Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Curious,
Here is what COC said about coq10
“CoQ-10 can be very helpful to mitigate side effects of statin medications when they are prescribed to cardiac patients to lower cholesterol. However, the CoQ-10 aids mitochondrial respiration - which is specifically why we are using the statin - to decrease mitochondrial respiration in the cancer stem cell so that it cannot thrive. Therefore, the CoQ-10 is contraindicated to the purpose of the Protocol medications. Here is an article about the CoQ-10 aiding the cell mitochondria: i
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3096178/0 -
Hello everyone - I have been following this thread for quite some time and I just adore all of you.
Please indulge and bear with me as I think this post will be long. A bit of background: My Mom was diagnosed with de novo stage IV breast cancer in February of this year....large tumor and mets to lungs. She started weekly Taxol and only managed to have only 12 treatments (reduced dosage over time) as they were really hard on her body....hospitalized twice for neutropenic fever, electrolytes trashed, ongoing diarrhea, low blood pressure, dizziness, on and on. She finished chemo at the end of May and was given some time to recover. She also had a PET Scan in late July that showed reduction in the size mass and both disappearance in a few of the lung mets and reduction in the others. Then saw the oncologist in early August and her tumor markers had decreased bit. I started her on the FenBen protocol (without the Vitamin E or Curcumin) along side a few of the Jane McClelland off-label meds. I am on the protocol as well as a preventative. I researched the off-label drugs carefully to ensure they were okay for estrogen positive cancer. Fast forward to today....surgical consult. My Mom mentioned to the surgeon - unbeknownst to me - that the tumor site is turning red and black and blue. I was in shock because she didn't tell me or any of my sisters about this! The surgeon looks somewhat alarmed and then did a quick exam. She said the tumor is growing and it looks like it is about to ulcerate through the skin. Surgeon left to call Mom's oncologist to see if she agrees with decision to do surgery or start another chemo. Surgery (mastectomy) is now scheduled for this Friday a.m.! I'm reeling because the tumor has grown so quickly in just 3 weeks, the FenBen isn't working, and I'm so mad at my Mom for ignoring the discoloration (and really, the tumor when she first found it). When asked when she first noticed, for example, the tumor....or the skin discoloration...she answers "I don't know". Is it possible that I inadvertently made this whole situation worse with the FenBen? Aaaarrrrgggghhhh.0 -
Hi Goldie,
I like ctca also. It is very convenient, everything is right there. They are out of network for my insurance, but they are picking up all costs that my insurance isn’t covering. I don’t quite understand why but it has been a blessing. My insurance has been a pain to get some tests paid for and I don’t have to deal with any of that. I am a little reluctant to switch because of that. But I feel the same about their docs. Very impersonal, I’m just another name on a piece of paper. I moved to AZ about a year ago and was still seeing my ONC from my first diagnoses before I moved. He is quite the opposite of my current MO. He knew me personally, would crack jokes, and Always worked for me. I miss that.
I think I will check if your doctor is in network for me. He sounds like what I am looking for.
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hi Lilahope, I'm so sorry to read about your mother situation. Based on Joe's blog, the FZ took three months to work in his case, and it took much longer for the various BC patients that succeeded.
I'm no doctor, but I don't think that 1gm of FZ that's given to a 10pd dog would wreck so much damage over 30 days time. It just doesn't act that quickly.
You might want to discontinue all the complimentary treatments and see if it makes any difference. As you can read on this thread, various members suffered from fever, and other malaise that had nothing to do with FZ
Unlike chemotherapy, the good or bad effects of these supplements are temporary. So all you have to do is stop taking them
I wish you and your mother the best of luck. Please keep us updated on what you happens next. Big hug
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Simone, oh lordy there is nothing that is going to kill off all of our mitochondria, and heart and muscles and everything else would not function without them anyway, plus and theres only like billions of mitochondria in our body- Beyond all of that, statins are proposed to block cancer through their ability to inhibit the Yap1 oncogene. The paper is a good reminder that there is no evidence the CoQ supplement actually does anything to counteract the muscle pain from statins, so it may not be doing anything useful anyway.. thanks!
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Thanks so much for replying, Frisky. We started the FenBen on July 7th so I know it hasn't been that long. I know in the rational part of my head that the FenBen didn't cause the growth...I'm just overly emotional and not thinking straight right now. The other supplements we started are cimetidine, EGCG (Green Tea) supplement, Berberine, Bergamot, and a low dose aspirin. She was already on simvastatin. I just need to take a breath and regroup. Thanks for listening.
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Sonia, You spoke of this product several pages back. Here is just one of Amazon's offerings. Now I can't remember if you said that you could or could not order from them.
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Well, I had thought I'd sleep like a rock last night. And I did just not long enough! After the last ten days of constant phones calls and waiting for call backs my emotional level was soaring. I had to/or at least my OCD demanded/ that I think about cancer 24/7. Not good.
This is in relation to my being able to get capecitabine paid for by Medicare/ or my state stepping in to pay.
Finally, last evening at 4;45, my advocate, with our state sponsored Medicaid called. (the nicest most caring women) and said that the State Medicaid would pay for 2mos. That's to give me time to get Medicare to make my Part B retroactive since I had a good reason for the delay.
Oh praise God for small victories! Meanwhile, as I've recently posted I had purchased the first three week cycle at the pharmacy in my ONC building at their cost. So ten days in and no SE's. So far so good.
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Joe's posters are having a discussion about fasting before and after chemo. (like Z proposed) They don't even take their supplements.
Thought I'd share this chart.
Frisky...Your Doxal infusion is this afternoon. I'm there in spirit with you praying that your tremendous inner strength helps you through the treatment. HUGS
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Snooky I too have been sleeping poorly. I totally get how tiring it gets, and how hard it is to let go when the stress is too much to handle.
I'm so happy to read that the problem of getting the medication has been resolved, albeit for the next few months only. I'm praying that you will be dealing with a sensible person when you call Medicare, and you can put this matter beyond you and concentrate on healing.
The SE from X are accumulative, but you might not get any. I didn't.
Thank you for thinking about me. I hope Doxil is doing something. I too am experiencing no SE on this medication that I can detect...
I'm not sure about the benefits of fasting, in view of what happened to Z. I can't get over how much that woman fought back, and how quickly the cancer spread....it's just a terrible disease.
Are there any stories of people that fasted and cured themselves? Are there any new positive MBC stories on the Joe’s FB group?? I think we all need an emotional pick me up....
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hello. Glad to hear there is some sort of resolution and that you liked the woman who dealt with you , snooky. Ironic how we are relieved when something that should not have been an issue is resolved.
Frisky , I felt like suggesting something that could shift your mind into a more positive direction but bit my tongue as you have been in this game for 4 years now compared to my 2 months so I guess it would be like teaching granny to suck eggs. Transatlantic hugs to you .
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Snooky, glad you were able to get at least 2 months of X. Just sorry about all the stress. Did you try GoodRX?
Frisky or Snooky, one of you said you had a years worth of FZ, did you get it via the UK site?
Frisky, good luck on your treatment today, hoping it is helping.
Good sleep? What's that? Been dealing with this for 11 years, and have not had a solid night of sleep. I probably wake up at least 6 times a night or more. As for a fever with FZ, I don't believe mine was from that, but from the infection I had. Starting again today with it, think I will do 4 days on, 3 days off.
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I fasted during chemo. I did a system called Fasting Mimicking, which is easier but lasts 5 days. You eat ~800 calories of mostly veggies and very low protein. If you fast 3 days (or fast-mimick for 5), chemo day is the middle day. The doctor who developed this and who is the expert on it is Dr Valter Longo at USC. He began studying fasting as a part of longevity and cancer treatment became another purpose of it.
Fasting is great for GI SEs... Your GI tract is empty, at rest, and non-irritable.
The other benefit appears to be that fasting tells all your healthy cells to go quiescent and it makes the cancer cells wake up and get hungry. Then you throw the chemo in and the kill rate for the cancer improves while there is less uptake for the healthy cells. This was true in mouse studies (better response to chemo) and they are doing the human studies now.
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anotherone never hesitate to share what's on your mind...pleeaseee! No I'm on pins and needles...
I'm at the hospital feeling particularly stressed. I took the ashwagandha and even the pure liquirizie to stem my dread...but so far nothing...
The hospital feels deserted, maybe I'll be able to be done quickly today...i suspect it's the long weekend holiday.
Happy Labor Day everyone! I'm celebrating with a salami and mozzarella cheese on ciabatta bread during the infusion, it's my consolation prize.
The owner of the Italian deli turns out to be siciliano and we shared our memories of growing up in Italy...sweet..
It's so funny...they have good coffee here at MSK, but I just realized that between the fake milk and the Splenda I'll be ingesting more cancerogens than I have since my last visit...the salami sandwich, of course, will complete the toxic meal....but some time comfort food is what the inner child needs and it will taste soooo good!! 😊
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I had a neck injury and was prescribed gabapentin. I slept so solidly that I started reading up on it. It seems that it has no drug interactions, and for many people it is a powerful sleep aid that doesn't seem to wear off, like sleeping pills. There was some research done on whether it helps chemo patients with neuropathy, and it appears to be a failure in that regard, despite working well for diabetic neuropathy. My wife tried some of my gabapentin and it works for her. So, she asked her Onc and got her own prescription. It works well enough that she has been able to quit her sleeping pills. I just thought I would mention this as there is some discussion about sleep problems, and while this isn't prescribed for sleep, it works for many, and you can always tell them you want to try it for neuropathy.
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Santa, where does the body take calories from in those 3 days from then? If one does not have fat reserves that is. Genuine question , I am pondering doing it myself as I am about to start chemo but after my unwelcome weight loss in the last couple of months and my friend ex dietician who told me to be careful as when body does not have enough fuel it prioritizes and obviously breezing and temperature control are maintained at the expense of some other systems like immune system for example ...
Frisky , any particular reason for your dread today? Speaking about food and drinks- to my surprise I found that Italian espresso is far too bitter to my taste (compared to argentinean where I was introduced to proper machine made coffee).
Husband , good to know , hope to retrieve this info at time of need xx
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Anotherone, the dread is about the state of my liver, and how quickly will there be a total breakdown. Is Doxil working, or am I wasting time, while the liver lesions keep on expanding...
I just spoke to the nurse and she has reassured me that they have a Great Interventional Radiolopist at MSK that will be able to take care of that problem soon.
My liver is still functioning well according to blood work done by my primary physician. Bad Cholesterol is a little bit high, but the good one is normal, so taking a small dose of statins might do the trick...to the cancer as well.
Husband thank you for recommending the Gabapentine, i will talk about it to my palliative care specialist
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update...Mo is recommending a Y90, so now I will have something else to worry about....eating my sandwich is definitely releasing some of that angst...
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were not your last scans kind of reassuring, ie overall no progression? Although I guess it can be seen like a time bomb and it being not the matter if but the matter when.. I am not seeing it like that myself , I feel and live as if it was just a matter of time before metastasis go away but it may be because I have different pathology and I am a newbie and I feel well physically.
On a more constructive note - my complementary therapist recommended vagus nerve stimulation, I shall try to attach the file here but if I do not manage you can look it up yourself. I do not see it doing harm and it is next to free ( although she recommended I purchase TENS machine for it).
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you can try eating avocado only - it has the right composition of carb and fat for FM diet... eat 5 small avocados or 3 mediums? And maybe a glug of MCT oil?
I do not know about doing this fasting where weight loss is a concern... weight loss was a fringe benefit in my case. I was not obese but did have about 25-35 extra lbs that had come on after menopause. If your weight is a concern you would want to refeed with a lot of intention.
I did smoothies from kefir, berries or peaches, supergreens powder, organic whey protein isolate, matcha, and reishi powder. Lots of nutrition and protein in a beverage that's not hard to get down. Organic whey protein isolate is OK per Integrative MO.
My normal weight loss was ~10 lbs per chemo (mostly because of the food aversion after than the fasting before)....but in re-feed I'd gain 5 back. Over the 6 chemos I lost about 25 lbs and then another 5-7 have come off from intermittent fasting I am doing now (eating 12noon-8pm). I still have handlebars on my hips and a belly so I think I'm good to lose another 5-7 and be nowhere near any problem.
Maybe you can PRE-feed with high calories, then fast 3 days w/ some bone broth?, then RE feed heavily, and see how it goes for one round? Plan high calorie, high nutrition foods pre- and post.
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anotherone, there was progression in my liver and not so much in the bones...my fears stem from some of the stories I see posted on these boards, where women that had been stable or NED quickly progressed and found themselves suddenly in the emergency room with unexpected diagnosis.
It's just the nature of the disease, can any of us really sleep well at night? But, I will admit, if I had just stage one or two, I wouldn't worry much....so you're doing the right thing...relax and trust with all you're doing...you're going to be Aokay...
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thank you frisky
. It actually felt so good to read that you have written that I will be ok that I smiled and then started crying at how stupid my reaction was. It felt good so thank you. Why would MO recommend Y90 now if your last scans were quite a few weeks ago if I remember correctly ?Santa, thank you for the ideas. I shall research and may check with naturopath- if I see one . I would be on weekly taxane so if I go for 5 days of 500 calories I will be most of the time on it. I understand highly nutritive foods would help with getting essentials covering all bases despite calorie restriction but calorie restriction per se worries me as well.
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My chemo buddy moongirljess did a ~36 hour fast prior to taxol. As I remember.... A quickie water only fast 24 hours before infusion and a half day after infusion I think-- but PM her!
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Anotherone,
I told my Mo that I was worried that if the Doxil didn’t work in shrinking the lesions, it might then be too late to deal with a run away train of liver lesions later on ...that it might be wise to have a radiologist look at the scans and decide what to do...
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anotherone, part of the protective effect relies on your body thinking it is not getting enough calories/ nutrition. That's why I did 5 mini days. I once did 3 day fast before in my life and was practically hallucinating by day 3. So I thought 5 low days was gentler. But hopefully one day fast should not be hard to absorb/make up for.
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This is the resource that was quoted on Joe's page about fasting
https://www.cell.com/cancer-cell/fulltext/S1535-61...(16)30265-3?fbclid=IwAR1j-6GoTbv1GDSPFvzGLy0iZMATGVddmdxoI0C9yEU-XqjxKlPV6U6SXTs
Frisky. Haven't yet read through all the posters who have used fasting and whether it has successful
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Santa , it looks like Dr.Longo refers to it as fasting although veggie juices and broth are allowed - it sounds more doable this way.
Frisky, if I was stage 1 or 2 I would not be worrying at all ! Alas I never was - or better saying when I was I did not know I was ...
Let us know the details about liver stuff.
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Damn. Just woke up to find out my town (2000) is under a boil water order. Water main broke which might last the week-end. I'd been drinking this water from town all morning and woke up due to stomach cramps. Fixed the drinking water issue but no dishes, cleaning showers. Just one easy day, sure would be nice.
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sorry Anotherone...I don't know why I assumed you were in the early stages...I guess because you're just new to this site...and have such an uplifting attitude, like Sonia who's voice is sorely missed.
I've noticed you're in England...good for you! Are u a brexiter? Designed various sets at Wimbledon for many years for an American Broadcasting Company, and lived in Chelsea while they were building the set prior to the tennis season...I had great fun later on when the games started, arriving at the stadium with a driver in a classic jaguar...wondering around the grounds with an all access pass, checking out the various games, drinking champagne and eating strawberries and cream. Great fun and great health then. I would never have suspected that dying from cancer would have been my destiny
I never got used to the English breakfast though...the watery stewed tomatoes with eggs and sausages in the morning just couldn't eat it!
Snooky...I've never done the fast thing....I remember though, when I was the picture of health, I could fast for whole weeks. After the initial shock the body got used to it,and I found it hard, actually, to eat again.
Back home....sweet home....Snooky you might want to come and visit me....
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Frisky , you have not looked at my signature until now?!🤦♂️😁
Sending virtual hugs and strength in dealing with leaky taps and problematic exes to Sonia.
Re uplifting attitude - that's probably because I live normal life , nothing hurts and I am in a denial. I honestly do not want to test whether I would maintain it in presence of pain and failing treatments.😧
Tomatoes are meant to be baked , not watery stewed ! Although I would have liked them even so. Re sausages- suppose depends how hungry one is
. I must say I usually pass them by tucking into scrambled eggs, tomatoes and a bit of a bacon. Posh girl you - Chelsea , eh? 🙂
I live in south west , now on a train returning from London where my oncologist is located. Seen a haematologist discussing anticoagulation with port placement - 10 mins appointment, just a chat, 12 hours return journey - I must be stupid.
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