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Tamoxifen often causes insomnia/depression. Did they warn you?
I just was talking recently with someone I know on Tamoxifen. She was having worsening trouble falling asleep as the months went by on Tamoxifen. She also noticed increased mood swings, and her usually optimistic disposition just disappeared the longer she was on tamoxifen. I asked her if her doctor had warned her about…
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For Arimidex/Anastrozole new, past, and ongoing New
July 10, 2012, nancyjac started a new thread for Arimidex/Anastrozole users because the older threads covered a large time span with a gazillion posts. The last thread was 424 pages; so here is a new thread for Arimidex/Anastrozole users. I hope that this will just carry on with the same support and information shared over…
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Arimidex and smelly urine
I'm new here so please forgive me if this has been asked before. I had a mastectomy last fall. No chemo or radiation. Have been on Arimidex about six months. My urine is becoming increasingly smelly. Embarrassingly bad. Sometimes it smells like hot dogs. Sometimes like bacon. Sometimes a sharp green grassy smell. Sometimes…
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arimidex and belly fat
Has anyone found that Arimidex (and maybe the other AI's too) increase the girth around the belly? I have lost weight but still things are tight there and it almost seems bigger.....bloating?
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Anyone use Collagen/peptide powder supplements for SEs?
I just started taking collagen powder supplements and they seem to be helping with my anastrzole side effects, joint and muscle pain. Anyone else have luck with this treatment
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Tamoxifen causing muscle and rib pain?
I'm 33, was diagnosed in 2006 with stage 1 IDC, Oncotype score was 9, no lymph node involvement, ER/PR+, Her2-. I had a lumpectomy followed by radiation. I've been on tamoxifen for about 2 years and approx. 8 months ago my ab muscle just below my ribs (breast cancer side) started aching to where I couldn't do ab workouts…
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Keeping our Hair Healthy while taking anti hormonals
I have always had thick and luxurious hair, until now. After radiation, I started having hair come out at a faster rate than what I was used to. I have tried several types of shampoos, conditioners, hair mousses, sprays, thickeners, and treatments. I have used Nioxen #2 and #4, Matrix Oil Wonders Volume Rose, and now…
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Am I imagining it??? Switching Tamoxifen generic & SEs
Hi everyone - I have been on Tamoxifen for 2 years and have tried a few of the generics. Teva was the one that really gave me very few side effects, and as many of you know, it is now discontinued. From what I've been able to figure out, Teva bought Activis and is now selling their Tamoxifen. At the same time, Teva sold…
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Long-term Lupron injection
Hi Everyone, I'm 45 years old and had my first lupron injection one week ago. No side effect yet. I can't take tamoxifen because I'm a Hep-B carrier. I will start arimidex once my ovaries have been suppressed. Since the average age of menopause is 51, does it mean that I will most likely need monthly lupron injection for…
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Does Anastrozole cause gallbladder polyps?
I have been on Anastrozole for approximately four months. Yesterday, I had an ultrasound as a regular check follow up for a past liver adenoma that was removed which was benign. My Gastroenterologist likes to order abdominal ultrasounds to monitor the liver on a regular basis as well as liver blood tests-LFT and AFP just…
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Anyone Regret Not Taking Tamoxifen
I am so on the brink of stopping tamoxifen after 6 months of taking it. The only reason I continue to take it is for my family (my husband and 3 teenagers). The side effects have not improved, but instead I have a few additional ones. I just feel like my quality of life really is not where I need it/want it to be. Plus,…
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UTI's
Hi everyone, Just really reaching out for info on UTI's and AI's. I am on Letrozole and have yet another UTI. I have to pick up my abx tomorrow. I had a gynae op about a year or so ago and developed internal adhesions, I was told this was as a result of lack of oestrogen. But I keep feeling that my bladder is not emptying…
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Collagen supplements
Has anyone looked into collagen supplementation to offset some of the things that the Als take out of us? Just curious about what others know. So far my research has not come up with any negative risks. Benefits that I have found cited include bone, skin, hair, nails and immune system support. It works best when taken with…
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Postmenopausal bleeding after stopping tamoxifen
I was diagnosed at age 47 and was on tamoxifen for just over 3 years, which I recently stopped. Was perimenopausal upon starting it and stayed that way for over a year. I'm 51 now and have not had a period for 25 months. Well, 3 days ago, I started what looks and is acting like a period. Was heavy for 2 days and is now…
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Period after Zoladex
Hi! I've received Zoladex shots for three years and had my last one in October. They put me in menopause since I didn't have kids when I was diagnosed - I was 33 years old at the time. I don't know when will my period come back, is there anyone with a similar experience? :) I wonder what to expect now, didn't get any info…
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Lupron plus AI
I gave chosen to go the aggressive route of monthly lupron shots plus an AI rather than tamoxifen. I was 38 at diagnosis and 39 now. I have just read that it is possible to have incomplete ovarian suppression which would make my estrogen levels too high for the AI. Anyone else doing this course concerned? My MO says she is…
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Can Tamoxifen cause false negative Pregnancy Test Result
Hi, I'm hoping someone out there might be able to help me - I'm just wondering if it's possible that tamoxifen can cause false negatives for over the counter pregnancy test kits. I'm 38 and have been on Tamoxifen for four and a half years. I was diagnosed 5 years ago with fairly advanced (metastasised) breast cancer and…
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Plantar Fasciitis, anyone?
I've had PF on and off for several years, and prescription orthotics usually cleared it up. But it's gotten steadily worse since I started Femara almost 3 years ago and orthotics (which I've been wearing religiously since last September) have done nothing to take the pain away. Have any of you with PF found anything that…
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Unable to tolerate tamoxifen.
i started taking tamoxifen on 26/12/16 by the 30/12/16 I was a wreck. I have had a severe psychological reaction to it my symptoms include severe depression, suicidal tendencies, high high anxiety, feelings of complete disassociation to everyone and everything around me, paranoia, anxiety, inability to concentrate, focus,…
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Best time to take Arimidex--morning or evening??
I'm starting Arimidex either tonight or tomorrow morning. I'm just not sure which would be the best time. I'm worried if I take it tonight that it may interfere with sleep--- am having problems sleeping as it is. Then I wonder if I take it in the mornings will it mess up my whole day. Any ideas, ladies? What time of day do…
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Side Effects After Stopping Tamoxifen (Weight Gain?)
Hi all, for some reason, I started thinking about what happens when I get off the Tamoxifen. I still have 2 years to go but of course, they are recommending the 10. Hey, 50-60% reduction of recurrence is great for 5 years, but 3-4% for the next 5, no thanks. I have the brain fuzziness, memory problems. I've had the joint…
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Differences in SEs with Tamox from different manufacturers
This keeps coming up so I thought I'd start a topic where the information could be collected in one place. Tamoxifen Citrate was once a branded drug but when the patent ran out the original manufacturer, Astra Zeneca, stopped making it. The branded version is no longer available, only generics. I've read (though it might…
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Arimidex after 5 years, permanent damages?
Two months ago, I finished 5 years Arimidex. However, my hands are still claw-like and I still have trigger-fingers, as well as various muscle cramps. Does anyone have any permanent damages or permanent side effects? I have not been able to find the answer doing research. I understand that I must wait, like 6 months, to…
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Suffered from tinnitus permanent?
Well I have been off exemestane for 6 months and no relief from the constant ringing. But like a miracle I went on a long plane flight actually 2 flights and had the usual pain and guess what the ear ringing is gone. I am trying to enjoy every moment of the silence. I really hope it is cured I am afraid the ringing will…
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Tinnitus on Arimidex/Anastrozole?
I just finished chemo Dec. 29 and started Anastosole Jan. 26 (also evry-three-week Herceptin). I've always had mild tinnitus which increased to annoying levels only when I had high fevers. During the past four weeks the tinnitus has increased to the point where it interferes with sleep, and sometimes makes it hard to…
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Hair Loss and Arimidex (generic)
I started generic Arimidex a month ago and have noticed quite a bit of shedding. Since I am going to be on it for 5 years, I want to be as proactive as possible with this SE. Those of you who have been on Arimidex a while and have the hair loss side effect, what has worked for you to combat it? Is it safe to take Biotin…
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Letrozole Issues - Tooth/Jaw Pain, Weight Gain, Back Pain
@ and was moving very fast to take me out. Right now, I am looking at 85% chance of it coming back without the Inhibitors and 50% with. I am seeing the doc on Monday. My question is this: Am I at the end of the road here? Are there other alternatives? Thanks!
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Tamoxifen and hoarseness
Has anyone experienced hoarseness from tamoxifen? My voice has been slightly hoarse since my stage II DIEP surgery at the end of February -- I did mention it to my onc in early March, but she didn't seem concerned. Today, I had my annual physical with PCP and she suggested I get it checked out by an ENT -- thought it might…
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Tamoxifen for gals who have not had chemo
I was following a long thread on Tamoxifene and while it was informative and interesting most people on it had chemo beforehand. They were often not sure whether their side effects were related to Tamoxifen as many of them started happening during chemo. I was hoping to start a similar thread for people who have had…
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dental implants
Does anyone know anything about getting dental implants while taking Arimidex? I'm trying to decide between having a root canal and crown or getting an implant. A call to my MO has been unsuccessful and my dentist doesn't have a clue. My concern is whether I will have sufficient bone grow for the implant to seat properly.…