When my ex left 19 years ago, I decided to find out why I was so different from everyone. What was it that I feared so much. I noticed that my grandmother and my aunts were all spitting imagines of each other behaviorally. After talking with my cousins, I found out about my perverted great Uncle. (I had had suspicions, but was not sure) Sure enough, my cousins had all been sexually abused by this man. Not only that, but it went up a generation. My mom, my Aunts had all been assaulted. And more than likely...my Grandmother, who was his sister. But, no one talked about it. This monster not only abused us little girls but my boy cousins also. (possibly my little brother) And me too.
But since there's better living through drugs, none of the dozens of professionals that I went to bothered to talk to me. It's bio-chemical they said, lets up your meds. They made me no longer depressed but unable to feel good emotions either. (anti-depressants have been called a lobotomy in a bottle) My main reason for so much distrust of doctors.
But good did come of it....since I had hated my parents parenting skills so much, I raised my three boys differently. I never ever spanked them. I always sat them down and explained why their actions were not acceptable. They behaved because they loved me. The difference between them and their cousins is remarkable. I thank God daily that he gave me the Wisdom to know this.
Since I spent so much time alone (couldn't leave the house) that left me plenty of time to read and study and develop my mind and thinking skills. I've came to the conclusion that my siblings and my cousins are a lot more disabled than I am. They cannot think for themselves. They do not know how. But they scare me now. The way they talk about this country. There is a huge undercurrent from them and others of their breed that are armed and ready for a civil war to break out in the US.
Anyway, I'm telling all of this for my friends on this thread. My way of speaking out for Mental Health Awareness. I'm sure this will get deleted in a few days.
HUGS and LOVE
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wow snooky, my hat off to you for surviving all this and having children you are proud off. It is humbling to realise how easy my life was compared to some others. Hugs from a fellow metster.
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Snooky thank you for sharing your story with us....you don't have to delete it, unless you want to....we heal by understanding and no longer being ashamed of what happened to us. I too had a tough childhood, and didn't realize it until much, much later in life.
Your share, will encourage other women to open up. It's a powerful form of healing.
You are a very courageous, strong, and wise woman and we all made better for knowing you
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snooky it is right to speak the truth-- it is freeing and it helps others. Bravo to you for not passing it on!!
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Snooky, I'm so sorry for what you and other members of your family have had to deal with, then and now...Hugs.
My labs are done and I will need to look at them in my portal, could have looked yesterday, but it always scares me. MO tomorrow, my husband is going with and we are spending the night in Phoenix. Our internet has been down, so we are having to use hot spots from our phone and end up buying more data. Hoping to have it resolved by mid week.
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Well chit, my TM's are up yet again. I will however continue with the FZ, but if the numbers go down, I will not know if it's new drug or the FZ, that's the sucky part!
CA 15-3 should be less than 30, I'm up to 506
CA 27.29 should be less than 37, I'm up to 563
CEA should be less than 3.4, I'm at 18.9
MO will probably want me to start something else. Verzineo (sp) with Faslodex I believe.
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Goldie, sorry your TM's went up maybe bad cells are dying off? I am glad you no longer have that fever though and can continue with the FZ!
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New research on Lumpies page concerning breast cancer and diabetics.
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Also, at my cancer rocks...Joe's BD day is coming up. Adorable pics of his grandchild when he was super young and Joe and the toddler now. You can see the love in Joe's face for this young man. Perhaps his determination to live to see his grandchild helped him in his fight.
Goldie, So sorry about your news. Maybe you won't have to leave Zeloda. I'm on 6th day and no SE's until today. And that is minor, a bit of weakness and dizziness. No biggie. My script is written for 3000 per day. But since the last couple of months have been so stressful, I started at just 2000 per day. And I'm going to do it 7 / 7, instead of 14/7. That's because a very wise and beautiful lady told me a story about Captains and their Ships. Bless you, Goldie
HUGS
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This is from Joe's page. This poster seems to be on the cutting edge of the research. God Bless him for all of his posting. I do not understand the following article except to get the concept that it is important
Jeff Boatwright research this aspect (seems as though some cancers have unfavorable outcomes in part due to the type of GLUT proteins and enzymes. I have not yet read if they have study on which GLUT transporters and which enzymes fenbendazole is able to reduce, possibly it doesn't work on all kinds and another explanation of why it might be ineffective for some peoples cancers. https://onlinelibrary.wiley.com/doi/full/10.1002/jcp.20166=================\
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To all of you that have accepted me as I am, and encouraged and applauded my telling of my childhood, I thank you from the bottom of my heart. Although, I feel vulnerable, open, exposed I also feel release. This is the first place that I've told my childhood situation in detail. My children do not know and I can think of no good reason to share it with them. Lol. They simply that that I'm an introvert, and a hermit and that's fine with me.
I have tried suble questions with my siblings to encourage them to talk. They shut me down. They have no desire to drudge up memories from their past. And I understand that. For them perhaps it's better to let sleeping dogs lay.
Frisky, I wasn't all that young when I started figuring these things out. I started my detective work when 50 and it's come in bits and pieces. But I am convinced that emotional trauma does lead to cancer. It's vital, IMHO, to get these issues to the surface where they can be healed with Love and Forgiveness on my part, then I gave the rest to my Lord Jesus, the great Healer.
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BevJen. You said " If you miss the original signup period, you can still sign up -- but they penalize you a bit in what it costs bc you still have to pay for Part B. It seems that what you want is Part A, Part B, and Part D."
This is also what I heard this past June, that I could "buy into" part B. But now I can find no one to tell me how to do it.
I did check out the source that you mentioned. Their webpage is still down but I did find their facebook site. HOPEFULLY, since it's Mon I will get the call that I've been waiting for from Medicare.
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Snooky,
It's not really "buy into" -- if you miss you initial sign up window (which revolves around your 65th birthday -- I think it's three months before and a bit of time after) -- then you have to sign up as part of the open signup window that occurs each year with Medicare.
I just pulled this from the internet:
"The annual Medicare Open Enrollment period begins on October 15 and continues until December 7. For 2020 coverage, open enrollment will run from October 15, 2019, to December 7, 2019. During the annual enrollment period (AEP) you can make changes to various aspects of your coverage."
So you've got to sign up during that period, and your coverage will start effective Jan. 1 2020. You don't have to go anywhere to sign up -- you can sign up online.
Also go and look at this (it's the official government website):
https://www.medicare.gov/sign-up-change-plans/how-...
I know it's complicated. But if you slowly go through medicare.gov, all of the information that you need is there. Hope this helps. And hopefully they will call you today as well and walk you through the process.
Bev
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Snooky thanks for the post from Jeff he's the guy I have been emailing with (since I do not have facebook) I got his name and messaged him through facebook on a close family friends account. He's really nice and smart.
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snooky , it is easier in the anonymity of internet specially amongst people suffering from life threatening ilness which puts everything else un the perspective. I have a few moments in my history the details of which nobody knows and the outline know only one or two people. I am sure many are in the same boat. Re siblings - no point in trying to discuss with them, I agree. You may want to give it another thought at some point re your children. Knowing it would help them with their identity, ie they are no longer will be children of a hermit but they will be children of someone for whom seclusion was one of the ways of dealing with a major issue.
Re your link - I am afraid it went over my head as well. I feel I need to find out mechanism of action of everything I am taking and compare it with the results of testing ( foundation one I believe it is called) which oncologist was going to order for me - hopefully I will.
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