This is a safe place to share your experiences of others considering or on hormonal treatment.
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
Hi All, My sister was diagnosed with ILC stage 2 in October 2023. She had double mastectomy in January 2024. She started taking AI ( anastrazole) back in April 2024. Recently I'm seeing some personality changes in her that doesn't sound normal. For example, she used to call parents everyday to check on them and now she…
I am about a year and a half out from my breast cancer diagnosis and treatment. I have been taking tamoxifen since November of 2022. I had a hysterectomy in Sep. Of 2023 because of excessive bleeding caused by the tamoxifen. My surgeon left one ovary ( I only had one due to having the other one removed years prior ). I had…
Since having worse and worse short term memory and attention difficulties, I was considering asking my care team for a trial of a stimulant. I’m at 3 1/2 years on tamoxifen and now over 50, so not sure if time on therapy plus dwindling estrogen is the cause. Has anyone had success overcoming cognitive difficulties with a…
Hello and Thank You for the welcome. I had Stage 1A Estrogen Positive BC. Age 68. Lumpectomy 5/7/2024. Now on Letrozole 6 months and doing well so far except I have weight gain. My main question is Supplements. I am confused as to which I could take and/or avoid. Medical oncologist said Calcium/Magnesium 2000MG … but…
Hi everyone, I’m reaching out to hear from those who have experience with hormone therapy for breast cancer treatment. I was recently prescribed [insert specific medication, e.g., Tamoxifen, Letrozole] as part of my treatment plan, and while I understand its importance, I’m struggling with some of the side effects. So far,…
My biopsy showed I was ER+ (90%), PR+ (30%) and HER2+ (3). I just had a lumpectomy and now my markers show I am ER low+ (5%), PR- (0%) and HER2+ (3). How is that possible and what does it mean if I'm ER low positive, PR -? Does that mean I won't have targeted hormone therapy? Is it better or worse than the triple positive…
I'm supposed to start Letrozole. I just got over chemo and RT and just waiting to get back on my feet before starting this poison. Trying to talk myself into it. I can't seem to get straight answers that satisfy me. Get tired of the Standard of Care or One Size Fits All. Why isn't a hormone test done at the beginning and…
Has anyone tried Anestrosole and Exemestane and have horrific leg pain. I've given up. It wakes me up and it hurts all day. They say you must take one of these for 5 years. There is no way I can do this without taking a strong pain/antiinflamatory. Discouraged Liz
Hi ladies. I'd love to know: -How was going off Tamoxifen in general? Any side effects from Stopping? -Has anyone quit after 5 years though Dr wanted you on for 10???? Tamoxifen has made me hold Immovable weight. I've been on for a little over 5 years and would love to ditch it - unless any of you have info of problems…
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