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STRUGGLING WITH TAMOXIFEN
Hi I have stage 1A, est/pro positive, hers negative, low grade 1 and was having a lumpectomy on left breast. I also took radiaiton for a month in Feb. 2022. I took tamoxefin last January then in Feb. exact a month later, I got hives. I stopped pill for two days which urgent care enter nurse told me to. However my…
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35 and I hate my life thanks to Tamoxifen
I'm 35 yrs. old, and I had Stage 1 IDC, Less than a cm, Grade 1, 0/5 Nodes, ER/PR+, BRCA1&2 Negative, Oncotype Score 9. Lumpectomy, Radiation, Tamoxifen. I have been on tamoxifen for 4 years now, and I am miserable. Here is the list of side effects I have from tamoxifen: Depression, Mood swings, Bone loss (is known to…
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Blisters type all over body. Idk
Hello lovely ladies! After a long time have visited this forum. Hope you all are fine and going strong ♡ I have a concern! Thought to share here and see if this symptom is related to cancer or arimidex side effect or idk This is my 10th year on arimidex. I now permanently moved back to my homecountry last Nov. Here the…
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Tamoxifen Weight Gain HOPE!!!
Hey all. For my fellow Tamoxifen Weight Gain Sufferers. I was finally able to go off Tamoxifen after 7 years. During that time, I gained 60 immoveable pounds. It sucked, after Breast Cancer, bunches of surgeries, bunches of complications, to end up so long in a body that just didn't feel like mine. Then... Huzzah!!! I…
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Does OV suppression ever not work?
I called today to request hormone levels to be checked. They were only checked once, a few weeks after starting shots last year. Also wondering if anyone else gets Eligard shots?? Starting to wonder why I’m the only woman I know getting this.
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letrozole, anastrozole and elevated A1c
Has anyonewith prediabetes developed a dramatic elevation of A1c with either of these drugs?
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Need your Tips for Taking Oral Hormonal Meds as Prescribed !
Remembering to take your medications can be difficult. Are there any strategies that helped your remember to take your pills as prescribed?" Beyond simply forgetting, there can be other more complex reasons for missing medications, such as out-of-pocket costs, problems with side effects, not wanting a daily reminder of…
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Does tamoxifen prevent Mets ?
hello everyone, does tamoxifen prevent metastatis? Does it prevent bone Mets ? Could you please share any studies or articles? Any help is truly appreciated! Thank you !
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Goserelin vs Leuprorelin
ZOLADEX (Goserelin) vs PROSTAP (Leuprorelin) I've been on Zoladex (hormone therapy) for 7 months. Today I turned up at the GP surgery for my pre-booked Zoladex implant, and was suddenly told by the nurse that I've been changed to a different drug! ("Prostap 3 dcs" - I think it's primarily for prostate cancer in men, hence…
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Is it safe to go off lupron pre- menopause???
Hi everyone , my onc told me to stop lupron in March '22 and in June check my hormones with blood work. The blood work came back as pre- menopause,so he said to keep off of lupron. Is that ok? I am on Aromasin...it really scares me to be off lupron.
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Antidepressants and Stage 3
Just wondering whether anyone has been on antidepressants long term. I’m considering on taking something to help with the anxiety that I have thanks to my diagnosis. Thought by now that it would have passed but it hasn’t. Any thoughts on an antidepressant that doesn’t interfere with my aromatase inhibitor.
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Arimidex - bone pain/recurrence
I've been on Arimidex for almost two months. Prior to this, I had a "normal" bone density test for my age (37). For those currently on Arimidex - when did bone pain start? Does it ever subside? Am I the the only one who fears recurrence even though my last radiation treatment is tomorrow? Am I being too paranoid about…
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Worries about stopping Tamoxifen after 6 years
I've been advised by both my oncologist and doctor that my risk of BC recurrance is low enough to stop taking Tamoxifen after almost 6 years. I was not menopausal when I began it and had a Mirena coil inserted at the same time to combat possible side effects of womb lining build-up after a couple of polyps were found and…
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Tamoxifen - Query regarding different opionions.
Hello everybody on this forum. Just a little back ground, I was diagnosed over a year ago, completed all my recommended procedures (surgery, chemo, radiation, tamoxifen) all good one year later according to my annual mammogram and ultrasound results and feel as though I never even had cancer let alone endured the…
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DCIS and HRT also BRCA2+
Hey group, it’s been awhile since I’ve posted. I was diagnosed with DCIS, intermittent, back in October, at 41 years old. Found out I was BRCA2+ in November. Had a prophylactic oophorectomy (all clear) and lumpectomy (clear margins) in November then a double mastectomy in January (all clear tissue). I was thrown into…
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Letrozole
I’ve just been prescribed letrozole and am worried about the side affects. Can people share their experience with it
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Just took my first anastrozole....
With fear beating in my heart. How long does it take to figure out if I will be having side effects? I don't want to lose my hair. I feel like I might wake up tomorrow looking like Gollum.....
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CBD and Tamoxifen
Hi There Fellow Survivors, I will have been taking Tamoxifen for 4 years this coming September. I have been very fortunate in that my side effects are within my tolerance level. However, the main SE I have are 24 hour twitching of my legs. I can tolerate this until I get painful contractions which can make my entire leg…
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Zoladex rebate
Hello! I started getting in-office Zoladex a few months ago. I have a commercial insurance plan. I see that there's a co-pay card online, but it says if you get your injections in a doctor's office you can apply for reimbursement with proof of payment and an EOB. I looked at my EOBs on my insurance website, and everything…
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Increased blood pressure....
Hi all I have been taking anastrozole for about 9 months and have had increasing blood pressure since then. I don't know if it's the anastrozole causing this, but I've never had blood pressure problems. Has anyone else had this?
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Tamoxifen, COVID-19 Vaccine and Estradiol Changes?
Hi All. I just completed my 4th year on Tamoxifen. About a couple of years ago I finally stopped getting the horrendous hot flashes and night sweats. I received the Pfizer COVID-19 Vaccine and not long after, started getting hot flashes again. When I had my onco appt this week with bloodwork, I asked to have my estrogen…
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scared and trying to prepare for tamoxifen
I'm supposed to start tamoxifen mid-May, and I am SCARED. I'm in the home stretch of 18 radiation treatments for stage 2 ILC and DCIS, removed mid-February in an oncoplastic breast reduction, clear margins, no lymph node involvement. I'm 47, premenopausal, periods like clockwork. My MO basically said, "here's the…
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Is it safe to use Premarin cream if ER-/PR-
I did not know where to post this question so I will do so here. I want to know if it is safe to use Premarin vaginal cream a couple of times per week if I am estrogen and progesterone negative. I saw my gynecologist Tuesday for a routine pap (had hysterectomy but left cervix) and he said he "thought" it would be okay to…
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Breast Cancer Index outside of the US
I just finished five years of Tamoxifen and would like to get the BCI (Breast Cancer Index) test done... but I live in Canada. The company (Biotheranostics) will only accept referrals from a US doctor. No longer taking Tamoxifen is stressing me out, but Tamoxifen was causing some not-so-good side effects so I don't want to…
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Does your Oncotype score play games with your head?
Hi all. I'm not sure if this is the right forum for my question. My Oncotype score was a 7. I've noticed that knowing that I'm "low risk" for recurrence is affecting my attitude toward my treatment. I feel less committed to my medications, less worried about drinking too much or not eating enough vegetables. I have…
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Autoimmune disorders
Has anyone been diagnosed with an autoimmune disorder while on an AI? Aside from joint issues, I've been running low grade fevers(99-100). No other symptoms and am Covid negative.
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Switching Hormone Therapies
I thought I'd make a thread for discussing switching hormone therapies so people can share experiences and better have an idea as to what expect, as it seems to be a fairly common thing. I was pre-menopausal when I was diagnosed and was originally placed on Tamoxifen a few weeks after chemotherapy. Tamoxifen has the added…
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Wbc dropping
I had lab work done yesterday and saw the PA at my MO’s office. Next appointment she said I should see the MO. But I’m a little concerned. Having memory issues, extreme fatigue, even confusion- forgetting what day it is and a few other things like that. And not just the oh what day is it? But genuine confusion and…
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Aromotase Inhibitors
Hi all, I am new to the community. I was diagnosed with triple positive breast cancer, went through chemo, radiation as well as a lumpectomy. I was then told I need to take 5 years of Aromatase Inhibitors. I started on Exemestane, horrible pain and side effects. I changed to Anastrozole, same situation, tons of pain,…
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Anastrozole Depression
Hi - I am wondering if other women have experienced depression when taking anastrozole. By depression, I don't mean being a little down or teary eyed but worse than that. I won't call it severe but it is getting to that level. A few weeks after starting the drug I started to experience depression, joint/muscle pain and…