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Femara-to continue or not...
I am trying to end a month long, MO-approved vacation from Femara. I am having a hard time making myself go back on it, and would like to hear from others who have taken a vacation from their AI and either went back on it or quit. My case: I had a papillary carcinoma-stage 1, grade 3. By IHC my tumor was weakly ER+/PR- and…
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Starting/declining hormone therapy Nov, Dec, Jan 2018
Hi, this is for people who had active bc treatment in the fall and winter of 2018/19 to discuss further hormone treatment and to support one another in this journey regardless of treatment choices. This is also for ANYONE who would like to participate in a friendly, supportive manner. This is also the place to get as silly…
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I don't want to take Tamoxifen. Anyone else out there?
Hi Everyone, I am new to this website and the boards. I was just diagnosed on April 7th with Stage 1B breast cancer. I opted for a double mx with NS/SS diep flap reconstruction only 2 weeks later. I'm only days out of surgery and doing well. The tumor ended up being only 1cm and they found more precancerous DCIS in the…
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Swollen Feet - Tamoxifen
I've been on Tamoxifen since the end of April. By the end of the day, my feet are so puffy and swollen that I have indentations on my feet from my shoes. I try not to eat processed foods so don't feel as if that's causing the problem. I don't seem to suffer from any other side effects, but would welcome any ideas to keep…
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Hormonal and Rooibos tea
I have found this wonderful tea. Naturally decaffinated but has so many good things in it that I am afraid it might interfer with my Arimidex. Does anyone know? Anyone else on Arimidex use Rooibos tea on a regular basis? Thank you for any input.
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Any Early 40s Declining Tamoxifen?
Hi all -- I am really struggling with the decision to take Tamoxifen. I have the RX filled and stare at it every day. It's been two weeks since I switched over from Cymbalta to Pristiq, and RADs is finished, so technically I should be taking it. Le Sigh. I just can't yet. I've done my own research and talked to a few…
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Does anyone refuse hormone therapy altogether?
I have just been to my onc and been given the choice between Tamoxifen and Arimidex. My cancer was a 1.2 cm mucinous bc in a duct, with low growth rate. This kind always seems to be positive for hormone receptors and negative for HER2. I had a double mastectomy (with reconstruction), no rad, no chemo, and I was told there…
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Different Brands of Tamoxifen
Hey ladies. So, I have cancer brain and can't remember anything. I KNOW I read about the two different manufacturers of Tamoxifen and how one causes more side effects than the other. But for the life of me, I cannot find it again. Arghhh. I swear I would lose my head if it wasn't screwed on right now. Could someone who…
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Tired on Tamoxifen
I just want to put it out there that I believe Tamoxifen does make one tired. I have been on it for 3 months now and just don't feel "right". I have never eaten so healthy, I get 30 minutes of exercise 5 days each week and I did not have radiation or chemo to blame for this fatigue. Most things I have read explain it away…
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Leg Cramps with Femara?.....
Hi Ladies, I am 2 months into Femara and Eligard (Lupron). The Hot Flashes are back! I am having lower back pain and front pelvic pain both of these are normally when I first wake up. Last night I flipped and flopped all night like a fish! Back hurt all night long. Also the past 4 nights I keep getting leg cramps. I keep…
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Uplifting and Lively Messages. No holds barred..
I believe that positive self talk is very important, in many facets of life. It is especially important, when you have a five year window of taking anti-hormonal medications. I am young, compared to others on this board - early 50's, and will be taking hormonal therapy for as long as possible. In this thread, everything is…
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Opting out
Has anyone thought about not taking the hormone pills or anyone that said no to them? The side effects seem worse than breast cancer! Heck one of the drugs can cause uteran cancer. WTH?!
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Arimidex Does it affect TSH and /or thyroid level ?
Hello, I have not posted in a long time but when I am looking for an answer to a question I often come to Breast Cancer Org. I am a "retired" nurse and I have learned more from my breast cancer "sisters" than from other sources. I have been on Arimidex for 4 years minus 6 weeks, I am on an Arimidex "vacation" until my…
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Tamoxifen and low platelets
Hi all - I posted about this once before, but I'm still concerned. Seems like since I've been on tamoxifen my platelets slowly are going down. My onc doesn't want to jump to the conclusion it's the tamoxifen. Um ok then what is it? Last Sunday July 10th I woke up and the entire top of my foot and sides was all black and…
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Tamoxifen & Pelvic Pain & Pressure
I started Tamoxifen about a month ago and now seem to be having some pelvic pain and pressure. It feels like when you are on your period, but I am not and shouldn't be for another 2 weeks. Has anyone had this feeling before. I hate to always be in a panic and run to the doctor.
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How long does Femara stay in your system?
I am going to take at least a little break from Femara, and I was wondering if anyone knows how long it takes to completely leave your system?? Thanks so much!!
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Tamoxifen and Frequent Urination?
I've only been on a half dose for almost a month, but I feel like I constantly need to pee! Up at least once every night too, even though I don't drink a thing past 7pm. I don't drink an excessive amount during the day, I don't think. Anyone else experience this on tamoxifen?
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Caution: Most Generic Arimidex is manufactured in INDIA
Ladies, you may be interested to learn that almost all the new generic Anastrozoles are manufactured in INDIA. My information comes from the NIH website; I've posted links after the lists Here's the list: The following generic Anastrozoles are made in INDIA (almost all of them). 1. Accord Healthcare Inc. imprint AHI 2. APP…
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eye problems with arimidex
After I had my breast cancer surgery two years ago, I notice I have had floaters in my left eye. I went to my optomitrist and told her about the floaters. She wanted me to come back in six months. When I came back, she notice a change in my left eye since last time. She says she would make a appt with eye surgeon to take a…
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Tamoxifen often causes insomnia/depression. Did they warn you?
I just was talking recently with someone I know on Tamoxifen. She was having worsening trouble falling asleep as the months went by on Tamoxifen. She also noticed increased mood swings, and her usually optimistic disposition just disappeared the longer she was on tamoxifen. I asked her if her doctor had warned her about…
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For Arimidex/Anastrozole new, past, and ongoing New
July 10, 2012, nancyjac started a new thread for Arimidex/Anastrozole users because the older threads covered a large time span with a gazillion posts. The last thread was 424 pages; so here is a new thread for Arimidex/Anastrozole users. I hope that this will just carry on with the same support and information shared over…
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Arimidex and smelly urine
I'm new here so please forgive me if this has been asked before. I had a mastectomy last fall. No chemo or radiation. Have been on Arimidex about six months. My urine is becoming increasingly smelly. Embarrassingly bad. Sometimes it smells like hot dogs. Sometimes like bacon. Sometimes a sharp green grassy smell. Sometimes…
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arimidex and belly fat
Has anyone found that Arimidex (and maybe the other AI's too) increase the girth around the belly? I have lost weight but still things are tight there and it almost seems bigger.....bloating?
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Anyone use Collagen/peptide powder supplements for SEs?
I just started taking collagen powder supplements and they seem to be helping with my anastrzole side effects, joint and muscle pain. Anyone else have luck with this treatment
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Tamoxifen causing muscle and rib pain?
I'm 33, was diagnosed in 2006 with stage 1 IDC, Oncotype score was 9, no lymph node involvement, ER/PR+, Her2-. I had a lumpectomy followed by radiation. I've been on tamoxifen for about 2 years and approx. 8 months ago my ab muscle just below my ribs (breast cancer side) started aching to where I couldn't do ab workouts…
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Keeping our Hair Healthy while taking anti hormonals
I have always had thick and luxurious hair, until now. After radiation, I started having hair come out at a faster rate than what I was used to. I have tried several types of shampoos, conditioners, hair mousses, sprays, thickeners, and treatments. I have used Nioxen #2 and #4, Matrix Oil Wonders Volume Rose, and now…
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Long-term Lupron injection
Hi Everyone, I'm 45 years old and had my first lupron injection one week ago. No side effect yet. I can't take tamoxifen because I'm a Hep-B carrier. I will start arimidex once my ovaries have been suppressed. Since the average age of menopause is 51, does it mean that I will most likely need monthly lupron injection for…
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Does Anastrozole cause gallbladder polyps?
I have been on Anastrozole for approximately four months. Yesterday, I had an ultrasound as a regular check follow up for a past liver adenoma that was removed which was benign. My Gastroenterologist likes to order abdominal ultrasounds to monitor the liver on a regular basis as well as liver blood tests-LFT and AFP just…
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Anyone Regret Not Taking Tamoxifen
I am so on the brink of stopping tamoxifen after 6 months of taking it. The only reason I continue to take it is for my family (my husband and 3 teenagers). The side effects have not improved, but instead I have a few additional ones. I just feel like my quality of life really is not where I need it/want it to be. Plus,…
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UTI's
Hi everyone, Just really reaching out for info on UTI's and AI's. I am on Letrozole and have yet another UTI. I have to pick up my abx tomorrow. I had a gynae op about a year or so ago and developed internal adhesions, I was told this was as a result of lack of oestrogen. But I keep feeling that my bladder is not emptying…