Ringworm drug for dogs (Fenbendazole) might also cure cancer
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A kill phase might be Hyperbaric Oxygen + High dose Vitamin C IV 3 x week for a few weeks. Jane M suggests High dose C as a "kill" option.
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https://www.medicalnewstoday.com/articles/322937.php
This article explains how to increase platelets counts naturally. In fact there are many good articles on this page. From Joe's page.
Also, a poster said quinines can lower platelets. He cited no research to back this up.
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https://store.draxe.com/products/organic-super-gre...
Although this product is expensive, read the ingredient list. It can replace some of the other supplements that you might be taking
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Snooky...ha ha! Glad you found your ship. I told my MO on Monday that I wanted a new ship, that I thought mine was sinking! Making your own adjustments with Xeloda is a good choice. I had lots of SE's in the beginning, but over the years they have changed. I wish I could remember when the HFS started, I just know it wasn't right away. I say to do 2/2 pills 7/7 is a good start and maybe after 2 or 3 cycles, increase to 2/3 pills. And then there is always the 2 weeks on, 21 week off. Lots of variables.
So, Frisky, we are not changing treatment just yet. Besides being the captain of my ship, he also tells me that we treat the patient and not the markers. So staying with Xeloda for another 6 weeks. But if they jump as much in another 6 weeks, he said we will change. So I'm hoping this will give the FZ some more time to do it's thing. And I did have scans on my chest and abdomen when I was sick for those 2 months, which didn't show anything. So if anything IS going on, I think it's in my bones. Hoping the Lovastatin and the doxycycline work for you, prayers that they do.
Sonia, we love and care about you. You can just pop in and tell us what you did for the day. If you are feeling horrible, or great, you can share that as well. How is your radiation going?
MtLakeGirl, most of us have our diagnosis shown at the bottom of our posts.
Simone, where do you go for treatment? I see Dr. Buresh in Scottsdale. He is so kind, he listens, he remembers me, and he is very easy on the eyes and works out.
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Goldie,
I go to the Cancer a Treatment Center of America in Goodyear. I was going to PM you because I want to change dr and was going to ask who you went to. My MO is really nice but I just have this gut feeling that she does not work for me but works for the center, and will not stray from th standard protocol.
Santa,
Thanks for explaining that. I am on vacation this week and was planning on looking for a local Integrative dr or contacting the Block center when I get back. I'll need to find a center that does the IVs and hyperbolic. Did she say how long a person should wait before starting the kill phase?
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I think the basic idea is "press/pulse" but have no idea what the protocol would be per McClelland.
I think the idea is that the protocol weakens or kills cancer stem cells (press) but then there needs to be an actual "kill" too (pulse). I know when I took the C IVs I was getting 2 per week *during* chemo. HBOC (Hyperbaric Oxygen) 1x per week. HBOC magnifies the effect of the C. After chemo I went to Rads and got zero IVs for a few months. Then when I came back from Rads I did HBOC and my skin damage cleared incredibly fast. Once I recovered a bit, I began going 1x week for C IV. and then dropped to 1x every 2nd week.
On C IV days, I also take artemsia (wormwood) in a thick liquid form my Naturopath gives me, & also Alpha Liopic Acid in the morning, then I'd go to HBOC, then go get my IV. Warning C IVs need to drip sowly so your body gets the max saturation. They take about 2 hours.
Being NED now I am doing HBOC & C once every 2nd week (maintenance), and will taper down from there to 1x a month .
To find providers in my area, I googled. There are 2 HBOC places in my town and also 2 places which provide "nutritional" IVs. One was more of a 'medical spa' feeling and the other was a naturopathic physician with a ton of positive Yelps, so I picked the physician. She had a few more recommendations for me but was very in line w Dr Block... she had me add a few things on top of his list.
HBOC is widely used for other purposes (wound healing) so is pretty available. Before you get a C IV they need to give you one blood test to make sure you can metabolize high dose C. Some people lack a certain enzyme and it can be dangerous for them to get high C but that is rare. Still, they need to rule it out. So expect that part.
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hi Simone, I was just wondering....did care oncology request your medical records, pet scans etc etc before prescribing those 4 medications? Did they contact your Mo? What did u end up having to provide?
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Yes, they requested my blood test results and all my imaging. I just gave them my portal ID and password and they grabbed what they needed and I changed my password after they were done. I will need to provide that every three months and also see the COC MO at that time. Everything is done virtually. They did not contact my MO. I also provided them a list of meds that I tak, including supplements.
I started out on a reduced dose for 2 weeks of Metaformin and Mebendazole. I’m not sure if they take into account weight/height when they prescribed the meds. They told me it will take a couple of months before I will see any results.
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Santa, Thank you for all the good info
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HEY --- I just remembered something that might help the skin mets! (And/or any palpable tumor others have...)
HEAT!
Read up on Hyperthermia: If you heat a cancer cell to 107-108 for an hour, it either dies or becomes very distressed. Heated cancer cells give off "heat shock protein" which makes them more visible to the immune system. Healthy cells tolerate heat to 111 so will not be hurt at 108. Skin can burn mildly but recovers. Cancer cells croak.
I did this during chemo too... I used a very hot hot water bottle that left my skin lightly burned (dark pink). But my tumor was near to the surface and so was my node so I am pretty sure I got quite a bit of heat to them this way. And I was pretty sure I could "sense" 107-108 because I love an incredibly hot hot tub (105) that I get in gradually and it's as hot as I can stand... so I notched up and heated my tumors hotter than that. All the way to OUCH. Doing this left mild magenta burns on my skin but they resolved very fast after I stopped doing it. I did it all through chemo, 3-4 x per week. And during chemo I had a hotpad on my breast and axilla so the chemo laced blood would flow to that area (the opposite of icing, basically).
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Santa,
As always, thanks for so much good info including the hyperthermia explanation.
And Simone, thanks for the additional info about Care Oncology. Great info.
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Yes Santa Heat! I'd forgotten about that. Since my cancer is on my skin again, I will go back to it. Hot water bottle, huh? I used a heating pad stripped of its covering and put the hot coils right on my breast. IT WAS CLOSE TO UNBEARABLE, but I did it. My oldest son caught wind of what I was doing and went ballistic. lol He begged me to stop. So I did. Then was during the first 10mos after diagnosis when I did all natural treatment. Including going completely vegan. During this time my breast tumor grew just 1mm.
Then, my kids intervened and I started standard treatment. Within months (3?) I had mets in my lungs and my bones and my mental/emotional state was a mess. Now, of couse, I cannot say that Standard of care caused any of this. Perhaps the mets were there all along and too small to be seen on all the scans that I had.
But I was sure a lot happier doing it my own way. It was because I felt in total control of my life for the first time.
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yes Simone and Santa great work sharing so many important details....Snooky I totally get the pleasure of being in control of one’s life....but be careful with the heating situation, you don’t want to end up with a burn. Remember what the Greeks said...measure is all...
I know I'm going to contact care oncology sooner or later...my dilemma is this: I'm already on Metformin and have enough FZ to last me a whole year.. they would want me to go on the Menbendazole..my Doctor is willing to prescribe the doxycycline and statin...and supervise my health, what I lack is their experience with cancer care and specific dose and instructions, yet Simone's has provided insights into what I'm likely to be prescribed....
what's a sick cat to do?
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you may as well continue as you are if you have sympathetic oncologist - I am on exactly the same dose as simone mentioned. By the way , Frisky and others - the complementary doctor I seen ( who does vitC IV, oncothermia (like hyperthermia but more targeted) and has very similar protocol to what Santa describes including artemisinin) really stressed what she called autophagy passway inhibitors dipyridamole and hydroxyquinine. I written to her I was already taking berberine, curcumin and loratidine ( other autophagy ingibutors) but she said I should take the others based on her experience. So I am going to arrange for at least 3 months of them. Dipiridamole looks fairly safe , I will do it about 600 mg/daily and the other one will do about 300 mg - it does not look as innocuous but beggars can not be choosy...
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Simone, Anotherone....when prescribing the full dose statin, did they take into consideration the health of your liver? I have a few lesions in my liver, but so far it's still functioning—of course that could change on a dime—I'm worried about the liver damage that statins might contribute on an already messed up liver like mine...yet, I recognize that blocking the fatty acids, cholesterol pathway is probably the most important among all the others...
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they seen my blood tests showing normal liver enzymes. They did not even make any arrangements for follow up with me.
The complementary therapy doctor I seen written that autophagy is the most important one for metastatic cancer ..
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That dipridamole is a prescription only drug, right?
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yes. I will need anticoagulation for portacath anyway so will ask surgeon for it. If not jere in the UK there is company that can prescribe it. And the simplest way - asking friends when they travel abroad into more lax countries to bring a few months supply.
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husband I read that dipridamole is like a blood thinner..I would think that wouldn't be good to take with Ibrance...?? Or am I wrong?
Also the hydroxyquinine or Plaquenil is used to treat malaria and I did read a study on that they are doing right now in PA I believe to try and prevent recurrence from dormant CTCs.... there is an alcohol interactation with this med (not that anyone is drinking but it did mention that)
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Simone, I went to CTCA in Tulsa, back in 2008. Loved it! However, when I was done with treatments and they opened the center in Goodyear, they would only take me if I gave them a $200,000.00 retainer. As for my MO there (2008) and any of the doctors, you were just a peice of paper that they looked at. Nothing personal at all. I didn't want to keep flying out there just for check ups, that's when I found Dr. Buresh. Been with him since 2011 or 2012.
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Frisky and others,
This is what Mayo Clinic says about statins and liver:
Liver damage
Occasionally, statin use could cause an increase in the level of enzymes that signal liver inflammation. If the increase is only mild, you can continue to take the drug. Rarely, if the increase is severe, you may need to try a different statin.
Although liver problems are rare, your doctor may order a liver enzyme test before or shortly after you begin to take a statin. You wouldn't need any additional liver enzyme tests unless you begin to have signs or symptoms of trouble with your liver.
Contact your doctor immediately if you have unusual fatigue or weakness, loss of appetite, pain in your upper abdomen, dark-colored urine, or yellowing of your skin or eyes.
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Its a challenge to try to incorporate as many aspects of off label drug use as possible. In some ways you can only ride one horse, so to speak. If you put your faith in fenbendazole, I'm not sure its worth paying for a COC consultant who is going to want you to use mebendazole. So its like you have to go behind so many backs to add in metformin, a statin, an antibiotic, etc, and then you worry about monitoring the potential for problems like liver enzymes, etc. The full blown COC protocol sounds comprehensive, but I'm not sure if mebendazole is as likely to lead to a cure? I don't hear much speak of a cure from the COC group, just a delay in progression. Is that just being sensible and not promising the moon? I wonder head to head, which is better, Joe Tippens regimen or COC?
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I believe this protocol being offered at COC is a bit of a 'stab in the dark' and an effort to gauge the overall outcomes and risks of doing it. Prior to this, the reports of success are there but too few to gather into meaningful data.
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https://careoncologyclinic.com/cancer-treatment-op...
Here are their references , you may find something to gauge success there.
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Frisky,
They looked at my Blood test to determine the state of my live. The doc told me to keep an eye on my Tests for the liver. If they went above normal I was to stop the Mebendazole.
It will save you a lot of money if you can get your doc to prescribe all the meds.
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Hi all, thank you so much for your input and assessments of these two therapies...let's we if we can arrive at a logical consensus....
Joe's protocol is ideal. Simple, no SE to speak of, no expense and need for doctors other than to measure results, IF IT WORKS....it's fantastic and my first choice...I'm am continuing that protocol and have bought a year supply of FZ...
The MacLelland, or COC protocol is like buying some sort of insurance, since the FZ doesn't work for everybody.
What I would be doing, would be to include the FZ anthelmintic as part of a larger program that, in my view, leaves no stones unturned....by blocking the cancer major pathways, I would be, in my view, using more than one stone to stop a disease that has been referred to as: the emperor of all maladies....
Do you think this is unwise?? Considering the state of my liver?
If I didn't have progression in my liver, I would do it unhesitatingly, but I'm concerned about further damaging my already vulnerable organ, and yet I intuitively feel that in my case, the fatty acids is an important pathway to block
I do find Jane's book a bit convoluted. On one hand she recommends to block all pathways, on the other hand she says to figure out what pathways one's cancer is using... I find thatconfusing...
The fact that the oncology clinic prescribes the same 4 medications for breast cancers, leads me to believe that those are what's needed regardless of the breast cancer type....the lack of success claims can be twofold: its indeed not a miracle cure, or they would be legally held liable and be shut down if they made any such claims....they are publishing papers regarding cancer in the brain, they have doubled the time before progression occurs
The SE effects from the statins are disconcerting considering that my poor liver has to clear chemotherapy on top of everything else. On the other hand I have ZERO TRUST in my conventional treatment....so what's a girl to do? I'm going to see what my cholesterol levels are, that might be the answer
Help!!!
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quercetin blocks the same path as lovostatin, maybe look up quercetin's effects on the liver?
I do not know if FenBen is better or worse than mebendazole. I bet it's similar.
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Santa, I have been using the quercitin and I'm also considering using the niacin in addition instead of the statin...they can’t possibly damage as much as a medication, although my doctor was going to prescribe a very small dose...
I too believe the FZ and MB are similar...and I already have a large supply...
2 weeks of doxycycline are not going to kill me if I supplement with probiotics, but could block the glutamine pathway....
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Just to throw this in the mix -- Hopkins is currently doing several trials on mebendazole for glioblastoma patients. So someone is starting to take notice of this drug.I have no idea if it's better or worse than fenben to use for breast cancer.
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