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Terrifying stories
I'm going in for my oncoplastic lumpectomy on Thursday. This will be followed by 3 weeks if radiation, and then.... An aromatase inhibitor. They caught this early, and everyone is telling me how lucky lucky lucky I am. I'm terrified. Not by the surgery or the radiation really-- in confident that this part will go well. But…
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Tomxfine for 5 years
Hello everyone I am stage 1 ilc ER +PR+ HER 2 - grade 1 Lymph node 0/3. I took T for 5 years and 11 months of Letrazole and I developed severe joint arthopathy involving the hands and other joints.I had to have hysterectomy because of polyps .Anyone in a similar situation took T for 5 years or do I have to continue for up…
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After 2-3 Yrs of Tamoxifen, 5 Yrs of Femara Offers More Benefits
After 2-3 Years of Tamoxifen, 5 Years of Femara Offers More Benefits Than 2-3 Years September 30, 2021 After taking tamoxifen for 2 to 3 years following surgery, postmenopausal women diagnosed with early-stage hormone-receptor-positive breast cancer had a better survival rate from taking 5 years of Femara rather than 2 to…
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I need estrogen!!
Hello all! It’s been a while since I’ve been on! I hope everyone is doing well. I want to complain for a minute because y’all know more than complaining to my friends. Lol I’m almost 3 years out. I’ve had my ovaries removed 2 years ago and quiet honestly, if I had it to do over, I would have never done it. I NEVER sleep,…
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ARIMIDEX AND DIGESTIVE ISSUES
Just wondering if any of you on Arimidex or have finished....... do you have digestive issues? I have seen where some had their gallbladders removed after Arimidex or during. I had nausea and sore throat all during my 5 years, besides the joint problem. I will always have the joint problems, I think because the Arthritis…
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Has anyone had the BCI (Breast Cancer Index ) test?
I am 5 and 1/2 years out from my diagnosis of ER+PR+HER- IDC, post BMX, chemo and almost 5 years of endocrine therapy. (I've tried them all and currently on Letrozole). Hate them all pretty much the same. Got my results of BCI ( not from doctor yet-I requested from the company and will discuss at my next visit which is…
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Are lower doses of Tamoxifen just as effective?
Hi, I found a study on Evidence Watch yesterday that said Norweigen researchers had found that lower doses of Tamoxifen were as effective as the standard dose. I can't find that study today, because that website is REALLY hard to navigate. Has anyone else heard that about lower doses? I'm really small - maybe I won't need…
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Aromasin and Hair Loss
I can't find this specific topic: My hair is thinning fast!!! I'm 58, was stage III, LN positive, had aggressive TX, now doing fine on Aromasin after initial joint pain of 3-4 mos. I'm on this stuff for at least 3 more years. Oncologist says its my best weapon so I'm going to stay with it. My hair used to be so thick and…
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Side effects after vaccine
Does anyone know how the COVID-19 vaccine affects us while on hormonal therapy? I had the Moderna vaccine and after the second shot I have an increase in anxiety and my hot flushes are back
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Treatment Break From Extended Femara Doesnt Affect Survival
Treatment Break From Extended Femara Doesn't Affect Survival August 17, 2021 Survival rates were the same in postmenopausal women diagnosed with early-stage hormone-receptor-positive breast cancer whether they took a short treatment break during extended adjuvant hormonal therapy with Femara or took Femara continuously for…
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Runners and other Athletes on Tamoxifen
Hey ladies. I scoured the tamoxifen threads and didn't find much related to this topic, so I thought I would start it. I'm 53 and an avid runner, cyclist and fitness instructor (in addition to my full-time job in advertising) and I was wondering if any of you have had issues with intense athletic endeavors and tamoxifen. I…
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Pain in shoulders, not sure what the cause is
A couple months ago my shoulders started hurting- right where my bra straps sit. I have been taking Tamoxifen for a year, plus I get a shot every 3 months to shut down my ovaries. I had radiation, but that was a year ago. Whenever I stretch, I get a stinging sensation in my shoulders. Anyone have these issues?
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Any positive or "OK" experiences from Tamoxifen?
It is pretty much a sure thing that I will be taking Tamoxifen after radiation. I hear a lot of negative things, but want to hear if there is anyone having or who has had an "OK" or positive response to this drug. Thank You
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Cant deal with letrozole, is tamox an option?
I am seriously thinking about going off this med that I've faithfully taken for 2.6 years. I was hoping to make it 5, but the SE's are getting really old. I know my risk of recurrence is small, 3mm tumor found in 6 mm of DCIS, but there is risk. I am not sure how much? I will be talking to my MO on the 17th. I am 64 and…
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Has anyone experienced ear problems from being on Arimidex?
PLEASE HELP, I have clogged ears, ear pain and also on and off ringing. I know ototoxic drugs have been known to cause tinnitus etc. I've been on this drug for 7 years now. My ear problems started out of the blue 6 months ago. ( I have had all the normal testing from ENT's and other specialists) They say they don't know…
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Kisqali-Faslodex Combo Improves Overall Survival in Advanced HR+
Kisqali-Faslodex Combo Continues To Improve Overall Survival in Advanced-Stage, Hormone-Receptor-Positive Breast Cancer in Postmenopausal Women June 20, 2021 The latest results from the MONALEESA-3 study show that combining Kisqali plus Faslodex continues to offer better overall survival than Faslodex alone. Read more...
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Ibrance-Faslodex Combo Improves Overall Survival in Advanced HR+
Ibrance-Faslodex Combo Continues To Improve Overall Survival in Advanced-Stage, Hormone-Receptor-Positive Breast Cancer June 10, 2021 The latest results from the PALOMA-3 trial show that combining Ibrance and Faslodex continues to offer better overall survival than Faslodex alone. Read more...
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Anyone have a good (or at least OK) experience with Tamoxifen?
I have been reading through this forum, getting sucked down the rabbit hole of too much information, and so much of it scares me! I finally have my tamoxifen sitting on the counter, where it has been for a few days. I have not taken it yet. I came to this forum hoping for some reassurance, but it seems that most of the…
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Dry eyes from als
Has anyone had eye trouble from taking FemerI
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Fertility Concerns May Make Young Women Skip/Delay Hormonal Tx
Fertility Concerns May Make Young Women Skip or Delay Hormonal Therapy After Breast Cancer Surgery May 18, 2021 Younger women diagnosed with hormone-receptor-positive breast cancer may skip or delay taking hormonal therapy medicine after surgery because they're concerned about having children. Read more...
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arimidex
Hi, brand new here... Wondering if anyone else has had terrible muscle ache with arimidex. SE say joint pain, I don't see a lot of talking about muscle pain. I feel like I have done 100 squats today, that would be cool to brag about, but trust me I haven't. walking down stairs is hard, because of how I hurt. I have muscles…
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Rosacea with tamoxifen
Just want to throw out a question. I have been on tamoxifen for 2 1/2 years post lumpectomy and radiation for DCIS. I have had mild side effects but not particularly bothersome as I tell myself this is my insurance policy. Now all of a sudden I have developed rosacea. I tend to blame every new thing that happens to me on…
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ARomatase Inhibitors and Statins
Is there any studies that show being on both aromatase inhibitors and statins increases the likelihood of more severe side effects? Any personal experiences? I went to a new cardiologist and he told me to stop the statins for 6 weeks to see if I feel better. I thought there were no other options to reduce cholesterol, but…
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new hip pain after lupron shot
HI! Been on Lupron for just about two years now but these past two months I've noticed hip pain on both sides that seems to have come on after the shot and last for about two to three weeks, then I noticed it wore off but came back after this last month shot. Im wondering if its goes away as the lupton in my system fades?…
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Prolia Shots for Increasing Osteopenia
Hello- I am a Stage 1A bc survivor, and have been on Arimidex for almost 2 years as of this coming March (2015). I was just slightly osteopenic coming into this, but now am discovering, despite doing regular Calcium intake, high Vit D supplements and regular weight bearing exercise along with the AI meds, my bone density…
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what to do with prescriptions
i have 4 months of tamoxifen, sealed containers which i will no longer be needing- i have searched all over the web for a way to donate these but so far no success. What a waste. Any ideas
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Lethrozole 5 years fatigue and nausea
just wondering if anyone else suffering from fatigue and nausea late in the day from lethrozole. it actually feels like pregnancy..I feel really really tired and nausea and I need to eat fast. thought I had developed type 2 diabetes but not the case. anyone else having this side effect from lethrozole? many thanks in…
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Arimidex and Urinary Frequency
This year I finished 5 years on Arimidex. Coincidently or not, I found that I go frequently to pee especially at night. I can get up to go to the toilet up to 5 times. Has anyone else found the same thing? On Monday I go for a Cytoscopy to see what the problem might be in my bladder. I'm quite nervous since all I can think…
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half dose of Femara
Has anyone heard of successful treatment using only 1.25 mg of femara daily? Has anyone gone from 2.5 mg to 1.25 mg for management of SE's, did it work? I would love to hear some success stories:)
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Starting tamoxifen soon
Hi folks, Had my bilateral mastectomy on Feb 10th. Doing well and awaiting word on whether I will need chemo or radiation, but both are unlikely. Will definitely be starting Tamoxifen soon. Wondering what to expect. Slimbero