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hot flashes and sleepless nights
Hello, I am taking tamoxifen for last 10 months and I am having a bad spell of hot flashes which affect greatly my sleep. Any one can suggest something to help with this issue. Thank you
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Periods after Lupron - when did it normalize for you?
Hi All, I am no longer on lupron shots and experiencing my first period back since stopping the shots. I had my last 3 month shot in October. My period is on day 3 and extremely heavy. I'm going through a super tampon every hour. I expected the first period back to be very irregular since this Is my first period since…
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Anastrozole and the Sh*tz
Hello my sisters in BC -- a lovely topic, I know. Do many of you have diarrhea from Anastrozole? I am just starting month three and have had it since week two. I was managing as best as I could (BRAT diet, etc.) but it is almost non-stop now. I called my Oncologist yesterday as it had gotten untenable. I was up stripping…
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Arimidex and developing a cough
Has anyone developed a nagging cough after taking Arimidex for a couple of months?
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Seeking letrozole experiences
I just started letrozole today and am trying to mentally prepare. A few questions for those of you who are on it: - How long have you been on it? - What have been the most notable side effects? - What has helped side effects, if anything? Did any go away over time? - If you have tried Estring, how has your experience been?…
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Why Tamoxifen if the DCIS has been removed?
Hello Community I was recently diagnosed with DCIS (2 mm) and had a partial lumpectomy this past Tuesday. The needle biopsy (prior to the lumpectomy) said it was my DCIS was hormone positive, which is a good thing. My estrogen levels are very high. What I don't understand at all is: if the DCIS has been removed, then what…
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Life on aromasin
Just starting aromasin after being on tamoxifen for 1.5 years. I am also on effexor so did not experience hot flashes with tamoxifen and my other side effects were mild. Am curious how others have done on Aromasin. Thanks ray Edited by Mods to add content from our main Breastcancer.org site on Aromasin: Benefits, Side…
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Does anyone take Letrozole (Femara) every other day?
Does anyone take Letrozole (Femara) every other day? I hope to reduce the dose to ease my side effects. But my oncologist doesn't recommend taking it every other day. I've seen one or two persons mentioning this approach in other topic. I would like to know if there are more doing this (i.e. taking Letrozole every other…
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Tamoxifen and poor wound healing
I have posted before and I am about to lose my mind. Ever since I started Tamoxifen, I have been getting constant anal fissures. This happened when I started taking it last year. I've tried every single cream in the book, seen numerous surgeons and a GI, had surgery (which ultimately failed due to the skin issues I'm…
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Exemestane and depression
Hi, I was recently switched from letrozole to exemestane, about a week and half ago. I was on letrozole for 2 years and due to bone pain that doesn’t seem to be letting up, she’s trying me on exemestane. So far a feel a slight relief of bone pain, but am now experiencing heavy depression and crappy moods since starting the…
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Neoadjuvant Arimidex or other endocrine therapy?
So my treatment plans keep getting bounced around. I thought I'd be having surgery pretty soon, but my tumor is relatively large, and I unfortunately developed a Deep Vein Thrombosis in my upper arm after the IV from my breast MRI on 2/25. Until yesterday, I still thought that there was a plan for addressing my Xarelto…
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Breast Cancer Index
Dear BC sisters, If you’ve taken the Breast Cancer Index test I have a few questions. My MO is ordering the test to help me decide if I should extend my Armidex hormone therapy two more years for a total of seven years. I don’t think I could do another five. I also read the SALSA report which indicated there was no…
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when you finally stop Letrozole, after oophorectomy?
Hi, while the joint pain is a struggle, it’s something I think I can solider through so far. What’s getting to me most is weight. While never slim, now I’m on weight watchers counting carefully, doing a fasting diet of 16-8 hours, walk/hike at least 10,000 steps a day, lift weights 3X a week and…cannot lose this belly or…
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Well crap (exemestane)
now I know why not a lot of people are on exemestane (aromasin). $60 for a 30 day supply and that’s with insurance. Out of pocket CVS said $499. Holy cow. Those of you who take it may I ask what you pay? Thanks Nanc
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Tamoxifen and Hair loss?
(UPDATE for those who dont' want to read all 4 pages. After countless tries to figure out what was going on, I settled on this. I got dermatitis from a bad massage therapy session on my scalp AND my hair is thinning due to tamoxifen. I started using the irestore laser helmet and both issues disappeared (my hair looked…
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Who Currently Manufactures Brand-Name Arimidex?
I have been taking brand-name Arimidex for a few years. I buy it from the mail-order Eagle Pharmacy through Arimidex Direct, which was originally run by AstraZeneca, the British company that created and originally manufactured the drug. For the last couple of year, the Minnesota drug company ANI has distributed the drug,…
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High cholesterol after Hysterectomy
Anyone else diagnosed with High cholesterol a few yrs after hysterectomy/ oopherectomy? Last 2 yrs 2/3 lipid panels were high. Waiting on results for current one and wondering if I'm going to have to add another damn medication to the list. I cut out nuts, peanut butter, halved drinking from1x a week to bi weekly and…
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Two years off Tamoxifen...possible side effects
Hi ladies, it's been awhile since I've posted on here. But, I have some questions and wondering if anyone has had a similar experience. I was on Tamoxifen from 2009-2019, so I am two years out. Ever since coming off Tamoxifen, my right breast (non-cancer side) get heavy and tender during my menstral cycle. I've reported…
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Broken bones from Aromatase Inhibitors and joint replacements
I haven't been able to find any information about the possibility of broken bones when on Anastrozole and have joint replacements. My last bone scan was five years ago and was diagnosed with Osteoporosis, and am 4 times more likely to have broken bones. I am scheduled for another scan next week, but don't expect it will be…
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Tamoxifen: reduce dosage or quit?
I started T in late June of 2021, so I’m 8 months in. Here’s my laundry list of SEs since then. Vaginal discharge, not bloody, and tolerable. Intermittent pelvic pain and cramping, mild and tolerable. In mid-August, I noticed pain in my left hip joint making it painful to climb stairs and walk uphill. By December this had…
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Tamoxifen and cataracts, eye hole, retina detachment
I have been on tamoxifen for almost 3 years but think I might quit. When I asked my dr he said go ahead and quit. No alternative offered. I am post menopausal, and was so when started the tamoxifen. I am 64 and in good health. I have had cataracts, eye retina detachment, and a hole in my eye. The eye surgeon said it's just…
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Hormonal treatment
Hi! Can you tell me how to determine the menopausal status? What laboratory analises i need to do if i'm not sure if i am at menopause or premenopause? Thank you!
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Premarin after HER2+ treatments for menopause symptoms
I am 6 years from my HER2+ treatment. I am 68. I was stage 1 and had a lumpectomy, Taxol/Herceptin and radiation. I recently had a total hysterectomy due to problems associated with large non-cancerous fibroids. My Gyn and One, said it was alright to take vaginal Premarin cream to help with uterine wall problems. I took…
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Concerned that hormone therapy will worsen depression
Hi, I am looking for advice from those ladies coping with management of severe clinical depression. I am almost 2 months out from a successful bilateral mastectomy. My new oncologist would like me to take Tamoxifen due to how hormone receptor positive my cancer was?? That’s how she explained it. However I take Wellbutrin…
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Who took any kind of hormone drug with no problems?
I am trying to decide whether to agree to hormone therapy - I won't take Tamoxifen, and am in menopause, so expect I'd be offered something else. I am wondering if anyone took any drugs and found them ok - NO weight gain, NO depression, NO broken bones, NO side effects that ruined their quality of life - like…
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Do I need tamoxifen if both breasts removed?
I am about to have a bilateral mastectomy and I just cannot understand why I need to take tamoxifen or an aromarase inhibitor. Can someone please explain why I would put myself and my husband through all the nasty side effects if I really don't have to?
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Upset at my Dr.
Hello tamoxifen sisters. I just got home from my first consult with gyno/onco due to a thickened endometrium which was an incidental finding during CT Scan. Since CT is not the best imaging for the uterus she ordered a vaginal ultrasound. What’s upsetting is she said, it’s a polyp, a fibroid or cancer. If it’s not a polyp…
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Hot flashes! Not a question, just venting...
I was on Tamoxifen for months with virtually no side effects, but eventually the hot flashes kicked in (I know, it could just be middle aged woman syndrome, but I blame the Tamoxifen). It is just out of control! I think I have taken my sweater off and put it back on 10 times in the past hour. Every night I wake up sweating…
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Eye strain/pain on anastrozole?
Just started anastrozole and immediately my eyes are hurting. More like eye strain and sensitivity to sunlight even in my house. Also have a headache which seems more normal. Anyone experience this? I do have droopy eyelids but never had a problem after cataract surgery.
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Thrombophlebitis?
The past 3 weeks I have noticed a pain which I though was rib pain, but now is clearly swollen and I feel swollen vein or something. It’s under my breast area on my side and hurts to lie in that side, also raise that arm. I have my 6 month follow up tomorrow and will ask about it. I’m thinking it is a blood clot. Also feel…