Not Diagnosed and Waiting for Test Results? Start Here

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  • Annette01
    Annette01 Member Posts: 2
    edited September 2017

    Hi sorry to pop in but Im almost in the same position. I went For test and had an examination in which the doctor said it's was a none movable 5cm mass/lump, had an ultrasound, mammogram and a core biopsy all with a 2hour appointment. It was only a week ago and have my appointment for the results on Thursday but the waiting is driving me mad. I don't know how to feel apart from very stressed.

  • WorriedMe77
    WorriedMe77 Member Posts: 93
    edited November 2017

    I’m trying my best to be calm and not overthink things but man I’m scared with so many questions and no one to ask. Had my diagnostic mammogram and US was given a Bi rad score of 5. My biopsy is scheduled for nov 8th and my appt with the breast surgeon is nov 9th. The radiologist gave me my bi rad score told me he’s sorry to be giving me bad news and left the room. Ummmm BAD NEWS what exactly was the bad news? Is this mass they told me they found cancer? Highly suspected malignancy?? They REALLY think I have cancer?? Why am I scheduled to see a breast ssurgeon the day after my biopsy? What’s going on I’m so conud

  • MTwoman
    MTwoman Member Posts: 228
    edited November 2017

    WorriedMe, I am so sorry that you're here with some very concerning news about your breast health. A BIRADS 5 finding has characteristics that correlate with approximately 95% likelihood of being breast cancer. Now, it's not 100%, and there are women on these boards who did have a BIRADS 5 finding whose pathology report indicated b9 findings (typically a radial scar). But I would prepare yourself. Plan on taking someone with you to the surgical consult. Someone who takes good notes and can help you make sure you're asking good questions. So yes, they are pretty sure that what they found will turn out to be cancer. Take some time to be angry, sad, whatever you feel. Then get your questions ready for the surgical consult. IF your pathology report comes back bc, then it is a steep learning curve but we are here to help you. You can do this! Step by step. Biopsy, surgical consult, pathology report. And don't forget to breath. We're here.

  • WorriedMe77
    WorriedMe77 Member Posts: 93
    edited November 2017

    Thank you because the good lord knows I'm so scared!!!! I'm not talking to my friends and family just yet until I know for sure what's happening... so this board is helpful to me. This was my first ever mammogram never ever would Ihave thought something would be detected. Had my 2 mammogram and US on Oct 31st and my biopsy was done today. Tomorrow I go see the breast surgeon.. I’m so nervous wonder how long before the biopsies results come back ??

  • Dawncore1031
    Dawncore1031 Member Posts: 1
    edited November 2017

    i am waiting as well, had 2 biopsys yesterday- Steriotatic/ultrasonic- suppose to have results as of 3pm today, Doctor was atleast able to see areas of concern this time, thats why he decided on second biopsy. this worry has been going on for a long time now, and it doesnt help that i am now in pain from biopsys, so my anxiety is through the roof, Prayers to all that are waiting for results,and to who all are going through something , for that matter. i am glad i found this site, it makes me feel a little more normal, that i am not alone, and just dramatic, ty all.

  • BreastIntentions
    BreastIntentions Member Posts: 4
    edited November 2017

    Hi, I have had a swollen lymph node (right subclavicular) for about three months. When it hadn't dissapeared after the first two months I went to the breast clinic and they referred me for a mammogram. At the breast clinic and before the mammogram no other lumps were detected in the breast. The doctor decided best to have a mammogram, sonar and biopsy of the lymph as a precaution since both my paternal gran and aunt have had breast cancer. The mammogram was clear except for the subclaviclar swollen lymph. The sonar however showed a second lymph in the axilla, both measuring about 1.7cm x 0.9 cm. A third smaller lesion measuring 0.5 x 0.4cm was identified in the right upper outer quadrant. Left side clear. Was given Birads 4AB. So I guess nothing else to do except wait for the biopsy results (expect those in 2 weeks time, state hospital South Africa, these things take a while). I have found over the last two weeks that I have increased upper back pain and a feeling of "pressure" around my ribs, sometimes they feel bruised....also seem to be getting a bout of thrush, not sure if any of this is related.

    I have found this site to be very informative, thank you all for sharing your experiences.

  • bhuffy038
    bhuffy038 Member Posts: 1
    edited November 2017

    I wish all the best here. I am looking for helpful answers while I await my biopsy results since its a holiday I have to wait till monday for my report but I can tell you this much feb 2017 had first mammo, came back with BI-Rads 2 dense breast, some cyst, Micro-calcifications, and fibrocystic disease. They said I was in the clear and we will re test in 6 months. Well 9 months goes by and have dent in right boob, discharge yellow, green. Have a vein that looks to be on steroids, running like a big triangle on right breast. I have noticeable dent. had mammo on Nov 14th and Ultra sound and it states Bi Rads 4 now. this is my recent mammo and ultra sound. Im also waiting test results from the BRAC gene testing.

     EXAMS: Reason:: 
    003647616 MAMMO DIAG DDI BI BILATERAL BREAST PAIN

    Examination: Digital diagnostic bilateral mammogram with CAD and
    limited bilateral breast ultrasound from 11/14/2017

    History: 38-year-old patient with nonbloody white to yellow RIGHT
    nipple discharge for at least one year. Palpable bilateral breast
    lumps since MVA in 2016.

    Family history: P Aunt/M Aunt

    Findings: No prior studies are currently available for comparison.
    Attempts will be made to retrieve previous outside studies, and an
    addendum will be dictated at that time. In addition to routine
    imaging, bilateral true lateral views were obtained.

    The breast parenchyma is heterogeneously dense and complex, which
    somewhat decreases the sensitivity of mammography.

    The LEFT breast is unremarkable. At approximately 12:00 in the RIGHT
    breast, there is a 0.7 cm well-circumscribed nodule. No other RIGHT
    breast abnormality is identified.

    There is no abnormality in either breast to correspond to the palpable
    lumps, and no retroareolar abnormality in the RIGHT breast to explain
    the patient's nonbloody nipple discharge.

    RIGHT breast ultrasound, targeted to the palpable lump at 6:00, 4 cm

    RIGHT breast ultrasound, targeted to the mammographic nodule,
    demonstrates a 3 cm cluster of 2 contiguous cyst at 11:00, 4
    cm from nipple.

    RIGHT breast ultrasound, targeted to the periareolar/retroareolar
    area, demonstrates very minimal benign ductal ectasia. At 5:00 in the
    retroareolar breast, there is 0.5 x 0.4 x 0.5 cm complex heterogeneous
    septated nodule. Although this is avascular on color flow imaging, the
    possibility of a solid component cannot be excluded. Ultrasound-guided
    core biopsy is recommended to exclude malignancy or papilloma.

    LEFT breast ultrasound, targeted to the palpable abnormalities at
    2:00, 6 cm from nipple, and 9:00, 7 cm from nipple, demonstrate
    a mass or cyst. Some normal fat and fibroglandular tissue are
    identified. At 2:30, 6 cm from nipple, there is a 0.5 cm incidental
    benign cyst.


    PAGE 1 Signed Report (CONTINUED)


    Unit No: M002082129



    EXAMS: Reason::
    003647616 MAMMO DIAG DDI BI BILATERAL BREAST PAIN


    Impression:
    1. No mammographic or sonographic evidence for malignancy in LEFT
    breast.
    2. Recommend clinical correlation for bilateral palpable lumps, since
    there is no mammographic or sonographic abnormality to explain them.
    3. 0.5 cm complex RIGHT retroareolar breast nodule at 5:00 raises a
    question of malignancy or papilloma. Recommend ultrasound-guided core
    biopsy.

    I discussed the findings and recommendations with the patient after
    completion of the study and then telephoned them to Dr. Cooper's
    nurse, Tamisha. The patient is scheduling the proposed procedure to be
    performed on 11/21/2017 at 0800 hours.

    BIRADS 4 - SUSPICIOUS FOR MALIGNANCY. RECOMMEND BIOPSY.

    Result Code: (4) SUSPICIOUS FINDING
    Follow Up: (BX) RECOMMEND BIOPSY

  • Bridgetteroxanne
    Bridgetteroxanne Member Posts: 1
    edited December 2017

    Hi my name is bridgette

    and I am waiting also and it seems to be the hardest thing Ive ever done, besides losing my youngest son to cancer 6 years ago, It is going on 3 months now since I noticed a indention about an inch long on my right breast just outside my nipple,I went and had a mamo, it came back clear, then my Dr wasn't ok with that result, so he sent me for an ultra sound and that also came back as clear no masses or lump just a cyst over almost under my underarm, so then he sent me to a breast specialist and she ordered a breast MRI with contrast that also came out with nothing suspicious, but still have the indention and now flattening of the breast also in that area, I do have breast cancer in my family, and my breast specialist ran a genetic cancer screen that we are still waiting on, this waiting seems to go on forever, has anyone else had this kind of indention and flattening with no lump?

  • Usher1127
    Usher1127 Member Posts: 2
    edited November 2017


    Hello,


    This is my first time on here and I guess I'm looking for helpful answers while I'm waiting for the hollow core biopsies that are not even scheduled until dec.4th.


    I had a mammogram two weeks ago and they saw something so I was called back for an ultrasound. during the ultrasound they discovered a 9 x 8 x 7 cm lobular mass that is not a simple cyst. there is no shadowing and a smaller area measuring 4 x 1 x 4 cm has its long axis parallel to the skin it's long axis orientation is a non aggressive features and there is no shadowing.


    in the axilla. There is lymph nodes that are slightly asymmetric nodularity.


    So I got a BI-RADS 4B

  • BreastIntentions
    BreastIntentions Member Posts: 4
    edited November 2017

    Quick question: if your lymph node biopsy comes back negative will the doctor then biopsy the smaller lesion in the breast to check for cancer?

  • crhts
    crhts Member Posts: 1
    edited December 2017

    I'm just wondering if anyone has had 2 completely different pathology reports?

    My core biopsy report said lobular and it is acting like Lobular, didn't show up on anything except MRI, I had a large auxiliary node that showed up on MRI but didn't light up as cancer

    (It's been there for 20 years because of a fibroabnoma I had removed when I was 30. ) My surgeon felt it after he removed it and said it was big but very soft

    MRI said it was 6 mm and this new path report said it's 3cm, and it's gone from lobular-to ductal. My surgeon can't make sense of it. He has contacted the Path but he is out of town until Wednesday

  • miranda2060
    miranda2060 Member Posts: 207
    edited December 2017

    Hi, I had two mammmograms and an ultrasound today, and the doctor found a mass in my right breast she called "very concerning for cancer." I can't believe I didn't feel it at all, seems large. My GP didn't feel it at all in a recent office breast exam. I am scheduled for a biopsy next Thursday, eight days from now. Of course all kinds of terrified thoughts are going through my mind, and I hardly know what to do to allay my anxiety. I also don't want to worry my husband, who would be devastated if something happened to me.

    I am particularly scared because I have avoided mammograms for a number of years, for various reasons (including fear). I lost a sister to breast cancer at age 42, and it was a horrible thing to witness. Now my first thought on hearing this result was "It's all my fault." I am afraid not only of cancer but of having left it far too long. I have heard terrible stories about that very thing.

    All I can do is try not to worry. Other women on this thread have said they felt more pain after their screenings, and that made them more scared -- so it seems that may be normal aftermath of the screening process.

  • LetYourLightShine
    LetYourLightShine Member Posts: 1
    edited December 2017

    I've been lurking for a while trying to bring up the courage to post. I'm awaiting results from an MRI done five days ago, but this journey started back in February when I found a underarm lump, which of course I dismissed as unimportant. Happened to go to my Gyn for an unrelated issue and mentioned it in passing. He sent me for a mammo and ultrasound, which showed nothing. He wasn't satisfied, since there was obviously a lump there, and referred me to a breast surgeon. Before and during all of this I'd been experiencing everything from nausea, fatigue, weight loss, just to name a few, so I'd undergone various tests, including a pelvic scan, all negative. The surgeon examined me and ordered another ultrasound, which again, showed absolutely nothing. This was in Sept. She insisted that there was nothing to worry about so I went home and tried to relax. Then sometime after that I started noticing my right breast shrinking! And a distinct difference in the nipple and aureola (On same side of lump) and the shooting pains I'd been experiencing became difficult to ignore and a kind of thickening which hadn't been there before. So I desperately got back in touch with the surgeon, she again dismissed these things as nothing to worry about, but yet was able to have my insurance pay for an MRI.

    So here I sit, Christmas day, trying to tell myself that no news has to mean good news?

    So anyway, if anyone took the time to read this, thank you, this was sort of a purging for me.

  • iris986
    iris986 Member Posts: 20
    edited December 2017

    Its driving my husband and I crazy. Friday seems so far away waiting on biopsy results.

  • miranda2060
    miranda2060 Member Posts: 207
    edited December 2017

    My biopsy is tomorrow morning, and in the time since it was scheduled and now, every terrible thing has gone through my mind. Hoping for the best, but trying to be prepared for the worst. I can't imagine how anyone gets through these agonies.

  • iris986
    iris986 Member Posts: 20
    edited December 2017

    How did your biopsy go, hopefully good. Waiting is so hard. I've been watching movies, playing games on my phone and sleeping just to pass time. Just found out this evening my husband will be gone tomorrow when the biopsy results will supposedly be in. It will be 9 days tomorrow. I'm still praying for benign and I will pray the same for you.

  • iris986
    iris986 Member Posts: 20
    edited December 2017

    ITS BENIGN

  • iris986
    iris986 Member Posts: 20
    edited December 2017

    Miranda2060,

    I pray your results are benign, got mine today it's benign.

  • MTwoman
    MTwoman Member Posts: 228
    edited December 2017

    Congrats Iris!

  • miranda2060
    miranda2060 Member Posts: 207
    edited January 2018

    I am so relieved for you, Iris!

    Mine were not, there were cancer cells detected. I now have to consult with the breast surgeon for lumpectomy. The doctor said something about "Type 1," saying at least based on the biopsy, so that's supposed to be somewhat more hopeful, but of course more won't be known until the lumpectomy. Of course, I am terrified, but the waiting possibly was worse than knowing something, even this. If anyone has any words about this that might help, of course, I'd be grateful.

  • miranda2060
    miranda2060 Member Posts: 207
    edited January 2018

    I am so relieved for you, Iris!

    Mine were not, there were cancer cells detected. I now have to consult with the breast surgeon for lumpectomy. The doctor said something about "Type 1," saying at least based on the biopsy, so that's supposed to be somewhat more hopeful, but of course more won't be known until the lumpectomy. Of course, I am terrified, but the waiting possibly was worse than knowing something, even this. If anyone has any words about this that might help, of course, I'd be grateful.

  • Wonderfulmom
    Wonderfulmom Member Posts: 6
    edited January 2018

    I don’t wait. I have all of my tests done at the hospital. Then I go to medical records late that afternoon or the next day and tell them that I would like a copy of my report. I show them my driver’s license and they give me a copy of it. If I can’t interpret it, I look the terms or info up on the internet or find a friend in the medical field to help me. I refuse to wait for days on end

  • TR59
    TR59 Member Posts: 1
    edited January 2018

    I had diagnostic Mammogram and Ultrasound yesterday. The Radiologist told me it was probably cancer. They took US of my axillary lymph nodes and seemed really concerned, using the US for a long time and the Dr actually took over the US machine. I asked if he could be wrong and he said he was almost 100% sure it was. I have a cyst, tumor and enlarged lymph nodes so they will biopsy all of those in 3 days. I am telling some people, freaking out, etc and searching for the chance that he may be wrong. I had a bad feeling from my screening mammogram which was a week ago. However, I never felt a lump at all. The waiting is the worst.

  • Wathom
    Wathom Member Posts: 4
    edited January 2018

    TR59, I had my biopsy yesterday. My radiologist said she was sure it was cancer in the left but not so sure about the right. I had 2 biopsies in the left breast and one in the right. I am preparing myself for the worst but trying to have a bit of hope? Either way, I just want to know. I told my husband that if it's not cancer, it's taken 5 years off my life stressing about it. Good luck to you!

  • marie5890
    marie5890 Member Posts: 111
    edited January 2018

    HI TR and Wathom and welcome to BCO

    Sorry to hear that you are going thru this awful time. Waiting is the worse.

    If you get copies of your mammogram and US reports, we can help you understand what the radiologists saw and why they are so certain. Could they still be wrong? Yes, and on occasion, they are. But often when they are THAT certain, they are usually right.

    Start new threads in this forum, "Not Diagnosed but worried" and you will more likely get more feedback.

  • Wathom
    Wathom Member Posts: 4
    edited January 2018

    Marie5890, thanks for your reply. I've had and MRI, mammogram and an ultrasound and here is a bit of what is on the ultrasound report. Thanks again for your reply!


    hypoechoic, indistincly marginated lesion"

    "hypoechoic, irregular mass measuring 1.4 x 0.6 x 0.7 cm with internal vascularity. Calcifications are identified"

    "spiculated mass measuring 1.5 x 1.3 x 1.2 cm with posterior acoustic shadowing"

  • marie5890
    marie5890 Member Posts: 111
    edited January 2018

    Wathom,

    Yes, with words like " irregular" "spiculated" "indistinctly marginated" are all concerning words that do raise flags of cancer.

    Is it possible you don't have cancer? Possible. But more probable that you do.

    The good news is those measurements are small.

    So hang in there. DONT DO ANY research on google. It will just scare you with it's outdated information. Plus, there are over 20+ different kinds of cancer that effect the breast and you do not have enough information to know which of those you are probably dealing with.

    Wait until you get more information before you start

  • Elijahgirl
    Elijahgirl Member Posts: 111
    edited January 2018

    Let the wait began the biopsy is tomorrow morning. Not sure what I am more nervous about getting the results and it being positive or just what I am going to be facing in the coming months with surgery and potentially chemo and radiation.

  • Jenny1963
    Jenny1963 Member Posts: 1
    edited January 2018

    Hi all-

    I have a strong history of breast cancer in my family, (my mom is just finishing her breast cancer treatment,) and I had my biopsy done this past Friday. They found a 5 mm architectural distortion during a routine mamo, and the next day had a diagnostic mamo and ultrasound done. I was fine and pretty peaceful until I started looking online. Yikes! Why did I enter the internet, log on to Google and type in Architectural Distortion? But if I hadnt, I never would have found this forum! Im thankful for support and a tad freaked out. Should get results back tomorrow or the next.

  • momto3sons
    momto3sons Member Posts: 68
    edited January 2018

    Good luck Elijahgirl! I'm going in tomorrow morning (1/30) for an MRI-guided biopsy.

    Jenny, I hope you get your results from your biopsy very soon! My diagnostic mammo showed AD as well, and after a follow-up MRI and another u/s we're going the biopsy route finally. This has been going on since 12/19 - ready to get answers, whatever they may be!