Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Sonia, thank you for your support and understanding.
You know, bestbird, a BCO member offers a very useful booklet that lists all the various treatments for breast cancer based on types, and she constantly updates it based on the approval of new medications
You might want to request a digital copy, because what you will find is that the order of what they prescribe is always the same. So, it's not surprising that he would mention tamoxifen since you're young and ER positive.
They never venture outside what's established, unless something unexpected happens. I hope you won’t suffer from SE and that’s effective for you!!
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There is research showing that melatonin helps increase the effectiveness of tamoxifen.
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From Joe's page..... saw several posts about it helping with BC
Hi guys I have advanced secondary breast cancer Er+ metastasised to rib, spine (l4, l5, and T10) pelvis and hip.. lumpectomy 2017, 4 lymph node removal with sentile and 27 rads. Started Joe Tippens protocol 9 May 2019 with x2 grams daily taking only one or two days off here and there. I increased my dose to x4 grams two weeks before my ct scan. At the time of my scan (30 July) i had been on the protocol for 13 weeks. I am taking vit D3, vit B12, fish oil, asprin, probiotic, cbd and milk thistle. Stopped taking Vit E and curcumin. Hardly changed my diet but do drink green tea daily... I take Ibrance and Letrozole
Scan results are N.E.D 😁😁😁 Thank you so much Joe!! Stay positive warriors this really does work! 💪🎗 xx
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Husband, I wanted to thank you for the info about the artemisinin facebook group, very interesting things are posted there too.
Here in my country, melatonin pills contain small amounts, so it is not worth taking them, but I take 5 grams of tryptophan, which turns into serotonin, and serotonin into melatonin, I hope to cover my daily dose with that.
I'm sorry, I don't want to hijack the thread like a chatty katty but speaking about MO ... yes, being all different we get all the same
Snooky: thank you for sharing that! I hope you are well...
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Snooky thank you for this great update and success story about Joe's protocol...I needed that on a day like this!
Sonia, something to keep in mind is that with all the complimentary treatments you're doing, you could be NED soon, and at that point tamoxifen would be only one choice among many. You might decide to do what Joe is doing and maintain your health with the FZ instead. I hope that for you and all of us warriors....
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Got it , frisky. I guess you feel relieved now that the decision is taken and implemented. I second congratulations- one really does not need to deal with being stressed in a vulnerable position when we doubt people we relay on for treatment.
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Dear Nicole, this is what we use now for suplements:
1.Reishi, Shiitake, Maitake mushroom (200x200x200 mg/d).
2.Alpha Lipoic Acid (ALA): 100 mg/d.
3.N Acetyl Cysteine (NAC): 600 mg/d.
4.Fish Oil (EPR ~400 mg/d, DHR ~600 mg/d).
5.Pomi T (2 capsules/d).
6.Zinc (Zn, 2x40 mg/d) for ceruloplasmin (Cp) reduction (research by Prof. Linda Vahdat - if Cp < minimum, relapses are prevented).
7.Cordyceps (2x2400 mg/d).
8.Vitamin C (600 mg/d).
9.Globalis OPC grape seed extract (natural aromatase inhibitor, 125 mg pure OPC/d).10.Cup of green tea, cup of boiled curcumin+dried-ginger+cloves+coconut-oil every day.
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Dear Frisky, yes, you should have changed him/her - you should get one who will say "I fill fight for you, I have a plan". This is very important! Saulius
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Please, people, demand your oncologists to bring you to NED. It is possible these days, although, yes, difficult, yes, they have to think hard and risk but it is possible, so, please, do not let yourself be convinced by them that "oh, we do what we can, stable is good, little progression is also good, etc.". Bullsh*t... If they don't have a plan for you, I mean a real plan for NED, it makes no sense to waste your time with them... Unfortunately our MO is not very proactive, and we had to change our previous wonderful and very aggressive (treatments wise) MO to this one because of NCI system changes:/ Last time she even said "these additional things you do, these mastectomies, radiation, maybe it will increase your survival a bit". I was in shock... but now I know too much to be discouraged, so we march on, and maybe one day we'll be able to comeback to our beloved MO!
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Thanks so much Saulius!!! I really appreciate it you are very inspiring.!
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You are welcome, Nicole. I simply think we in the middle of XXIst century deserve better than grim faces. 20 years ago C was a death sentence but not any more and MOs should understand that patient's failure to heal is their failure too. Enough hiding "behind the system curtain". I read here in these threads too many failures by doctors. Simply too many. Hugs to all, Saulius
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Saulius, I loved your encouragement to ask our MOs for more than a postponement of the inevitable...I agree that should be everyone's goal, and I plan on clearly stating my expectations to survive this disease when I meet my new Mo in a few weeks. I will make sure to observe and report her reaction...
The problem, as I perceive it, is the resigned attitude of the doctors working in oncology. They are so certain of the inevitability of our demise, they don't even attempt in words or deeds to mask their nonchalant attitude. I think they do it to psychologically survive the reality of constant failures.
Because the US doesn't have social medicine, and it's in fact a utilitarian society devoid of morals, the care we receive is totally controlled by greed. Our hospitals primary goals are to make as much money as possible before we die. It's not about quality of care—in the US health care is the number one killer before heart disease—but great quantity of it, that doesn't mean anything , because it doesn't get carefully reviewed, and even when it does, nothing is done about it, until a patient ends up in the emergency room. There, with their out of control charges and routines, is where it gets really exciting, as it ends up totally bankrupting the patient and their family.
So there's a conflict of interest that it's all too clear for me to see after 4 years of these shenanigans. Please note that I'm being cared for at a major cancer center, that recently had a huge scandal when their number one director of research had to quit for falsifying the results of clinical trials, that benefitted the pharmaceutical companies they really work for. They had to revise a decade of well published fake results. My previous Mo left the hospital to go work for Pfizer...and that's not the bad part. The bad part is that she was always working for them....so patients needs are given a low-priority..
So, as you can see Saulius, we have two problems....we have to survive cancer and our inhuman and cruel health care system....
But today, for example, I hugged and kissed my primary Russian physician when she reviewed the research I submitted and she updated the prescriptions of the off-labels medications I need to do the COC protocol. God Bless her, here and there, there are these beautiful glints of real humanity left..
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Thanks Frisky for that all. We know it, and that is why we have not to be silent. Optimism, idealism and endless persistence... they have always payed off for me. I see many young people like this. Next generation of oncologists will be different. Our oncologists are in their 50-60-ies now, but these guys born in 2000 are slowly coming, and they are different, I know. Pfitzer is "simply a company" as other 100000 companies for them. Money is not everything. I know many people are very pessimistic about the future now but they should not be. That is a very broad discussion though:) Let's hold on, let's fight and I am pretty sure we'll see at least a partial cure for this disease very soon. Even FenBen might be one of the emerging ways... have a good night, Saulius
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yes Saulius, it's very important to never give up and persist in our goals, as we are all doing by sharing data, while trying to find our way out of this mess.
After all is said and done, no none will be able to say that we haven't tried....
Interesting study below, more confirmations about doxycycline capacity to kills cancer stems cells. Good, old fashion mild antibiotic that costs close to nothing!
I'm making a change to my plan. I'll be taking supplements, doxy, and Metformin in the morning with breakfast. I'm going to take the Metformin, statin with calcium and other supplements with dinner.
Will do this for three weeks. The week before my pet scan, I will take 4grams of FZ @day....Let's see what happens..
Vitamin C and Doxycycline: A synthetic lethal combination therapy targeting metabolic flexibility in cancer stem cells (CSCs).
https://www.ncbi.nlm.nih.gov/pubmed/28978032
Here, we developed a new synthetic lethal strategy for further optimizing the eradication of cancer stem cells (CSCs). Briefly, we show that chronic treatment with the FDA-approved antibiotic Doxycycline effectively reduces cellular respiration, by targeting mitochondrial protein translation. The expression of four mitochondrial DNA encoded proteins (MT-ND3, MT-CO2, MT-ATP6 and MT-ATP8) is suppressed, by up to 35-fold. This high selection pressure metabolically synchronizes the surviving cancer cell sub-population towards a predominantly glycolytic phenotype, resulting in metabolic inflexibility. We directly validated this Doxycycline-induced glycolytic phenotype, by using metabolic flux analysis and label-free unbiased proteomics. Next, we identified two natural products (Vitamin C and Berberine) and six clinically-approved drugs, for metabolically targeting the Doxycycline-resistant CSC population (Atovaquone, Irinotecan, Sorafenib, Niclosamide, Chloroquine, and Stiripentol). This new combination strategy allows for the more efficacious eradication of CSCs with Doxycycline, and provides a simple pragmatic solution to the possible development of Doxycycline-resistance in cancer cells. In summary, we propose the combined use of i) Doxycycline (Hit-1: targeting mitochondria) and ii) Vitamin C (Hit-2: targeting glycolysis), which represents a new synthetic-lethal metabolic strategy for eradicating CSCs. This type of metabolic Achilles' heel will allow us and others to more effectively "starve" the CSC population.
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Interesting article, Frisky. I see that it's Dr. Lisanti again with the doxy.
I just found out yesterday that red yeast rice is basically the equivalent to lovostatin, so for anyone who wants to use the statin part of the COC protocol but doesn't have the prescriptions, apparently this is another thing that you could use instead. Others may be aware of this, but I was not.
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Bev Jen, I didn't know that supplement. I know guggul extract that is also very good for cholesterol. I'm intrigued by red rice ... a while ago, a Spanish athlete claims to have cured his a cancer by making a red rice mono diet
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Sonia,
Apparently one of the ingredients in this supplement is absolutely identical to the ingredient in lovostatin. Again, though, there are liver warnings about overuse of this. Why is it that every seemingly helpful supplement has liver warnings???
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woe is me...my iPad is totally out of commission...I've never had an apple device conke out so radically...and I have not backed it up in a long while...
I'm sad...but a new one will cheer me up...the new ones happen to be going on sale today...what a coincidence!!!
About the liver problem associated with medications...I am scared about adding more toxins on my poor liver, but it should be only for a few months....I hope the results are worth the risks I'm taking....
Typing on my laptop is very easy now when on this web site...I had a lot of typo problems when using iPad...
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Hydroxychloroquine to block autophagy is key
I'm not on Jane's protocol but I'm in the group reading. I keep seeing the above statement from members. I don't know what it means but I suspect that you guys do.
Hope everyone is well, tonight. I'm a happy camper.....it's the first day of my week off Zeloda
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I know this is the fen ben discussion, but since we've been talking about various alternative therapies, I'm curious if anyone has had experience with subcutaneous injections of European mistletoe and whether it has had any effect on the immune system or has had any effect on anyone's breast cancer. I know that this therapy has been used for many years in Europe, and complementary doctors are using it in the US. Thanks.
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Bev Jen, I personally appreciate that this thread talks about other therapies besides fen ben. I have learned so much from all of you!
If I had the opportunity to have that treatment, I would not hesitate to do so. Rudolph Steiner, the father of Anthroposophy and a great expert in herbal remedies, used mistletoe to cure cancer. I take it in tea, but I don't know if it's the same effect.
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Dear BevJen, I know people use extract from it for BC... funny thing is they grow on every third tree here:/ I have to read more about it myself... thanks for reminding!
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Saulius,
In fact, Johns Hopkins is now doing a Phase I trial of intravenous mistletoe in the US. But with Phase I trials, as Frisky found out, they mess with the dosage to see what people can tolerate. Also, the IV version takes a lot of time to do. So I'm going to investigate more on the self-injections. I do remember that it grows a lot of places in Europe -- my daughter lived and worked in Vienna for a year, and every time I went over to see her, we would comment on the mistletoe growing in the trees! It was actually quite lovely!
Bev
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My wife did intravenous mistletoe therapy. Not sure whether it had any positive impact. I don't wish to discourage anyone as it may have benefit and it may have helped her in some way we don't comprehend. They escalated the dose each week. Once she hit a certain dose, she got a terrible rash all over her scalp, and had to quit. It took a couple more infusions to make the connection. As soon as she quit it, it went away permanently. That's our experience with IV mistletoe.
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Snooky1954--Here's a little about Hydroxychloroquine: Anticancer autophagy inhibitors attract 'resurgent' interest. Much of the academic community's interest remains focused on repositioning the antimalarial drug chloroquine and its derivatives, indirect inhibitors of autophagy that are cheap, safe and readily available for clinical trials. Case studies show that these agents, when given to the right patients in the right combinations, can yield dramatic responses, even in the face of drug resistance or when targeted inhibition of cancer drivers has failed:
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Also just because there was a lot of conversation on here about NAC. I did find out from Jane McClelland's group about Repurposed Drugs that she/many of them don't recommend NAC due to conflicting data on that. I had been taking it, but stopped based on reading some of the studies they posted there. Here is one comment from that thread: "Then there are some substances that are reported to directly fuel tumor growth in some cancer when taken in excess. Examples of such substances that I personally avoid due to data like that are Oral Vitamin C, Vitamin E and NAC. These guys protect us from developing cancer, but once we have it, apparently they can assist the cancer. Again, there is conflicting data on that too." Here is the study/article referenced on that site: https://www.cancer.gov/news-events/cancer-currents-blog/2015/antioxidants-metastasis?fbclid=IwAR2STxHlkPkClJN25Qg3OZYv-LA_V3As3rpN3OHUxfAcxiKH-Ym42WgQVxA. I think there is conflicting data with the studies so on that site they seem to recommend no NAC while still saying other supplements are okay. Just wanted to share this here as I had only seen the positive NAC studies previously which was why I was taking it. . . based on the information I got from that site I discontinued NAC.
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what is strange is that Joe Tippens had stage 4 lung cancer which the article specifically has thr example of for the vitamin E making things worse...yet it didnt in Joe??? So who knows if it does that??
Saulius...your wife takes NAC right??
Is the ALA considered an antioxidant?
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Mysticalcity thank you for the warnings. I will stop the NAC, but I guess each one of us must decide for ourselves, since there seem to be conflicting studies on just about everything relating to cancer.
May God help us!
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Interesting tidbit that I picked up today. Was talking to a doc (MD) about the Tippens protocol and Jane Mclelland. We started talking about fen ben, mebendazole, etc., and he told me that a doctor friend of his had told him that albendazole can be effective in treating cancer. It's a cousin of the other two and -- lo and behold -- it's for tapeworms. Isn't that wild?
I know nothing else about it, but thought this was very interesting.
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Frisky--I totally agree on the conflicting studies. And also agree we all have to decide for ourselves because of it--but I always like to have all the credible information and resources available I can find to help me in my decision making process. That's why I wanted to get that info out here. Because it was something I was unaware of when I had started the NAC. I had only seen the positive studies.
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