My Husband, My Life, My Love, My Family, My Cancer
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I know some of you have been on ibrance before perhaps? Did you ever get a terrible sore mouth. Like you ate pizza that was way too hot and the cheese burned your entire mouth.? It's my week off and it's still burning, it really hurts and eating is a challenge! I have biotin and every mouth wash to help, and it does,. But It really is annoying the heck out of me. It's not enough it seems! Ok I Am done complaining! Hope everyone has had a good day. Quiet on the boards today!
I signed up for the in-person user testing in Ardmore that the moderators are advertising for the community, for me it's about an hour drive. So I am going to participate, I am looking forward to seeing the new format they are proposing! It would be so nice to meet some of you, if anyone is local that would be something else! I know you're all not very local. But it would be an awesome opportunity to meet others who are dealing everyday, but a different thing to do to get me out of the house. I hope they get a good number of people !
Much love ~M~
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Get some magic mouthwash it works wonders....
Nothing exciting here another day over, we are getting hot here again...hate it being this hot when kids are in school...no AC at school...keeping it low at home so it is comfortable when they get home.
Having lunch with a college friend/roommate who just had surgery for thyroid cancer tomorrow so looking forward to that..0 -
Keetmom~ I did get that last time I was at my palliative care doctor. I used it one time and it felt like Novocain, and I drooled like a fool. Maybe I'll try it again. It can't hurt. I also didn't like the way it made me feel like I would gag when swallowing. Some made my throat feel funny. Maybe I used too much? I can agree with the heat showing up again. Annoying and I feel for the kids. I remembered when we didn't have it either. I look back now and wonder how the heck we made it through okay. I remember my legs sticking to the chairs. Yuck! I hope you have a great time with your friend, that is very cool that you can be there for your friend!
Sleep tight!! Much love ~M~
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Hi all, another busy day at work and lunch with my former boss, a former coworker and a current one to catch up on things, we mostly talked about the hurricane flooding. #27/30 rads, only 3 left, which is good because my skin is very red and sore in spots. Nothing else new for now.
Any update on your brother? Hope all is well
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Took a walk with my step brother to the Bonsai garden here. He was amazed since he works on his own bonsais- then lunch- very nice. Super good for him cause he does 24/7 care giving to his sickly and very cranky wife.
Micmel- try warm water gargles with baking soda and or salt. cuts down on the bacteria in your mouth and helps the sores- like 3-4 times per day. I also discovered that I had a problem with sodium lauryl sulfate which is a detergent in almost all toothpastes. causes sores and sore red places. I stopped it and my mouth is so much better. Sensodyne pronamel doesn't have it and toothpastes in health food stores don't- but, Tom's mostly does. got to read the box, not the tube to find it. worth a try.
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Good evening Micmel,
I have been married 38 years and am 60 my husband is 67. We have 16 grandchildren and a loving relationship. Cancer coming back was always something that we were both aware of but neither of us would dwell on it. Now that it's here, even with all the time we've spent together, all the water under the bridge, happiness, sadness, LIFE. I am still jealous of another woman being with him after my demise.
That's another part of love. I want my children/grandchildren to have the inheritance that we both worked for. I think and trust that he will make intelligent decisions but I have written a will just in case.
I am comforted by the hope and prayer that we will be reunited in heaven. If he's there with another woman I know that God will make it alright.
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Mae~thank you for asking about my brother, I am pleased to say that he called me tonight and we talked for about 10 mins. Didn't want to wear him out. But told him how I feel about him. He said they are still talking pace maker....they are still closely monitoring him. They did say if he didn't get there timely. He wouldn't have survived. That is a scary thing to hear. Had he gone back to sleep instead of going to the hospital like he wanted to, he wouldn't be here. So thanks for the good thoughts and good vibes. Glad you spent some time with your co workers. That's always nice, catching up can be fun. I am sorry to hear your skin is sore, is there anything that you can put on it, like that silver cream for burns? That helped me when I burned my hand badly. Almost there Mae, only three more days. I am amazed at how well you are sailing through this. So glad.
NKB~thank you for the suggestion for my mouth. I have to try something to ease up the pain. Not enjoyable. I have never seen a bonsai garden. Been to a big garden place before but they didn't have bonsai or I missed it. Sounds very peaceful to me. I hope your step brother enjoyed his time with you!! Nothing like lunch out with family. Someone close to me,. Just brought me over another tooth paste tonight. I'm going to look at the box. It doesn't have alcohol in it, or fluoride, but I need to check. I do like a sensitive toothpaste because my teeth can't handle coldness. Really is uncomfortable! Thanks again for the suggestions. Hope everyone has a good nights sleep ! Much love ~M~
Claudia~ you ok? Been a few days!! Hope your fall hasn't given you any problems. Hope you're doing ok.
Nan~ Glad the wedding was all you wanted it to be and much more. Can wait to see the photos!
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Micmel, when I use the magic mouthwash I put it on a q tip and apply directly to the sore area. It has helped me a lot. I had a couple of months there where I had some bad mouth ulcers but that seems to have passed.
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Micmel-So great that you got to talk to your brother tonight-what a close call he had.
When I started Ibrance my mouth got very sore so I started eating Greek yoghurt every day. I eat it with the meal that I take my Ibrance and it completely did the trick. Have you tried that? I am so paranoid about it that I eat yoghurt every day, even when I'm on my off week.
Sweet dreams to everyone.
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Good morning ladies ~. I am going to try some of those things for my mouth, thing is, this is my week off and I want to feel better, before I start again round #11, I would like it to heal because it will just start all over again and carry over month to month. So annoying, but I'll take it to continue to be stable and continue on This medicine that is working for me!!
I have seen such hooplah and actually madness over the upcoming month of October and it being breast cancer awareness month. I never really even gave too much thought on this topic before now. The whole pink for Boobies campaign for awareness is freaking people out, I can't say that I am a big fan of bringing attention To my boobs, and I have never liked the color pink, since the day I was diagnosed, but for Young girls, pink is everything. I don't like associating any color with sickness. But the money that's raised is important, so how do you raise money without some gimmick?. Time and time again. Year after year? I just never realized how that made so many people mad. I have to admit some of the advertising I have seen, does make you scratch your head some. What do you guys think ?
Much love ~M~
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Tanya~ welcome to our little place!! I know the feeling that love brings to you when you know you have your person. I can't imagine someone else loving him. He's my other half and my best friend. I am so envious that you have that many grand children. I am so hopeful that the medicines they have now, that I have a sliver of any hope of seeing a grand child. They must bring you such joy!! I can't even imagine how complete that would make my life! Although I certainly would never rush them to have that happen before they were really ready. That could be very bad. Especially for my son, it seems the boys are slower to mature. I wonder why that is? Could it have something to do with being a mamas boy? After 38 years of being married to one person , I am not sure that anyone could ever take your place. My DH is only 52 and he has already said , once you find that person, how can you even allow someone else to enter his heart, the entire process of building that trust and bond isn't something he wishes to even bother with. He said it's like one and done. Although, I would not want him to be lonely. It's such a hard topic. That still crushes me daily. Good thing for anti depressants! They are helping tremendously! Hope you'll come around and join us at the table here in our little pub. Anything that you need to say, vent , share, anything t all. We are here to listen. We have a nice group of wonderfully strong smart women!! You should fit right in. Hugs !!
Much love ~M~
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Good morning ladies! Tonga, it was so nice to read your story about you and your Dh, 30 years Wow! That is great! I completely understand that jealous feeling when you think of your Dh moving on after you are gone. I try very hard not to think about it, but I am very aware of the fact that he is only 56, so it could very well happen. Like you, I was concerned about the money, so I put everything I could into a trust for my grandchildren. My ds and dil are doing fine, so I wanted the money to go to our 2 grandsons. I can't even wrap my head around 16 grandchildren. Wow! How do you remember all their names and birthdays? I bet you have huge holiday gatherings at your house! Now that I would love! Glad to see you hear!
Micmel, so sorry to hear about your brother. Sending prayers your way. All seems to be healing from my fall. Like keetmom, just keeping busy with everyday life. We have a lot of little things that need to be taken care of before our trip.
Mae, glad you are handling read well!
Nan, the wedding?
Waving hi to everyone else!
Hugs and prayers everyone
Claudia
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Claudia~So glad that you're here! I was worried that your fall had some problem occur! I can understand getting ready for your trip, can be time consuming. But also exciting! You're amazing to think you'll be riding horses! I don't know if my bones could take it!! Did you tell your oncologist that you're taking a few weeks off? I know you mentioned you weren't sure if he would agree or not! I hope you have a blast and make some good memories, you are something else ! When will you be leaving? Just be safe! Hope the cleanup is officially complete!! Much love ~M~
I talked to Nan, she had a blast and her DD looked amazingly beautiful, she is going to be posting soon. She is recovering and having some blood, she's been non. Stop moving. But sounds happy and strong!!
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Micmel
All of my grandchildren are a gift and hold a special place in my heart. Five of them live across the street from us. After my daughters divorce they lived with us for two years. It was stressful for my husband but I enjoyed all the hustle bustle and noise of kids. Since they moved out last year my youngest granddaughter visits almost daily. Her twin brother follows sometimes to see if she is getting any goodies, of course I have goodies lol. I appreciate the love, concern and care.
I will try the Greek yogurt for the mouth sores. They just started this month and I've read a lot about them.
Any tips.
I was feeling really negative last night and feel much better this morning. I'm grateful for the group.
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So I go out to grab some lunch and I come back to my dog, standing over my pack of ibrance. He jumped up on the end cap of my entertainment center.
Luckily, this has been my week off, and they were empty. I certainly will be moving the location of the pills for the next months cycle. I am not sure if he thought they were food. I know they don't smell well. But I was worried for a Split second, that he ingested some of them, which I am sure would not be good thing for my dog! Having dogs is sometimes worse than the toddlers! Much love~M~
Mae~ watched American horror getting weirder and weirder. But I'm liking it. I like Evan Peters! He's crazy good! Not seeing too many returning people this season! I miss Jessica Lange she was the Diva, but I did see Emma Roberts in the previews!
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Tanya~ I know exactly how you feel. I have great days, and others I am hit with the reality and fears. I have made some close friends here and I know that somedays, this place has been my saving grace. Sharing stories, sharing anger, sharing good times and happy things that make our world go around. I can only imagine the feeling I would have seeing one of my grand children bopping up to our home!! I would love the chance to give them showers of love and memories. Having them live across the street would be something story books are made of. Once again. Welcome and glad you're here. Hugs ~M~
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Had lunch with one of my college roommates today, we came up with 6 people in our group of friends who have had cancer already, (we are 47) and this is in the people we still have contact with...blows me away..
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Keetmom~I sometimes wonder if it could be our food. Who knows what they do to it before we even have it reach the grocery stores. Or environmental? I am not a bad or heavy eater, and I was very physically fit when I was diagnosed. I can't imagine what else it could be, when it seems like so many people are effected. I am sorry that six friends are dealing with this. As we know, it's a roller coaster, that's why I want to live now, while I feel good! Just endless fatigue. Hope you had a good time with your classmate! Hugs ~M~
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Keetsmom- It does seem like so many people have cancer. My mom (who got esophageal cancer, and breast cancer) told me that no one in her family had ever gotten cancer before- her mom died at 94 and her dad at 98 without cancer. Where is it all coming from?
Many years ago there was a report saying that if we moved to an area with really low breast cancer rates and lived there a long time our breast cancer risk would be the same as theirs (low) if they moved from a low breast cancer country to ours and lived here a long time theirs would increase to our rate. That makes me think that it is environmental- but, what are the toxins?
I was at a party recently talking to a person I had never met (no one at this party knew I have cancer) we were talking about art-out of the blue she said "and everyone has cancer" Before I could think of a reply it was announced that the cake was ready. I don't know what I would have said, but, obviously everyone is noticing all this new cancer.
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I've been thinking a lot lately about pinktober. The month of October is SECC (State Employees Chartiable Campain) and each year my group makes and sells breakfast tacos with the profits going to the charity of our choice. We had an employee pass away earlier this year from lymphoma and I will be putting my still baldish head front and center to get the most money I can out of people, shameless in my pursuit of donations, lol. Haven't decided who the check will go to yet though.
Bigbhome, I don't recall a fall or a trip, sorry. Well, glad you're healing and have fun!
Tanya, welcome and yeah, 16 grandkids, wow!
Keetmom, that certainly sounds like a cancer cluster, wonder what the connection is.
Micmel, tonight is the Big Brother finale. I'm ready! Also, yes American Horror is on Tuesday this year (previously on Wednesday) but we watch it at my house on Sunday night.
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Well and we all had different kinds of cancer, 2 I don't know, 2 breast, 1 lymphoma (I think) and thyroid, the thyroid cancer sounds like she grew up in a cancer cluster, and all over years not all at once...still interesting, and there are people who we aren't in contact with anymore...
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I believe there is something to the food and environmental issues. It's just increasing too much. When I watch the traffic, that comes and goes In the cancer centers. It's like a deli counter. You line up waiting for a chair and sometimes you take a number. There are so many people who have cancer, and they are turning up younger and younger. There is really an increase of detections in women under 50, even as to say young women in their 20's. It's quite scary because now my DD has an increased risk just because I have it. No one in my family has really ever had cancer, my aunt had lung cancer , but she was never without a cigarette, and she died way too young. But that was it. Both sides, nothing. Just me and I Am the youngest of four kids, doesn't make sense none! Hugs ~M~
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Mae~ very sorry about your co worker, that is never easy, I think that whenever you can raise money for a good cause it should be done. Most times there is so many charities and donations wanted, the companies themselves have to keep the campaigns bigger and better Than the next, in order to keep them in the light and making sure they get the most donations and attention. I try not to pay attention to the hooplah. But I have had some wonderful people help me as well since I've been sick. I am very greatful for any awareness to metastatic breast cancer and how the struggle is difficult. Any little bit helps. I don't really like pink anyway. But I am not going to complain about fund raisers, if in anyway I would end up benefitting from it, I would be a hypocrite! Rest well. Big brother finale! Starting now! 2 hours ! Hope I make it. ~M~
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I Just got off the phone with my brother. I am amazed at the hospitals these days seriously. He had a major heart attack and three stents put in on Monday very early morning. They released him today. It's Wednesday!!! That's not even a full three days. They will just patch you up and send you walking with your new stents and all. I cannot imagine being in ICU on Monday and being released on Wednesday. To me that seems awfully rushed. Even scares me. I would think that they would be watching him a little longer to make sure that he remains stable, and or any signs of infection. He did mention rehabilitation starting in a little over a week, it's all just so fast to me. The good things is he's seeing a nutritionist next week. I was thinking that may be a good idea for myself. I would really like to understand more about a good diet. I am a bird eater. I really only eat two meals a day with one snack. But I would prefer smaller meals,ones that are healthy. More balanced. Let's say. But I am thankful that my brother is home. What a scary thing,. I could hear the fear in his voice. Life is so precious sleep well everyone ~M~
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had a wonderful time at the wedding.....it was a priceless day.....Ica keep needing blood transfusions, I've had 1-2 bags every week for over a month and double doses of procrit....anyone hear of that for so long?.... I'm so tired I can't type straight...
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Nan, your pictures are BEAUTIFUL!! Rest up now that it's all over, I can only imagine how tired you are.
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NAN~ my sweetheat❤️❤️!! Hi honey! Welcome home!I am beyond amazed at how beautiful those pictures are. She is so beautiful, her hair looks amazing. You did a wonderful job on her hair Mother!!!😊 Such a perfect bride and brides parents. You my love. Look amazing. That dress is elegant and a perfect choice for you. You really look fabulous! I can't believe she's a married woman now. So many wonderful memories made, so happy you got to experience such a milestone in her life, and for the proud parents. You and your DH, look soooo good together and happy........ maybe now that you're not constantly moving around and planning always running all about, And searching for your dress. Now maybe your need for transfusions will be less. I don't think your poor body had any chance to rest up at all. You were burning the candle at both ends. Your body was burning all of your energy before it had the time to store it up to make your body stronger. I know someone who has had quite a few transfusions and she does need them when her numbers get really low! How often do you have to have them.?You should really be resting after the past few months of craziness. I have missed you very much my friend. Love you very much as well !! Welcome home! Big hugs ~M~ I am sooo glad you're here!! Who is the little cutie pie in the pic with your DD? Precious!!
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Good Morning Lynn~ hope all is good in your world. I feel tired already and I just woke up!! It's a shower day. Another chance for me to see what I have become. I used to hate shower days before. I wish now I could just wash that long hair again 😞 Now it's curly and short. Who Is this person looking back at me?. I don't know. I am sorry you won't be able to make the breast cancer.org meeting on Tuesday, would be so nice to meet you, since you're local I hope everyone has a great day! All be safe! Hugs ~M~
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