Topic: STEAM ROOM FOR ANGER

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts — Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

sas-schatzi wrote:

This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.

IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.

Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)

1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff

2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.

3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.

4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.

5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.

6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)

7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.

I will revise topic box as needed-sassy

For puking and the color works pukeewogh

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Jul 18, 2015 06:21AM queenmomcat wrote:

I rant about all of that! Well, not about the hair loss--I haven't had chemo--but at the problem of explaining to doctors why I'm so upset about something which seems minor to them, that getting a nipple tattoo won't restore to me what I've lost.

Ranting about financial issues! Being self-employed means not having to explain to an employer why I need to take two hours off every single day for six weeks. Not having to explain why I need this time off, and then face discrimination because I might have a recurrence. Illegal after the passage of the Americans with Disabilities Act twenty-five years ago? Yes. Will employers do it if they can get away with it? Yes. Cancer and cancer treatment may permanently affect individuals' ability to work, but sweet Jesus, don't jump the gun!

But I'm not only self-employed but trying to start a business: I have to find the work. It doesn't come to me. And that does mean worrying about when I'll have the physical energy and mental concentration to resume going out to find that work....and then there's "What if our income drops below the point of receiving subsidies under the ACA? What if we have to go on Medicaid?"

Dx 5/27/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+, HER2-, Surgery 7/6/2015 Lumpectomy: Left Radiation Therapy 8/31/2015 Whole breast: Breast Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2015 Reconstruction (left)
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Jul 18, 2015 07:27AM - edited Jul 18, 2015 09:39AM by sas-schatzi

*^$#%%%^^^&**((*&^^%Idiot Docs. What hope is thery're for any of us. How pervasive is this in the pathology community. I'll be shaking the rafters on this.

I saw Gyn doc this week. Reason: The path report of the biopsy in May, final dx written as CIN(cervical). Should have been VIN (vulva). They are completely anatomically different areas. I wanted to know why. Gyn said he had reviewed his notes when he got the report back and not to worry, he knew where the bx was from.

BUT BUT I had reviewed five path reports from the same lab prior to meeting with him. Five submissions from five different practitioners(4docs/1 NP). Three of five had something wrong. The pathologists (multiple) misidentified location or source, or dx didn't match location/source. The president or VP over that area will be getting a call this week. May have to take it to JACHO or the national accrediting laboratory organization. This is a different lab from the one where the pathologist twice failed to identify thyroid cancer. Oh yeah, no one ever said they noted an error.

One person. SEVEN path reports. Five of seven reports wrong. Three of five if you exclude the two thyroid errors as skill incompetence.

I know how to read reports as a nurse. The way all medical stuff is to be read is--Check name, date of birth, date of procedure. Then the diagnosis, specimen submitted, dx. Last check before completion(signature) is the same. Making sure all the info is correct. Obviously, this wasn't done by multiple credentialed people

This healthcare organization (HCO) owns 4 hospitals, the insurance company, all ancillary facilities, and has over 5,000 employees. The President isn't going to be happy.

Shit's going to hit the fan on this one. The internal review is going to shake up allot of people. I have decided to take it to the national accrediting laboratory agency. The process will keep people working for years. They will go over the HCO with a fine tooth comb, discover root cause, revise procedure, train, re-evaluate, retrain----that's at least three years right there. Then the national body will make rules and evaluate all departments that are accredited.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Jul 18, 2015 09:00AM BookLady1 wrote:

Thank you for being here, all of you! Okay, I started today listening to by DS and DH yelling at each other as they left to replace spare tire, find wheel rim, get new tire, etc. after DS '"bumped" a curb last night. Once the house was empty, I let loose. For the first time in many, many months, I screamed, I cried, I wept, and repeated. I feel empty. It was good.

An acquaintance asked me yesterday if I was all done with treatment. I asked her if she really wanted to know. She hesitated, but said yes, so I let loose. I have been "done with treatment" - love that lie, since we are NEVER done if we are alive - since May 2015. Dealing with post chemo, post rads, se's from Arimedex, etc. Severe nosebleeds started in May. After 2 ER visits, and 4 ENT appointments, and many hours at home dealing with this (2 1/2 hours per nosebleed) At 3 month check up, MO says nose bleeds side effect of estrogen fleeing my body is weaker blood vessels, dry membranes, etc. and he showed me a better way of stopping the bleeds. Thank you.

Continued joint pain, and neuropathy in feet, toes, fingers and hands. Keeps me up at night, keeps me from doing the things I enjoy, you know the drill. I joined LIVESTRONG program at the YMCA - I highly recommend this for non-gym types like me - and was working at trusting my body, again. On Monday numbness in my feet led to my tripping on carpeted indoor track. I FELL hard, and broke my right wrist. (scaphoid bone.) Embarrassment, pain, ER and doctor visits. Pain killers great until severe (post surgery and anti-nausea med type) constipation and all that that entails.

Phone call from newest doctor yesterday. Bone density scans troubling. Osteoporosis (low) in spine. Wants to start me on Fosamax and talk about Arimisen.

DS off to college in month and I cant do a damn thing with my hand out of commission.

1 year anniversary of finding my lump on 8/1 - DH birthday; he was at his dad's bedside after colon cancer surgery.

And my beloved Abby Airedale died of cancer in February, a day before my last chemo.

And no, I am really not grateful right now. Except for you all, and this site! (I'll probably never see that acquaintance again.)

Dx 8/11/2014, IDC, 3cm, Stage IIB, Grade 1, 1/2 nodes, ER+/PR+, HER2- Surgery 9/8/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 10/6/2014 AC + T (Taxol) Radiation Therapy 3/9/2015 Whole breast: Breast, Lymph nodes Hormonal Therapy 4/30/2015 Arimidex (anastrozole)
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Jul 18, 2015 01:05PM kmpod wrote:

I've posted this elsewhere on the site but I think it truly belongs here.

http://www.theglobeandmail.com/life/facts-and-argu...


kathy Dx 7/15/2011, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2-
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Jul 18, 2015 01:20PM BookLady1 wrote:

Kathy - thanks. This is perfect. lind

Dx 8/11/2014, IDC, 3cm, Stage IIB, Grade 1, 1/2 nodes, ER+/PR+, HER2- Surgery 9/8/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 10/6/2014 AC + T (Taxol) Radiation Therapy 3/9/2015 Whole breast: Breast, Lymph nodes Hormonal Therapy 4/30/2015 Arimidex (anastrozole)
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Jul 18, 2015 01:48PM - edited Jul 18, 2015 02:20PM by MusicLover

I get angry at the mainstream media, they paint breast cancer like it is a walk in the park. They tell us when someone famous has been diagnosed with this disease but when someone dies of it we barely hear about it. It gives the general public the impression that everyone always makes it. Maybe they don't want to scare the public but it doesn't seem right. Until I was diagnosed I never realized how many people die of this disease every year. I knew about recurrence but I didn't realize that the rate of recurrence for this disease was so high. I pray for a cure everyday.

(I hate to say it but I do feel like I am being punished. Not sure by who but it does feel like a punishment. I can't even begin to think how a child must feel who has cancer.)

As per PET scan, 3 or 4 nodules in the right breast, 2 of which were actually in the middle of my chest, the other 2 were side by side in the breast. Also DCIS in the left breast. Dx 9/23/2013, IDC, Right, 2cm, Stage IV, Grade 2, 1/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 10/9/2013 Femara (letrozole)
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Jul 18, 2015 09:50PM - edited Feb 8, 2018 02:35AM by meow13

This Post was deleted by meow13.
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Jul 19, 2015 05:27AM queenmomcat wrote:

Meow: Oh sweet deity: "the damn treatment feels worse than the disease". Even my husband, who is pretty unfailingly supportive and understanding, seemed perplexed by that reaction! I don't know if the disconnect between effects of the disease and effects of the treatment narrows or widens with the increased severity of diagnosis....but it's there for all of us.

Booklady: my neuropathy-raddled feet send your neuropathy-raddled feed their deepest sympathy. Mine has another cause, but doesn't make walking any easier! And how to explain to well-meaning medical professionals why I'm rolling my eyes in exasperation at their suggestion of "but you can go for gentle walks while you recover". And i expect kids would have their own sets of rants. Being talked down to. Lacking even the ability to make legal decisions about their own medical treatments. Unable to completely express how the side effects are affecting them.

.....Hell, I rant about any statement that starts "But...." but you don't have invasive cancer. but yours is curable. but you don't have to have chemo. but you didn't have to have a mastectomy. Feel free to suggest all the "but"s you've heard, ladies! (and the occasional gentleman)

Dx 5/27/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+, HER2-, Surgery 7/6/2015 Lumpectomy: Left Radiation Therapy 8/31/2015 Whole breast: Breast Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2015 Reconstruction (left)
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Jul 19, 2015 12:01PM BookLady1 wrote:



Queenmomcat - don't forget "at least" my personal fave! It puts the hair on the back of my neck up every time. Memorial Day weekend, at the ER after a 3 hour unstoppable nose bleed - even after jabbing nitrous oxide up both nostrils twice without 1st numbing the area ( painful, trust me) the doctor says "at least the metal cauterizing rod isnt working

Dx 8/11/2014, IDC, 3cm, Stage IIB, Grade 1, 1/2 nodes, ER+/PR+, HER2- Surgery 9/8/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 10/6/2014 AC + T (Taxol) Radiation Therapy 3/9/2015 Whole breast: Breast, Lymph nodes Hormonal Therapy 4/30/2015 Arimidex (anastrozole)
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Jul 19, 2015 01:09PM queenmomcat wrote:

Could the "at least"s and the "but"s be considered a variant? (At least you have sufficient remaining breast tissue for me to shape a new form." I'm not a gingerbread (wo)man!)

But I'd be quite happy to rant all afternoon about side effects that doctors don't tell you about! (I'm prone to bloody noses,)

Dx 5/27/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+, HER2-, Surgery 7/6/2015 Lumpectomy: Left Radiation Therapy 8/31/2015 Whole breast: Breast Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2015 Reconstruction (left)

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