Lets Post our Daily Exercise

A rainy/ snowy mix here, so the Wednesday Walking Women are still inside' 'having a ball'.

Sounds like a great trip, safe travels! Layers is the way, once I was in Phoenix (100+) and drove the two hours to Flagstaff which is at altitude and it was snowing! Have fun, TT

Thanks for the compliments on the photo. I'm off one of the chemo meds this week, so that is part of the reason I'm feeling okay and don't look too tired. But, I'll take any good days I can get.

Ruth your trip sounds wonderful. Enjoy. Weather shouldn't be a problem tomorrow in the city.

DH and I watched Ticket to Paradise with George Clooney and Julia Roberts. Cute movie, but it made me cry in the end when The character George Clooney said why save the good stuff for later (or something similar). I still need a gully washer cry.

Karen I love your shirt. Your daughter picked just the right one. You look great and it is such a good color on you. You still look very fit so try to keep pushing to eat to keep your muscle if you can. I am like you, I can get full so easy and there is no way I can eat again (or drink) for hours.

Ruth I hope you can make it out of the airport and meet your tour group. It sounds like so much fun. I am looking forward to the pictures and to hear how much walking you will be doing.

I am pushing to exercise at the gym I joined last week. I am very weak in the upper body and have had a lot of aches and pains. But it feels so good to move. I am taking it slow but still going back. I am dealing with some hand shaking and twitching so my PCP is sending me on to see a neurologist. It is never fun to have another health scare knocking on the door. It may be Parkinson's (I too am losing a bit of weight over anxiety and lack of sleep) but the doctor says to keep exercising no matter what. She said exercise is very important to keep strong, especially if I have a neurological disease. My mom had multiple sclerosis so I know what she went through. Ok, one day at a time....

EDIT: (6pm Denver time) Treatment is kicking my you know what!! The nausea is horrible. Almost as bad as BC chemo. I sure hope this won't be a pattern or it will be a long 12 weeks. I took a nap after lunch and when I woke up I took a Zofran and just took a Compazine a few minutes ago. DH said next week, I should take it preventative even before any side effects.

Have a great night.

I'm copy/pasting from my other two threads. Too tired and foggy to write different ones.

Good visit with Hematologist. He like my medical oncologist stick in "their lane" He agrees with Endocrinologist to watch my calcium and no surgery. For the first time in 3 years my Creatinine and Calcium numbers are good. He also said he wasn't sure what is what with calcium - primary hyperparathyroid or MM and goes from the notes endocrinologist sent, she doesn't either. He also asked about having my thyroid checked and when I last saw my primary care. I had a virtual visit the end of March. She didn't think I need to come in for a physical, but I'll make and appointment for June once school is out.

Talked about lack of appetite, weight loss. and insomnia. He stepped out to take a call and left it to the nurse to deal with it. Nothing new that I didn't already. RN said to eat smaller meals and to snack in between meals. They are doing a referral to Dietician. I doubt she/he will have anything new but my big question is how to force myself to eat when not hungry or full. They also said limit water late at night and take senna with dinner. I've been drinking 12-16oz with my night meds which I take at bedtime. Hematologist is not in favor of meds for sleep but rather meditation, mindfulness, CBTi. I have a link for CBTi through the Mayo clinic.

Hematologist also asked if I saw the transplant doctor yet. I told him my appointment is May 10th and that it was hard to get an appointment and the mess up with the referral. DH took that to mean that Hematologist is looking for me to have the SCT. I want to do whatever I can do without compromising QOL long term and will give me the longest DFS.

8 vials of blood drawn today including for the 84 gene panel. Got an email from Invitae and my insurance is covering 100%

Today's injections hit me hard like the first time. Pale and very tired - almost immediately after shot. Treatment #2 and #3 were a breeze. 1/4 of the way done - 4 down with 12 more to go.

DH asked about me getting Covid #6 vaccine as he heard that they are starting to give to immunocompromised. So I will watch to see when they are available.

Wore my T-shirt - got compliments from several staff and the one other patient and her husband in the infusion room. Might just wear it every week - probably not, but every so often.

Off for a nap.

Had hard rain this morning and some in late afternoon. Cleared off to a beautiful day and I was able to walk/run.

Karen. I'm with you on the narcotics! Horrible, horrible!

Despite the weather in North Dakota, and the plane having mechanical problems in Denver, we did make it to Arizona in one piece. Today we headed north; walking around in a Saguaro Cactus Forest, taking a jeep trip in Sedona, and ending up in the Grand Canyon, where after a brisk walk, DH & I watched the sun go down.

Rain starting tomorrow night in Denver 1-2" Monday night into Wednesday morning and 1-2 feet for the mountains!!!

See everyone on the other side of the new boards

Karen: I am so glad you feel human again and I hope that feeling continues through your treatments. May each night sleep get better for you.

Ruth: So cool you took a helicopter ride over the GC! Dh and went there on our honeymoon. We took a mule ride to the ridge. It was fun but the trail wasn't very wide in some areas and I was afraid my mule was going to go over the edge.

Walked/ran today.

Tomorrow night is a very important meeting for my county. Our county commissioners want to Take Over the Board of Health - the ruling board over our health department. They want to have the Final Say in public health decisions in our county. One of the 7 commissioners was vocal at School Board meetings during the pandemic that he opposed the mask for students and staff and said he was going to get the health director fired. Then he found out the commissioners don't have the power to do that, only the Board of Health can. Thus the Take Over. I used to work at the health dept. (worked there for 6 years) and I am a former member of the Board of Health (on it for 9 years). I have been working very hard with the health dept retirees to stop the Take Over. I'll know tomorrow night but will not be able to report back until the new site is up and running. Wish us luck in stopping this potentially deadly disaster.

Oh my goodness, Ginger! Something new every month. The good news is that you are feeling improvements since you had your implants removed. Yellow jacket stings are very painful. And Lyme disease! You have been through it and I hope you can get back to Zumba soon.

WE WON! The County commissioners will NOT be taking over the health department. The vote was close: 4 to 3. One commissioner was the swing vote. He was all for it in the beginning then had a change of heart. He realized it was not moral what they wanted to do.

Have a lot to learn about the upgrade. Time will tell if it's good or not.

Been walking between the time the site went down and today.

Yes, I had to re-do my signature block…added some humor 🤣

Good to see you again Ginger! I have thought of you and so sorry for all your travails.

Thanks for the pictures Ruth, love them! TT

Wonderland, the first time I logged into the new site I was prompted with an "update your signature" pop up…it included a partially correct/partially incorrect version of my old signature, Hopefully you don't need to start from scratch!

Friday, rainy and relatively cold (50's) for us. Had planned to tour an assisted living facility today for my mother…but I think I'd rather be a hermit today. Will go to Happy Hour Yoga at 5. TT

Monument Valley, Utah

Bryce Canyon

Zion