Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Nicole, to tell you a bit about Lita, she was a sassy, tough, interesting person who amazed me with her energy to cook, despite all of the daily challenges of this disease. She could barely see and walk at times but would still cook these amazing gourmet meals and desserts. She also wrote a book a few years back which was published on Amazon while going through all of this Stage 4 madness. She had a great sense of humor. I recall her posting on the boards several years back a picture of herself in front of the designated space at the mausoleum she already picked out for herself (for her remains after she is cremated). She was in a silly pose and made the picture a humorous one. I was impressed by her ability to make light of such an awful situation we are all in. She was so organized and such a planner. She had a thorough binder she prepared a years ago that included all information her DH would need after she passed. She had a stronger stomach for that stuff than most of us. One fact I find particularly inspiring is that when she was diagnosed with brain mets two years ago, her doctor told her there was no hope and insisted she sign her hospice papers. I believe she may have even signed them. However, over the weekend, she gave it some thought and decided to give WBR (whole brain radiation) and other brain mets treatments a try. That gave her an extra two years. She lived about 3.5 years total. I don't think her daughter would feel offended about sharing details - either stores or technical facts about her BC history. I suspect she would appreciate anyone talking about Lita to continue to share her story. If you have a chance to read her daughter's webpage and her photography project on her mother, you will be touched. I certainly know where her daughter inherited her tough, real, raw, in your face, tell it like it is way of dealing with her mom's cancer. Being a mother myself, I found it very interesting to read about the struggles from the daughter's perspective. I was in tears.
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Cross posted with Jane McLelland/COC Protocol thread:
For those of you who haven't seen this, Dr. Ralph Moss (the Moss Reports) has posted on his youtube channel an interview with Jane McLelland in which they discuss various things about her book and about the COC protocol and her views on how to arrest cancer cells as they develop.
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JFL..wow..thank you so much for sharing that with me. Hearing your thoughts about Lita really showed how much and why she touched everyone so much. I pray I would be even half as brave as that.
Again thank you so much for sharing.
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I know several of you take ashwagandha. What is a good brand?
Thanks for the link BevJen. I'm going to listen to that later today.
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My daughter's boyfriend's mother from Mexico would bring him an annual dose of one of these types of drugs as a prophylactic to kill parasites. I wonder if this is common in Mexico and if so, is there a lower rate of breast cancer there.
Found this recommendation. It seems this could be a routine measure in some countries. Mexico has a lower cancer rate than many other countries
https://www.who.int/elena/titles/deworming/en/
“WHO recommendations
Preventive chemotherapy (deworming), using annual or biannuala single-dose albendazole (400 mg) or mebendazole (500 mg)b is recommended as a public health intervention for all young children 12–23 months of age, preschool children 1–4 years of age, and school-age children 5–12 years of age (in some settings up to 14 years of age) living in areas where the baseline prevalence of any soil-transmitted infection is 20% or more among children, in order to reduce the worm burden of soil-transmitted helminth infection.
a Biannual administration is recommended where the baseline prevalence is more than 50%.
b A half-dose of albendazole (i.e. 200 mg) is recommended for children younger than 24 months of age.*************
Additional information for this recommendation can be found in the guidance summary and in the guideline, under 'WHO documents' below.
This is one of several WHO recommendations on deworming. The full set of recommendations can be found in 'Full set of recommendations'.
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Nichole, I wanted to offer you a public apology. And to explain, if I can. I'm angry. For the first time since diagnosed I've gotten really mad. At the medical establishment. At the government that is denying my Medicare, and at myself. My moods are unstable. I've been having headaches for a couple of months so I've been following Lita's story with brain mets. She did have great courage.
I'm angry at myself for canceling 2 MRI's of my brain. I did reschedule and have one on this coming Wednes. If I do have brain mets, than that is probably it. Lita lived two years with them, and she was my hero. But then she too couldn't bet it.
Like you, I've been all over this net reading all the systems of brain mets. All the info I've gathered did not comfort me, it has shown me my fate. I'd never have the courage for whole brain radiation. And who would pay for it? When you wanted to know her story, it touched something In me that I can't explain.
It didn't occur to me to PM you because my cognitive functions are declining. I really didn't want you to have an overload of information, for me, it's all has stuck in my head. Every minute of every day.
I could go on and on but I'm not finding the right words.
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Oh Snooky, I sensed something was happening with you ... Please do not think the worst. Headaches can be for many causes. You've been through a lot lately. Taxol is a strong chemo ... and now Xeloda... Headaches can be due to a overloaded liver (anger too), or nervous tension. or Herxheimer reaction, you know about that. I still have chemo brain too
Did you talk to someone about how you are feeling?
God, I would like to be by your side right now.
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Frisky You posted lots on Magnesium. Don't know if this was one of your resources and I'm too tired to check it out.
https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.c...
It's about chemo depleting Mag
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Sonia, I would love for you to be here too! No I've talked to no one. All three of my sons are in happy happy places right now. Brand new homes, new babies. I just can't unload on them... But I do talk to GOD all the time.
Thank you Sonia, for being you. You are the nicest most caring person. GREAT BIG HUG
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Ann - thank you !!
Snooky
You are much much kinder than I,and a lot braver. Lita was kindness, courage and wisdom. I totally got you!
Many long term illnesses deplete Magnesium - sounds like a blank statement but its true - one of the most commonly supplemented in ICU settings.
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Snooky sorry you are not feeling well. I accept your apology. Hope you feel better soon.
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snooky,
I am so sorry to hear you are not telling well. I'll pray nothing shows up in your MRI. HUGS!
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We are here for you Snooky!
I love how gracious you are Nicole!
Such nice people on this thread... A cozy group who help one another.
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this is from Lumpie's thread on breaking news about cancer... Interesting study showing alliums (onions/garlic) very beneficial against cancer
Edited to put the correct link
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Has anyone heard from Goldie?
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Dear Snooky, I understand your hesitation about getting the MRI, but I'm glad you'll be getting one soon. It will prove everything is okay there. Like it has been said already, there are many reasons for headaches, especially when we are stressed and generally worried about our health.
Be strong my friend and do communicate with us, we are all here to support you. We know too well what you might be feeling. Don't isolate yourself if you're fearful..it's not good! Much love....and big hug!
Goldie was going on another vacation, if I remember correctly....
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Dear Snooky, Frisky is correct (remember, she always is), I am also sure there's nothing wrong with your brain, the MRI will only confirm it. There are so many "facts", statistics,stories that discourage us... but then we are stronger, better, happier than all of this!
Some Sunday thoughts... here we go...
I believe we have to change and understand there's a cure in stage IV. What is a cure? A cure is not when you do not have cancer cells in you but when the balance of them proliferating and your immune system (or artificial immune system) killing them is positive (more or same are killed than are being born). In that sense cures happen. Yes, they cannot be proven (no one will ever scan every cell of our body), but they do happen. Even in these forums there are women off treatment for months and even years, and still NED, others are stable for years and years with treatments, and these forums is just a small fraction of people being with this disease world-wide. Science will never say "cured" because they will not be able to prove it, and medical system will never try to cure it because it is not profitable - they are perfectly fine with the chronic setting. So, no false hopes, but we have to stop saying (and thinking!) "incurable". With this "switch" of mind many incredible things happen. If we agree that there's a cure, it makes sense to fight/search for it. And then comes information and resources like never before. Who, let's say, 5 years ago knew of COC or FenBen protocol? DC/CIK immunotherapy (just check tapimmune.com, how smartly they have expanded it)? What about CAR-T for solid tumors (City of Hope, MIT, Europe)? Nano-settings like iNPG-pDOX (Houston Methodists)? Metabolic disease management? Supplements and alternatives? You name it... We also have each other. Whenever I read these forums, they are Oceans of Wisdom (thank you The Dalai-lama and everyone here). We almost conduct our own clinical trials (well, Joe Tippens certainly does, more will follow). We are in a far far better situation than our counterparts 20, even 10 years ago. Statistics after this new drug cycle that happens now (CDK inhibitors, ADCs, immuno-modulations, supplementing) will be sky high. Because there's a cure. And because any of us with all these possibilities CAN BE JUST ONE STEP AWAY from being cured. Any of next scans after any new drug might be a "complete regression" only leaving us wondering "how and why?". Cancer spreads fast but it also is very vulnerable if hit where it has to be hit. Why do I sound so "stupidly positive" you may ask? It is because I strongly believe that changes happen when people take things into their own hands. If not we then who? And that is exactly what happens right now, and this thread is a great example.
Saulius
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Saulius, friend, today I had woken up a little discouraged, your post was the best thing I could read to give me hope. Thank you! Certainly, we are fortunate to have each other here.
Have a beautiful Sunday all of you, my friends!
(Frisky is correct, remember she always is) Love that
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My link in my post above was incorrect. It is now corrected.
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"Why do I sound so "stupidly positive" you may ask? It is because I strongly believe that changes happen when people take things into their own hands. If not we then who? And that is exactly what happens right now, and this thread is a great example."
Saulius ...I totally agree the optimism comes from solving problems when we take matters into our own hand and manage to survive the SE of these medications ...or get insights from people that haven't given up on us yet, and don't get all excited or consider a great success when an expensive medication extends life by 3 months!
Based on my studies, I believe that no one living on this planet is cancer free, simply because we are ALL affected by the same poisons. Some, of course, are affected more than others, but no one is immune, thus it's only question of time. Some manage to get to an old age, and never find out. Learning to manage cancer, therefore, by finding a balance between opposing forces—cancer cells vs immune system— is very wise.
When the fears associated with this disease overwhelm me, I think of my American mom, that survived stage 4 ovarian cancer in her forties—was told to put her affairs in order—but lived till the old age of 94 with inoperable lung cancer. She believed that the macrobiotic diet she followed for two years, based on a book I gave her, when of course, I didn't know anything about cancer—saved her life. So, anything is possible, since we really know so little that's useful about the disease.
It's the predictability of what happens when we follow ONLY the conventional route—that although can save lives, fails the majority—that's depressing. As long as we try, by researching, finding, posting, and sharing....we're going to fare a lot better!
Thank you, BCO mods and community for taking away the immeasurable pain and horror of going through a cancer diagnosis on our own. We need the support and knowledge we gain from each other's experiences.
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Thanks Saulius..everything you said was just awesome and thank you that you are open to all of our questions and patient and give very well detailed information I feel really blessed that you and your wife are part of this community.
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What a nice surprise to wake up this morning and read such positive posts. I also think there is a cure for us and we are on the right path to get there.
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Thank all of you for your encouragement and well wishes. It brought me enough peace to begin "fighting" again.
About brain pain. I had an epiphany! A year ago, I had an inversion fracture in my C2. Oncs have been watching it. And the rad specialist wants to talk about radiation because of pain. (the pain is slight, so I've delayed) So, this am I wondered if there was any chance that my headaches had a connection to the C2 fracture. I've copied what I found for future readers.
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"However, cervicogenic headaches—while felt in the back of the head, and sometimes in the eyes—at temples or behind the eyes rise from a problem in the upper cervical spine. Because the upper 3 cervical spinal segments share nerve tracts with cranium itself, pain is misunderstood and thus "felt" by the brain as being located in the head. Sadly, many patients are misdiagnosed and treated each year as suffering from migraine or cluster headache, and do not receive a proper diagnosis or treatment for their cervicogenic headache disorder.
How Neck Pain Can Cause Headaches
Anatomically and physiologically, the upper 3 cervical spinal roots (located at C1, C2, and C3) share a pain nucleus (which routes pain signals to the brain) with the trigeminal nerve. This nerve is the main sensory nerve that carries messages from your face to your brain.The upper 3 cervical spine nerve roots send fibers toward the head that converge on the trigeminal nuclei, which are located at the very top of the spinal cord. These nuclei relay pain messages through the the trigemino-cervical tract.
Think of the trigemino-cervical tract as a relay station where pain signals are sent via nerve tracts first to the thalamus in the midbrain, and then to the higher cortical region of the brain. It is at these thalamic and cortical centers that pain acquires its defining qualities, including severity, meaning, how the body should respond to it, and where it originated.
The brain is not good at defining the precise location of pain that comes from the neck. This is why the brain usually mistakes upper cervical spine pain as a headache.
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Pain behind the eyes and at the temples, exactly what I'm experiencing. Some pain at base of neck. So with luck and prayers maybe, just maybe that's my issue
When I have have my MRI this wednes. I'm having a cervical Mri also.
You guys gave me hope again. Bless all of You. Happy Sunday to All
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Snooky, I have suffered for years of headaches due to my cervical. I think I mentioned it before in this thread. Pains so strong that I received RM to rule out something else ...
Sounds like what's going on with you. ❤
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Commenting on the magnesium thread. . .this is the brand I take (https://unikeyhealth.com/products/magnesium)--it is actually four highly absorb-able forms of Magnesium. My sister has rheumatoid arthritis and it was recommended to her by her doctor to help with her inflammation. My sister said it made a world of difference for her, as well helped her sleep--which is why she sent it to me. I've been taking it for the past year at bedtime with my melatonin(I'm only at 30 mg melatonin). But the magnesium definitely seems to help with sleep for me and also combats the joint pain from my anastrozole. I haven't had any digestive issues with this brand either Yndorian1--although not sure if it would be available in Argentina?
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Mysticalcity: That product has great reviews! Impossible to get it here, but I am finding out about the magnesium oil applied to the skin, it seems to be a good way for those of us who have problems with high oral doses.
I think we have already know about the importance of iodine against breast cancer, but this study explains the anti estrogenic effect of it. Very interesting!
http://www.medsci.org/v05p0189.htm
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Skimming pages as too many to read completely. Yes, I was away, camping in Moab Utah with no internet.
Nicole, I have not found out anything on the Milk Thistle, I just quit taking it due to the huge jump in my TM's, I also quit taking the gama E. I will introduce again after my next labs, but only one of them, just not sure which one.
So sorry to hear about Lita, she was one tough cookie. I do hope it was peaceful for her. Prayers for her family and all that loved her. I shall look for the thread that her daughter posted. I did not know her, but followed her.
Snooky, you poor dear. My heart aches for you, your pain, sadness, depression, anger, etc. I understand about thinking of cancer every minute of every day, I have done it for 11 years. Still do, but I won't let it get the best of me, altho it does sometimes. Hugs my friend.
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Sonia, Iodine. Do you remember that Ted recommended it? In large does too. I took it in water for over a year and then stopped. My brain jumps around so much, each new mention of a drug or herb that's anti-cancer I buy!!!! OCD in overdrive. I need for my brain to clear so I can make a plan of what to do with all these bottles of supplements that I have!
Over 50 bottles and half I don't take because I can't remember what they are for. You still have chemo brain after all this time? My chemo ended mid July. I attributed this brain fogginess and loss of the right word to Zeloda. But maybe it isn't. Once the stress of MRIs is over, I'm going to make a plan.. I hope
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Goldie welcome back hope you had an awesome relaxing time!!! It is amazing how fast the pages stack up here so fast right?!
Goldie I don't see it in your profile but do you have liver mets? I am wondering because when you said your TM's went up from the Milk Thistle I am wondering if your bilirubin did as well, I just don't know if you track that if you do not have liver mets?
My concern with all of these supplements and the Jane protocol, Joe...is my bilirubin and the other liver enzymes going up. I have heard from people on Joes site and Janes that they go up but then some take the Thistle and they go down but not all of them have liver mets so their liver isn't already compromised. I would like to consider actually taking some of it like the mebendazole via suppository in hopes that it wouldn't be as taxing on the liver...unfortunately my search to get real information on that is not proving very successful.
Goldie I was able to finally get on facebook so that helps
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Nicole, I do not have liver mets. Had scans back in June/July when I was sick with e coli and nothing with the liver or any organ at that time. I do not know if it was the milk thistle or the gamma e, and perhaps neither of them, who is to know! I do have a little more pain in my left hip and groin, but not constant and not horrible. I have MO appt. and labs in about 2 weeks.
Here are the bad results from July labs. I don't have the last ones saved. TM's jumped in the mid 500's.
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