This is a safe place to share your experiences of others considering or on hormonal treatment.
My docs cannot give me a straight answer on this. Doctor said as long as I'm tolerating it I could stay on it. Then again, she said otherwise they could switch me to anastrozole. My thoughts are that if I don't have the main body parts that produce estrogen/progesterone then why keep taking anything? (I had a bilateral…
I`m 38 years old and I have been on Tamoxifen for 5 years.Now has been a week without it and I`m not feeling too good.Does anyone know about withdrawal symptoms?
I have been on Tamoxifen for 1 month and start to get tinnitus which occurs all the time (not occasionally), when it's night it's worse 'cause it's much more quiet; and at day time when it's not very noisy I can feel it as well. Tinnitus is not mentioned on the material about SEs from Tamoxifen I got from the clinic....but…
Hello All - I would greatly appreciate hearing from any and all regarding any digestive problems they have had that can likely be attributed to letrozole/Femara. The long list of side effects for this drug includes "digestive problems", but I cannot seem to find any more detail as to what those "digestive problems" might…
Ack! I've skipped it before but never done this. I really wasn't thinking. Will it cause any harm?
I am curious if anyone has taken a break from hormone inhibitors for a month. I had surgery in January 2023 for invasive lobular cancer of the left breast and had a mastectomy. My oncotype was 13% and I had radiation therapy for 5 weeks. One lymph node was positive. I have been on and off hormone inhibitors since last…
Hi There Fellow Survivors, I will have been taking Tamoxifen for 4 years this coming September. I have been very fortunate in that my side effects are within my tolerance level. However, the main SE I have are 24 hour twitching of my legs. I can tolerate this until I get painful contractions which can make my entire leg…
Does anyone take Letrozole (Femara) every other day? I hope to reduce the dose to ease my side effects. But my oncologist doesn't recommend taking it every other day. I've seen one or two persons mentioning this approach in other topic. I would like to know if there are more doing this (i.e. taking Letrozole every other…
Hello all - Wondering if any of you can share any of your experiences regarding your BCI and what your oncologists have advised based on your results. I am nearing my 5 year mark next year for endocrine therapy and recently found out that my oncologist had run the Breast Cancer Index test on my original tumor. I am…
My doc wants me to stop taking anastrozole after 5 years (1.5 on tamoxifen). I've had two fractures, last one a year and a half ago. I'm osteopenic. Side effects are manageable, I'm fortunate to live by myself 😄. I'm a bit scared to stop... anyone else out there afraid to quit?
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