This is a safe place to share your experiences of others considering or on hormonal treatment.
Hello and Thank You for the welcome. I had Stage 1A Estrogen Positive BC. Age 68. Lumpectomy 5/7/2024. Now on Letrozole 6 months and doing well so far except I have weight gain. My main question is Supplements. I am confused as to which I could take and/or avoid. Medical oncologist said Calcium/Magnesium 2000MG … but…
Hi everyone, I’m reaching out to hear from those who have experience with hormone therapy for breast cancer treatment. I was recently prescribed [insert specific medication, e.g., Tamoxifen, Letrozole] as part of my treatment plan, and while I understand its importance, I’m struggling with some of the side effects. So far,…
My biopsy showed I was ER+ (90%), PR+ (30%) and HER2+ (3). I just had a lumpectomy and now my markers show I am ER low+ (5%), PR- (0%) and HER2+ (3). How is that possible and what does it mean if I'm ER low positive, PR -? Does that mean I won't have targeted hormone therapy? Is it better or worse than the triple positive…
I'm supposed to start Letrozole. I just got over chemo and RT and just waiting to get back on my feet before starting this poison. Trying to talk myself into it. I can't seem to get straight answers that satisfy me. Get tired of the Standard of Care or One Size Fits All. Why isn't a hormone test done at the beginning and…
Has anyone tried Anestrosole and Exemestane and have horrific leg pain. I've given up. It wakes me up and it hurts all day. They say you must take one of these for 5 years. There is no way I can do this without taking a strong pain/antiinflamatory. Discouraged Liz
Hi ladies. I'd love to know: -How was going off Tamoxifen in general? Any side effects from Stopping? -Has anyone quit after 5 years though Dr wanted you on for 10???? Tamoxifen has made me hold Immovable weight. I've been on for a little over 5 years and would love to ditch it - unless any of you have info of problems…
Hi All - In 2024 I had diagnosis of Stage 2A ductal carcinoma ER/HR+ HER2 -. BRCA 2 positive. 3cm tumor no metastasis to lymph nodes. I took an aggressive stance on surgeries, opting for a double mastectomy with nipple removal (January 2024) and then removed my ovaries and fallopian tubes in September 2024. I started AI…
I have read several reports from others that noted that their medical oncologist gave them a percentage benefit from tamoxifen (or AI’s). When I asked my MO she would not provide me with this type of information. Can anyone tell me where this type of information would come from? I want to be prepared for my next…
I am wondering if there is anyone out there who has been taking Tamoxifen and has been diagnosed with Osteoporosis. I am 48 and just had a DEXA scan, and it confirms Osteoporosis. :( My oncologist said that typically it shouldn't cause issues in pre-menopausal women, but there are some paradoxical instances where it does!…
Hi, I have polycystic ovarian syndrome (PCOS). I have not been officially diagnosed but I most likely have HR+ breast cancer. I also have a serious history of depression. Tamoxifen interacts with my medications. I understand that ovarian function needs to be suppressed in pre-menopausal women which is why aromatase…
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