Scary BC tumor removal photos
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On the subject of Sirolimus with Tamoxifen, my onco told me last Friday that it wasn't working anymore - after just 2 cycles - as there were clear signs of progression at the bottom of my breast, even though a lot of nice new skin had formed. So he has taken me off this hormonal therapy. Therefore, all hormonal treatments are definitely off the table for me now. I didn't mention this new development on the Everolimus thread because the combination did help me for 2 cycles, and it may very well work for others. I just happen to be one of the unfortunate ones for whom all treatments, whether chemo or hormonal, always stop working after just a maximum of 3 cycles. Try to understand how discouraged and depressed I am.
I can feel that the mass is enormous, about the width of a small cantaloupe. I wish that people would stop doubting me on this. I'm the one who has to live with this, so imagine how I feel when it is inferrred that I'm exaggerating my condition.
Bliss, thank you for the information on The Edge. I will look it up. I suspect my Vit D levels are low, as I haven't been able to walk daily like I used to, so I get no sunshine. I'm not sure that chemo will be more effective even if I manage to improve my Vit D levels, as my onco says that chemo gets less and less effective with each successive chemo drug I try, and I've had many. Besides bloodroot, the capsules I'm thinking of taking are packed with natural plant ingredients like turmeric (curcumin) and blue ginger (galangal), so they should do me some good.
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A dear young lady sent me a PM. She is only in her 20s She has a condition similar to mine, except that her ribs are now exposed and you can even see her heart. The doctors will not operate. So I'm not making my condition up, and neither is the lady in the Black Salve Indonesia website. People like us do exist. Please show us some sensitivity.
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Hi Chillipadi
There's a site www.radicalhealth .com. When you get to it type "black salve". You may want to read their black salve protocol and follow it before taking this wild medicine internally. According to these people, if your pH is not alkaline, taking black salve could be very painful.
There is study out that showed that bicarbonate increases tumor pH and inhibits spontaneous metastases. There's a baking soda molasses protocol that some claim has worked, so you may want to look that one up. It sounds like you are winging it on your own. An alternative cancer physician would be able to direct you. Among other things, I believe immunotherapy, lymphatic drainage and a comprehensive nutritional analysis are probably necessary to help get your body back on online.
Personally, I'd check myself into an alternative cancer clinic, such as the Gerson Institute. If an that is impossible, perhaps you can carry out the Gerson protocol at home as Althea suggested. I would take shots of wheat grass with that protocol too. In the seventies, Ann Wigmore, an American holistic practitioner, reportedly cured many with terminal cancer using juiced wheatgrass.
On www.cancertutor.com there are a few alternative cancer treatments that range in price that shrink tumors as well. Some are of course are more complicated and effective than others.
Since chemotherapy is not an option, which could very likely be a blessing in disguise, you may also want to consider fasting. There are studies that prove that intermittent fasting shrinks tumors. If you do it for more than 7 days though you should be under the care of a physician at a water fast clinic.
Last but not least on my list is the Sodium Dichloroacetate (DCA) cancer treatment. Medical trials using Pure DCA have shown this compound can reactivate the mitochondria restoring the cell's original function of "apoptosis" allowing tumors to shrink. This news report explains how it works. www.youtube.com/watch?v=TeA84udy7hY I believe you can purchase DCA online.
Stay strong,
z
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My computer has not yet found the web site, but I have learned so much by all of you sharing your lives.
my uncle did have a lung tumor (lung cancer) that broke through his back in a big way and notning could be done, same reasons Chilli says.
Chilli, I so admire your spirit. I personally would try whatever felt right to me. I send you hugs and wish you the best, and please keep posting.
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Dear Zuvart, thank you for taking the time to share so much information with me. I have been losing a lot of weight and have trouble eating, so I don't know if fasting is a good idea at this stage. I'm trying to put on weight. I've tried the baking soda molasses protocol, but it didn't do anything for me. I've also done a lot of juicing and wheatgress. I'll be looking into DCA next.
Crystal, thank you for your kind words. I'll post when I can.
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Chillipadi,
I have no tx advice to offer, just warm thoughts and prayers that you find something to help.
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Hi Chillipadi,
So sorry that you are experiencing this. BC is awful enough, but to feel like you are left without treatment options is beyond demoralizing. You mentioned an interest in evidence-based alternative treatments. I'm not sure where you live, but I've been impressed with the Pine Street Clinic in California...though I think their main focus is the support of traditional protocols. But definitely worth a try. They will do phone consults if needed, but they will need copies of all your medical paperwork. Feel free to PM me if you want their contact info.
Thinking of you tonight.
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Hi Cillipadi,
I work as a nurse and had a lady with same type of cancer. From the time she felt the lump until it ulcerated it as only several moths. It covered her all left side the way you described. She was refused mastectomy for same reasons and we were only doing dressing changes. She later learned her estranged father had breast cancer. No chemo was working for her either and we could see cancer growing from day to day.
I am very sorry you are going through this and I hope you find something working for you. I just recently heard about pow pow program but I have not looked into it.
For those who cannot believe cancer like this does not exist unfortunately it does. I would never forget that patient.
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Thank you, dear sisters. I really appreciate your support and suggestions. I have been researching all the links and products mentioned. Another young lady wrote to me about her mother whose tumor is breaking through the skin and bleeding. I wish I could help these people, as allopathic medicine has failed us all. Hopefully, I'll find something which will work for us soon. Please keep your ideas coming.
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I get really annoyed by blanket statements some doctors make about tumor size and our impending death. The surgeon is not necessarily the expert. To say, "If you'd waited another month you wouldn't be alive today," or "That tumor would have killed you in a year!" is usually a crock full of someone's opinion, not fact. But we latch onto this as though it were the devine truth. Because WE want to believe that we and our almighty doctor have saved ourselves!
People can live a long time with big tumors, if they're indolent. And a short time with little, aggressive ones. My mom had Stage 3b in the late 60s, didn't have chemo, just rads, later Tamoxifen when it became available (it arrested lung mets) and she lived 20 years. Today, she'd be told "you'll be dead in a month if we don't treat you aggressively."
Sorry for my mini-rant here. Be careful of blanket-statement opinions, unless that's how you form your values/beliefs in the first place. A large tumor doesn't always equate to mets and quick death. That's why people will move on toward alternative/complimemntary treatments and claim they work. Because they're not dead yet. Don't flame me--it's the same with conventional.
I don't know if Chillipadi has mets yet, other than the skin? But I'd be trying any damn thing I could if it were me and I had a nasty tumor spreading along my chest! Chilli, hang in there. I'm sure you must feel so alone with this...
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Chillipadi: Have you tried Metformin, the diabetic drug that is now being used in advanced cancers in non diabetics? Chris Meck did several posts on the Metformin thread about his wife taking it for IBC which had spread all over her breast, and the cancer was responding to the treatment and retreating. She was doing chemo with it as well. It's worth asking your doctor about, or some other doctor if your current one will not work with you.
I didn't look at the video but I would think that you might want to try some other options before subjecting yourself to this kind of horrendous alternative treatment. I send you prayers and healing energy!
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(((Chillipadi))) - I can hear your frustration. I looked at the photos. I did not notice a specific timeline in this process, do you know how long this took? It sounds like you have been very thorough in your research. Thinking of you as you decide, KC
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Black Cat.
GO AWAY. YOU ARE NOT WANTED ON THESE THREADS. ARE YOU DENSE, STUPID, MEAN SPIRITED OR ALL OF THESE?
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No one should speak to anyone on these boards this way...
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No kidding. I reported tuckertwo's post as abusive.
Mary
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Hi Chilli -
I am so sorry you are going through this. A while ago I read some good things about hyperthermia for IBC. Cleveland Clinic may be a place to obtain this - also cancer treatment centers of America
http://my.clevelandclinic.org/services/hyperthermia/default.aspx
Also, I like Kaara's idea about metformin - I don't see how it can hurt to try at this point.
Best of luck to you
ETA - I'm not sure why the link doesn't work. If you google cleveland clinic hyperthermia cancer treatment you should find the page.
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How about Faslodex. Its not alt, but perhaps worth a try. Insurance/medicare should pay for this because it is approved for BC.
FASLODEX is a prescription medicine used to treat hormone receptor-positive breast cancer in women who have gone through menopause whose disease has spread after treatment with antiestrogen medicine.
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Faslodex didn't work for me. I just checked the Black Salve Indonesia website again and they've updated it. Mrs. L is healing slowly but surely. From what the website says, her treatment was expected to take at least 3 months. I don't know which month she's in now. Her tumor is very large, so it should take a while to treat and heal.
I've decided to start another chemo, Adriamycin, this week to try to reduce my tumor load, as it's presently larger than Mrs. L's. Hopefully, it will become small enough to break it down and remove it with the black / red salve program. I cannot bear to have this thing growing in me indefinitely. Let's see how this goes.
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chillipadi - Just wanted to add my support and say how sorry I am that your are going through this.
I wonder if you/your doctors have tried approaching your case as though you were a burn victim? Through a series of admittedly risky surgeries, doctors can create extra skin elsewhere in the body and slowly peel away bad parts and graft new skin. They can also use cadaver skin. This would only get rid of some of the cancer, BUT it might shrink the tumor area enough to allow chemo agents to be effective (this is one case where I'd support chemo period AND directly to the organ - or radiation). Chemo may work better for you with less to fight against.
Have you tried consulting a burn specialist/reconstructive surgeon? Of course the mission isn't to eradicate the cancer completely, but surely they can at least control it so that you can resume more normal drug treatment?
Upon reading your story I wonder whether/how much necrotic tissue may be building up and whether that is presenting a problem of its own, different but alongside the cancer. (Believe it or not, doctors use Clorox to stave off infection from necrosis sometimes).
Finally, has there been testing for/consideration of the presence of bacteria along withthe cancer - and could that be torpedoing efforts to use only anti-cancer treatment?
Just a thought. This is definitely a time to think outside the box, as you say.
Best of luck and let us know how it goes.
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I was having the same thoughts as Athena--why not do surgery and treat you like a burn victim? They have TONS of treatments and gauzes and the like that are used in those cases. Can't see why it wouldn't work with you. Are you near or being treated at a major facility?
As for BlackSalve it has been around for YEARS and the nicest thing I can say is that its a scam. What is worse than the separation of consumers from money is the false hope and potential further damage to health. I think the Federal Trade Commission's most recent lawsuits against various Black Salve distributors and other sham cancer cures was in September 2008. I can't paste links here but if you go to the Federal Trade Commission's website www.ftc.gov and search on Black Salve you can find more information.
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This Black Salve sounds like ichthyol ointment commonly sold in livestock and pet supply for wounds. I feel as others have described that a surgical grafting approach might be further investigated - - again so you can pursue treatment. It seems so much is done with skin grafting it may be option to check into further.
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It seems that there are quite a few who cannot believe chillipadi's limited options and why she cannot have surgery. From what she is describing it sounds like "fungating breast cancer". Google it and it is a terrible sight because the tumor has grown so large that it has broken through the skin. Whatever site you go to the words "oozing" "bleeding" and "characteristic foul smell" can be read over and over again. Surgery is not an option because the tumor is so big that you're pretty much cutting a body part that has it's own blood supply, vessels. Treatment is usually palliative so I don't see anything wrong with chillipadi trying anything on top of that. Some breast surgeons are on the fence about a mastectomy with a Stage IV diagnosis but you would be hard pressed to find a breast surgeon who will remove a fungating tumor.
One time we had a patient in our clinic, his fungating tumor was on his neck. We all saw it, it was ugly and horrible but we treated him with the utmost kindness and I was quite fond of him. Frustrated, one day, I asked his treating physician why they couldn't just remove the tumor, he looked at me like I had 2 heads and basically said that his arteries and veins in the neck are in the way.
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Sadly - - it's not that we do not believe the severity of her dx but hoping we can offer another idea to pursue....... I wondered about the cryosurgery to freeze the tumor or even a portion but I suppose that has also been considered. I am so sorry chillipadi it going through this horrible dx and wishing we could offer her more. Hugs
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Chilli, I hope the Adriamycin regimen is helpful to you. I'm so sorry you're going through this.
I'd be afraid that black salve would make things much worse for you -- in the same way that surgery would be difficult (or impossible) given the involvement of blood vessels, I'm afraid black salve would be at least as destructive. Black salves are corrosive, and the way they work is basically to "burn" (a chemical burn) whatever tissue they come in contact with, then a thick black scar forms, and falls off. Black salves are a remedy from the late 19th-early 20th century, and have been replaced by safer methods -- like liquid nitrogen for freezing off warts, small skin cancers, etc.
In any case, even when they were invented, black salves were only intended for relatively small, superficial problems like warts, boils, skin parasites, infected splinter that can't be removed, superficial mild skin cancers (i.e., not melanomas!) or precancerous skin lesions ("actinic keratoses"). They're no longer recommended even for these kinds of conditions, but small superficial conditions are the only ones for which they were ever intended.
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Chilli -
Something was calling me to dig deep into your situation. sssssssoooooooo, if you don't mind,
I have read all the posts from the last several weeks. From one of the posts, I posted a few of your supplement and food choices at the bottom with my comments. These are my opinion and I have hurriedly given reasons PLEASE PLEASE READ what I have to say about your protocol.... and I have PMd you to come back and read. i am not a med pro or an anything, just love naturopathy.
Earnestly saying, I hope you have been dissuaded from the bloodroot salve (black salve) by now. When this is made correctly, it does work, but dear god, help the one who gets the kind that works as it can move through the tumor and cause you to bleed to death, or into main arteries and take out affected organs, such as lungs. You have no control even when using a little. Even for a small skin melanoma, one does not know what the risk is as there is no way to tell where the root is. Bloodroot is a narcotic too. Taken internally is a huge risk. There are extracts in alcohol and those are starting at a drop on the first day and working one's way up slowly, so you see how serious that is too because the woman I purchase my bloodroot extract from knows a woman who did use the black salve on a 'small' tumor on her chest or nect, higher than breast... it went right into her artery and killed her on the morning bus, so obviously the 'cancer' was all th eway to the artery or through it or something. Another story, same medicine woman, that someone thought they could handle the pain and used more than suggested, they had a hole in them that killed them. Yes, people do die from this stuff.
In my opinion, you need a doctor, a very different doctor.
I don't know much, but will add what I do know. Not that any of this is a cure. But it is crucial to gain headway. And some of my notes are about other choices that could help. It all goes together.
The cryoablation (freezing) would probably not be used because it is tended for small cysts and small masses.
To drive up your pH easily, try a combination of lemon in water alternated with LIPH drops or diatomaceous earth in water, both silica based. But you have to eat the alkaline driving foods too, staying away from the acidic. In your severe case, you must.
To raise Vitamin D3, the sunshine is not enough. You need sun too,, but you need a Vitamin D3 supplement, I am happy with mine from L.A. Naturals as it is a spray, 5000 IUs a spray into mouth, I take 10,000 IUs about 5x / week, per integrative MDs prescript.
Paw paw was suggested above.... this is one thing I would have done. Well, I have spent four weeks on it and will be back on in a few days. Do some research on this, it is one legit protocol, the ressearcher is from Indiana, found that it works, tried to get it to the ppuclic, was blocked, turrned it over to Nature's Sunshine where he now is employed tto head the drive to get it in the hands of those who need it. They cannot say it will cure cancer. It will balance health, especially if one has cancer. That is as close as they can get.
ALSO I would not ever ever never go without the fucoidan CAPSULES, do not get juice for cancer. Capsules yes, if they are processed properly. Extract, yes. There are several places to order. I order Fucoidz. You do not want another type of brown seaweed than from llimu moui, the limu moui is the one the fucoidan is in and you want the fucoidan itself which is the part that pubmed.gov has studies on. Yes, sseweed is good for you, but for the situation you are in, you need the force of a protocol with the best.
You are in Asia. Have you turned to a Chinese medicine person? I have here and am fortunate there is one near me. It is not about curing the cancer only, one has to find the core of the issue to be effective. They will read your pulses, all seven or whatever of them, they will see in your outer muscle your tongue what is going on, what is blocked.... Cure is a nondescript. What you want is to feel healthy, be safe in your own body and for the tumor to be gone. My Chinese med person started at both ends at once, the core issue and the breaking down of the 'masses' (multifocal but only one mass removed by bs) and liquifying what is broken down so it passes. Yes, not so keen on allopathic choices, my decision, so going it more naturally.
YOUR CHOICES - parts of your protocol from your post on another thread
1) 4-Herb Tea (basically Essiac tea) - my DH brews this for me ever fortnight, and I drink about 90ml 3 times a day. This tea has been around for decades and it's supposed to be cancer-fighting.
The Ojibwa Tea is system balancing. In our day and age, it is not enough to fight cancer now, this told to me by the woman who makes it. We have to do more. ESSIAC TEA is not the Ojibwa tea.
What you are taking has red clover in it!!!!! and with red clover and FEMALE CANCERS comes food for estrogen driven cancer cells. It may work for some cancers, not female cancers. Here are two links, too keep it simple.http://www.mskcc.org/cancer-care/herb/red-clover Sloane Kettering info
http://curezone.com/forums/am.asp?i=1122034 this is a reader's opinion and I could not say it better myself, so please heed.
7) Freshly-made, pure soy bean milk (non-GMO) - I drink several glasses of this daily, plus soy pudding when I can find it. My DH also adds boiled soy beans to my daily rice porridge (one of the few 'solids' I can eat and hold down). I'm highly ER+ / PR+, but this has been acting like Tamoxifen for me. Flax only made the tumor grow rapidly. Soybeans and other nuts, beans and lentils build up haemoglobin, which I was very low on. Also great source of protein, which I had lost a lot of, and nutrients.
My comment, opinion.... the soy is also a phytoestrogen. and feeds the ER+ female cancers. I just don't think you have the luxury to chance that this is working FOR you. Please find an alternative for your foods.
8) Dark molasses - a heaping teaspoonful a day to restore haemoglobin.
My comment --- You mention that you are sweetening foods with molasses and taking this too. But the sugar needs to be eliminated, molasses, maple syrup, honey, all of it. Natural is not ok either. Not for you, not now. Just try the Stevia herb for sweetener or the aggave nectar if you must, just a tiny bit though, and very little fruit for now. When you are healthy and feel safe again, test it, if you need to, but please stop the sugars for now. You also mention that you take Neways Maximol and Neways Noni Juice (I have been a rep for 20 yrs and it is awesome, pure stuff) BUT again, you are taking very concentrated fruit sugar, a luxury you do not have. There are minerals in Angstrom liquid which will be more bioavailable for you and no sugars. Also the noni can be purchased in capsules so you are not getting the sugars. When you get them, you can open them and take in a glass of water, yuck but it is down the hatch and working for you. That is what Iused to do. I transition one protocol to next.
Notes from your protocol. 1) Neways Maximol Solution (liquid vitamins and minerals) - this helped keep me alive and build up my strength when all I could take in the past month was fluids. 2) Neways Hawaiian Noni Juice - anti-tumoral. Also builds up immune system.
Okay then. Have to go to bed, but will be thinking of you.
I will say this, if anyone needs anything and you ask me where to find it, I will send you to someone who can get it for you and that I make no commission from, I am here to help with my experience, strength and hope.
Diane - nickname Essa
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Thank you ladies. You are all absolutely awesome and too kind. I'm going to need some time to digest all the suggestions here. It is true that I have a huge fungating tumor, far larger than the one shown in the Black Salve Indonesia website. I feel like I have an enormous alien being feeding on my chest, eating my flesh, entwining its tentacles deep into my body. It is so inextricably entangled with my blood vessels and nerves that nobody will put a scalpel to it.
Right now, I've just had one cycle of Adriamycin, and I'm hoping it will help to shrink the monster. There was a lot of pain a few hours after the first infusion, and there's still much pain five days later. On the surface, I can't see any difference yet. One way or another, this has got to end this year, whatever it takes. I cannot bear to exist like this.
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Chilli
Was wondering if you have considered re-biopsying your condition? In Stage IV discussions, I've read that sometimes receptors change, ie ER+ to ER- or HER2+ to HER2- etc. It's a long shot but maybe worth considering to see if you can check on the HER2 status.
Please take care.
Edit : grammer
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I will mention this once again, because of the success that another poster had with it. The combination of Metformin with chemo did wonders for another woman with IBC. It would be worth a try in your case, as it could do no harm. Metformin is a tried and tested drug for diabetics and is currently in clinical trials for non diabaetics.
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