Topic: STEAM ROOM FOR ANGER

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts — Meet and support others who are affected by these issues around anxiety, depression, and other emotional effects.

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

sas-schatzi wrote:

This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.

IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.

Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)

1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff

2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.

3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.

4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.

5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.

6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)

7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.

I will revise topic box as needed-sassy

For puking and the color works pukeewogh

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 19, 2018 07:54PM kathindc wrote:

Ladies, may I suggest you post your complaints about the Ibrance ads on this thread, Provide feedback/advice about our site and campaigns?!. Here is the link:

https://community.breastcancer.org/forum/93/topics/860125?page=9#idx_245

The mods check in on this forum periodically. It's amazing how we are bombarded with four Ibrance or Xgeva ads on just about every page on the main web site pages. I can't imagine a newbie feeling comfortable doing his/her research here.

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Apr 19, 2018 08:14PM marijen wrote:

LoriCA Thanks for your input about PPO/HMO. It's my understanding that with Medicare we don't need referrals, however, for the clinic I go to, it is their "rules". What bothers me is our "parts" are picked apart my these specialists and they don't want to know about anything that doesn't pertain to their body section! Today I mentioned pain in my pelvis and my MO was quick to ask did I tell my PCP? Well no because when I walked into the exam room, the nurse said they only had time for two issues. hahaha. Mo replies well then make another appointment! Right, two things about that, one it means another half day for me including an hour of travel time to mention one thing and another time slot for them - I mean they make patients wait anyways don't they? I'm practically screaming with laughter. Hey I thought since um because I have BC and I might have mets sooner or later my pelvic area might be considered?? Gotta love them. I'll take a robot when they come available, er...that would be one without judgement.

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Apr 19, 2018 09:18PM Artista964 wrote:

You dont need a referral for medicare. If you have issues which makes sense to see a specialist for then they should book the appt. If they don't take medicare then thats diffetent. Id contact your local representatives about their rules. They should know.

Dxd at 50. Went thru it all on my own by choice. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, PR+, HER2- Surgery 8/5/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 11/2/2015 AC + T (Taxotere) Radiation Therapy 5/3/2016 Whole breast: Breast, Lymph nodes Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 20, 2018 08:28AM - edited Apr 20, 2018 11:41AM by Egads007

This Post was deleted by Egads007.
"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/19/2013 Doxil (liposomal doxorubicin), Taxol (paclitaxel) Surgery 8/22/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 10/31/2013 Whole breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 20, 2018 09:52AM lorica wrote:

Micmel, darn it, you took away all of my motivation for trying to get to NEAD hahaha!! I keep hoping that one of these days I'm going to feel better than I do right now. I still have many days when I'm proud of myself just for getting out of bed, showering, dressing and feeding myself breakfast on my own (I know that sounds bad, but I was in really rough shape last year), and then I turn around and beat myself up for not handling things as well as Julie and Alice. I can fake it for a few hours and people will comment about how well I'm doing, but as soon as I'm back home I'm done for. And yes the hot flashes, and it's going to be even more miserable during the summer isn't it? At least I don't have enough hair yet to worry about ruining my hairstyle when the hot flashes hit haha! I get the chills from herceptin for a few days after my infusion too, so this week I'm bundled up like it's the dead of winter inside the house (including a warm hat and a blanket) even though it's in the 70s outside, then I start ripping off layers every time a hot flash hits, then a few minutes later I'm putting everything back on. My husband just laughs at me. The real b*tch is that I already went through menopause once naturally and now I'm dealing with the hot flashes and night sweats all over again. Wasn't once enough?? This is our "new normal" haha!

marijen sorry I'm not familiar with how Medicare works. My M.O. probably treats me the way he does because I am Stage IV with an extremely aggressive cancer that almost killed me once already, and if it starts growing again we need to jump on it immediately. He watches me like a hawk and wants to know absolutely every symptom. When I read stories from other women about problems with their doctors and other medical professionals, it makes me realize how lucky I am, all of my doctors have been great. Only two issues per visit? That's nuts, cancer is a very complicated disease. And a lot of our issues are due to the drugs we are on, so I want to talk to someone who understands the big picture.

IBC Stage IV de novo - mets throughout skeleton (bones & now bone marrow), liver, dozens of distant nodes, chest wall/pec muscle, skin, tumor in brachial nerves, thyroid, polycythemia from bone marrow involvement Dx 9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Chemotherapy 9/25/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2018 Perjeta (pertuzumab) Targeted Therapy 2/5/2018 Herceptin (trastuzumab) Chemotherapy 11/25/2018 Taxol (paclitaxel) Radiation Therapy 1/30/2019 Whole breast: Breast, Lymph nodes, Chest wall Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Targeted Therapy Enhertu (fam-trastuzumab deruxtecan-nxki)
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Apr 20, 2018 01:33PM marijen wrote:

Lori, exactly, we all should have some one looking at the big picture and not a PCP that knows nothing about breast cancer, bone mets, liver mets, lung mets, and brain mets, not to mention treatments. I’ve even seen one woman that had elbow mets. Actually it could happen anywhere and I have to add skin mets. So shouldn’t that person be the MO? Not the radiologist, the BS, or the endocrinologogist? It makes sense to me. Why do they insist on the PCP outsourcing, poor thing. With my AI eye problems I got bumped around too. How much can an opthamologist know about Aromatase Inhibitors, especially when the MOs can be in denial about side effects? This is why I look out for myself and get every symptom documented. We have to keep at it until someone listens. Make sure they don’t drop the ball. So glad your MO is watching out for you.


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Apr 20, 2018 03:44PM jaycee49 wrote:

I'm really mad and upset. I just found out that the very first person I met and PM'd with on BCO is stage IV now with mets all over the place. I almost wish I hadn't tried to find her but I did. Now I know. I wish I didn't know. Can I unknow it now? No, of course not. I need to write to her and support her if I can. It just SUCKS.

Janet (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2-, Targeted Therapy 3/31/2016 Ibrance (palbociclib) Hormonal Therapy 3/31/2016 Faslodex (fulvestrant) Hormonal Therapy 10/20/2020 Faslodex (fulvestrant)
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Apr 20, 2018 04:44PM micmel wrote:

I am very sorry Jaycee. Hugs to you.

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Apr 20, 2018 11:27PM runor wrote:

Jaycee, I always feel a little bit of hard won hope sucked out of me when I hear news like that. We all try so hard for that stupid, positive attitude that will save us (cough) and then you hear this and it just ... flattens you. I am sorry for you and for her.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 7/5/2017 Whole breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 21, 2018 07:55AM jaycee49 wrote:

Thanks, mel and runor. I messaged her but probably said all the wrong things. It was all about me and how devastated I was. Of course, she replied and asked how I was doing. You know the four places most likely to have mets? Lungs, liver, bones, brain? She has them ALL. Weekly taxol for a YEAR. I feel so humbled by her existence I don't know what to say. To her or anyone.

Janet (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2-, Targeted Therapy 3/31/2016 Ibrance (palbociclib) Hormonal Therapy 3/31/2016 Faslodex (fulvestrant) Hormonal Therapy 10/20/2020 Faslodex (fulvestrant)

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