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Rejecting hormone therapy
I had a lumpectomy last month with clean margins, no lymph involvement and an Oncotype of 17. I start radiation next week and it has been suggested by my MO that I start a 5 yr course of Tamoxifen upon completion of my 21 radiation treatments. The Tamoxifen side effects I've read about seem real quality of life destroying,…
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Looking for advice re: hormone treatments
Hello - I am a 77 year old, post-menopausal woman and am new here. I was recently diagnosed with invasive lobular carcinoma of the breast. I've had multiple tests, including CT scans, MRI's, ultrasounds, biopsies, and an Oncotype DX Breast Recurrence test. I had a lumpectomy about a month ago. They removed a 23mm tumor…
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My wife's period is back after 5 1/2 years of Tamoxifen
My wife was diagnosed with Stage 2A ER/PR positive, Her2 Negative back in June 2019. She went through 2 surgeries, chemotherapy, radiation and hormone therapy. She started taking Tamoxifen in late 2019 or early 2020. She has co-morbodities Thyroid Cancer, Type 2 diabetes, liver steatosis, diabetic nephropathy, and likely…
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Feeling nervous about starting the Baby Tam
Hi everyone. So, I was diagnosed with ADH recently , I had a lumpectomy with clean margins about a month ago. My Breast Surgeon/Oncologist recommended that i start taking 5mg Tamoxifen daily for 3 years. She said that i have a 41% chance of getting breast cancer in my life but if I do the baby tam protocol it would reduce…
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Thickened womb lining
Hi all. I don't even know where to start, can't quite believe iv found myself on this path again. I was diagnosed with BC back in Nov 2021 had chemo and mastectomy etc and was put on zoladex injections for 19months, finished them a year ago and have been on tamoxifen ever since. Iv not had periods since starting chemo as…
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Is exemestane a steroid?
Hi, everyone. After 2 years on anastrozole, my oncologist has switched me to exemestane, due to my complaints about how I feel. I am now reading about exemestane and many articles refer to it as a steroid. My oncologist had not mentioned this to me, so I just called her to discuss it. She told me that it is NOT a steroid,…
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Break from Letrozole for 2 1/2 months
I will be going back on letrazole after a break after 2 1/2 months due to sudden onset of constant palpitations and one short episode of a/fib. I had to get a cardiac work up and getting that done has taken time. Getting in to see a cardiologist, wearing a zio patch for two weeks, waiting for the results and then scheduled…
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Aromatase Inhibitors and GERD?
Hello friends, Has anyone dealt with reflux or GERD while taking AI’s? If so, have you used medication to deal with it and what was the result? (I’m on my second AI, so that’s 2 1/2 years with severe reflux. Working with a gastroenterologist now to manage the reflux and try to stay on Exemestane for a few more years.)…
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Psychological side effects of AI
Hi All, My sister was diagnosed with ILC stage 2 in October 2023. She had double mastectomy in January 2024. She started taking AI ( anastrazole) back in April 2024. Recently I'm seeing some personality changes in her that doesn't sound normal. For example, she used to call parents everyday to check on them and now she…
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Very High Estradiol Levels
I am about a year and a half out from my breast cancer diagnosis and treatment. I have been taking tamoxifen since November of 2022. I had a hysterectomy in Sep. Of 2023 because of excessive bleeding caused by the tamoxifen. My surgeon left one ovary ( I only had one due to having the other one removed years prior ). I had…