Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.
Posted on: Jul 17, 2015 02:21AM - edited Aug 2, 2017 03:46PM by sas-schatzi
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.
IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.
Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)
1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff
2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.
3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.
4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.
5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.
6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)
7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.
I will revise topic box as needed-sassy
For puking and the color works pukeewogh
Posts 3181 - 3210 (4,228 total)
May 16, 2018 09:33AM Micmel wrote:
this is one department I cannot complain about. My plastic surgeon was encouraging, he was kind, he listened to my concerns. I was in ICU for three days and every single morning he was there at 8:00 am. Checking on me. Making sure I was comfortable and he sat with me I asked about future plans for my right breast. He held my hand and said we would talk about it soon , in the future when I was completely healed and more alert. He didn't hurry me at all and he always made sure to take my hand at least once and say. You're doing great, is there anything you want to say or anything you need? Even with follow ups. He would sit with me and listen. He would ask family members questions, especially my DH.... he did a great job. I was very pleased with even my hospital visit. The nurses were great, the hospital was spotless, the attention given was pretty darn good. The only thing I did not like at all was the food. Not too hungry and I have beat up taste buds. I would recommend this plastic surgeon to anyone. I am thrilled with the breast he created for me. With my own abdomen,It matches my other one in shape Perfectly. Just need a lift for the right one. But there are good doctors out there. There really are!!! I wish there were more of them!!! There should be a standard of care that must be followed. Have a good night. Watch for storms. Be safe. Much love ~M~
May 16, 2018 03:42PM Lula73 wrote:
My PS visited me in the hospital too. Compassionate and positive. Concerned about my wants for recon and gave me the results i desired. I think that’s the difference between going to a big teaching institution and a smaller community or private group/hospital. Less personalization and more of an assembly line feeling. At my MO’s office it’s a cattle call/factory line. A lot of it has as with healthcare being run primarily as a business with passion/compassion for treating their patients coming in way down the line whereasbefore that passion/compassion was primary.
May 16, 2018 04:28PM Rosabella wrote:
my ps saw me too along with my pcp and mo when i was in for infection. That's the great thing about going to a smaller hospital rather than a teaching or bigger assembly line one. It's more personal.
May 17, 2018 02:40AM LoriCA wrote:
Sometimes visiting this thread reminds how much I am grateful for my medical team. I have access to several NCI designated cancer research facilities in the area but chose to go with a smaller private hospital group because I was concerned about the assembly line feeling and knew I would do better with a personal touch. Since the day of my DX I haven't stopped telling people how impressed I've been and how much I love everyone I have come in contact with. Often it's the little things, like when I had my outpatient surgery to have my port put in and mentioned to a nurse that I couldn't wait to have my first cup of coffee of the day, and she had a steaming latte waiting for me as soon as I came out of surgery. I've spent time in multiple departments of the hospital and all of my doctors have been wonderful. Feeling like they care about me as a person has made all of this much easier to deal with.
I'm so sorry for those of you who don't get similar feelings from your medical team. Cancer is hard enough to deal with.
May 17, 2018 03:19AM - edited May 17, 2018 05:48AM by Micmel
basically my medical team got real aggressive and really thorough. It brought me to NEAD. I pray it continues... I am very thankful for my medical team. They saved my life. I know I am stage four, but they got rid of a ton of cancer from my body. Hopefully gave me years more I may not have been able to have. I hear a lot of hospitals do not even contemplate operating, they just begin the treatments. The heavy chemo and treatment kicked my rear end, and aged me ten years, but I did what they said. I am glad I did. Other than extreme fatigue. I can't complain. Other than everyday living with fear. Of every ache and pain. The fear of any doctor saying the word scans. That's is when, I loose my marbles. Everyone should have good care! Not assembly line anything !! Cancer is Maddening enough.
May 17, 2018 01:19PM Lita57 wrote:
My DD's high school friend was in a six car accident last night. Only 2 people survived, the friend was one of them.
Friend was very freaked out over seeing the dead bodies...some of them were small children. She tried to help people get out of their cars.
Here we are worrying about our st 4 shiz when we could all go in the blink of an eye on the freeway.
May 17, 2018 06:07PM Rosabella wrote:
lita, is it the 880 one that was on the news? Nasty accident 1 exit from mine (mowry).
I agree. It's easy to forget that we are luckier than some, like those 2 kids who were killed☹
May 17, 2018 10:49PM - edited May 17, 2018 10:50PM by exbrnxgrl
Saw reports on the local news this evening . 880 in Fremont, right ? I've driven that way hundreds of times. Horrendous and a sad waste of life. It is always all the more heart wrenching when children are involved. Glad your dd's friend is alright.
May 17, 2018 11:05PM Micmel wrote:
OMG 💔 why is everything so difficult? Those young children. As I sit for my scans. I am thinking of those poor families. Lita, I am so glad your DD's friend is ok. There really are no words to what people go through. I am deeply saddened and sorry. ~M~
May 18, 2018 10:19AM - edited Dec 4, 2018 06:12AM by SheliaMarie
May 18, 2018 11:33AM Cpeachymom wrote:
Swess honey, I’m sorry you feel trapped. I felt trapped in a bad marriage years ago, with two small children, so I can relate a little. Of course, I wasn’t stage 4, which probably changes everything. I don’t know where you are or what your situation is, but if you really want a divorce, there may be resources to help you. I know there was free legal advice and help when I started looking. There was a lawyer who helped me fill out the paperwork to get the ball rolling. Being stage 4, perhaps you could go on disability? That would be some financial stability. Again, I don’t know your whole situation, but I feel for you.
May 19, 2018 12:34AM - edited Dec 4, 2018 06:13AM by SheliaMarie
May 19, 2018 01:39AM Rosabella wrote:
he'll never leave this house as in you won't get the house? Coexisting in a marriage isn't right. And you shouldn't feel bad for blasting him. That's how you feel.
Apply for social security disability. There's a thread in the financial employment forum here that gives the best link to a forum on ssdi. Stage 4 are fast tracked through. I'd apply now. Gl
May 19, 2018 03:02AM jaycee49 wrote:
Swess, I'm in a coexisting situation myself. I left DH for three years just before my dx. I was 62. That really woke him up. I moved back into the house we own and we do ok. He does all the housework, shopping, cooking, dishes, cleaning, laundry, everything. I also have MS so him doing it all is required. Recently, we got a dog and it is the first time we have something in common we really care about. That is helping. We don't do anything together except watch TV at night. I don't have any advice really. Just know that you are not alone in this mess. I bet it is pretty common. I have had SSDI since I was 52. Now, I'm 69. When you turn 65, SSDI turns into retirement SS. Amount doesn't change. Unless you made a very good salary, it is not enough to live on. Not even close.
PM me anytime.
May 19, 2018 03:18AM DazzlingEagle wrote:
First post under the steam room but i've read practically all of yours. After a glorious six weeks, on the roller coaster again. Went to the doctor yesterday and he sent me for another round of herception/perjeta. In the process of making all the doctor appointments, the new biopsy appointment, you know how it goes. My mind is going a million miles an hour. The chemo nurse says to me, you need radiation. That will be what helps you. Get radiation.
Okay, thank you but I didn't ask you.
Then she's going over some medical history and out of nowhere she starts grilling me about why I didn't have both ovaries removed. (I had one ovary removed that had a large cyst. This was planned with my doctor over several months) I don't need her opinion on my ovary.
Okay, at that point I stopped explaining.
I used to be so nice and before would have said something like okay, I'm looking into it or working on that with the doctor but I'm over it.
May 19, 2018 05:20AM - edited Dec 4, 2018 06:14AM by SheliaMarie
May 19, 2018 03:07PM - edited May 19, 2018 04:16PM by sas-schatzi
If I rant on the ranting thread about censorship, will I be censored by the censors that did the censoring?
Isn't that an interesting question?
I created this space to be a no holds bard talk space.. You asked that it wouldn't be a political space. I gave way to that.
Just want others to know...........what the line is........cross a line they don't like..... and you get deleted
That's my rant
May 19, 2018 11:08PM Lula73 wrote:
wish there was a like button schatzi...👍
May 24, 2018 04:51AM masonsmawmaw wrote:
I was just informed that Bluebird (Diane) passed away yesterday. So sorry to be the bearer of more sad news....
May 24, 2018 06:01AM - edited May 24, 2018 06:02AM by Micmel
oh goodness no..... too much sadness! Enough bad news about loosing sisters. Ty for telling us. I know we were worrying a lot. Fly sister, sweet soul. Kind beautiful woman. Not a good day. At all. Four terrible losses. ~M~no more pain sister.
May 24, 2018 10:25PM - edited May 24, 2018 11:59PM by Kattysmith
No anger, just a bitchy, whiny post about how it looks like I'm about to lose my hair again from my latest chemo. Losing it isn't the problem. The problem is that I'm an intensely private person (even my family isn't 100% privy to everything) and people take hair-loss as an open invitation to "share and care" and offer advice. I am really adept at frosting strangers out, but it honks me off that I have to! I'm generally a nice, friendly person, but I turn feral when my privacy is invaded, even if by well-meaning strangers! Yes, I have a wig, but my Gulf Coast home is one of the hottest and steamiest places on earth...I'd rather have the freedom to go about au natural without being stared at or embraced. I *envy* people with other terminal diseases that don't advertise their presence like a neon sign!
Thank goodness that my friends and family know not ask about something, that I will bring it up if I need them to know. My Rules of Order.
I do freely use humor and/or feigned clueless-ness to deflect comments, sometimes it works. Sigh.
Thanks for letting me get that off my chest!
May 25, 2018 09:31AM pajim wrote:
I feel your pain. But sometimes a "don't ask me or I'll kill you" attitude helps. I saw a lady at the cancer center on Monday who was rocking the bald look. And I wouldn't have dreamed of saying anything.
May 25, 2018 09:58AM Lita57 wrote:
I'd go bald, but it's still too damn cold out here. I have to wear a scarf or hat or my head freezes.