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Topic: Poll - How old were you when dx with BC

Forum: Stage IV and Metastatic Breast Cancer ONLY —

A place for those managing the ups & downs of a Stage IV/metastatic breast cancer diagnosis. Please respect that this forum is for Stage IV members only. There is a separate forum For Family and Caregivers of People with a STAGE IV Diagnosis.

Posted on: Feb 15, 2009 09:33PM - edited Feb 15, 2009 09:36PM by Times3

Times3 wrote:

I am just curious to find out how old all of you were when first being dx'ed with BC (I don't need to know the year, I hate math so I wouldn't try to figure out how old you are now anyway).  It just bothers me that they are still promoting waiting until you are 40 to get a mammo.

I was 29 when I was first dx with BC, 34 with loc reoccurance and 36 with Mets to liver. Good thing I didn't wait till I was 40!

My Onc suggests that my daughter get a mammo five years before I was dx'ed.  She is almost 18 now! Also, I don't know if I have the BRCA gene or not, we are gettng ready to start that process but it scares me to know that I could have passed this to my daughter.

Kendra Dx 12/2008, IDC, 1cm, Stage IV, Grade 2, 0/1 nodes, mets, ER+/PR+, HER2-
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Posts 151 - 180 (1,035 total)

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Feb 28, 2009 03:45AM - edited Feb 28, 2009 03:48AM by LanaHN

I was 44. My Mum died from uterus cancer. I scare for my daugthes too.

I had mastectomy, Chemo and going to have Herceptin for 1 year with Arimidex.

I saw some were with BC for more than 10 years, even up to 20. But it seems in many people BC progress quickly from stage I to IV or V just after few years.

I think this is good idea to have this kind of poll to know age, kind of BC, and treatments, progress...

These information would be very helpfull.

Good luck to all of us!

Dx 9/10/2008, IDC, 1cm, Grade 2, 0/6 nodes, ER+/PR+, HER2+
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Mar 4, 2009 03:42AM Waldmeister001 wrote:

20 first DX

25 stage IV

1.DX 10/2003 IDC Stg.IIa Mastectomy,Chemo, Rad. Dx 5/3/2008, IDC, 5cm, Stage IV, Grade 2, 5/14 nodes, mets, ER+/PR-, HER2+
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Mar 4, 2009 08:13AM - edited Mar 4, 2009 08:14AM by lsmeenk

29, diagnosed with stage IV from the start. BRCA2+, mom had breast cancer a year and a half ago and is doing well!

Dx 9/10/2008, IDC, 1cm, Stage IV, mets, ER+, HER2-
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Mar 4, 2009 08:21AM hopefor30 wrote:

Diagnosed at age 47 with DCIS intially -- final pathology after lumpectomy showed 3mm tubular -- Stage 1 - currently age 49 -1.5 years post diagnosis and on tamoxifen....

Very sad to see how many started as stage 1 and progressed.....

M.

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Mar 4, 2009 09:06AM DeirdreJeanne wrote:

Diagnosed age 39.  Stage III.  No prior mamm. 

Thankful for negative BRCA1-2 status.   The recommendation for my  daughter is to start screening at  10 years younger than my diagnosis age. 

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Mar 4, 2009 09:54AM KiminJax wrote:

I decided to look at this one again this morning and it is appalling that so many of us (majority) were dx'ed around lat 40 - 50.  That is way too young.  Even though we know that cancer doesn't really discriminate based on age, we need to learn what is permiating our lives now to cause onset of this disease so much earlier in just one or two generations.  My grandma was in her 70's my mom late 60's, me at 47 and we know my daughter is braca2.  It seems like there is more that we could do as an advocacy group than just running/walking for money.  I don't have the answer but I'm not really sure we have the attention we need from the NIH, etc.  Good luck to everyone in your jouney and thank goodness for this blog.  Kim

Dx'ed in September 2004, mets to lungs in September 2006, mets to brain in September 2008. Mets to liver & Spine Nov 08. BRCA2+
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Mar 4, 2009 12:24PM SuzCA wrote:

I am amazed and saddened to see so many 20, 30 and early 40 yo's.  Nobody should get this nasty disease, but wow. 

I was Dx'd at 47 stage 2.  I had a three yo daughter at the time.  After a series of complications I ended up with a tram flap on the left side three years later and uncovered a local reoccurance. 

DX 4/2005 Stage II?(vascualr invasion) IDC, DCIS, LCIS, weak ER+, PR-, HER2-, IDC, DCIS loc reocc, IDC 8/2008
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Mar 4, 2009 05:29PM 009Anna wrote:

I was 44

Dx 3/7/2001, ILC, 3cm, Stage IV, Grade 2, 2/6 nodes, mets, ER+/PR-, HER2-
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Mar 4, 2009 05:48PM mom_of_2 wrote:

40

mom_of_2 Dx 6/2/2008, IDC, 2cm, Stage IIB, Grade 2, 1/23 nodes, ER+/PR+, HER2+
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Mar 4, 2009 08:15PM clanzillotta wrote:

52 original dx mets to bone

Dx 8/30/2007, IDC, 2cm, Stage IV, 18/20 nodes, mets, ER+, HER2-
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Mar 4, 2009 08:29PM - edited Jul 21, 2012 12:23AM by juliejfsrj

This Post was deleted by juliejfsrj.
julies
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Mar 4, 2009 08:55PM navygirl wrote:

I was 42...it was only my second mamogram...they had pulled me back in for my first one for a second look but then said there was nothing to worry about...I guess that depends on who is doing the worrying? The cancer was in the same spot on the films as the first thing they saw.

life is short, play hard
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Mar 5, 2009 12:49AM Lories wrote:

52

Dx 12/19/2008, IDC, <1cm, Stage I, Grade 2, 0/10 nodes, ER+/PR+, HER2- Surgery 1/5/2009 Lumpectomy: Right Radiation Therapy 2/1/2009 Whole-breast: Breast Hormonal Therapy 3/1/2009 Femara (letrozole) Hormonal Therapy 10/15/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 5, 2009 01:15AM sherryw wrote:

DX at 40     I always did my monthly exams,  Did one in Dec 04 no lump.  Then I had a bad shoulder and had to use my other hand to help roll myself over in bed and when I did that i felt the lump clear my right side of my breast almost under my arm.,  That was Feb 05 went to doctor the next morning and found out I had BC.  So my tumor grew fast, it was not there in December but it was 2 cm in Feb.  Going to get a small lump out March 20th and get it sent for a biopsy to check on it but we think it is scar tissue ,  But it will look better to me in a jar.

Light thinks it travels faster than anything, but it is wrong. No matter how fast light travels, it finds that darkness has always gotten there first and is waiting for the light Dx 2/14/2005, IDC, 2cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2+
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Mar 6, 2009 02:11PM LauraD23 wrote:

39

Dx 2/2009, DCIS, <1cm, Stage 0, 0/0 nodes, ER+
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Mar 6, 2009 02:50PM - edited Mar 6, 2009 02:51PM by REKoz

Mom- 3 years ago at 77

Me- 2 weeks after my 53rd b-day. Tested Brac neg,

Something I forgot to ask genetic counselor. Maybe someone can help. Mom adopted, no family med history known. Since I was Brac neg, does that def. mean my girls are? If not that gene, I am convinced there's some as yet not identified genetic component. Onc. said my girls should have a baseline MRI (not mammo) at 30.

These ages and stats are HORRIBLE!

Ellen

BMX 11/08, Abraxane/Carbo/x4 1/09 Herceptin until 1/10, Recon w expanders-1st exchange Dec. 09. Revision from 700 Style 20 to 600 Style 45-Oct 10 Dx 10/16/2008, IDC, 1cm, Stage IB, Grade 3, 0/5 nodes, ER+/PR+, HER2+
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Mar 6, 2009 03:07PM Member_of_the_Club wrote:

Your daughters could get the mutation from their father's side of the family, but if there is no history of breast/ovarian cancer over there, not to worry.  I was also BRCA negative and told that my daughter should begin screening ten years before the age at which I was diagnosed.  I think an MRI at 30 is a good idea.

Dx 9/30/2004, IDC, 3cm, Stage IIB, Grade 2, 1/17 nodes, ER+/PR+, HER2-
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Mar 6, 2009 03:31PM SandyInNj wrote:

39, stage 1

I have a daughter who's 23 who also wants nothing to do with BRCA testing.  She's been told to get her first mammogram 10 years earlier than my diagnosis, which would be at 29 y/o...she promised she'll do that, but she doesn't want to know her risk, can't say I blame her though.  But mammo's failed to find my cancer (found by U/S only), so not really a whole lotta help for those of us with dense breasts.

Hoping this 40-to-get-your-first-mammogram crap comes to an end and is replaced by earlier and much more sensitive testing so that young women can get diagnosed earlier than what they are.

Hugs ~Sandy~ Dx 9/4/2002, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
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Mar 6, 2009 05:07PM Monique42 wrote:

37- Stage 11b-ductal

41 - Stage 111c - lubular

44-Stage v - bones & liver

Monique Dx 6/17/2008, 2cm, Stage IV, Grade 2, 1/4 nodes, mets, ER+/PR+
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Mar 6, 2009 05:52PM Squirrel80 wrote:

24 first dx - stage IIIa

26 - lung mets - stage IV

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Mar 7, 2009 12:01AM Kavy wrote:

Dx 43, Stage 3C, seven months later Stage 4, mets to liver and lungs, 4 years ago in April. 

Dx 4/7/2005, IBC, 6cm+, Stage IV, Grade 3, 1/19 nodes, mets, ER-/PR-, HER2+
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Mar 7, 2009 01:24AM swimfan wrote:

43 Stage 2...(mammo did not show 4.6cm ILC) 45 Stage? 1 possible met to spine and 3 nodes (1 proven supraclavicular and 2 posible axilla)

R (Recurrence Feb. 2009 1 SupraCL Node & 2 Axilla plus 1 spine met) Dx 4/4/2007, ILC, 4cm, Stage II, Grade 2, 0/5 nodes, mets, ER-/PR-, HER2-
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Mar 7, 2009 08:31AM luvtotravel wrote:

First Dx   45

Stage IV  49

Luvtotravel Stage I 2004 Stage IV 2008 mets to bone and liver.
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Mar 7, 2009 09:51AM ead wrote:

I was 38 for orignal dx

46 dx with bone mets

Ead Dx 6/3/2006, Stage IV, Grade 3, 1/18 nodes, mets, ER+/PR+, HER2-
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Mar 12, 2009 01:22AM DottieW wrote:

50 .... Stage 2b ... turned 53 last week. So far, so good... hugzzz to all.

Dx 7/24/2006, IDC, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2-
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Mar 15, 2009 05:55AM jazzme24 wrote:

gud pm guys, i really just need your advise, last january i had operated 2 fibroadenomas in both breast, then after th operation the doctor gave me anti biotic w/c is gud for a week, then med for pain, after that i stop after 2 weeks i went for a long trip coz of my work, anf after that i felt too much back pain, likewise the part where operaion takes place, its been a month now but still the pains still there, im just woried is it possible that its not yet healed th einside part of teh breast?do i need to take a rest ist,coz eveyday i travel,and do i need to drink again my anti bioic mdicine coz i stop drinking it aftr 1 week of operation, thank you so much... jazzme

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Mar 15, 2009 06:02AM jazzme24 wrote:

gud pm guys, i really just need your advise, last january i had operated 2 fibroadenomas in both breast, then after th operation the doctor gave me anti biotic w/c is gud for a week, then med for pain, after that i stop after 2 weeks i went for a long trip coz of my work, anf after that i felt too much back pain, likewise the part where operaion takes place, its been a month now but still the pains still there, im just woried is it possible that its not yet healed th einside part of teh breast?do i need to take a rest ist,coz eveyday i travel,and do i need to drink again my anti bioic mdicine coz i stop drinking it aftr 1 week of operation, thank you so much... jazzme

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Mar 15, 2009 04:21PM - edited Mar 15, 2009 04:22PM by TrustingHim

This Post was deleted by TrustingHim.
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Mar 15, 2009 05:24PM TripleNeg wrote:

37

"The girl who became emotionally distraught, and wavered at each new set of circumstances is now grown up, a woman who has learned to rely on God's sovereignty" Joni Eareckson Tada
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Mar 16, 2009 03:56PM nanasheri wrote:

I was 34 when my first dx. 5o when we found mets.

My oncologist told my daughters to start have mammograms at 24, cos I had probably had it for 10 years before we found it.

nanasheri

Dx 1/25/2007, 3/10 nodes, mets, ER+/PR-

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