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Topic: STEAM ROOM FOR ANGER

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts —

Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.

Posted on: Jul 16, 2015 12:21PM - edited Aug 2, 2017 01:46AM by sas-schatzi

sas-schatzi wrote:

This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.

IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.

Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)

1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff

2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.

3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.

4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.

5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.

6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)

7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.

I will revise topic box as needed-sassy

For puking and the color works pukeewogh

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Oct 18, 2021 06:17PM Kikomoon wrote:

Jelson, thank you for responding. I just feel like no one is hearing me! I know they are busy but the meds were approved by insurance weeks ago so, the pharmacy even sent me letter today that they haven’t been able to get anyone to respond. I feel like someone just needs to open an app on a computer and click twice and it’s just not getting done, and I’m the ass for calling! I feel like if I make a list of inadequacies they might hold it against me somehow and it will get worse. Kind of like how you don’t want to say anything about the food or service for fear they will spit in your food! Is that crazy or what.

Sadieservant, I’m so sosorry you are having to deal with that! They really need to see you. I would definitely go to the GP to check it out if the MO won’t see you! So frustrating that they aren’t hearing you.


Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Radiation Therapy External: Brain Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab)
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Oct 18, 2021 06:44PM Sadiesservant wrote:

Thanks Moth. Today I have some nausea but really not much and yes, the bowels are still working! Thanks also for confirming my thoughts on diagnosing abdominal issues. If I don't say the right thing, and the nurse doesn't interpret me correctly... I just feel there comes a point when an exam is in order.

Tomorrow I am having my port insertion and then we will see how it goes. The one positive out of today is that it won't sideline the port. It takes a while to get an appointment and I know I will need one. I wonder if I can talk nice to the surgeon and have him just swing me by the CT room on the way back to recovery... ;-) Just one quick picture of the abdomen... LOL.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)
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Oct 18, 2021 06:55PM MinusTwo wrote:

KikoMoon - can you make a set of 4-6 appointments ahead when you are there for a treatment? My doc's office let me do that. Also I asked for hand written prescriptions so I physically had them.

Sadie - good luck with the port tomorrow. Maybe you can get a "drive by" CT.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Oct 18, 2021 08:00PM - edited Oct 19, 2021 06:56AM by 7of9

This Post was deleted by 7of9.
If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/1/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/19/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/19/2016 Prophylactic ovary removal Radiation Therapy 2/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 4/1/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Oct 19, 2021 01:06PM bcincolorado wrote:

kikomoon if your MO office is like mine they are running at about 1/2 staff and people are working remote from home because of COVID. They are trying to limit how many people are in the office at at a time or who you have to contact with as a cancer patient. Makes it hard though when you are trying to get things done when people are not there and then you are waiting. And waiting.........waiting sometimes.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/7/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole)
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Oct 20, 2021 05:42PM Dancemom wrote:

I just need to scream this out.

This Breast Cancer Awareness thing SUCKS Everybody keeps saying "test regularly, get screened" and then people assume if you have adv cancer its your fault for not taking care of yourself. "What happened, don't you get screened regularly?" Stage 4 happened. I had my mammogram 18 months apart. My age has some guideline yearly, some everybody years.

Cancer sucks and acting like it's my fault sucks worse. And thanks for your helpful wishes, but no, I'm not going to get better soon, or anytime.

I know you all understand

This forum stresses me a lot, so I cant use it often, but thank you for listening.

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right
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Oct 20, 2021 05:43PM Dancemom wrote:

Sorry,- some guidance is every 2 years

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right
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Oct 20, 2021 08:50PM Katyblu wrote:

Kikomoon, have you told your MO about the issues with the front office. I was having customer service issues with the front desk and mentioned them in passing to my MO and he had no idea there were issues! After talking about it, it seems he brought it up to whoever and things have been a lot better.

Sadie, I’m so sorry your not getting the care you should be! I hope you were able to get some imaging. But if not, I agree go see your GP. I was doing telehealth up until September. Now I get to see all my specialty care doctors in person. I think you should definitely be able to be seen in person!

As I go to a military hospital for care, I am unable to really choose my care team. My MO changes every 18-24 months due to military rotation. Thankfully my nurses are a constant. Next week I meet with the palliative care doctor and I’m hoping I like her and if so, that she’ll become my constant. Being in the military and not looking sick, I get a lot of side eye if I take the elevator up or down one floor or when I walk slowly up the stairs. None of these know what’s going on with me, but it just reminds me that we shouldn’t judge people because we don’t know what they are going through. Sigh..

Dx 5/3/2017, ILC, Right, 5cm, Stage IIIA, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 5/16/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 6/20/2017 AC + T (Taxotere) Hormonal Therapy 1/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 8/19/2021, Stage IV, metastasized to bone, ER+/PR+, HER2- Hormonal Therapy 9/10/2021 Arimidex (anastrozole) Targeted Therapy 9/10/2021 Ibrance (palbociclib) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Oct 20, 2021 10:36PM bcincolorado wrote:

Oh dancemom it is stupid. Yearly needs to be the norm no matter what if you ask me. Right now I'm on a 6 month screening on my "non- cancer side" even because of issues on there. It stinks all around. Cancer is the pits no matter what. Are there people who ignore and do not go for screenings and then it is way late and advanced, ,yes. Then it may have been caught earlier if they had. For those who are doing what guidelines are and are at the mercy of insurance payments as well as a result it is something we hold our breath through and get it done and worry ourselves over.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/7/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole)
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Oct 20, 2021 10:55PM SeeQ wrote:

Dancemom, I can so relate. I did my annual appointments and mammograms (including 3D) on schedule. My de novo diagnosis was the result of following up on slightly wonky liver enzymes out of an abundance of caution. It really ticks me off when people infer MBC is the result of some perceived failure on the part of the patient. It's appalling how victim blaming is suddenly okay for MBC, even within the BC community.

Diagnosed de novo Stage IV; large liver mets; small breast tumor Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Oct 20, 2021 11:33PM Kikomoon wrote:

so I did see my MO this morning and voiced my concerns and apparently I’m not the only patient having issues. That’s not surprising, I never took it personally, they are just Totally dysfunctional. She did say they are woefully understaffed and are introducing some sort of new triage system soon. I’m not sure I feel any better. I continued to have issues getting my refill this afternoon. MO said she put it in weeks ago, pharmacy is pointing to Dr saying they had questions and can’t reach her so I need to call her. Dr says she’ll put it in again. Takes 24 to 48 hours to process. Pharmacy rep says one thing, the next rep says another, and I’m in the middle with no power, being told I need to call here and there to get things done. Bullshit I have a job, this is yours y’know? Tired of being quickly routed to the voicemail black hole. I was at my wits end this afternoon and called my nurse navigator to see if she could help. I really ought to just transfer to another provider system but I do like my MO.

Wow this turned into another rant! Feels good though. This issue seems so piddly in the grand scheme of things. I can start my meds a few days late. But it makes me wonder-when I do have really big issues are they still going to ask me for my copay then route me to the black hole?

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Radiation Therapy External: Brain Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab)
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Oct 20, 2021 11:38PM exbrnxgrl wrote:

My late mother believed that I developed mbc because I waited 13 months between mammos and the situation would have been entirely different and curable if I had gotten my mammos at the 12 month point. Despite my best efforts to explain, she held firm in her belief .

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Oct 21, 2021 12:33AM AliceBastable wrote:

exbrnxgrl, how awful!

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Oct 21, 2021 12:34AM Kikomoon wrote:

Katyblu- I hope you like your new doctor. My mom has military benefits due to my dad’s service and has had really good doctors. When people give you the side eye just give them full on stare and go “what?” Typically throws them off.

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Xeloda (capecitabine) Radiation Therapy External: Brain Targeted Therapy Tukysa (tucatinib) Targeted Therapy Herceptin (trastuzumab)
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Oct 21, 2021 12:34AM - edited Oct 21, 2021 12:36AM by Olma61

Interesting topic, mammograms. I never had a mammogram til I developed my breast lump. Could my Stage IV de Novo cancer have been caught earlier? Maybe. But I sure have seen enough women here and elsewhere who DID get mammos on schedule and their cancer was not “found early".

My KI67 was ridiculously high something like 75%....a very fast growing cancer.

I did do self exams and it sure seems like that 2 cm palpable lump came out of nowhere.

I decided not beat myself up over not getting mammograms since a.) cancer was beating me up enough already and b.) neither I nor anyone else is omniscient so neither I nor anyone else can know if my cancer could have been caught sooner on a mammogram.


How about young women who are below the recommended age for routine mammography but still develop breast cancer, sometimes de novo Stage.IV? Should they have done anything differently?

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Oct 21, 2021 01:02AM AliceBastable wrote:

I had a manual breast exam by my PCP about a week before the mammogram that found the tumor. She didn't feel a thing. I had never felt a thing.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Oct 21, 2021 01:28AM Olma61 wrote:

I didn’t even find the lump through self exam. I was sitting at my computer and I put my hand on my chest to lean forward and squint at the screen and under my hand I felt a big fat grape under my skin. The way it was positioned, at the perimeter of my breast, made it easy to feel. I didn’t have to press down or dig around, it was just THERE.

Which leads me to believe if it was slowly growing from the size of a small gem to the size of a pea to the size of a fat grape — I would have noticed.

BUT - like I said , I’m not omniscient. No way to know what could have been. Maybe it would have been found, or maybe my yearly or bi- yearly (CDC Guidlenes now, I think?) mammogram would have happened before it was detectable and it grew in the meantime


10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Oct 21, 2021 08:24AM DivineMrsM wrote:

I had at least ten years of annual mammograms. Ten days after the last one, I felt the thickening in my breast. Like you, Olma, it wasn’t thru self exam. I was lying on my back in bed and casually went to scratch my midriff and in doing so, my hand brushed against the underside of my breast and there it was. That was December. My gynecologist had done a breast exam on me in October.

Caryn, that is so terrible that your mom was so ill-informed about the timing of mammograms.

found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Oct 21, 2021 08:36AM SondraF wrote:

I think it goes back to the EARLY DETECTION SAVES LIVES line. Until you have gone through the meat grinder of a bc dx, you have no idea of how false that statement can be. How many women on here have signatures of rather "small" tumors, or hell DCIS even, who then went on to mets OR had a surprise mets dx at some scan point after chemo or surgery or whatever? How many are missed because the tumor was growing in a strange place, hidden by really dense tissue, growing in a sheet rather than a lump, fast growing, multiple growths, etc? There are so many variables because everyone is different with their personal physical composition and cancer profile. But the messaging and color-attachment is all very homogeneous.

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery Prophylactic ovary removal
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Oct 21, 2021 11:34AM Olma61 wrote:

Yes and then there are articles like this, along with a contingent of health experts, who say that mammograms actually aren’t preventing very many cases of life threatening cancer and may be finding cases that never would have become invasive, etc.

https://www.statnews.com/2016/10/12/mammogram-overdiagnose-breast-cancer/

Standing where I am today, I tend to think it’s okay to err on the side of caution when it comes to cancer screening - but still, let’s not give mammography more credit than it deserves. We need “the cure” not more screening. Screening never cured anyone, nor can it prevent someone’s “found early” breast cancer from metastasizing.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Oct 21, 2021 11:52AM Beaverntx wrote:

On the other hand, had I stopped getting mammograms at the recommended age of 75, who knows where I would be today? Diagnosed at age 77 with a grade 3 non palpable tumor, only the tip of which was seen on mammogram. The tumor was so close to the chest wall that it could not be felt.

Those who discuss over diagnosing usually are looking at stress related to a false positive. Personally I prefer that stress to the possibility of dealing with an undiagnosed malignancy.

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 21, 2021 11:54AM Sunshine99 wrote:

The whole "what if" and "why" seem to be pointless for many of us! We have CANCER! It's too late to go back and change the frequency of our mammograms, or change the way we ate when we were 22 (of whatever). It's like telling someone who gets rear ended at a stop light "Well, you shouldn't have been driving your car. Haven't you heard about distracted drivers???" Talk about blaming the victim!

OK, my mini rant is over - for now...

Carol

Cancer has progressed to my bones. I pray that it never enters my soul. my-sunny-side-up.com Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Oct 21, 2021 12:07PM Olma61 wrote:

Yes what Sunshine said. I’m not arguing against mammograms, I’m arguing against blaming people with advanced cancer for their disease.

Also, the article I linked to is not about unnecessary emotional stress caused by mammograms. Here’s a quote

“As evidence keeps growing that early cancer detection (of prostate, breast, thyroid, lung, and others) saves far fewer lives than everyone hoped, more and more experts are trying to change the conversation.“

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Oct 21, 2021 12:18PM exbrnxgrl wrote:

Because of the early detection mantra, too many people believe that those of us who are stage IV de novo did something wrong or neglected getting mammograms. I really want to throw my hands up because I do get a bit weary of explaining how things work with bc.

My mother was a lovely woman but she was quite superstitious. She had a hard time believing that sometimes things, bad things, happen for unexplainable reasons. When no rational explanations were found, she sometimes delved into the absurd. Some of you know that my younger sister passed away from an aggressive uterine sarcoma at age 50. She has recently started a new job. The person who held that position previously had passed away from some type of cancer. My sister had lived an extremely clean lifestyle since her college days. She had done everything “right”. So, my mom and dad speculated that perhaps her office chair was the same chair that the previous, and now deceased, employee used and since my sister sat in the same chair that’s how she got cancer! I kid you not. Mmom and to some extent my dad just couldn’t believe sh*t happens. My mom was really wonderful but her superstitious beliefs and lack of understanding of science/disease/medicine lead to some strange “conclusions” on why things happen in life.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Oct 21, 2021 12:21PM - edited Oct 21, 2021 12:31PM by ctmbsikia

Just 4 years ago (2017) I didn't even have a primary care doctor! My insurance co at the time required that I name one. I set up an appt. with hubs doc who was also treating my in laws. I had just turned 56. Walked out of the appt with 9 orders! I started with the lab work, and was put on cholesterol meds. Did Ok with low dose CT lung scan, failed the DEXA scan, and of course failed the mammogram. My 1st one ever! I felt my own lump getting into the shower one day about a month after my appt. I already had the mammogram order so they asked me to get it changed to the 3D diagnostic, which they did. I knew when I felt it that it wasn't right and that it shouldn't be there. Would earlier screening have caught it? Probably so, however, I'd most likely be on this same treatment train. No telling if earlier screening would have found the LCIS in my other breast. Once the cancer was found the surgeon and radiologists put me in for a "1st tissue" biopsy on the non cancer side. That wouldn't have happened so how long would it have been before the mammography as it looked like a benign finding and follow up in 6 months.

I don't beat myself up about it. So I had a larger tumor and it would have been every 6 months checking on the right side, which actually got fast tracked. I believe i would still be in this protocol.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Oct 21, 2021 01:45PM moth wrote:

Had clean mammogram, had lump just a few months later.... Stage 1A. Poster child for 'oh good you caught it early!" Did every single aggressive treatment they recommended....booom, metastasis 26 months later.

Beaverntx, overdiagnosis isn't just false positives, it's also dcis and small, low grade tumors which were never going to metastasize & which were thus never going to be life threatening

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 21, 2021 01:50PM tinkerbell65 wrote:

Mammograms - I was pretty good about getting mammograms. And the last few years, they always found dense tissue that merited a closer look - but the end result was no cancer. I skipped the mammo in 2020, because - COVID made me leery of hospitals, and everyone was putting off things that could be put off.

in 2021 I noticed a soreness around my nipple. No lump, just extreme sensitivity if I bumped anything. I figured it wasn't anything, until once when my dog jumped on me and happened to hit that spot and the pain was BAD. My gynecologist had retired, so I made an appointment with the one who took his place, for a checkup. she examined the spot, said it didn't feel like anything, it was probably scar tissue from a surgery I had long ago to remove a nevus. I made an appointment for a mammogram, and two days before, the center cancelled it because my insurance didn't approve it. What the hell? Medicare not paying for a mammogram? I called Medicare, it was a coding issue, apparently the breast clinic of a major medical center couldn't figure out how to code for medicare patients? So I waited for approval, re-cheduled, got the test, and it came back with two spots of "concern". The radiologist told me he didn't think it was cancer, but recommended a biopsy to be 100% sure. He said rather than him doing the biopsy, I should go to the breast cancer specialist. OK - so months after originally finding this spot, I go to the specialist who told me he was "98% sure" it wasn't cancer, but did the biopsy to make certain.

Then everything went to hell. Nobody thought I had cancer, until I did. Would things be different had I scheduled a mammogram in 2020, when COVID was running rampant through all the medical centers? Would things have been different had the billing department not screwed up the billing causing a delay in my mammogram? I don't know. I do know that my mammograms in 2017, 2018, and 2019 were clear and that I had none of the risk factors. No breast cancer in my family. (until there was) And that three doctors didn't think it was cancer, so I wasn't rushing to get it taken care of. It was probably 8 months between "hey that's weird, my nipple huts" and getting surgery. Maybe if I had been a hypochondriac that ran to the doctor with every little symptom, it would have been caught earlier. Maybe not.

So yeah, I share the anger about how early detection prevents breast cancer. It's just not that simple.

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Oct 21, 2021 02:03PM moth wrote:

tinker, even if you had found it earlier, what would have been different? They would still have found cancer, just a bit earlier,

Screening does not prevent cancer. It only detects it.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Oct 21, 2021 02:15PM SeeQ wrote:

tinkerbell- that really sums it up. It's just not that simple.

It seems like every provider asked me, "So, you never had breast cancer before?" (like I would forget to tell them) when they found it in rampant my liver first.

Diagnosed de novo Stage IV; large liver mets; small breast tumor Dx 6/2/2020, IDC, 6cm+, Stage IV, metastasized to liver, ER+/PR+, HER2- (IHC) Hormonal Therapy 7/2/2020 Arimidex (anastrozole) Targeted Therapy 7/9/2020 Verzenio
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Oct 21, 2021 02:59PM Sadiesservant wrote:

Interesting discussion on mammograms. I was one of those too young to be screened as I found the lump when I was 38. Oddly enough, it was my first ever self exam. A health manual came in the mail that was produced by our provincial government. I was flipping through the sections... what do you do for choking, etc. ... and came to breast health. Thought I really should be doing those and voila, lump in my right breast. By that point it had likely spread and so here I am...

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Navelbine (vinorelbine) Chemotherapy 1/6/2022 Halaven (eribulin)

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