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Hormonal Therapy - Before, During, and After

This is a safe place to share your experiences of others considering or on hormonal treatment.

 

Discussion List

• when you finally stop Letrozole, after oophorectomy?

  Hi, while the joint pain is a struggle, it’s something I think I can solider through so far. What’s getting to me most is weight. While never slim, now I’m on weight watchers counting carefully, doing…

  556 views

  4 comments

  0 point

  Started by rossi11

  Most recent by specialk

  Mar 4, 2022

  Hormonal Therapy - Before, During, and After
• Well crap (exemestane)

  now I know why not a lot of people are on exemestane (aromasin). $60 for a 30 day supply and that’s with insurance. Out of pocket CVS said $499. Holy cow. Those of you who take it may I ask what you p…

  735 views

  41 comments

  0 point

  Started by nancy2581

  Most recent by RoRo123

  Feb 26, 2022

  Hormonal Therapy - Before, During, and After
• Tamoxifen and Hair loss?

  (UPDATE for those who dont' want to read all 4 pages. After countless tries to figure out what was going on, I settled on this. I got dermatitis from a bad massage therapy session on my scalp AND my h…

  1454 views

  101 comments

  0 point

  Started by lisey

  Most recent by delarbar

  Feb 24, 2022

  Hormonal Therapy - Before, During, and After
• Who Currently Manufactures Brand-Name Arimidex?

  I have been taking brand-name Arimidex for a few years. I buy it from the mail-order Eagle Pharmacy through Arimidex Direct, which was originally run by AstraZeneca, the British company that created a…

  541 views

  6 comments

  0 point

  Started by Mstein1970

  Most recent by leesad

  Feb 24, 2022

  Hormonal Therapy - Before, During, and After
• High cholesterol after Hysterectomy

  Anyone else diagnosed with High cholesterol a few yrs after hysterectomy/ oopherectomy? Last 2 yrs 2/3 lipid panels were high. Waiting on results for current one and wondering if I'm going to have to …

  211 views

  5 comments

  0 point

  Started by 7of9

  Most recent by minustwo

  Feb 22, 2022

  Hormonal Therapy - Before, During, and After
• Two years off Tamoxifen...possible side effects

  Hi ladies, it's been awhile since I've posted on here. But, I have some questions and wondering if anyone has had a similar experience. I was on Tamoxifen from 2009-2019, so I am two years out. Ever s…

  38 views

  0 point

  Started by margodae

  Feb 22, 2022

  Hormonal Therapy - Before, During, and After
• Broken bones from Aromatase Inhibitors and joint replacements

  I haven't been able to find any information about the possibility of broken bones when on Anastrozole and have joint replacements. My last bone scan was five years ago and was diagnosed with Osteoporo…

  822 views

  41 comments

  0 point

  Started by suzare

  Most recent by butterfly1234

  Feb 21, 2022

  Hormonal Therapy - Before, During, and After
• Tamoxifen: reduce dosage or quit?

  I started T in late June of 2021, so I’m 8 months in. Here’s my laundry list of SEs since then. Vaginal discharge, not bloody, and tolerable. Intermittent pelvic pain and cramping, mild and tolerable.…

  44 views

  7 comments

  0 point

  Started by eauclaire

  Most recent by rah2464

  Feb 18, 2022

  Hormonal Therapy - Before, During, and After
• Tamoxifen and cataracts, eye hole, retina detachment

  I have been on tamoxifen for almost 3 years but think I might quit. When I asked my dr he said go ahead and quit. No alternative offered. I am post menopausal, and was so when started the tamoxifen. I…

  181 views

  5 comments

  0 point

  Started by Blueskye101

  Most recent by cowgirl13

  Feb 17, 2022

  Hormonal Therapy - Before, During, and After
• Hormonal treatment

  Hi! Can you tell me how to determine the menopausal status? What laboratory analises i need to do if i'm not sure if i am at menopause or premenopause? Thank you!

  1 views

  5 comments

  0 point

  Started by LarisaRotaru

  Most recent by jons_girl

  Feb 8, 2022

  Hormonal Therapy - Before, During, and After
• Premarin after HER2+ treatments for menopause symptoms

  I am 6 years from my HER2+ treatment. I am 68. I was stage 1 and had a lumpectomy, Taxol/Herceptin and radiation. I recently had a total hysterectomy due to problems associated with large non-cancerou…

  49 views

  2 comments

  0 point

  Started by WarriorCheryl

  Most recent by WarriorCheryl

  Feb 5, 2022

  Hormonal Therapy - Before, During, and After
• Concerned that hormone therapy will worsen depression

  Hi, I am looking for advice from those ladies coping with management of severe clinical depression. I am almost 2 months out from a successful bilateral mastectomy. My new oncologist would like me to …

  399 views

  25 comments

  0 point

  Started by EminGA2018

  Most recent by vandercat

  Feb 5, 2022

  Hormonal Therapy - Before, During, and After
• Who took any kind of hormone drug with no problems?

  I am trying to decide whether to agree to hormone therapy - I won't take Tamoxifen, and am in menopause, so expect I'd be offered something else. I am wondering if anyone took any drugs and found them…

  783 views

  25 comments

  0 point

  Started by [Deleted User]

  Most recent by janiehs

  Feb 5, 2022

  Hormonal Therapy - Before, During, and After
• Do I need tamoxifen if both breasts removed?

  I am about to have a bilateral mastectomy and I just cannot understand why I need to take tamoxifen or an aromarase inhibitor. Can someone please explain why I would put myself and my husband through …

  155 views

  14 comments

  0 point

  Started by Dayla

  Most recent by ruthbru

  Feb 5, 2022

  Hormonal Therapy - Before, During, and After
• Upset at my Dr.

  Hello tamoxifen sisters. I just got home from my first consult with gyno/onco due to a thickened endometrium which was an incidental finding during CT Scan. Since CT is not the best imaging for the ut…

  189 views

  6 comments

  0 point

  Started by livinginparadise

  Most recent by exbrnxgrl

  Feb 2, 2022

  Hormonal Therapy - Before, During, and After
• Hot flashes! Not a question, just venting...

  I was on Tamoxifen for months with virtually no side effects, but eventually the hot flashes kicked in (I know, it could just be middle aged woman syndrome, but I blame the Tamoxifen). It is just out …

  354 views

  17 comments

  0 point

  Started by twoforonespecial

  Most recent by salamandra

  Feb 1, 2022

  Hormonal Therapy - Before, During, and After
• Eye strain/pain on anastrozole?

  Just started anastrozole and immediately my eyes are hurting. More like eye strain and sensitivity to sunlight even in my house. Also have a headache which seems more normal. Anyone experience this? I…

  31 views

  0 point

  Started by loomisgal

  Feb 1, 2022

  Hormonal Therapy - Before, During, and After
• Thrombophlebitis?

  The past 3 weeks I have noticed a pain which I though was rib pain, but now is clearly swollen and I feel swollen vein or something. It’s under my breast area on my side and hurts to lie in that side,…

  239 views

  4 comments

  0 point

  Started by ladyc2020

  Most recent by jennyjo20

  Jan 31, 2022

  Hormonal Therapy - Before, During, and After
• Anastrozole and sinus issues

  Hi- It's been awhile since I've been on here. I was diagnosed in May 2014 with ILC. I had surgery, followed with radiation, and then a prescription for Anastrozole. I've had the usual side effects of …

  1269 views

  4 comments

  0 point

  Started by PurpleIris57

  Most recent by Gustav

  Jan 30, 2022

  Hormonal Therapy - Before, During, and After
• ​How quickly can Tamoxifen cause uterine changes?

  I've been on T for about 2 months. Last week I did a pelvic/TV ultrasound which was intended to establish a baseline that could be monitored for changes. However, this initial ultrasound found thicken…

  164 views

  21 comments

  0 point

  Started by eviec1

  Most recent by pamep

  Jan 25, 2022

  Hormonal Therapy - Before, During, and After
• Your thoughts on tamoxifen 7 vs 10 yrs (SALSA study)

  I just started year 7 on tamoxifen and while I thought I was on the 10 year plan. My oncologist just told me that she now recommends I stop after 7 years, based on the SALSA study https://ascopost.com…

  69 views

  14 comments

  0 point

  Started by sg751

  Most recent by elainetherese

  Jan 21, 2022

  Hormonal Therapy - Before, During, and After
• Tamoxifen question

  Hello ladies. I have an odd question. I’ve been on Tamoxifen a little over 30 days. And I am having this strong urge to clean out everything. It maybe just my state of mind as I am about to begin radi…

  194 views

  2 comments

  0 point

  Started by loverofjesus

  Most recent by Too-Ticky

  Jan 17, 2022

  Hormonal Therapy - Before, During, and After
• Letrozole joint pain side effect

  I have been on Letrozole for five months and the joint pain is bad. Doctor told me to give it six months for side effects to get better. Anyone else have the same joint pain and it got better

  116 views

  14 comments

  0 point

  Started by AB3055

  Most recent by tinkerbell65

  Jan 14, 2022

  Hormonal Therapy - Before, During, and After
• Oophorectomy and er/or+

  Hope this isn’ta dumb question. I was diagnosed with stage 0 grade 2 DCIS er/or + last month. A few weeks ago found out I was BRCA2+ as well. I’m having a double mastectomy for the cancer and a prophy…

  146 views

  4 comments

  0 point

  Started by a_nic_

  Most recent by georganne

  Jan 13, 2022

  Hormonal Therapy - Before, During, and After
• 

  Monitoring and Reducing Risks of Aromatase Inhibitors

  I asked how to monitor my HEART while on Letrozole. Suggested: Heart scan at the start of prescription then about 18 months later. A quick check found several for $50-$150, all out-of-pocket. Overkill…

  1352 views

  63 comments

  0 point

  Started by lea7777

  Most recent by suzare

  Jan 12, 2022

  Hormonal Therapy - Before, During, and After
• Low White Blood Count? Freaking out

  I am more than six months past chemo and two months out of radiaiton. I have been taking letrozole (Femara) for five weeks. I have been having a little lightheadedness, which I reported to my MO becau…

  2171 views

  10 comments

  0 point

  Started by AnotherMichelle

  Most recent by threetree

  Jan 12, 2022

  Hormonal Therapy - Before, During, and After
• Turmeric Circumin Yay or Nay?

  Forgive me if this has been discussed before. I have been taking Turmeric for years for its anti-inflammatory benefits. I have researched whether it is safe to use when you have breast cancer and espe…

  536 views

  4 comments

  0 point

  Started by suzare

  Most recent by suzare

  Jan 9, 2022

  Hormonal Therapy - Before, During, and After
• Zoladex timing

  I will be starting Zoladex here in a few weeks. I read it's every 28 days. How much leeway do they give you with that? I want to try to plan a 4 day weekend to the mountains in the late spring, but ho…

  848 views

  6 comments

  0 point

  Started by gb2115

  Most recent by palesa2018

  Jan 8, 2022

  Hormonal Therapy - Before, During, and After
• cholesterol, a1c and letrozole (femara)

  Just curious if anyone had their cholesterol go up while taking letrozole. I used to have really good total cholesterol around 150. Now it is at 233. What the heck? I eat like always do. I have read l…

  191 views

  8 comments

  0 point

  Started by nancy2581

  Most recent by Adell

  Jan 6, 2022

  Hormonal Therapy - Before, During, and After
• Is There a Deadline to Start Anti-Estrogen Therapy?

  I saw my MO on Monday, and we VERY briefly discussed the options for my anti-estrogen therapy, and I decided to try Tamoxifen since I have osteoporosis and don't want to be on a bisphosphonate too. I …

  239 views

  9 comments

  0 point

  Started by macdebbie

  Most recent by salamandra

  Jan 4, 2022

  Hormonal Therapy - Before, During, and After