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Will stop taking Tamoxifen after 10 yrs
I have taken Tamoxifen for 3 yrs (after my surgery, chemo & radiations), followed by 5 yrs of Aromasin and then back to Tamoxifen for 2 more yrs. My oncologist told me that I can now stop taking Tamoxifen bec latest studies suggest that after 10yrs there are no advantages. Has anyone stopped taking Tamoxifen cold turkey?…
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Fareston/Toremifene
I am post menopausal and in addition to BC, I also have Rheumatoid Arthritis. I've had the arthritis for over 30 years. The RA is under control so I did not want to go on any of the aromatase inhibitors due to the side effects of joint and muscle pain. My oncologist was really pushing one of the AI's. We had many…
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Arimidex - Coping with the SE's
Not just for Arimidex but all the Hormonals - se's are so similar so coping with them should also be similar and the remedies offered should work for any of the Hormonals - don't go away, read on if you are taking any of the hormonal treatments.... For those of us who are taking this potentially life saving/life prolonging…
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Zoladex bone pain
Has anyone had brief, sharp bone pain during hormone therapy? Similar to the Neulasta bone pain perhaps? I've been on Exemestane and Zoladex for about 14 months. I try to run a few times each week. I can't correlate the pain to any event/timing other that it seems to be more prominent during weeks when I'm lazy with…
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Raloxifene 4 yrs post lumpectomy/radiation
After Mammaprint high risk score, Onco suggested Raloxifene. Oncotype score was 11 and have had clean Mammos, exercising, eating nutritionally. Has anyone started Raloxifene later after their diagnosis?
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Lupron injection
Hi, I've being on monthly Lupron injections (3.75mg) since March 2020. My cancer center in California also offered an option of 3-month Lupron shots, but I don't know the dosage. I adjusted to this treatment with tolerable side effects. My hormone levels were checked and this dosage was enough. Recently we moved to Texas…
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I am SO upset - need a reality check....
I had my 2nd meeting with the MO I chose today. The backstory is that when I was diagnosed the BCS was on vacation and I couldn't get in for 3 weeks, so I saw the PA who I loved. She told me at that meeting that I had to choose my team, and gave me a list of MOs, and Radiation Therapists. She told me that they would review…
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Could There Be Some Real Hope on the Horizon for ER/PR+?
I just came across this article and thought I'd share. Wasn't quite sure just where to post, but since hormone therapy is an ER/PR+ thing, I thought I would put it here. This new study looks amazing - maybe too good to be true? They've got some ways to go yet of course; as it hasn't even been tested yet in humans, but I…
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Reaction to faslodex / fulvestrant
Has anyone had a reaction to faslodex during their injection? I have been getting the fasoldex injections every month for almost 3 years. Last week, right when the nurses starting to inject me, I had a weird feeling in my chest and my lower jaw which caused me to start coughing. On top of that, my left hand started burning…
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Terrifying stories
I'm going in for my oncoplastic lumpectomy on Thursday. This will be followed by 3 weeks if radiation, and then.... An aromatase inhibitor. They caught this early, and everyone is telling me how lucky lucky lucky I am. I'm terrified. Not by the surgery or the radiation really-- in confident that this part will go well. But…
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Tomxfine for 5 years
Hello everyone I am stage 1 ilc ER +PR+ HER 2 - grade 1 Lymph node 0/3. I took T for 5 years and 11 months of Letrazole and I developed severe joint arthopathy involving the hands and other joints.I had to have hysterectomy because of polyps .Anyone in a similar situation took T for 5 years or do I have to continue for up…
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After 2-3 Yrs of Tamoxifen, 5 Yrs of Femara Offers More Benefits
After 2-3 Years of Tamoxifen, 5 Years of Femara Offers More Benefits Than 2-3 Years September 30, 2021 After taking tamoxifen for 2 to 3 years following surgery, postmenopausal women diagnosed with early-stage hormone-receptor-positive breast cancer had a better survival rate from taking 5 years of Femara rather than 2 to…
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I need estrogen!!
Hello all! It’s been a while since I’ve been on! I hope everyone is doing well. I want to complain for a minute because y’all know more than complaining to my friends. Lol I’m almost 3 years out. I’ve had my ovaries removed 2 years ago and quiet honestly, if I had it to do over, I would have never done it. I NEVER sleep,…
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ARIMIDEX AND DIGESTIVE ISSUES
Just wondering if any of you on Arimidex or have finished....... do you have digestive issues? I have seen where some had their gallbladders removed after Arimidex or during. I had nausea and sore throat all during my 5 years, besides the joint problem. I will always have the joint problems, I think because the Arthritis…
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Has anyone had the BCI (Breast Cancer Index ) test?
I am 5 and 1/2 years out from my diagnosis of ER+PR+HER- IDC, post BMX, chemo and almost 5 years of endocrine therapy. (I've tried them all and currently on Letrozole). Hate them all pretty much the same. Got my results of BCI ( not from doctor yet-I requested from the company and will discuss at my next visit which is…
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Are lower doses of Tamoxifen just as effective?
Hi, I found a study on Evidence Watch yesterday that said Norweigen researchers had found that lower doses of Tamoxifen were as effective as the standard dose. I can't find that study today, because that website is REALLY hard to navigate. Has anyone else heard that about lower doses? I'm really small - maybe I won't need…
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Aromasin and Hair Loss
I can't find this specific topic: My hair is thinning fast!!! I'm 58, was stage III, LN positive, had aggressive TX, now doing fine on Aromasin after initial joint pain of 3-4 mos. I'm on this stuff for at least 3 more years. Oncologist says its my best weapon so I'm going to stay with it. My hair used to be so thick and…
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Side effects after vaccine
Does anyone know how the COVID-19 vaccine affects us while on hormonal therapy? I had the Moderna vaccine and after the second shot I have an increase in anxiety and my hot flushes are back
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Treatment Break From Extended Femara Doesnt Affect Survival
Treatment Break From Extended Femara Doesn't Affect Survival August 17, 2021 Survival rates were the same in postmenopausal women diagnosed with early-stage hormone-receptor-positive breast cancer whether they took a short treatment break during extended adjuvant hormonal therapy with Femara or took Femara continuously for…
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Runners and other Athletes on Tamoxifen
Hey ladies. I scoured the tamoxifen threads and didn't find much related to this topic, so I thought I would start it. I'm 53 and an avid runner, cyclist and fitness instructor (in addition to my full-time job in advertising) and I was wondering if any of you have had issues with intense athletic endeavors and tamoxifen. I…
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Pain in shoulders, not sure what the cause is
A couple months ago my shoulders started hurting- right where my bra straps sit. I have been taking Tamoxifen for a year, plus I get a shot every 3 months to shut down my ovaries. I had radiation, but that was a year ago. Whenever I stretch, I get a stinging sensation in my shoulders. Anyone have these issues?
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Any positive or "OK" experiences from Tamoxifen?
It is pretty much a sure thing that I will be taking Tamoxifen after radiation. I hear a lot of negative things, but want to hear if there is anyone having or who has had an "OK" or positive response to this drug. Thank You
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Cant deal with letrozole, is tamox an option?
I am seriously thinking about going off this med that I've faithfully taken for 2.6 years. I was hoping to make it 5, but the SE's are getting really old. I know my risk of recurrence is small, 3mm tumor found in 6 mm of DCIS, but there is risk. I am not sure how much? I will be talking to my MO on the 17th. I am 64 and…
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Has anyone experienced ear problems from being on Arimidex?
PLEASE HELP, I have clogged ears, ear pain and also on and off ringing. I know ototoxic drugs have been known to cause tinnitus etc. I've been on this drug for 7 years now. My ear problems started out of the blue 6 months ago. ( I have had all the normal testing from ENT's and other specialists) They say they don't know…
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Kisqali-Faslodex Combo Improves Overall Survival in Advanced HR+
Kisqali-Faslodex Combo Continues To Improve Overall Survival in Advanced-Stage, Hormone-Receptor-Positive Breast Cancer in Postmenopausal Women June 20, 2021 The latest results from the MONALEESA-3 study show that combining Kisqali plus Faslodex continues to offer better overall survival than Faslodex alone. Read more...
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Ibrance-Faslodex Combo Improves Overall Survival in Advanced HR+
Ibrance-Faslodex Combo Continues To Improve Overall Survival in Advanced-Stage, Hormone-Receptor-Positive Breast Cancer June 10, 2021 The latest results from the PALOMA-3 trial show that combining Ibrance and Faslodex continues to offer better overall survival than Faslodex alone. Read more...
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Anyone have a good (or at least OK) experience with Tamoxifen?
I have been reading through this forum, getting sucked down the rabbit hole of too much information, and so much of it scares me! I finally have my tamoxifen sitting on the counter, where it has been for a few days. I have not taken it yet. I came to this forum hoping for some reassurance, but it seems that most of the…
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Dry eyes from als
Has anyone had eye trouble from taking FemerI
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Fertility Concerns May Make Young Women Skip/Delay Hormonal Tx
Fertility Concerns May Make Young Women Skip or Delay Hormonal Therapy After Breast Cancer Surgery May 18, 2021 Younger women diagnosed with hormone-receptor-positive breast cancer may skip or delay taking hormonal therapy medicine after surgery because they're concerned about having children. Read more...
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arimidex
Hi, brand new here... Wondering if anyone else has had terrible muscle ache with arimidex. SE say joint pain, I don't see a lot of talking about muscle pain. I feel like I have done 100 squats today, that would be cool to brag about, but trust me I haven't. walking down stairs is hard, because of how I hurt. I have muscles…