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Does your Oncotype score play games with your head?
Hi all. I'm not sure if this is the right forum for my question. My Oncotype score was a 7. I've noticed that knowing that I'm "low risk" for recurrence is affecting my attitude toward my treatment. I feel less committed to my medications, less worried about drinking too much or not eating enough vegetables. I have…
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Autoimmune disorders
Has anyone been diagnosed with an autoimmune disorder while on an AI? Aside from joint issues, I've been running low grade fevers(99-100). No other symptoms and am Covid negative.
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Switching Hormone Therapies
I thought I'd make a thread for discussing switching hormone therapies so people can share experiences and better have an idea as to what expect, as it seems to be a fairly common thing. I was pre-menopausal when I was diagnosed and was originally placed on Tamoxifen a few weeks after chemotherapy. Tamoxifen has the added…
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Wbc dropping
I had lab work done yesterday and saw the PA at my MO’s office. Next appointment she said I should see the MO. But I’m a little concerned. Having memory issues, extreme fatigue, even confusion- forgetting what day it is and a few other things like that. And not just the oh what day is it? But genuine confusion and…
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Aromotase Inhibitors
Hi all, I am new to the community. I was diagnosed with triple positive breast cancer, went through chemo, radiation as well as a lumpectomy. I was then told I need to take 5 years of Aromatase Inhibitors. I started on Exemestane, horrible pain and side effects. I changed to Anastrozole, same situation, tons of pain,…
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Anastrozole Depression
Hi - I am wondering if other women have experienced depression when taking anastrozole. By depression, I don't mean being a little down or teary eyed but worse than that. I won't call it severe but it is getting to that level. A few weeks after starting the drug I started to experience depression, joint/muscle pain and…
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hot flashes and sleepless nights
Hello, I am taking tamoxifen for last 10 months and I am having a bad spell of hot flashes which affect greatly my sleep. Any one can suggest something to help with this issue. Thank you
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Periods after Lupron - when did it normalize for you?
Hi All, I am no longer on lupron shots and experiencing my first period back since stopping the shots. I had my last 3 month shot in October. My period is on day 3 and extremely heavy. I'm going through a super tampon every hour. I expected the first period back to be very irregular since this Is my first period since…
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Anastrozole and the Sh*tz
Hello my sisters in BC -- a lovely topic, I know. Do many of you have diarrhea from Anastrozole? I am just starting month three and have had it since week two. I was managing as best as I could (BRAT diet, etc.) but it is almost non-stop now. I called my Oncologist yesterday as it had gotten untenable. I was up stripping…
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Arimidex and developing a cough
Has anyone developed a nagging cough after taking Arimidex for a couple of months?
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Seeking letrozole experiences
I just started letrozole today and am trying to mentally prepare. A few questions for those of you who are on it: - How long have you been on it? - What have been the most notable side effects? - What has helped side effects, if anything? Did any go away over time? - If you have tried Estring, how has your experience been?…
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Why Tamoxifen if the DCIS has been removed?
Hello Community I was recently diagnosed with DCIS (2 mm) and had a partial lumpectomy this past Tuesday. The needle biopsy (prior to the lumpectomy) said it was my DCIS was hormone positive, which is a good thing. My estrogen levels are very high. What I don't understand at all is: if the DCIS has been removed, then what…
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Life on aromasin
Just starting aromasin after being on tamoxifen for 1.5 years. I am also on effexor so did not experience hot flashes with tamoxifen and my other side effects were mild. Am curious how others have done on Aromasin. Thanks ray Edited by Mods to add content from our main Breastcancer.org site on Aromasin: Benefits, Side…
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Tamoxifen and poor wound healing
I have posted before and I am about to lose my mind. Ever since I started Tamoxifen, I have been getting constant anal fissures. This happened when I started taking it last year. I've tried every single cream in the book, seen numerous surgeons and a GI, had surgery (which ultimately failed due to the skin issues I'm…
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Exemestane and depression
Hi, I was recently switched from letrozole to exemestane, about a week and half ago. I was on letrozole for 2 years and due to bone pain that doesn’t seem to be letting up, she’s trying me on exemestane. So far a feel a slight relief of bone pain, but am now experiencing heavy depression and crappy moods since starting the…
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Neoadjuvant Arimidex or other endocrine therapy?
So my treatment plans keep getting bounced around. I thought I'd be having surgery pretty soon, but my tumor is relatively large, and I unfortunately developed a Deep Vein Thrombosis in my upper arm after the IV from my breast MRI on 2/25. Until yesterday, I still thought that there was a plan for addressing my Xarelto…
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Breast Cancer Index
Dear BC sisters, If you’ve taken the Breast Cancer Index test I have a few questions. My MO is ordering the test to help me decide if I should extend my Armidex hormone therapy two more years for a total of seven years. I don’t think I could do another five. I also read the SALSA report which indicated there was no…
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when you finally stop Letrozole, after oophorectomy?
Hi, while the joint pain is a struggle, it’s something I think I can solider through so far. What’s getting to me most is weight. While never slim, now I’m on weight watchers counting carefully, doing a fasting diet of 16-8 hours, walk/hike at least 10,000 steps a day, lift weights 3X a week and…cannot lose this belly or…
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Well crap (exemestane)
now I know why not a lot of people are on exemestane (aromasin). $60 for a 30 day supply and that’s with insurance. Out of pocket CVS said $499. Holy cow. Those of you who take it may I ask what you pay? Thanks Nanc
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Tamoxifen and Hair loss?
(UPDATE for those who dont' want to read all 4 pages. After countless tries to figure out what was going on, I settled on this. I got dermatitis from a bad massage therapy session on my scalp AND my hair is thinning due to tamoxifen. I started using the irestore laser helmet and both issues disappeared (my hair looked…
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Who Currently Manufactures Brand-Name Arimidex?
I have been taking brand-name Arimidex for a few years. I buy it from the mail-order Eagle Pharmacy through Arimidex Direct, which was originally run by AstraZeneca, the British company that created and originally manufactured the drug. For the last couple of year, the Minnesota drug company ANI has distributed the drug,…
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High cholesterol after Hysterectomy
Anyone else diagnosed with High cholesterol a few yrs after hysterectomy/ oopherectomy? Last 2 yrs 2/3 lipid panels were high. Waiting on results for current one and wondering if I'm going to have to add another damn medication to the list. I cut out nuts, peanut butter, halved drinking from1x a week to bi weekly and…
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Two years off Tamoxifen...possible side effects
Hi ladies, it's been awhile since I've posted on here. But, I have some questions and wondering if anyone has had a similar experience. I was on Tamoxifen from 2009-2019, so I am two years out. Ever since coming off Tamoxifen, my right breast (non-cancer side) get heavy and tender during my menstral cycle. I've reported…
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Broken bones from Aromatase Inhibitors and joint replacements
I haven't been able to find any information about the possibility of broken bones when on Anastrozole and have joint replacements. My last bone scan was five years ago and was diagnosed with Osteoporosis, and am 4 times more likely to have broken bones. I am scheduled for another scan next week, but don't expect it will be…
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Tamoxifen: reduce dosage or quit?
I started T in late June of 2021, so I’m 8 months in. Here’s my laundry list of SEs since then. Vaginal discharge, not bloody, and tolerable. Intermittent pelvic pain and cramping, mild and tolerable. In mid-August, I noticed pain in my left hip joint making it painful to climb stairs and walk uphill. By December this had…
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Tamoxifen and cataracts, eye hole, retina detachment
I have been on tamoxifen for almost 3 years but think I might quit. When I asked my dr he said go ahead and quit. No alternative offered. I am post menopausal, and was so when started the tamoxifen. I am 64 and in good health. I have had cataracts, eye retina detachment, and a hole in my eye. The eye surgeon said it's just…
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Hormonal treatment
Hi! Can you tell me how to determine the menopausal status? What laboratory analises i need to do if i'm not sure if i am at menopause or premenopause? Thank you!
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Premarin after HER2+ treatments for menopause symptoms
I am 6 years from my HER2+ treatment. I am 68. I was stage 1 and had a lumpectomy, Taxol/Herceptin and radiation. I recently had a total hysterectomy due to problems associated with large non-cancerous fibroids. My Gyn and One, said it was alright to take vaginal Premarin cream to help with uterine wall problems. I took…
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Concerned that hormone therapy will worsen depression
Hi, I am looking for advice from those ladies coping with management of severe clinical depression. I am almost 2 months out from a successful bilateral mastectomy. My new oncologist would like me to take Tamoxifen due to how hormone receptor positive my cancer was?? That’s how she explained it. However I take Wellbutrin…
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Who took any kind of hormone drug with no problems?
I am trying to decide whether to agree to hormone therapy - I won't take Tamoxifen, and am in menopause, so expect I'd be offered something else. I am wondering if anyone took any drugs and found them ok - NO weight gain, NO depression, NO broken bones, NO side effects that ruined their quality of life - like…