2013 Survivors!!!
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Hi ladies -
Hope everyone is doing ok!
I did not go and have a margarita last night ...(wink Chrisrenee) ok I did!
I am still having eye issues go back tomorrow! Kind of a could be stressful day but after this year I have tried to learn to take these days in strides. I wanted so bad to get on a flight but have to wait for this eye thing to be an all clear. My BFF is an eye doc and she told me I should go see a doc not an OD but hell I did not now the difference and I love my OD. She wants me to call her tomorrow while in his office and I hope he will not be offended because I trust him but after all I have been through not risking it. Ugh why did I not go in earlier fuck! I am just convincing myself this will heal but it has gotten worse with eye pressure and extremely light sensitive to the point I should probably not be driving. But dam it - it will be alright! I got shit to do and see:)
I have to be so tough with everyone else but I love that I feel I can show my weakness here and you all understand this:)
Hugs and lots of love!0 -
I agree with chrisrenee – pains in the arses some of you may be, but you are ours – me included.
Sorry I have been quiet (I know, most probably a nice change for you). In an arbitration with work for 3 days. Very interesting but takes all my time up.
Only quickly scanned the posts… gonna try and catch up a bit now.
mcook : hope your eye gets better soon. Sounds awful.
Juneau: thanks so much for trying for our retreat… what about just a hotel somewhere and we can make our own fun. I dunno, I am just so up for getting together now.
Anyway off to do some dinner so chat later.
Love you ladies xxx
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Juneau - lets plan it sooner:) heck what about in two month some where? After this year I am all about doing it now:) Florida sounds really nice right now:) thank you so much for attempting to organizing this! We will figure it out! Hell I have never visited NJ so I will just show up on your doorstep with a big hug!
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Good news on my friend who had brain surgery today, all went well. But just when I think the cancer insanity is slowing down, my team lead tells us yesterday she has cervical cancer. It is just unbelievable how much of this stuff is out there stalking everyone around us.
On a better note, I started the Livestrong program at the Y tonight and met a great group of people and trainors. Looking forward to the next twelve weeks of training and shedding some more poundage.
Mcook, sure hope your eye starts healing soon. And that Marg sounds really good right now.
Have a great evening gals!0 -
Mcook please take care of our eye ....
Juneau ... Thx for trying and don't give up on us.
Latigger, good for you for joining the Livestrong program ...
Tazzy, you can head east anytime .... There is always a place at my house and that way you can meet our pain the asssssss !!!0 -
Iatigger- My friend who I spoke about that has spots on his brain is in the live strong program and I have another friend that joined and they love it! Glad you found this program!
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Hi! First post so a little introduction...I am two weeks post op and going crazy, can't sleep but I am so glad I came across this discussion board. I have not seen my onc. doc yet and don't know what my treatment will be yet. I have enjoyed reading about experiences that are not as bad as I have pictured in my head. I told a friend today, "I will feel better once chemo starts!" They looked at me funny...I bet you ladies understand that statement, right? Waiting is the hardest part. I had a 4cm IDC tumor that was grade 3 along with an additional 2cm of DCIS attached to it. Lymph nodes were negative and only mildly ER+ but I was HER2/neu +++ so Herceptin will be part of my treatment. Before chemo starts, I have a list of things to do including some dental work, Bone Scan, PET Scan, Power Port placement, and a cute little haircut. My husband likes my long hair but is happy to go on this adventure with me and see what I look like with a cute short haircut. My 14 year old says I should get a pixi-cut like Emma Watson...hmmmm. Well, I'm rambling but want to say that I am so happy to consider myself a 2013 Survivor with all of you (((hug)))
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2scrub- welcome to our amazing group! You will find love friendship and mostof all support. We are each others cheerleaders. Although we do have two of the best cheerleaders Scottie and Marianelizabeth. Glad you are with us.
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juneau... great new avatar - looking very chic sister.
iluv2scrub: sorry you find yourself on these boards... but happy you found and feel part of our 2013 Survivor thread. Yep we understand you hon... the waiting is definitely the hardest part. Only us who have gone through this can fully understand that. I hope you have seen what a great bunch of women you have found here. Oh ! I love your name too... and if you do love to scrub.... you will always be welcome at my house
Iatigger - happy to hear about your friend. I do not believe this cancer insanity will ever slow down. They can put a man on the moon but cant find a cure for cancer - I am so tired of it. Its an unfair disease - well aren't all diseases... but like you said everytime you think you're getting away from it, bam... you hear of someone else. OK that was depressing eh? While there is breath, there is hope and while there is that we have to think they will find a cure - sorry guys - that was a real downer !
Thanks Joanne.... I will keep your invite in the front of my mind and will be looking out for seat sales to Hamilton.
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Iluv2scrub.....welcome...sorry you have to be here but you will get all the support you need and a few laughs thrown in as well.
Marian....hope you are ok ....I need some help here with this lot....lol0 -
Welcome iluv2scrub, what you describe sounds very familiar - as you stated, we understand and are here for you
Tazzy - good to hear from you. I will be so upset this week if you are Scottie's pet 'loser' again - so not fair
. Wondering if you have an update on your co-worker - stage/treatment?Liefie and McCook - in both your pockets tomorrow with your eye appointments
Juneau - add my sincere thanks for your efforts re: get together
Ramols - I had my CT Sim yesterday afternoon and I am supposed to start my 16 rads sometime next week or the following week, depending on when they can get me scheduled in. We can count down some of them together. Hope the rash clears up. My next Herceptin is Thursday, counting those down with you also
Chrisrenee - thanks for being you
Latigger - way to go!
Scorchy - xxoo
Take care everyone
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Thanks for asking websister. Friend still not sure of tx plan. Has a scan booked, then will see her surgeon. She is still at the 'dont want to talk about it' stage and has informed her work team of her bc but that its business as usual for now.
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iluv2scrub,
Okay are you a domestic goddess who needs to move in with me or a surgical scrub nurse? The user name!!
Welcome aboard you will find this a wonderful place you don't want to be.
Hugs, Sheryl
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juneaubugg - Kudos to you for trying to organize the retreat. Actually meeting your BFFS-That-You-Never-Met-Before is an awesome experience.
In 2001, I joined a support forum for people with severe vestibular issues. Before long, I had become very close to many of them. One thread talked about repeating the gathering in Oregon that had started years before.
The first time they did it, a few people who lived within a short driving distance met at a restaurant. The next year, more people came, and they met at a members house. And so it went. Then they started meeting at a little farmhouse in a beautiful meadow in the Willamette Valley, and staying the weekend in the ratty little truckstop motel in the next town.
I saw that happening, and told DH "I wish we could go to that..." and he said "Why can't we?" So I immediately booked us a room and plane tickets and off we went to spend THREE DAYS with people we had never met before.
For the rest of my life I will always remember the sight of my Internet friend and her husband running out to the parking lot of the motel to greet us. We were dressed alike, and so were our husbands! The four of us never stopped talking. From Friday afternoon to Friday night's dinner at the local cafe, to the huge BBQ at the farmhouse all day Saturday, to the tear-filled Sunday brunch when we all had to say goodbye...it was the most awesome trip I've ever taken. And people came in from all over the country!
I guess my message is don't give up. Start small. Go easy. If you build it they will come!!!!! Maybe not a big retreat this year, but at least get started meeting in person those who are close to you geographically. Trust me. It will grow.
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Hugs to all. I'm out of town for a few more days but i saw this in a gift shop and knew for sure it would make you smile.
2 Fried eggs taught me to take pictures and not buy everything and then Juneau told me how to use Photobucket. Hopefully I was a good student!
Welcome Scrub! MCook- hope you eye heals quickly!0 -
Still can't keep up but checking in - I have had some bad hip issues the last few weeks and I gained my weight back - up to 190 again. Yesterday was some good news... I came home with an Amoena post-op Cami/bra that seems a little compression on all the torso (for my truncal LE) and doesn't cut in the underarms.. I will have to make some thicker pads for the straps but it is the first thing I have tried on over these 20 months that actually feels like I can wear it.. Fitter let me take the compression bra back in exchange for the cami - they were the same price. Here is hoping that it doesn't cut anywhere I missed..
I am waiting for my sleep study results to come back and working up a storm.. and seeing my RT and Pain doc these days and no time to be here.. I read up once in a while but won't be writing much..
Here is hoping everyone is doing ok and wanted you all to know you are all in my prayers... Have a great week.
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iluv2scrub- Welcome to the club...sorry you have to be here, but welcome all the same.
Ramols and Websister I just finished rads and it wasn't too bad. Can't say it was loads of fun either, but not too bad. Your skin probably won't start to act up until you are two weeks from finishing up so the first few weeks will be a breeze. As my RO put it that's the honeymoon phase!
iatigger- I love looking at the Livestrong website they have some really good tips on diet and exercise. I had no idea they had a program. I can imagine it would be a great program!
I was playing around on Amazon.com and found this decal for your car window that I thought most of you would like. It says "Hey Cancer, You Picked the Wrong Bitch!" and then there's a pink ribbon beside it. Seems pretty appropriate at only $3.99! The only bad thing is that it attaches to the outside of your car window instead of the inside which may be a bad thing if you scrape ice or snow off your windows. Just thought I would pass this along.
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sonson: that's a great decal... gonna look now and get one
gma: happy to hear you have found something that works for your LE. Hugs for everything else !
Yay...hump day. Hoping you all manage to have a happy Wednesday.
Hugs xxx
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Question lovely ladies. It seems like 2 months PFC - quite out of the blue - my period has decided to come back. Since I am two months out of chemo, is my immune system strong enough to handle tampons (banned during chemo) and I can forever stash the dreaded maxipads in the closet? Sorry if this is TMI...
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Hi
Just checking between work and eye appointment then vet appointment LOL welcome back crazy life but going to work at a plan to find a way to slow all this down:)
hope all of you are having a good day! One more day and I get to remove my harness and upgrade to sports bra! Hey speaking of that I wanted to go bra shopping and buy just one to see how it looks but then realized most bras now a days are dam push ups:) I am now confused what bra to buy and take for a tail run!0 -
mcook: I found a bra by Werners (or Warners) at Marshalls. It's cheap and NO WIRES and super comfortable. Went back and bought one at TJMax (sister company).
ramols: my period came back this week too... I think 2 months out your white cell count should be back up and shouldn't pose any problems for you. I must warn, my first day wasn't so bad, but yesterday... I had to stay home from work; enough said.
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Question on period? Thought it would stop on tamaxifen? If you start it should you call your doctor? Ugh fucking drugs we put in our bodies!
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Mcook, I had stopped for two months and it came back. I did let the MO know and she ordered an ultrasound that was normal. She said unfortunately that this positive SE seems to be gone for me.
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Ramols - you are going through radiation which I understand still lowers the white cell count somewhat so I suggest you call MO/RO (or nurse line) and find out for sure what they recommend.
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Have a stupid question WTH is PFC? Ha I have seen it on several occasions and never been able to figure it out.
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I have always thought it meant "post fucking chemo", but I am probably wrong. Anyway, I just liked the sound of that.
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Have not read posts, but just want to report that i'm hpme after eye surgery, and everythng went really well. Sitting here with an eye patch on the eye, and a Kleenex stuffed up my nose, because it is still bleeding now and then. Feel ready to attend a Halloween party!
A good day to everybody, Will catch up later. Oh yes, Chrisrenee, PFC means Past Final Chemo.
Mcook, thinking of you, and can identify a little. Hugs and best wishes!
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Wait a minute, liefie and mccook are both having eye problems? Well hell's bells, I hope that gets better for both of you! Glad the suregery went well, liefie. Is there any news on your situation mccook?
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Liefie- thank you I had given it my own name just because I didn't know what it was. My version POST FUCKING CHEMO which I guess is one in the same as PFC. Haha
So glad you are doing well. You made me giggle about the eye patch and the Kleenex up your nose. Not funny but the visual.
Outdamn- great minds think alike!! Tts my version too.
Mcook- hope you are feeling better today.
Love you all0 -
Officially, it's post final chemo. But everyone is entitled to their own definition:-)
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