My Husband, My Life, My Love, My Family, My Cancer
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Another day of busy, brought up 13 bags of trash from the basement and took it to the curb for trash night. Egads. So much crap accumulated, I don't Iike feeling like I can only do so much in a one day time period before I am just too damn exhausted to move. Not pain per say. Just fatigue. I just realized I haven't eaten anything all day. I have been so busy today. A grocery store run, $143 later I don't even remember what I even got. Everything is so expensive, even grapes. Like wow $6.00 For a half decent amount of them. Shower day also. I am going to bed very early tonight.
Mae~ you ok darling !?
Chicago ~ you ok too?
Hugs and much love everyone !
Keetmom~with you tomorrow! Good thoughts and vibes for you!
Claudia~ thinking of you of course.!
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I had to post this for a good laugh. Lol kids are priceless. Lol. Loving this. lol I have always thought that when I was younger. The look on my kids face when they realized where they camefrom lol I did have two c sections. But still the holiday Hamm! Lol have a goodnight evening everyone! ~M~0 -
Hi all! Waving from Florida. Thankfully no extreme damage. All structures survived. Extremely grateful. Some of our friends did not fare as well. There homes are still flooded. Still no power, but generator is enabling us to take showers and keep refrigerator going. We sleep in motorhome cause it has air conditioning! We have much to be thankful for!
Thinking of all of you. Hugs and prayers
Claudia
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OH Claudia~ I am so very happy to hear that you made it through with no damage. That's fantastic!! Happy to know you're ok and all of your structures made It through with out problems. I hope your friends can improve things once all the flooding goes down. Thank goodness you have The camper to sleep in. That Is a blessing. Thank you for letting us know everything is ok with your home. I'm just glad it's over and has moved on! Get some much needed rest. Hope your neighbors are ok! Much love ~M~
My friend from high school has his home and business on the keys. So I'm very worried for him. Looks really bad in the keys for sure. I don't even think many buildings made it through with out damage or total loss. Miserable storm.
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Claudia, so happy to hear that your home is intact. Seeing some of the pictures on TV is unbelievable! SO much destruction! SO much water! It will be a long recovery for our Florida friends. Praying there was no lose of life.
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Claudia-So glad you made it through with no extreme damage. Hope you can exhale now and that the power is restored to everyone.
Micmel-I'm in awe of you taking out 13 bags of trash today. Cleaning out my basement has been on my list but not the top priority. You've inspired me so maybe I'll get at least a little of it done this fall. I had a good day-went to a meeting for my volunteer work and then downtown for an art exhibit. We'll have to talk about Breaking Bad someday. I happened to start watching it after my diagnosis last fall. I could really relate to Walter but wouldn't want to start killing people
. I've started watching Better Call Saul to get a little more of my fix-I"m in season 2 and liking it so far.Hope everyone is doing well.
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Micmel, Preacher is on AMC and just finished its second season last night. Things are calming down in Houston but I'll be extra busy for a few more weeks. I completed #22 of 30 rads and still feel good, only minor skin sensitivity and no fatigue so far. I've been walking daily and exceeded my step goal almost every day throughout rads, as I did during chemo. Either exercise really does fight fatigue or I've been incredibly lucky, it is so important for me mentally to not feel sick physically.
Hope everyone else is well
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illemae- I think exercise really does help the fatigue. and the nausea if you every get that. being outside feels good. always my first choice of treatment when I feel fatigue.
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good morning everyone!
Mae~Good to see you!! Almost to the end of the radiation, that's fabulous! I have AMC and will see if on demand carries that series for me to select. I was up again. (I know right!) until midnight watching Game of Thrones! Boy I do not like Ramsey. Can't wait until he gets his. Poor Sansa. What a way to lose your virginity, to a raving maniac. I. Don't understand why little finger would do that to her ? Other than she was back at winterfeld.. it's good to hear that the Texas clean up is moving along. Everyone knows that poor Florida has just begun theirs. Sending good thoughts to everyone effected. Especially our girl Claudia! I have to agree with you and NKB about the fatigue. I feel way better when I function with movement. Yesterday my final total of trash bags brought up from the basement was 21 bags of trash. I am not even done yet. I can hear the trash men already when they pull up out front. Eeeekkk sorry guys! Lol
Hope you got some sleep Claudia, you have been through quite a bit this past week especially! Hope you get your power back soon. Fully, able to rest comfortably in your own home. Thanks goodness no damage to your buildings. That's incredibly good news.! Hugs to you my friend!
Keetmom~ am with you today for your scan! Good thoughts and vibes. Hugs for the girls and you! 😍
scwilly~ hope your doing ok with the side effects. Hope your feet will get better, hope it's just a flare up from introducing new meds to your system!! I just hope you get a handle on that. Enough crap is enough!
Chicago~ I am going to pay the price I am sure for the 21 bags of trash up from in the basement, 12 stairs down and back up with trash bags. Filled to the top,some where quite heavy. Also,some old blinds and computer items. The trash doesn't take the electronics anymore. I guess that's why in some nice areas we see abandoned fridges and other appliances thrown out wherever, they need to get a central dumping station. That would be helpful. I am still not done in the basment. Wow it was packed. Today i am taking a break for my body. I may nap some. I just know nothing physical is happening for this girl today. I love art exhibits. That sounds relaxing and fun! I can't wait to hear your thoughts on Breaking Bad. I was diagnosed in January of 2016 and I was watching it that summer. I felt the same way about Walter. I was Iike no way. He was quite brilliant. Skylar, she had no idea how much he really Loved his family until later, I was glad when she found out. Great show !! Haven't tried call Saul, but thanks very much for the mention! I am going to mention that as well for a possible binge watch!
Lynn~ sending you a hello and a hug! I was liking the cooler temps. 77 yesterday. Not bad. But prefer. The 60's. Supposed to get some rain. I don't mind the rain. As long as there is no flooding, or hurricanes. I love to sit on the porch and just breath and listen. It's like the heavens cleansing by raining down to clean everything in its path. Why couldn't clean us all from our stupid cancer??
Much love to all hugs my friends. ~M~
Love you too Nan! Missing you
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Lol 😂 😂 that's how I feel from all the basement work I have been doing lol. Sitting down and filling 21 bags makes your rear end hurt. Lol. It's raining and pouring this afternoon and I love it, it means it takes more rain from Florida. And our Claudia. 💕 ☔️ ☔️ ☔️ ☔️ 0 -
Claudia glad you made it through ok, the pictures from the keys are breaking my heart..
Scans are done and now I worry, I looked at the bone scan and wondered if those spots were on the last one...but I know what the CT shows is more important....still really don't want to change treatments again...I guess I have to go on my pain is lower and I am feeling better then in a long time...I even am staying up past 7 these days.... tomorrow we will know, and for now I will take an anxiety pill and try to veg...0 -
Keetmom~ 💕 Hi darling. I am glad to hear its all done. I was thinking of you and sending good thoughts!! I know the waiting is the hardest part. Sometimes I wonder what the oncs think. I usually have to wait maybe close to a week. Then I sit in his room with an ugly gown on. Listening for his rolling cart that holds his computer. It drives me crazy. I Am happy to hear that you are feeling so good. That's half the battle. Honestly, all that you do and have done this summer and all you deal with everyday. I think you're pretty amazing. I still remember the picture of you holding that big ass fish from your family vacation! Oh and let's not forget Emma's bad ass room conversion. Some good things did happen to good people this summer! Well well deserved ! I'll be here waiting to hear your good news. Sending many hugs to you and the girls. ~M~
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Good morning! We got power yesterday around 2, then lost it again around 5. Then got it back around 8pm. Yay! Cleanup is moving along. I took a fall last night. Missed the bottom step coming out of motor home. Feeling especially lucky today as nothing appears to be broken! Just lots of soreness and bruising! Onward and upward!
Hugs and prayers everyone,
Claudia
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Claudia-Thank goodness nothing is broken! Glad your power is back on but try not to overdo today.
Wishing everyone a good day!
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Claudia~ I am so glad to see you here. Thank goodness you weren't hurt. 😲 Please take care of your bruises. They always ask me if I have fallen, one of the first things they say, when I go to the doctors. I hope you'll be ok. Thank goodness nothing is broken!! I am thrilled to hear your power is back. It's too stuffy outside still not to have that!!! So glad to hear slowly things are coming along. I amazed at your strength as well. Just be safe and don't over do it. I did a little too much as well with my basement cleanup. I just woke up, I fed the dogs at 700 and fell asleep again. Been thinking about you all. Hopefully it's smooth sailing from now on!
Chicago~nice to see you. I hope those kitties know how lucky they are! I would love to volunteer like that!! Hope you're doing well big hugs to all!
Much love ~M~
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Micmel-Lynwood volunteers with kitties; I volunteer with people. Either way-I think any type of volunteer work that one enjoys is good because it gets us out of our own funk. Hope you aren't feeling too sore from all your work the other day!
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Chicago~ i was so concerned with seeing all the pets being cared for from the storms. You're absolutely correct. Obviously I have over done it in the basement lol my mind has the days run together. Weeks run together. Anymore I sometimes think that my medicines make my memory toast. If I don't write it down. I'm toast. Where do you volunteer? What do you do for them? I can't imagine having the energy for that!
This morning I found out someone I went to high school suddenly died. So I am not firing on all cylinders. I'm sorry to confuse. They don't know what happened. Usually when they don't give a reason. I have seen in my experience, it's usually an overdose of some sort which breaks my heart. Everyone has their Issues. But it's so sad. She was my age 47. Still pretty young. So that is bothering me a great deal. I guess any mention of death effects me weird these days. Hust a hidden scare. Hope everyone is having agood day. It's a bit rainy here on and off through the night. Now pretty grey. Suitable for my mood. Sorry again. Hugs and much love. ~M~
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Scans are for most part stable, liver and lungs look good... Mets are same size but tbey showed more uptake, could just be technique so we are stay good the coarse, especially because my markers dropped in half, and all else looks good on numbers a day most importantly I feel. Good.... We are gonna look into foundation one testing to have for future... Down to less then an hour here and I can go home... Ready it is like 6 hours here
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Keetmom~So glad to hear your news for stable scans! You did mention you had been feeling good, I am happy that you didn't have to wait too long for those results. I hate the wait. Thrilled that your treatment seems to be working. Keep bringing on the good news ladies ! Much love ~M~
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At first Dr came in and said I had progression in bones but they went and relooked at and it probably was because of less time between the contrast and scan...the whole scan was brighter even stuff that didn't have cancer, I was freaking out for a while but once Dr talked to radiologist I felt better.
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Micmel-Sorry to hear about your classmate. It is so unnerving when a high school friend dies-makes us wonder, will my time be up soon? No big deal about the volunteering-I just didn't want to take credit for Lynwood's work. My volunteer work relates to my profession so it feels good to use my skills in some way without the commitment of a paid job. Some of it is in meetings with other people, the rest is one on one. I find it good to have something besides myself to think about and it reminds me that while have MBC is kind of crappy there are a lot of other challenging situations that people deal with. But I have been careful not to over commit my time volunteering-I don't want it to be a drain.
Keetmom-Glad to hear about your stable scans but I am sure you could have done without that scare.
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For sure because in my mind it is still going is it really stable....But Tumor Markers went by half so it much be doing something...we just will continue on....need to move on to getting in my mind It is stable..
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Keetmom~I khow annoying it is when people, especially doctors don't really review everything closely before they speak. I know exactly what you mean. I am always trying to read these reports and trying to research anything I can read about and trying to understand that lingo. I am a google person, I tend to right away google everything I can. Not a good idea. I am so glad he came back and corrected himself. Still like Chicago said. No one needs anything like that. The wait was hard enough!! Wonder which Way Jose is going to go.?? Up up and away!
Chicago~ it was a shock. No one can find anything out. Other than it just happened. Sometimes things just happen. We all know all about that don't we!?
Hugs to all ~M~
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Mae~you doing ok ? I am thinking of you and hoping all is ok with rads #24? Perhaps. Haven't seen you in a few days. Starting GOT season 6 tonight!! Very entertaining. Loving Sansa. Hope to see you soon! Hugs ~M~
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Mich- I'm not mad at Dr he went over the scan, read the report told me I don't believe this because all signs point toward Taxol working, I am going to talk with another radiologist over lunch (Still what I heard was Progression!!! This is why I bring DH to get my results )and I will come back and talk with you more. So I am not mad, I had to see him so I could start chemo...Everything was brighter on this scan even stuff that doesn't have cancer so something happened. I really like my oncologist, he is always willing to talk to me and listen to me...I am slowly relaxing more...we may do a bone scan after 2 more treatments, we may wait 3 months..we are gonna go on Tumor Markers, other labs and how I feel, The good thing is my organs looked great...and bone mets don't kill people they just hurt...which I have very little pain.
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Keetmom~luckily when he inquired with someone else, stable is what you got to hear. My onc is Japanese and doesn't speak real great. He is smart though. But sometimes I wish he had a better bedside manner. So glad you like yours. It certainly is important. But so far everything he has said to me has been correct and he has brought me very close to remission. Hopefully we all hear that, knowing everything we go through with these treatments. All the side effects. All the worrying. Keeping it in the bone !! I know that song. I sing it everyday!! I know that feeling completely. Hope you get many many more stable scans.
Hugs! ~M~
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Hi all! Interesting to read about the sometimes conflicting results that we hear about our scans. I just got the written report from the ct scan I had a couple of weeks ago. Imagine my surprise when it mentions that my thyroid is symmetrical and without nodules... WTF because I had my thyroid removed in 2010!!! This really pissed me off!! Excuse the language. Now it makes me doubt the stable result. I'm sure it's my scan because it mentions my lung nodule, gallstones and spinal stenosis, all of which I have. My onc will be hearing about this, I want abother read of the scan by someone else.
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Hi ladies! Micmel, my ears were burning, lol.
Keetmom, yay on the stable scans! And lynnwood, how infuriating, I totally understand being angry and I hope you get some answers.
Today was 24/30 rads, tomorrow is the last regular session and next week is boosts to the original tumor sites. Work is still super busy but I have an annual conference in 3 weeks that I always look forward too, so that'll be informative and fun.
I've been trying out some new healthy recipes and walking a lot, once rads are done I'll be able to get back to losing, I have 50 lbs left and I'd like to get there by this time next year. Still feeling great!
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Lynnwood~I can relate to the scan issue. Mine was a little different. At first I was going to have AC and I did have two infusions, I was in the lobby of the infusion center. I was pulled from the lobby and sent up to see onc. I was terrified! Turns out he was stopping the AC chemo, because it had shown up on my liver. A small pencil head size on the outer helmet. Liver was functioning normal it was not even close to any functioning part of my liver. My onc said no surgery you're going on ibrance. I then was scheduled to meet, my obgyn onc surgeon. He was like 😲😲 uh no we are operating on the liver tumor when you're finished with the AC. I'll speak with your onc and arrange it immediately. So I was wondering why my onc didn't speak to the team before he said right off. No surgery. It made me wonder why he wasn't. Being as aggressive as this doctor wants to be. Turned out I finished the other 2 AC s and had a liver resection, it was a really hard surgery. I was NED for three months, and after 9 sessions of Abraxane. But then it was detected in a few surface spots in my bones in a few places. I think the total counted was four. So each doctor thinks differently so why wouldn't they conceptually read reports and scans differently. Scary stuff!! I don't blame you one bit, that you would want a second opinion on the reading of that. I felt the exact same way. Which is why I was glad to meet with the liver doctor surgeon as well. They all finally agreed! Like we all say all the time it's a Roller Coaster. Up and down. Ugh!!
Mae~ there you are !! I am glad the rads aren't giving you side effects. That's a big deal. Walking is very good for you. I am constantly reading about how good it is for you. I am intending on walking more myself. The cooler weather is what I need. I can imagine you will be quite busy with constant clean up, considering what the flooding caused. What kind of conference are you going too? Do you travel for this conference ? DH and I are planning to take a trip, in October. A small cabin in the woods with a nice comfy chair for us both, he's going to hike and take his pictures. I am going to do my reading and coloring!He's really good at it. I am excited to finally get to go someplace. I am so thrilled I don't have to report to any doctors appointment until November, that has been the longest since diagnosis, so I'll take it. I used to have monthly blood work and xgevea shot. But he said not needed anymore. He told me my bones were strong and calcium levels constantly holding. I will take it. Glad to see you. Was hoping all was well. You're certainly a busy woman. We all are in ways. Which I find pretty good!! We do what we can!!
Much love!!~M~
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.....lol this made me giggle. Cats get into the darnedest things. Have a good night everyone sleep well. Tomorrow is Friday!! Any plans for the weekend?? I want to go and see the movie IT. I have read so many Stephen King books. Along with this one. I'm excited! Hope it works out and I feel up to it. Hugs~M~ 0
