STFU (Shut the F*** UP)
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Sweetmissmary,
The big concern is making sure you are comfortable and able to function. If you need to take more, take more. Definitely don't stop if the medication is working. Who decided 4 a day is your limit? I know someone who takes 9 a day (2 pills every 4 hours-8am, 12noon, 4pm, 8pm and 1 at bedtime) and does fine. Talk with your doctor. Maybe you need to take 2 at a time instead of one. I know there is a concern about liver damage with too much Tylenol/acetaminophen so the recommendation is no more than 3200-4000 mg/24 hours. There are many options for pain medication when the hydrocodone is no longer effective.
That's my two cents. I'm sure others will be checking in, too.
Take care.
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Mary, I'm trying to get comfortable with taking what I need.. And I'm not in your condition. My doc gave me a limit with my med but he said the goal is to stay ahead of the pain not to tough it out. That being said.... Take what you need and if you need to get off them later, then the doc will help you. Gentle HUGS to you!
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Just remembered there is vicuprofen if Tylenol is a concern.
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Littltmarywha - ditto what julseyana said - particularly with the Evil Ixempra. Seems that the pain is cumulative for me, If your pain is from EvIx, maybe the talk with your doc should include that aspect particularly if you will be on it for a long time.. I will now STFU except to say I hope it is better SOON.
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Maryneedsmeds---I am the biggest pusher of pain meds than anybody and if u knew me before BC I didn't take aspirin, if I had a headache I'd put ice on it or just wait til it left. There is no reason to be uncomfortable for any kind of pain. And I wouldn't worry about being an addict in any way, that usually happens with people who were in pain and kept taking meds when they are not in pain--U have pain, u have the arsenal use it and if needed tell u'r Dr. u'r still in pain. I just started a stronger pain med, u guys noticed cuz after I take it I can spell and I talk alot then I quiet down.
OK Chevy u and I are both going to get thrown off hahahaha
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Sweetmary, Regular use of opioids does change your tolerance level over time. Because tolerance can occur, your physician will need to adjust your dosage, or add or change to other medications.
Don't worry about "addiction." Addiction applies to those who use opioids recreationally, not for medically indicated pain management.
Bottom line: the most important thing is your quality of life. When you have pain, take the medication that is prescribed, and keep your doc up to date on how it is working.
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Morning gals.... ! Mary, It just makes sense what these women have said..... I mean even Cammi!
I was thinking that "yes" I'll bet your body DOES build up a tolerance to a prescribed dosage, and then you need more! Like those cute little commercials with the kids in school, and the one little girl says "More, you need More!" Or "want"..... whatever.I wouldn't worry about being addicted or anything.... you are in pain, and you DO need to stay ahead of it.... and not wait until it takes you over.
And Juliaanna said something important also... Maybe your Doc needs to adjust your pills... and the amount? Just don't really let it start hurting before you take the pills.
We're WITH you kiddo.... just do what makes you comfortable. xoxoxo
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Gumby bursting your bubble as my bubble was burst. They used low calorie sugar in the UofM study. BUt the encouraging thing is the window is still open as a study design was suggested for further reducing the sugar content OR use SUGAR FREE Cranberry Juice in a repeat study
That was another reason I liked that "Morsels of Evidence" web site. They did an analysis of the U of M study that used the whole scientific method to evaluate the study. Pros and cons, it was done very well i.e they made it easy to read and understand.
A previous study which is the one earlier sometime plus or minus 2000 supported cranberry juice as being useful. Quote from Australian study ''There was prior low level evidence suggesting efficacy of cranberry in the prevention of UTIs. This study(U of M emphasis mine) provides moderate-high level evidence (NHMRC Level II) that cranberry is ineffective in young sexually active women who were otherwise well"
SOOOOOOO, hopefully a third study will correct the design flaws of the U of M and previous study and do another one.
One thing identified in the Australian analysis was both the LCCJ -low calorie crannberry juice and the placebo used for the control had ascorbic acid--vitamin C. So, That may have influenced study results. The suggestion was either make sure Vita C was eliminated or do a study on Vita C.
In the mean time your suggestion of using sugar free is as good as anything right now as long as the approach with telling someone that it works is, "there are questions raised and it hasn't been proven, but it won't hurt you".
EDIT: Your comment that yeast loves sugar is so true.
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Chevy, what a story AND you may have had to talk to your ambulance about it. Not sure how the ambulance would have respondeded, but I bet the EMT's would have had a good laugh hahahahah. Your quote "Can you IMAGINE telling an ambulance what was WRONG with me? Rotfalol XOXO
Ducky I know you know Genetian Violet is an older drug, but the youngins here don't. It's like Epsom salts. It previously was used for soooooooo much. It was in every home. Now the people younger than me (60+) haven't a clue about it. In a future time these older treatments that had definite value will be drawn back into use as our wonder drugs of today fail b/c they've become resistant. I had a wee bit of a clue that you may have thought I was discounting what you were saying. So, I apolilgize if that's what you thought. I was in the just state the facts mode. Some of these older treatments have already begun to re-emerge as treament modalities. Some have never left, just aren't widely known, or given the respect they deserve.
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Sas I still use things that were used when I was a kid and it works fine--Of course I see a Dr. all the time for other things but those little things that I'm certainly not going to call a Dr. for I use old remedies and they do the job.
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Chevy --what is Italian foreplay? your quote "Okay, do you know what Italian fore-play is? So pretend you are a guy, snap your fingers, and point!" Please further define, I don't get it?
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Just popping in to say sas....you know what you are talking about. I had Gential Violet as a younster and it worked really well. Looked awful but hey. At any rate.....when we lost our Insurance....right before my cancer was found....I was a little desperate. That is when I signed onto the V.A. for all my txs which have been fantastic and are the reason I'm alive and NED today.
The part of the narrative that applies so well though is that the V.A. is ( I think ) seldom swayed for the most part by the 'newer' drugs. Most of mine were switched and indeed, they seem to do a better job than the 'newer' ones that were replaced.
I am quite happy with the results of it all and when I now watch commercials for some of these new things on t.v. just wow. The list of side effects are incredible and I often wonder.....unless you really, really had to.....who would even dream of putting some of those things in your mouth. I for one would be thrilled to get away a bit from all the "new" stuff and get back to some of the things that worked so well.....like Asorbine Junior....not sure of the spelling of that, but we always had a bottle of it -- along with old fashioned Mercurichrome ( sp!! ). Some things just don't need changing.....and I don't buy anti-bacterial soaps either. A through hand-washing is good enough. I do buy wipes though for my counters where food is fixed but not too much else.
Jackie/Lilli
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SAS.....Italians are so hot-blooded that is all they need to do.
Lilli
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Cami -I'm not discounting older treatments. I've said for several decades that I think orthodox medicine that started throwing out old treatments for the last century and a half has done us all a disservice. Humans survived throughout millennia, by using methods to correct problems. Also, humans died when the method used didn't work b/c it killed them. But we would have never survived as a species without the use of some of these old remedies. Nostradamus was a doctor as well as a seer. He healed folks that had the plague by cleaning up their environment-(got rid of rats and washed things up), AND used Rosehips--high in Vitamin C. Medical history may debate that these two things had that much impact. But he had a reputation for fixing things till his wife and son died of plague.
Anyways..... us 60 & 70 y/o's remember more of the old remedies than the younger generation. The younger generation was brought up during the time NEW drugs and methods were touted as the best. The kind of benchmark moment of change was the introduction of antibiotics in the late 1930's. That's an oversimplification b/c books have been written on this. The biggest change was from the 1960's on. BUT our generations(1920's thru 1950's) remember the old ways. That's why the government gave in and developed NCCAM-National Center for Complimentary and Alternative Medicine" that I wrote about when we talked about candling. IN the late 80's we were in our PRIME LOL. WE demanded that the old ways not be discounted. Our generations forced the government to act. NCCAM was established in 1992. It's possibly just a sham now , but it does exist.
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U got it Jackie Italians just point and before u know it it's over--that's there foreplay.
Remember my biopsy story, I was going with all the needles all over the place, then the Dr, said this is going to hurt a little He put the needle right thru my nipple and I said That's the worse foreplay I've ever had.
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Older drugs sometimes do better....they still say the cancer cure is going to come from the rain forest, or the jungle.......and I qualify as knowing old drugs.....lol.....
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Lilli, Your point re:the VA is well taken. The VA reduces costs by going with the older drugs and treatment. I think it's a smart move. These older treatments and drugs have stood the TEST of TIME.
I've always suggested that older drugs be considered over newer drugs unless the newer drug absolutely is the only consideration.
Two reasons:1 NEW DRUGS used in the general population can have problems that weren't evident in the clinical trials. These problems show up in the first 1-3 years( sometimes longer). How often have you heard of a new drug being pulled from the market b/c of this. While the Aromatase Inhibitors haven't been pulled from the market, the serious extensive s.e's seen in the aftermarket use weren't seen in the clinical trials. When people have to have joint replacements b/c of using a drug, that's serious. Again, this could go on very long, but you get the drift.
2. Cost of older drugs can be a pittance compared to newer drugs. My Levoxyl which was cheap has just been discontinued. Synthroid was substituted, the cost made me gringe. Told the doc find something cheaper. He did. Examples of this can be seen in all drug classes. Insurance companies have keyed in on this in the last decade as medical costs skyrocket. Most/many insurances companies approved drug lists require either older drugs or generics. Generics are actually older drugs. A proprietary drug has patent rights for x amount of time. Once a patent is expired then a drug can be produced by other companies. The cost of a drug comes way down after the first 6 months when production is open to many companies.
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Ducky, your right in the sense that perhaps the cancer cure hasn't been found yet. Drug sorces forever have been from--animals, plants, minerals, and synthetic. The protect the Rainforest crowd have used this in there battle for decades. It's absolutely true. An unknown though, is do we have something already that is useful and we don't know it.
Forgot who mentioned mercurochrome. Loved the stuff, never knew why it was discontinued. This link gives an explanation.
http://www.straightdope.com/columns/read/2518/what-happened-to-mercurochrome
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sas - low cal cranberry juice isn't the same as straight unsweetened cranberry juice by a long shot. Straight cranberry juice is really strong (and sour). I don't know for sure that it truly helps as I haven't been part of a study - but I also haven't had a UTI in a really long time....
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I mentioned it and I only say that sas, because I couldn't for the life of me remember how it was spelled. Yay for you......I loved it too....wild color and burned like fire when we were little but you felt safe and were. I took care of a person for a while that still used it for every little scratch. The daughter used to say to me.....but that little wand ( used to drag across the would after being dipped in the bottle ) is now contaminated and goes back in the bottle.............and I would say, yes but its ok. It is can "heal" whatever you drug it across.....it will take care of whatever little remnants get put in a whole bottle of the stuff. I still chuckle.
Lilli
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I was searching this past week for who to contact re: my concerns re: the fraud in the FDA/ NCCAM/NIH group re:Candling. I came across the congressional oversight committees report on the causes of drug shortages in the last few years. Everyone here except the newbies remember the problem of many older chemo drugs either being discontinued or becoming scarce. This report is one of the only government documents that I've read that is readable by the lay public. Government jargon does not exist in this document. It actually could be used in a highschool economics class.
This document that analyzes the problem will be used for decades of teaching and studying. If you read it, I suggest reading the conclusion first(Pg 21-I think)). The committee summarized three main problems in the conclusion that lead to the fuck ups that were caused by three independent things occurring.
1. The FDA leadership form 2009
2. The passage of the Medicare Moderization Act of 2006
3. The inability of drug companies to talk to each other before discontinuing a drug or reducing production b/c of monoploy laws.
The problems won't be able to be corrected for along time. Thank you FDA and the Legislature. Because even if corrections were in place two years ago, the shortages are predicted to go on for years.
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Ah Geez Sass! You must not have ever gone out with an Italian! I mean their ego is so big that they think they just have to LOOK at a girl, and she will drop at his feet. So picture this..... he snaps his fingers..... and points.... YOU know where..... THAT is Italian foreplay. Kind of loses something when I have to draw a picture....Ha, ha! It's just a joke! well, it used to be anyway....
Lilli..... yes, that's the story..... but it's just men in general I think....
Cammi! That was classic! What you said to your Doc! Ha, ha! I remember that, when they did that right in the nipple.... with that nuclear dye! No mercy! Now THAT was a bitch!
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Chevy, dated Italians, and my first intercource was with an Italian, but he was a virgin too. LOL He was just so happy to have sex, I was still the one in control. So, no experience with what you describe.
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Don't remember mercurecrome (sp) burning...but iodine was a bitch....that and peroxide..
.Working in Pharma use to piss me off when they would spend millions on the research of a "me too drug"....,,,,,,it is done all the time.....
Know from past experience in the industry...new drugs are still full of "bugs" that did not occur in trials......that is why patients and Dr's should always report SE not on the insert ( which 90% of drs and patients do not read) should be reported......l always opt for the older tried and true drug...0 -
Mary, your question is absolutely reasonable. Many good suggestions given. I have been a pain control advocate my entire career b/c post polio pain has been with me, basically, my entire life. Through the issues created by my treatments and surgery since 2009, and what Dh went through with his terminal Lymphoma starting just 3 months behind me in 2009, my learning has taken on a different dimension.
You may or may not of read my past postings about pain control. You are no where in the range of taking too much medicine. But you state your pain is not controlled. Secondly , you recognize that in the future your needs will change. I suggest that you have a consultation with a Palliative Care Specialist(PCS). This is a fairly new subspecialty. It arose out of the recognition that many of the concepts of Hospice could be applied to long term chronic illnesses. One aspect of Hospice Specialists was/is pain control. We also have Pain management Specialist. PCS combines the strengths of the other two specialties.
It seems as if our MO's and surgeons believe oxycodone is the only pain control drug out there. It's not. The who, what, when, where, why of drugs for you, I think could be better answered by a Palliative Care Specialist. In a do over it is what I would have done for DH. EDIT: AND myself. EDIT: DUH, I should do it now.
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Ducky when I see all these new drugs even on TV comm. and the side effects--)even death may occur)m personally I don;t think enough people have really been on some of these, yes the FDA passed them cuz they met a quota but at what risk to so many, I don't know--to many drugs--Oh and I don't remember murcurachrome (sp) hurting at all or peroxide, I do remember Iodine stinging a little--I think Iodine was a little stronger tho.I used to love peroxide cuz it would bubble right on the sore. hahaha I was amused so easily.
Chevy u'r right once explained it looses some of the value of the statement, LOL
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Sas, my mom was with palative care.Her nurses were really big on morphine, but she needed it. I geuss my big problem is I never thought that I would need them at all. That is one part that I didnt Want to think about. Now that its here, I just have to get my head around that fact.
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OK now I opened an account up for Twitter cuz people talk about it all the time--so I have one, now I have no idea what to do with it or how or why to use it. So I'm sure I'll just ignore it.
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Chevy I want to be a GHOST with you........ OH what fun we could have. So, here's the pact which ever one of us goes first we PROMISE to come and get the other one when we die--DEAL?
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