My Husband, My Life, My Love, My Family, My Cancer

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  • keetmom
    keetmom Member Posts: 299

    Mich--yes there is sadness to it..but it was all around a good movie...any other suggestions of good "Family" movies...don't need  to be little kid movies but not scary or too sad or too raunchy


  • micmel
    micmel Member Posts: 10,057

    I enjoyed Pitch perfect, the singing is excellent but.... there are a few curse words although it is rated pg 13. I really enjoyed all of the pitch perfect movies! I didn't remember anything that was terribly inappropriate and overall would watch it again, recommend them both. If you haven't seen it. And of course high school musical. Hugs ~M~

  • micmel
    micmel Member Posts: 10,057

    NKB~ IT was very scary but very well done. I enjoyed the clown tremendously! My family went together 6 of us went and that to me is what it's really all about. I love seeing everyone together. The laughs the jokes. The closeness that is between our little blended family. couldnt ask for more. Of course I wouldn't ever want to have cancer. That would be the only thing i would need ! Yeah I have to watch my arm. Irritated already. I can see. Not sure what to do next about the estrangement with my sister. Her drama filled life, my not so drama life. Is why I never really missed her. She was never a happy person. Her kids except for one, had been in constant trouble and drugs. One of her daughters had a child born while being in jail. I was so saddened by that. The child she had in jail is now living with my sister, and my sister is raising her! She is 56 and is raising an elementary school child no more than 6?I have never seen her ever. I didn't want my kids around that type of life so I made the choice to keep the estrangement. My kids could have been subjected to that, just by being family. I can't say I regret the estrangement at all. My kids are doing well.

    Happy Sunday everyone!

    Mae~? American Horror night for you friend? Enjoy. Hope you had a good weekend! What's on the menu for the friends visit

    Claudia~ have you left already ? Miss your sweet self around! ❤️

    Nan~ love you !

    Chicago~Hope all is well with you and yours!

    Lynn~ sooo darn warm. Enough is enough!

    Hugs to all ~M~

  • illimae
    illimae Member Posts: 5,743

    Super cute pup Micmel, I'm watching Inferno, hadn't seen it before but I love tom hanks. Then I've got to get dinner ready for my Sunday night dinner and American Horror Story. I'm on wound duty too, I have some peeling skin and a big blister from radiation. A speedy recovery for all :)

  • blainejennifer
    blainejennifer Member Posts: 441

    Would it violate netiquette if I steal the "What Movie to Watch" idea, and start a new conversation about it? I've been trapped in the sofa for the past few days, and have run out of fun things to view.

    It would be lovely to have a TV/Movie section to refer to when casting about for something new, from trusted sources, who "get" it.

    For example, I don't think you guys would ever recommend "Y Tu Mama, Tambien". But my little brother did.

    Jennifer

  • micmel
    micmel Member Posts: 10,057

    Jennifer~Hi there and welcome ! I am officially enthralled in Game of Thrones,Shameless, Big little lies series. Breaking Bad, Hand maidens Tales, I know someone here mentioned a series called Preacher, (Mae I believe) On Amc I think. Not that totally sure though n the channel, am going To check it out soon. I saw IT this weekend and it was fabulous,honestly the best thriller horror I have seen in decades really because it seems all has been done! If you would like to start a new thread, Go for it! I started this one for family issues,relationship issues. Or basically any darn issue you feel like it. Just not always consumed with cancer talk. We all know why we are here. I want to hear about your happiness and things that make your world go around. That's what to me is most important! I am so sick of talking about cancer some days. I can't take it. When I come here. I get away from the side effects and all the medicine talk and unfortunate progress that we all inevitably face at one point or another! Hope you have an excellent Sunday night! On to Game of Thrones. I have no idea what the heck I'll watch when I am through. Yikes! Hugs ~M~

  • micmel
    micmel Member Posts: 10,057

    Mae~Sorry to hear about your blistering. Please take care of that. I wish that you didn't have that happen! But so glad you're finished. There are no words I am sure. What's on the menu tonight? I am not sure what I'll have,DH and DSS have left to go back down for work and school this week again. Next weekend DH has vacation from the 29 until like October 8th so I am thrilled. Can't wait. We plan do some day trips. A romantic picnic in the state park. A couple of drives in the country to see the little stands, they have crafts and fall decor items. I do enjoy fall! Enjoy American Horror, real good one! Hugs~M~

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107

    Micmel, I have a similar situation with my sister. When our father died 7 years ago, she pulled away from the family, stating she needed to grieve "her father" in private. I called her many times, begged her not to push us away but to no avail. The care of our mother was left to my brother and I. When I got my mets diagnosis, she left me a tearful voicemail professing her love and concern and wanting to see me. I cried when I heard it but it's too late, I did not respond. I guess she didn't want a living sister but she wants a dying one. Go figure. I tell or here's that I love her...from a distance. Too much water under the bridge and I dont need the drama. Just my opinion .

  • micmel
    micmel Member Posts: 10,057

    Lynn~I am seeing that more and more people do have an estranged family member, like NKB said. I just didn't realize how common it was. When I got a divorce, some of my family didn't like it I guess and chose him. They thought they would see my kids more if they were on his side, since I had decided I didn't need anyone to tell me how to live my life. I wasn't happy and that was just plain it. So in that process, I lost one sister, three nieces, a nephew, a brother, a step monster, and my real father. And some great nieces and nephews. I did put together an amazing family of my own and I'm never going to look back. When I got sick, they decided they were sorry, but my DH now, and my kids and my step son, my DH's family , my real mother and my oldest brother, who just had a heart attack didn't leave ny side......so like you said......water under the bridge. I was done! Have a great evening good to see you! Hugs ~M~

    I am sorry that happened to you too and I am sorry for the loss of your father.

  • Nan812
    Nan812 Member Posts: 224

    hello my friends....i'm worried and i need some support....i was due to start my 6th or 7th cycle of havalen on friday, i got 2 bags of blood instead....onc set me up for a bone marrow biopsy this thursday......WHAT???....

    family movies....this one might be fun just trying to find....i'm a huge bowie fan and one day when my DD was little we were at the video store (remember those) and she says "hey mom, isn't this the guy you like?"...sure enough Davids face on a movie called "Mr. Rice's Secret"....this is an after school special type movie but the story is just wonderful...my DD would have been in 3rd or 4th grade and she still remembers how much we enjoyed that movie together....i dont do sad or tear jerker movies so dont be put off when you find out that the little boy the movie centers around has cancer....its been a long time since i've seen it but as far as family movies go, its a fav

    so....anyone ever have to have a bone marrow biopsy before?....why does this sound so scary?

  • keetmom
    keetmom Member Posts: 299

    Go for it Jennifer! I need more ideas of what to watch...I watched old Modern Families this weekend..not sure why I didn't start watching sooner..

  • micmel
    micmel Member Posts: 10,057

    Nan~Hello love! Usually they order a bone marrow Biopsy, if your white and red blood cells are either too high or too low. I also believe if your platelets are also too low they order that specific test as well. I guess they are trying to figure out why You're needing so much blood to keep you at your stable numbers from blood work. I also know that test to rule out certain blood disorders. I know someone who was also having to have blood transfusions constantly, she was also tested for the bone narrow,. It turns out to just be neutropenia/serious anemia. That could be the route they are thinking with low neutrophils. You want to be able to make sure you have no complications if that is what's going on. It'd be better to know that. Than To not know. I also think you need a lot of rest,. You have been on over drive for a while now. It time for a serious break and get some extra rest. It can only help. Also,. Make sure you ask your doctor. make sure he DOES answer every question possible that you may have, write them down!! I hope you get the information you need. I'll be sending good thoughts. Big hugs ~M~

  • illimae
    illimae Member Posts: 5,743

    Speaking of Bowie and movies, it's hard to find but I remember loving the Linguini Incident many, many years ago.

    Micmel, dinner was penne with an alfredo and turkey meatballs with Parmesan zucchini sticks and ciabatta garlic bread.

  • nkb
    nkb Member Posts: 1,561

    Nan- I had one in early June. It's how my bone mets and bone marrow mets were diagnosed. It's a quick way to find out what the marrow is up to instead of trying to guess why it is not making enough cells. You usually lie on your stomach, they numb up the upper hip area and stick a needle in -to get bone and to get aspirant if they can. (the liquidy stuff) I did not feel pain really, but, lots of pressure. It was hard for him to do because I had already had a lot of Zometa infusions over the last 3 years which made my bones so hard. The area was sore for several days afterwards.

    Occationally they do it in your sternum instead.

  • micmel
    micmel Member Posts: 10,057

    Keetmom~ Great show! Always worth a good laugh. I have watched that show for years, really good series. Like everyone on it. A good funny sitcom I love is called Playing House,I think it might be TBS. really good show about two High school friends that end up living together because one of them gets pregnant and divorced, and other one comes back from a career, to help her best friend take care of the baby and moves in with her, because the divorce is not far away from being done. They catch the friends DH skyping with a Russian pay me for phone sex woman, and during her baby shower, then run a"when you were young video" for the mom to be as a sweet thoughtful gift from her brother and best friend, and the wireless starts interfering and showing her DH in a compromising conversation and action with this Russian person from the basement There is no nudity or anything but the insinuation is clear It's a very funny comedy. I enjoy that one as well! of course Funniest Home videos my kids used to watch those for hours. I also laughed a lot. I am going to keep thinking! Have a good night. Sleep well ladies. Hugs ~M~

  • micmel
    micmel Member Posts: 10,057

    Mae~ sounds like someone likes to cook! I have to admit, the cook in my house is my DH, he is fabulous. That sounds delicious also. I hope you had another great night with your friends. You must be exhausted after hosting the dinner every week and still having to finish your radiation this week! At least that is done! Loved David Bowie, but never heard of those. Gotta see what you mean ! Have a great sleep. Hugs ~M~

  • micmel
    micmel Member Posts: 10,057

    NKB~ did they suggest you have one because your counts were low.? I don't know a whole lot about that. I thought that is what it sounded like to me. Is this an outpatient procedure? .......My sister wants to take me to lunch next Friday. I don't know what I would possibly say. I am just going to listen and make sure she understands I think she's a jerk. Jk. Lol well almost.

    Nan~ hope you're able to get that done and over with soon. I'll be thinking of you as usual! Hopefully you're just over exhausted,l. But I know you have been over tired lately. Hopefully it's one test and done other Than dealing with Any other tests.

    Sleep well ladies, good night ! ~M~

    Another week no doctors appointments! I'll take it. Do you ladies who have a port, have them flushed regularly? I'm just wondering. Because they won't be accessing mine for three months. Didn't know if that was ok or not

  • nkb
    nkb Member Posts: 1,561

    Micmel- I was getting shortness of breath with exercise otherwise felt fine. I did a CBC to look for anemia and I was very anemic (which could be due to low iron, or B12 or many other happy reasons) but, my white count was a tiny bit low and the platelets were slightly off and my MO said- I'll do a bunch of blood tests for those happy causes, but, since 3 cell lines are low I suspect something else. She said she could go on and on with the blood tests ruling out this and that, but, a bone marrow will give us the answer right away. And it did. I have breast cancer in the bone marrow which crowds out the marrow so it can't make cells well. The Ibrance is working very well on it though and I am getting less anemic! (7.5-->9.6) not normal, but improved.

    I like project runway-so now you see where my taste is!

  • nkb
    nkb Member Posts: 1,561

    Yes, outpatient procedure- probably takes 20 minutes total, stay dressed for the most part.

  • micmel
    micmel Member Posts: 10,057

    NKB~I am sorry, I didn't know that you had gone through all of that! That really is something. I didn't realize that you could get breast cancer in your bone marrow. This beast never stops does it? Seems like such a procedure to have as an out patient! But then again my brother had a massive heart attack on Monday And they discharged him almost three full days later, I guess they just do whatever they can to make you leave asap. Due to infection and etc.. when I had my liver resection, I was supposed to be in the ICU for a week. When I woke up, I was in a regular room. Which for me was excellent, but after having my liver cut and my mastectomy at the Same time. I woke up as a different person. It was a terrible surgery, took forever to even feel half decent. And now my stomach looks like a roadmap and it still feels really weird whenever it's touched. I just plain hate cancer and what it does to the people I love and care about. I wish it would just cease to exist. They need to figure this crap out. AIDS once took many lives. Now they have medicine to take to keep it stable, you don't hear of as many people dying from that anymore, but cancer kills thousands and thousands every year. It's time for a change and a chance. To live. We deserve it.

    Hugs to you strong woman. Never saw project runway! But love reality shows! ~M~

  • micmel
    micmel Member Posts: 10,057

    image....... please make no mistake. That is not me. lol though Monday's are not my thing. Usually I am missing my DH Terribly! But I am sure all of us have a little bit of this Monday beauty in us! Lmao! Hugs my friends. ~M~

  • nkb
    nkb Member Posts: 1,561

    Micmel-Liver resection is much worse that a bone marrow biopsy! I thought that the double mastectomy was no piece of cake either.

    I do think that they will turn breast cancer into a chronic disease like high blood pressure or something or be able to cure it completely some day. Just hope it is sooner rather than later.

    Making a baby quilt for DD1 and going to work on that today and a long walk. it is a beautiful sunny day here-happy Monday everyone else.

  • tanya_djamila
    tanya_djamila Member Posts: 1,542

    My dear friends husband has remarried. He was so attentive, kind and loving to my friend as she battled like a beast for a life with him and her son. It was not to be and she left this world young, with an orphaned son. I knew her for four years and the entire time she was ill, in her twenties, breastless and beautiful. I miss her but I'm sure not as much as her mother, siblings, husband; son.

    He was smiling in the face of a young woman. His eyes did not have the pain and concern anymore. They looked hopeful for a future with this new love. I am content that his son will have a mother again. I see their needs fulfilled and with a pang in my heart I say congratulations.



  • micmel
    micmel Member Posts: 10,057

    NKB~I wish I knew how to make a quilt. I would love to be able to give my kids something like that for their kids to have just in case my breast cancer starts to wake up again. Every day I wonder. I started round 11 on Saturday, the longer I am on it, I feel both ways, happy because it's working so good, but scared because I do read a lot that it just stops working for some. My palliative care doctor also told me they have two women in the practice, one is 47 months out on ibrance and the other is 42 months out. I would feel thrilled with that. I also know I'm feeling a little out there because I am used to monthly blood work and XGeva shots. But last visit with onc, he said don't need blood work for three months or XGeva. Your levels are steady and have been for a year! You have no measurable disease. I was thrilled. But. I know that by getting monthly blood work helped me stayed grounded and not slip into a dark hole. I have to scan in November. And to be honest. I am already feeling the scanxiety with every click of a day done on the calendar! Very scary feeling always hanging over my head. Sigh. Hate it. Enjoy your quilting time. Be safe on your Monday! Hugs.

    Tanya~ it's ok to feel happy for people who find love again. If I am honest, I know that someone as wonderful as my DH will be scooped up by a woman in a second. If he wants that. He will know. Our love, that we have is what story books are made of. We are close and I love him more than I've ever known. He is a very much a loner. He isn't close with anyone but our little blended family together. We are each others best friend. I catch him crying, he cries when the movie is about losing a spouse or someone in love looses another. It hits him hard. I see it in his eyes. It won't be a quick thing, this I know. He still hopes I will outlive him, so he doesn't get to miss me. He wants to go together. I am his , he is mine. If I should go first. I wouldn't want him alone. I won't haunt him if he does find someone worth his time. If she isn't. However, then i ay consider a good haunting. 😉 Have a great day and welcome back!! ~M~

  • nkb
    nkb Member Posts: 1,561

    Micmel- I knew how to sew already, but, hadn't in years. A friend of mine who quilts a lot-her DH died suddenly and I wanted to have a project together with her to stay extra connected. I just stumbled along and got her advice and it has been fun.

    On the subject of worrying about cancer- it is stupid for me to say this- but, if someone had told me hey you are going to have 4 years without problems- I would have worried a lot less. We did travel a lot and try to act normal-but, it was on my mind daily and made me feel less valid. I actually feel less worried now-maybe because the other shoe has and dropped and so far not too bad. I'm not as young as you though. Also-this may not be meaningful-but, I think of people who have it worse than me and decide I am fine. My MO kept saying go out and live your life-but, I don't think I understood it until now. My first MO said "everyone has a cloud over their head-yours is just bigger".

  • micmel
    micmel Member Posts: 10,057

    NKB~ I try not to worry but the reality scares me. I am 47 and don't want to go any where away from my sweet DH. He's my world. Plus my kids as well. I adore my family, as we all do of course. All of this cancer crap, came out of now where for me. The day I was diagnosed I ran 6.5 miles and I lifted weights at least three times a week, ran at least 4 miles a day if not more, four times a week! I was nick named tank. Not a large bmi at all. Then all of a sudden I was extremely exhausted and felt like I could never get rested. Then came the diagnosis. I was also having upper respiratory infections every 8 weeks or pneumonia, bronchitis, sinus, etc. for over two years. We thought it was because of my breathing on one lung! But it wasn't. It was breast cancer. I went in on a Wednesday for a mammogram,got pulled from the mammogram, directly into an ultra sound, ushered into an office saying oh we need an immediate biopsy. We are very concerned,we should do the biopsy like right now. Come this way. I knew that moment, my life would change forever. I knew I had it. When they kneel down to talk to you, you know youre doomed. I had the results less than twenty for hours later. I thinks it's because they knew. It was rushed through he told me. Then he told me, it was confirmed. The gates of hell had opened.

    I just hope that something comes along to help us all walk away from having cancer. It's exhausting living with cancer. Mentally is paralyzingly at times! I hope everyone is having a good day. Hugs and good thoughts ~M~

  • micmel
    micmel Member Posts: 10,057

    I was just looking at the number of postings for each individual member of BCO. I wonder how many posts you have to post in order for the number to rise?. My number has been at 1105 for at east 9 or ten posts now. I just wondere if anyone knew when it goes up? Like maybe twenty? Or even more? I just never noticed it before. I thought it went Up per post. Shows you how observant i was lol hugs ~M~

  • micmel
    micmel Member Posts: 10,057

    Now I just looked at it again and it says 1106, but I am sure there are 9 or ten posts that all had the same number of 1105. Weird. It doesn't tick up per post you post here. Just interests me.

    The movie it was fabulous, my kids are still mentioning it. I sent my DD this picture saying goodnight my dear. Ha ha ha ha ha lol

    image

  • illimae
    illimae Member Posts: 5,743

    Micmel, now I'm watching too, I wonder when it will make the jump from 1106, curious.....

    Glad you enjoyed the movie, I may see it but was very disappointed with the original, that spider thing was so cheesy and laughable, I felt like I had wasted my time. Hopefully, that's not the case now.

  • micmel
    micmel Member Posts: 10,057

    Mae~No cheesy spider in this one!! It was honestly awesome and my DD and her boy friend, went two times to see it, that's how much they enjoyed it. Nothing like the mini series that was ran on tv in the early nineties! This clown is actually creepy and the kids are great in the movie. Actually funny even. You immediately start to root for the kids. I recommend seeing it!!!

    Now my counter has gone up again to 1107. Last night it said first 1105 for about 9 posts. Now this morning I see it now says 1107. Before I went to bed, it had 1106. I am going to ask today, at the BCO testing user session today that I am going to in a few hours. I'm going to ask a few questions about the functions of the website! I hope you enjoyed your American Horror Story!!! I did !

    Hugs to you Mae! ~M~

    Now it says 1108. lol I don't get it !!