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Say NO to hormonal therapy!!!
The ATLAS Study out of Oxford was massive. it resulted in the recommendation to go from five years to ten years for hormonal therapy after BC treatment. The figurehead Harvard researcher is quoted " if it is being tolerated well, why not ?"He was referring to AIs in the article I sent him a picture of my face, two years…
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Has anyone here developed Pre-Diabetes during Hormone Therapy
I see BCO has an article about this https://www.breastcancer.org/research-news/link-between-hormonal-tx-and-diabetes My story so far - after always having fasting blood sugar in the 80s or even the 70s, my last two readings at the oncologists office, three weeks apart, were over 100. The first time, I had a smoothie not…
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Anyone had uterus thickness??😭
Hello sisters! Please help i freaked out. I was diagnosed in 2010When i was 38. I had dmx and chemo and radiation and i had hormon blockers for total of 10 years( 5 years Arimidex 5 years Tamoxifen) cancer free since then. I stopped Tamoxifen last year. I never had my period since chemo and the meds put me on chemical…
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The upside of coming off tamoxifen
Hello ladies! I will be completing my 5 years of tamoxifen in May-June and I’m wondering if any of you have any good stories about getting off this Med. When I first started tamoxifen I was 34, so it was hard to deal with the weight gain, the water retention and the loss of muscle tone. I also feel like it aged me a bit in…
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Response to Neoadjuvant HormonalTx Differs in Black& White Women
Response to Hormonal Therapy Before Surgery Different in Black and White Women Sep 26, 2022 Stage I and stage II hormone receptor-positive breast cancer was more likely to shrink after hormonal therapy before surgery in Black women than in white women. But Black women had worse outcomes than white women if the breast…
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Letrozole and Digestive Problems
Hello All - I would greatly appreciate hearing from any and all regarding any digestive problems they have had that can likely be attributed to letrozole/Femara. The long list of side effects for this drug includes "digestive problems", but I cannot seem to find any more detail as to what those "digestive problems" might…
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Cannabis to manage AI SEs
Anyone out here willing to share their experience using Cannabis to manage SEs for AIs? Has anyone discussed it with their MO? If so, what were the MOs thoughts on it?
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Changing Medical Oncologists in Same Clinic?
I had my first meeting with an MO that my hospital assigned to me and it was at most a lukewarm experience. I had to wait an hour past appointment time (past closing time, the reception desk people left before I even got to see my MO) because she had pushed back her appointments for 2 earlier people who went to the wrong…
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Question for those post Arimidex therapy.
I'm curious of those that stopped Anastrozole after 5 years that had significant side effects while on drug. How long did it take for symptoms to dissipate/ or did some remain?
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How many times do I have to try and decline hormone therapy.
Hi, My BC started in 2008. I don't want to add a pill that increases my anger., plus I get terrible migraines. I've seen several therapists and have used multiple drugs for depression, anxiety, and mood disorders. The AI's increase my irritability. There must be something other than AI's. Thank you for listening. Take care.
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Letrozole dry mouth, lips , and palpitations
I am only two months into taking letrozole. Struggling. Hot flashes night sweats with palpitations extremely dry vagina and now dry lips and mouth! I wake up with the tip of my tongue sore and have a rancid taste in my mouth . I’ve been drinking extra fluids and using biotine gel, which is a very temporary fix. I’m not…
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What’s your Tamoxifen dosage?
I’m currently on 20mg tamoxifen daily for the past year. The main side effect is fatigue and it’s killing me. It’s something I’m having a really hard time getting past and I feel my quality of life is suffering. i see my MO end of this month and I was going to ask her if I can take a break from the Tamoxifen for a few…
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Hair Issues and Tamoxifen
i was wondering if anyone has experienced a change in hair texture while on tamoxifen. If so, any solutions? I have talked with my hairdresser about it and she has recommended different products, but it just doesn’t seem to help. I know this is a relatively minor side effect, but it does affect how you see yourself. Just…
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STRUGGLING WITH TAMOXIFEN
Hi I have stage 1A, est/pro positive, hers negative, low grade 1 and was having a lumpectomy on left breast. I also took radiaiton for a month in Feb. 2022. I took tamoxefin last January then in Feb. exact a month later, I got hives. I stopped pill for two days which urgent care enter nurse told me to. However my…
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35 and I hate my life thanks to Tamoxifen
I'm 35 yrs. old, and I had Stage 1 IDC, Less than a cm, Grade 1, 0/5 Nodes, ER/PR+, BRCA1&2 Negative, Oncotype Score 9. Lumpectomy, Radiation, Tamoxifen. I have been on tamoxifen for 4 years now, and I am miserable. Here is the list of side effects I have from tamoxifen: Depression, Mood swings, Bone loss (is known to…
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Blisters type all over body. Idk
Hello lovely ladies! After a long time have visited this forum. Hope you all are fine and going strong ♡ I have a concern! Thought to share here and see if this symptom is related to cancer or arimidex side effect or idk This is my 10th year on arimidex. I now permanently moved back to my homecountry last Nov. Here the…
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Tamoxifen Weight Gain HOPE!!!
Hey all. For my fellow Tamoxifen Weight Gain Sufferers. I was finally able to go off Tamoxifen after 7 years. During that time, I gained 60 immoveable pounds. It sucked, after Breast Cancer, bunches of surgeries, bunches of complications, to end up so long in a body that just didn't feel like mine. Then... Huzzah!!! I…
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Does OV suppression ever not work?
I called today to request hormone levels to be checked. They were only checked once, a few weeks after starting shots last year. Also wondering if anyone else gets Eligard shots?? Starting to wonder why I’m the only woman I know getting this.
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letrozole, anastrozole and elevated A1c
Has anyonewith prediabetes developed a dramatic elevation of A1c with either of these drugs?
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Need your Tips for Taking Oral Hormonal Meds as Prescribed !
Remembering to take your medications can be difficult. Are there any strategies that helped your remember to take your pills as prescribed?" Beyond simply forgetting, there can be other more complex reasons for missing medications, such as out-of-pocket costs, problems with side effects, not wanting a daily reminder of…
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Does tamoxifen prevent Mets ?
hello everyone, does tamoxifen prevent metastatis? Does it prevent bone Mets ? Could you please share any studies or articles? Any help is truly appreciated! Thank you !
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Goserelin vs Leuprorelin
ZOLADEX (Goserelin) vs PROSTAP (Leuprorelin) I've been on Zoladex (hormone therapy) for 7 months. Today I turned up at the GP surgery for my pre-booked Zoladex implant, and was suddenly told by the nurse that I've been changed to a different drug! ("Prostap 3 dcs" - I think it's primarily for prostate cancer in men, hence…
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Is it safe to go off lupron pre- menopause???
Hi everyone , my onc told me to stop lupron in March '22 and in June check my hormones with blood work. The blood work came back as pre- menopause,so he said to keep off of lupron. Is that ok? I am on Aromasin...it really scares me to be off lupron.
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Antidepressants and Stage 3
Just wondering whether anyone has been on antidepressants long term. I’m considering on taking something to help with the anxiety that I have thanks to my diagnosis. Thought by now that it would have passed but it hasn’t. Any thoughts on an antidepressant that doesn’t interfere with my aromatase inhibitor.
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Arimidex - bone pain/recurrence
I've been on Arimidex for almost two months. Prior to this, I had a "normal" bone density test for my age (37). For those currently on Arimidex - when did bone pain start? Does it ever subside? Am I the the only one who fears recurrence even though my last radiation treatment is tomorrow? Am I being too paranoid about…
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Worries about stopping Tamoxifen after 6 years
I've been advised by both my oncologist and doctor that my risk of BC recurrance is low enough to stop taking Tamoxifen after almost 6 years. I was not menopausal when I began it and had a Mirena coil inserted at the same time to combat possible side effects of womb lining build-up after a couple of polyps were found and…
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Tamoxifen - Query regarding different opionions.
Hello everybody on this forum. Just a little back ground, I was diagnosed over a year ago, completed all my recommended procedures (surgery, chemo, radiation, tamoxifen) all good one year later according to my annual mammogram and ultrasound results and feel as though I never even had cancer let alone endured the…
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DCIS and HRT also BRCA2+
Hey group, it’s been awhile since I’ve posted. I was diagnosed with DCIS, intermittent, back in October, at 41 years old. Found out I was BRCA2+ in November. Had a prophylactic oophorectomy (all clear) and lumpectomy (clear margins) in November then a double mastectomy in January (all clear tissue). I was thrown into…
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Letrozole
I’ve just been prescribed letrozole and am worried about the side affects. Can people share their experience with it
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Just took my first anastrozole....
With fear beating in my heart. How long does it take to figure out if I will be having side effects? I don't want to lose my hair. I feel like I might wake up tomorrow looking like Gollum.....