My Husband, My Life, My Love, My Family, My Cancer

I ranted on the steam page about trying to be nice to people who keep recommending me diets to cure cancer. The latest was they read on the Internet someone followed a strict 250 calorie per day diet and cured their stage 4 cancer by starving it!!! I was skeptical so the response was, "Well if I had cancer I would try everything I could! The doctors don't know it all, probably hide the cure to get more money and big Pharma" etc etc. Smh. Headbang wall womp womp womp.

Lol baking soda. Well it's good for everything else! Cleaning, cookies...but not cancer. People want simple solutions to complex problems they can't or don't want to understand.

kbl, I'm sorry for whatever is making you feel bad. I think we all know each other well enough not to judge if something seems out of character for that person. The person who made the comment was a former college roommate and not someone from this forum.

You are loved.

(((hugs)))

Carol

Intolight-Great news! I'm glad you shared it.

Intolight, so good to hear about your scan results! And I share your feeling, as in 'scan results are good but I still feel like crap'. It's such a dichotomy, and no one in my life outside of this group gets it.

Sometimes just getting through the day and finding small moments of peace and even a little joy is all I have energy for.

@intolight that is amazing, spectacular news! Wow! NED! Like for real! May it last many more scan cycles, but go enjoy this knowing that for now your cancer either isn't existing in your body or is so microscopic that current technology cannot identify it. How fabulous :)

Ah - I got 'approved' to have some ibuprofen and GEE that helped right away and I felt much better. Honestly, just some days I need to get off insane island for a while. Second infusion yesterday went well and I think my mouth sores and sore esophagus are calming down to where I want to eat a bit more. Thank god, because between that and the D Ive been leaking potassium and I really gotta work to keep it up AND supplement. Not sure why its just potassium since my Magnesium and Sodium are all fine (sodium a bit low but nothing scary). I think the hydration packets helped those two come up a bit and helped the K not drop too far, but MO wasn't too keen on me using them while also supplementing K. Which I get but clearly not even supplementing is doing the full trick, though I wouldn't use the rehydration packets (like making home Gatorade) if I was getting IV K. Which I was threatened with yesterday (ohhh nothing more boring than one of those!), though I was also told to eat a banana once a day.

Today I have therapist call and then I was going to chip away at this occupational health information requestion for work so I can get paid next month. Oddly enough Im kinda looking forward to it and having something real to do :P

Woohoo intolight!!!!

That is something I grapple with… that we are not "cured" or, like goldens said above, that NED "if only it meant no more treatment and we could go back to preMBC normal". My scans back in April too did not show any evidence of disease (Thank God). But my MO notes said "stable on Lynparza" when I read them in the patient portal. And when I asked him about stopping treatment (I knew the answer but wanted to hear him say it) he said NO, that the cancer would grow without the meds. Cancer is hard to understand.

And, even if we are stable, we can still feel like crap. I nap every day. 30 min- 1 hour. It is hard to fight it. I need to recharge the batteries. I didn't used to be that way. And even though the nausea is better from the dose reduction of the Lynparza (Thank God), I still have unexpected bathroom trips at times.

KBL, hugs from me too, don't feel bad anymore, everyone can make mistakes. I tend to try to over help people and wind up erasing comments or editing too. Learning not to over help or add unsolicited advice unless someone's post asks for it.

I slept well, dealing with a sore back that is gradually getting better, about to put the tens machine on it and take some advil with tylenol. Will be stretching on the bed since can't get up off floor readily, may also workout from the bed, lots of arm and leg exercises. Stepping will involve marching on the spot for my steps, too warm outside and last thing needed is for me to get heatstroke since I cannot handle the heat. House nice and cool with AC in bedroom, high power fan blowing to living room and couple fans on low stirring the air.

Planning to simply do some more daily chores, dusting, vacuuming, laundry as well as well as making money from TV ads, watching a travel channel, sometimes listen to groove music or watch cute animal videos. Stupid easy way to make a little money and help pay for groceries etc. Planning to have a bigger meat pie for breakfast, add lentils and chia, put in a dollop of caesar dressing, later will probably have some sort of egg sandwich. I am also thinking of picking up a muffin pan, saw a recipe where the person whipped up cottage cheese and an egg together, poured into greased pan and baked on 350, can't remember the time but I think that sounds so good as an extra option. Got a couple of metal muffin pans though thinking more about egg bites vs actual muffins, could really do a lot. Was starting to get a silicone muffin pan but got nervous about heating up silicone so decided against it, supposed to arrive today. I just imagine so many different things I can make with various ingredients and have a smaller amount.

Anyway, enough of my boring chatter, I am in pockets of Emac and Sondra and anyone else needing it and own pocket to do all chores I have assigned myself. Kick my own butt. Not like they take long given the small space but if done a bit each day, less need to look at a larger clean.

@mara51506 Thank you, Mara.

@tougholdcrow Love your walk along the river story , cracked me up! Yep those flaxseeds are quite the colon cleanse lol.

mkestrel Awesome photos', love the action shot.

Mara Hope you back is feeling better and you got your list of chores done today. Heating up here too and I'm enjoying the A/C. We have so much pollen around I don't even want to open the windows.

Cookie I did finish chores yesterday, will be doing quick chores today, it took all of 10 minutes to do a cursory dust and vacuum yesterday, can probably get done again post Herceptin which I have today.

My back is recovering, I believe the TENS device helped, had on my back a long time, I don't let my mind wander as to what I did, just thankful it is clearing up.

I received a couple metal muffin trays, many things involving eggs and cottage cheese will be whipped up and baked, hoping for a shop with DB tomorrow instead of ordering a delivery, if not, can still use what I have here. Debating even putting a mini pot pie and egg mixture together, whipped up in chopper and top with shredded cheese, would probably be good, for today just having a couple mini pot pies with lentils about 1030. Also going to put some bb cream over my sunscreen, blush and the burts bees lip colour. Not too much make up but should be comfortable. Today's weather is vascillating between sun and storms and is humid as well so there will not be walking outdoors, debating a walk post Herceptin within the hospital before calling for my Paratransit home, easy to get steps that way. Need to get back on regular bus as well, could make more frequent free trips to pick up stuff needed for meals without need of a big delivery or booking. May also hop over to the grocery store across the road post Herceptin, grab a couple things then go back and phone for the trip home, would not be a long walk, will ponder that more.

Hoping everyone has a good day and in pockets for everyone who needs me. Thinking about emac as well, have to check brain mets thread just to make sure am not missing anything.